Registered charity number.. 1201926 NORTH STAFFS AND SOUTH CHESHIRE KIDNEY PATIENTS ASSOCIATION TRUSTEES REPORT AND FINANCIAL STATEMENTS FOR THE PERIOD ENDED 31ST DECEMBER 2023 Howsons Chartered Ac￿untants Winton House Stoke Road Stoke on Trent Siaffordshlre ST4 2RW NORTH STAFFS AND soirfH CHESHIRE KIDNEY PATIENTS ASSOCIATION TRUSTEES ANNUAL REPORT FOR THE PERIOD ENDED 31ST DECEMBER 2023 The Trustees have pleasure in presenling th￿r annual reFQrt tC#3ether with the accounts for the peric ended 31 De¢ember2023. R•f•ronco and admlnl¥tradon d¢talls The ¢horfty w1stroti￿ number Is 1201928. The charity's principal address is 24 Avtsn Drive. Congleton, Cheshbre. CW12 3RG. The namas of th8 charity Tmslees Ytho manage the charlty arB detalled below.. David Karby Ltrsloy Lbyd Judith Newcombe Neil Garbett Loulse Collins Euni* Finnay Lisa Fol Chairpgrson & Treasurer lappolnt&J 26 January 20231 {appOint￿ 26 January 20231 {appolnted 26 January 20231 {appointed 26 January 20231 {appolnted 28 January 20231 {appolnted 26 January 20231 {app)inted 22 January 20241 Stsfford r•pms•ntative Vlce Chalr & Stoke repreSentat￿e Secretary & Lelghton representative The bankers are HSBC. Corwn Bank. Hanley. Stoke on Tren( Slaffordshire. ST1 1 DA. The Independent Examiners arB Howsons (Stoke) Limried, Wlntcn Hou88, Stoke Road, Stoke on Tren( s￿ff￿d8hIr8, ST4 2RW. Introductlon The ¢harlty was orfgknally set up in 1982 as the North Staff8 Kidney Patiènts Association. In Cfd￿ to better repr8sent th8 area covered by the charfty the name Was changed lo North Staffs and Soulh Cheshire Kidney Patients INSSCKPA) In 2021. The ￿rrent chorlty was changed from a foundatton ty charfty to a Charftable Incorporetsd Organisath)n In February 2023. All funds wwe transferred to th8 new charity on 26 February 2023. Con$titutlon The charity 18 govemed ty C(￿811tUt10n. The charfty Is set up as a Charttable Ir￿orporOted Organls8d wlth only the Trustees Ihat can vole. Management The ¢h8rfty 1$ manage19 opldomlc ￿mMUnICo1￿0￿ wf(h pallents, carers and the pU￿[C In gen9ral has bggn dwficult ond 2023 hos been a yeor of tying to reaestabllsh that contacL That work has induded the review and overhaul of (yjr website, still ongoing al this time, reviw and update of our Facebouk site and reaching wjreement th& UNHMT to allow us to hav8 nolceboards at all three kldney un￿s. At PT9sgnl only lh8 Stafford notice board5 are in place an¢J functionirhi. - Patlertt ¢hrlstmas glfts In dlscusslon ￿￿th the Renal Mana9amant Team. It wa$ agrefyl acceptable Ihat the NSSCKPA coukl provide a small gift for both patlents and slaff al all three units manag&J by the UHNMT. Th838 were pnJvSded and distributed bef(￿ Christmas 2023. Pollcl•s Thor8 arè currently in ￿0¢? poli¢i8s cov9ring the fdlowlng.. - GDPR - Salgguarding. - Social Media, and - Prfvacy Dojicv. P•rformanc• - Renal g0￿man¢9 mootlng This is an NHS m&g1ing usgd by tho trust to manage the runnlng of the three unlts covered al Stoke ¢)n Tront. Stsfford and Crewe. Thls is a regular mnlhly meeting al whi¢h thè NSSCKPA can raise issues of concem and monitor pr(KJrèss of r•solut￿n. Onè such issue invofved Doppler Te8tirvJ at Stafford. At onè point, this work vrds dong by stsff hdding testing sessions for staffe￿ patients al the County Hospitsl in Stafford. Wth no prtrwaming. all at on¢e patlents were advised Ihal they must go to Stoke on Trent lo get tested. Th13 Involved pallenls In round trip of hours to get a te31 rather than a few minutes it had tAken pravlously. The NSSCKPA lobbled to get the tests back to be based at Stafford, but only once staff had been recruitsd. We often receive ￿Uests from nursing staff at the hosplta13 for asSIstsn￿ on behalf of patSenls and aL80 on occasion to help wlth treatrn8nt at the kldney units. During the year, this has taken thg form of the followi￿￿. . Blood pressure monitors for home therapy patlents, - A Stsirffft for a pati6nt. no I0￿jer al￿0 10 991 upstalrs at h￿e. - Christmas gtfts for stsff and p8tiènts, and - Oulslde Storage ¢ontsin¢r for di¥lysi$ fluid$. NORTH STAFFS AND SOUTH CHESHIRE KIDNEY PATIENTS ASSOCIATION TRUSTEES ANNUAL REPORT (contSnued) FOR THE PERIOD ENDED 31ST DECEMBER 2023 None of the three kKlney ￿113 Fun by the UHNfvff have re￿dent Wothws as p•rt of the Staff conWemenL Th18 Is somelhiTr3 we bdl¢ve would benefft pa￿ents, mentsl heaHh and 0$ aud) hove cwnpaigned lo gel thi8 changed. However. unforfunaldy Ihe UHNMT are restricted on sloff l¥Jd￿ lo nDt bgirvj abl? to 5￿jr9 Ihis seNc*. PJs0, our f￿d$ do nol strBlch lo us ornpknyhg somoono lo (ki thts k)b. FSnandal r•vl•w Durir*J yew the tharity re¢slv¢d £6.489 from &xal¥)M tr¢m patients that had p￿d on arttl InYè$lmént of £685. ExFwdNuro was £2.528. no hardsNp ganls belng Issu9d In the yoor. The CIO is cJJirenlty utilising the bank wLryJnt ol the originel charity 8￿ClaIM)n. Al 8#xd5 wer8 transferred on 26 February 2023, the bank baL7nce was £57.417 on this date. Tho offitha bank tran¥fer to th• r￿* b￿k ￿e￿jnt wll Wyen later in the ￿ar. The ortgtnal bank acts)unt (¥mtlnu•$ to ¢por•l¢ In th8 chafTrty nam ReBeryes at 31 De[￿b￿r 2023 were £82,063. Suwus in tho yp8r waB £4,846. Th& ASS￿￿010￿.S reseryes PG4* Is to Invesi any ￿1p￿J$ funds In a hlgh krteyesi bank at£ovnt in offlgr to maximiso inthsL Th? NSSCKPA 16 fvndo<1 •rtUrdy by vduntsry e4)ntsibudm. Futurp D•vdopmwnts Our (*iectlve as stated In Ih16 reFKYt TgmalnB unchanged and wo Intend lo c4)rrtlnu• to pursu& all a5[￿ts of the wo￿1 of kidney rarg where we feel we makg an impact. ￿rre￿IlY ￿ seo that th• foliwng issues will b8 progres8èd lurlher In thè ¢onwng ￿1.. - To 99ttr￿ patient vdce heard al ail levals in the UHNln. pafdcularty at 8oardl CEO lev - ComF4èle thè w*bstt• update and fjrwse pationt Invdvtsment with the NSSCKP - ComF4ete noloceboard Insiallaiion ot ihe Crewe and SIDke on Trent unlts. - R¢x4ve as far as wg are ablo to resdve Issu9$ Wtth paO8nt transport vAth lh8 local ICB - lrnprove the int8raclion betw￿ PBfjents, c8rern, the NSSCKPA and hostmtsl staff and rnan￿erS to ty to croale a cohesNe team worklng dosely together to the pabenl benef Th• tru8t•e8 d8d8re that they ha￿ 8pwo¥ed the tW81e88' reFK)rt above. &'gn&a on behaff of thè clwrity's trustses: David K•rby Cheirpwson IND&OENDEKf EXAMINER'S REPORT TO THE TRUSTEES OF NORTH STAFFS AND SOUTH CHESHIRE KIDNEY PATIENTS ASSOCIATION ICHAFIITY NO 1201926) FOR THE PERIOD ENDED 31ST DECEMBER 2023 l rnport on the attoched oc¢ounts of the Trust for th• park)d 8nded 31 D8cAmb8r 2023 sat out on p8ge 4. R•$p•dl¥o T•￿On¥1b1llIl•S of lyu9t••o and &Yarnlnor The charity's trustees are responsible for the preparntion of the aC￿u￿t5. The ehlrity's trLth$ u)nsid8r that an audit is not requifyd for thls ye8r un(ler section 144 of the Charilie8 Act 2011 {the 2011 Act) and that an Indepèn¢Y•nt •xamination i8 needed. It Is my responslbllty io-. exomlne the 8cc¥Junts Un￿ ￿lI)n 145 oflhe 2011 Ad,. to follow th8 procèdures lald dovm In the General Dlreeuons glven by the Ch8dty CommB8KJner und sect￿n 145t5Xbl of tho 2011 Art,. #nd to stste whether partkular matters have come to my attenlon. Ba815 of indop•nd•nt •x*mln•fs #tAt•mènt My 8X8rn1nallon was carnled out h aceorrlance ¥￿th G8n8r81 Di￿tkInS g1¥￿ by th• ChBrity eornmlssbn. An examlnatlon Indud8s a r8vlew of the aw)un16ng records kept by the thadty and a comparison ol the ￿coUnts p￿ented V¢ith those records. It also ]nd￿je9 considerabon of any unusual items or disdosur85 in the 8ccounts. and the seekn'ng of oxp18natitsns frorn you as tnJsts8s ¢oncerning any Such matter5. The procedure6 undertakw do not provide all tho evtilence that wvuld be wuired in an audK and o)nsequently no opin¢on Is given as to whether the aeeounts pr•sènt a'true and fair and thtr report is limited to thosè mattèts sot out in thg ¥tslemeDt below. In the ￿Urse of my exarninalion, no rnatt8r has come to my 8ttention'. Ic* glves me reason#￿￿ cause to beI￿ve that. In ￿Y materfal r￿p￿t. tha truste￿ have not met t requlrements to ensure thal.. proper aco)untlng r￿OrdS are kept In a￿OrdanCe wth sectSon 130 ofthe 2011 Art. an Junts are prepar8d whlch agreè wlth thè ae(mntlng and comply %%th the COUnU￿ requlrements of the 2031 Act.. or to whlch, In my oplnlon, attentlon shwld b& drawn In order to enabK8 a proper understandlng of the 8c