Downright Perfect Down's Syndrome Communlty Group TRUSTEES ANNUAL REPORT From 2 NOVEMBER 2022 to 31 MARCH 2024 Contents Charil Details...........................-........................................................................................................... Structu Gov nce and Man emen Ch ritable ob. Public 8enefrt Slatement..................................................................................................................... Achi vemenls and Futu Paren rt.. Hos Parent Su Paren Infomiation sessions & Peer Su rt.. Counsdlin Events.. Pre-sc Worksho lers & Saturd Cl nt3= D tri s.................-............................................................................................................. Events.. Fri nds & Fami mmun ement & romotin inclus*)n.' Education & Wider Commun ion: Medical.......................................................... ncigl Grants.................................................................................. ment Grou mmun emen romotin orti Develo ment: Ea Financial R Polic Declaralion............................................................................................................................................. ANN X: FEEDBACK...-....................................................................................................................... X.. STRUCTURE...................................................................................................................... 15 ANN Charity Details Charity Name: Ocwnrighl Perfect Registergd charity number. 1200893 R•gistsrèd office: 38 Russel Road. Boumemouth. DcKset. BH10 7HD Bankgffs: CwFtrative Busiress Bank Structure, GoVe[nan￿ and Management Dcwnright Perfect wa$ registered as an unIn￿rated a$S￿la￿.0￿ in 2014 registered under number 1159214. An applIcat￿)n was made to convert the Ch8rFty to a CIO Foundation and on 2 November 2022 a rwi charity numt*r 1200893 was registered. it ts govemed by a Conststution. On 5 April 2023 the assets of charty 1159214 ¥bwe transfened to new CIO number 12(K1893. The accounting period for the okl charity, 1159214. ran frryn 28 Juty to 27 July. The accounting period fr)r the new charity, 1200893. fun$ from l Awl to 31 Marcth. The first chanty trustees were aFvointed to the CIO upon rts re￿￿'on as follw8.' Emma Louise Cross for 4 years Glllian Mary Clark for 3 y&*ar5 Patience Margaret Saunders for 2 years Marianne Mackenzie-Brown for 2 years Angela mackenz1￿8rOWft 1 ythqr On 15th and 16th May A Mackenzi&Brv*n and M MackenzE-Brown Tespectlvety resigned a$ trustees and on 31 May 2023 Clalre Oakley was Op￿nted as a trustse. In accordance with clause 10 of the Conslrtution, Claire'$ 8ppointmènt was made by re$olubon at a trustee meeting on 31* May 2023. clai￿ was approached lo become a trustee folb*ing her exwessing a gerernl Inte￿51 in the actwitses ofthe Charity anij In of the skills and kn￿￿ledge shè has a paediatnc nurse and as a CQC hospital inspector. Claire was provided wth introductory documents incI￿ling the ConststLrtK)n, past minutes and the ch8nty's poliGie8 as well as the Chaiity ComThMssMM'g trustee guKlance document$. The bo¥d meets as and when required during the year lyjt ecrfnmunicates regularfy electronically lo di8CU8s matters beh¥een meth"ngS. All of the Irustegs gNe their volunt•rily and none received ary benefft other than that ¥vhth any other beneficiary would receive. Ak)rrfJsKle th6 tru$lees the Charity has day to day support from voltsnleer, K¥lherine Clark Sevilha. who act$ as the Charibes Cl8rk lo Trustee$ assisting all matter8 including administralion. The Chanty has algo tyjilt up a team of volunleers who a￿81 al events and a volunteer who makes baby blankets lor our Pwent Hosprtal P¥ks. an the ￿1rrent trugtees took over the Chanty11159214) in May 2022, the Charity had be￿rne fairly actlve and the p￿¥SOU$ trustees ha¢J proposed lo ckjse it. As such, tr* Cuf￿nI trustees essenllally started from scratch and continue to exF4ore drferent types of $UPF*Nt and acts"vilies lo establish the best means of achieving tt)è Chwty's obieclNes. The tnjstees a￿ ¢onb'nuou$ly seeking input from its beneficiaries to help in their decision making and have done thrs through seeking feedback and ideas in different fom7ats such as social media. evaluation fomis arKI general thscus&on at event$ such as the regular Pre-schoolers groups. The trustees ￿M8￿ Ilexible in their planning and have adjusted the focus of the￿ efforts thrO￿JhOul the Fefitid as the needs of the Chairty'5 beneficial￿S have become apparent. An example of this is the development of parenvcarer onty events a$ Ihe need for parents to build relationships with eath other in an ￿vironMent where they Y￿re not also caring for thek chtldren became apparent. Charitable objectives The obi'ect of the CIO is to relieve the Charitab￿ needs of chikJ￿n and young pèwe with Down's Syndrome and their families and in D￿Se1 ar￿ the surr(yJThJing aws by the provisK>n of, bLrt not limrted to, advice and support. recrealional aThJ sctia events and facilitaling access to therapies and resources. Public Benefrt Statement In considering its Strategy, awns and objecti'ves. Do5￿￿g￿l Perfec*$ tntstees have paAI due regard to the Charity Commission's general guidance on Pubtic Benefft. The trustees are satisfied that through its primary activities the charity provides iden11fia￿e benefits consistentwrth tts charrtable objects. The trustees do not ￿ns￿ler that these act[v￿"eS any H1enlifiat)le deln.ment or hami. The twgte*8 are satisfied that any private benefft ts ir￿Iderrtah to its wknlic benth actp4ty. Aims Downright Perfecl's sim 1$ to 5UPWt chihjren and yLWThJ peop* 7Mth L)own's Syndrome and tr*&ir families in Dorset and surrourklin9 area$. As our understanding of the needs ofour membeTS hag grv*n. the trustee$ have developed a $tru¢ture to maintsin focus on the areas ofsupportlhe Charity has idenbf*d and agree(J to support. This Str￿tUre has also helped us lo identsfy where our ILKU¥ for streng￿1ng our support should be. A copy of our structur• can be found ?1 Annex A. Achievements and Future Plans Parent Support. Hospital Packs This year 20 hosprtal pack$, which provide key inf0m￿tion to parert3 and Intrtrluce them to the Chanty. have been pKovKJed to matemty units in Dorchester, Pth)k and Southampton hospitals. The hospitals have agreed lo dislnbute the pa¢k$ wè have had a commth)ent from Univefsty Hospitals Dctset in this regard Over the next year. with the TO￿ crtrt of training at UHO, we hope* that we will be able to make further progTess wlh getting engagement from other hospitals lo ensure that all stsff are awa￿ of the packs. Parent Support.. Infomiation sessions & Peer Support Workshops Introduced this year, we have hdd an in person session on Ed￿atrt￿, Care and Hearthcare plans presented by The Rainbow Centre and attended by 15 parents and ￿ online session on early intervention al￿ SLtpport presented by Downs Syndrome Education International attended by 48 parentslprofessionals. We saw benefft in both face to face and online trainng wrth online training meaning that education professthals *thing th the ¥eth'NJ$ our members attend couhj join and hear the same infomiation as parents. In March 2024 we r8n ourfirgt parent onty peer SUPF4Yt evening which took place in a ceramic painting afé. It was atterKled by 12 parenlslcarefs and wovthd an opportunty for attendees to talk, connect an¢1 seek advKe in a calm environment when they Mere not also caring their children. This particular eventworked well wrth many attenth'ng asklng wh8n Ihg r*xt one wil be and those who could not attend exkyessing interest. After th¢ SUCC￿ of our first parent onty peer suppori wotk3lK)p. th15 year we wlll be runnry another ceramic paintlrKJ ￿enIng and wll discus$ parents ￿eaS for other parent only events they would Ilke us lo organise. We will contsnue lo be alert to loptcs on which parentg would Itke trainww and look at ways we can provfjde the same induding, tmrt not limited to, &gnak#)g training we have already had requests Parent Support Counselling Grants During the cOu￿e of this year, the need for formal counselling supwt for parents has become increa*ngly apparent. The ￿artj￿ts for sthices through the NHS are extensNe and the cost of private therapy is prohibitive for most. Accordingty, we have launched a iyogramme of grants to assist wrth the costs of accessing ¢wnselling. A grant from Ci>op C(4nmunty Grants has been received for this purpose and is treated a$ restnthd fijrth. Events.. Pre-schoolers & Saturday Club Our Pr&Schooler5 groups are a fundamental part of the sefvices Downright Perfed provths creating opportunities for parent peer support, commullty building and children to benèfft from playing with each other is a safe and judgement free environment. Attendance at our groups varies bett+￿en 6 to 15 children including siblings and nKJsI atte￿1 regiJL4rfy. We have run 21 Pre-schoolers Sess￿￿5 in this period113 from Apnl 2023 to March 20241 and 6 Saturday Club sessions. This year we have worked hard to together themès for the sessions to gnsure that those attending get the most out of the groups and to keep Ihem engaging. These themes have be8n carefulty put together based on the ages of the children who attend and the drffththes that our members enwunter. We have also tsken our Prfrschoolers on the road wth Sess￿￿$ held al the Dawd Lloyd Club in Poole to U8e their softplay and also to Music for a sensory music sessions. These sessions have taken ace in the aftemoons so that those t*ho cannot attend the nomial moming sessions have the opportunity lo loin in. During the yearwe re￿Ned feedback that there were a number of parents who would like to attend but are not available on Mondays when ￿ sessions tske pl￿. The trustees have therefore introduced termty Saturday Club seswcffis often w*h inwrt frcrfn professionals prowdrrwJ and movement. We ￿an to conb.nue to run these sessi¢Jns staying alert to the nfjed3 of those attending and adapt the 8essions ac￿rd1ngty. For example. the cJJrrent cohort of children are slar*"ng to engage more with imaginative play whKh is a key develoF¥nenl Step and we wll therefore be lookng at purchasing more roleplay based resources for use in group$. Events.. Day trips During this year we have introduced day trips whKh have kncl(hJed 3 trips to a lo￿1 comrnur¥ty farm. 2 exclusive use swimming and soft pky sessions and a 'GTrnd Day Out, lo Adventure Wonderland. These sessions nomally lake place (lurlng schrA￿ holiday$ andlor at weekends so that more people ¢an atte1￿ including Dads who we a￿ finding attend s￿rt[r￿andY lès$ than Mums. These days OLrt are intended to create cworlunrtles whth are members mgy not otheNise have or struggle wrth. For example, by hinng out a swimming ￿￿>01 for excluSNe use. we can limrt the numbers in attendance to reduce the noise and cre*e a I￿gement free safe spxe. Next year we will continue lo explo￿ dtherenl types of events as we learn whit works best for our members. We wll also repeat the events that we have tjone previ(Ntsty that have wthed well a8 we knthy that familiar venues and 8el ups are benefic¢al to our ￿Mbers. Events: Friends & Family We believ* that it is important lo Invdve whjer family and friends in our events where p)ssible. We are aware of $ilu4lion$ where the child's dKqgnosis has rK)t been widely wled w4thin the wider famity and where issues afound language and Understand1r￿ of D(Mn'5 Syndrome has caused problems in families or friendship$. It is our intenlion that by inviling wider family members and fvends to attend Some of our events rt wlll help pr￿n0t¢ I￿luSIon a￿j ￿ljersta￿anY across all of the •Jults and olher children in their lives. In th1$ perifx4 we have held 2 Christmas parties and 2 parties to celebrate World Down's Syndrome Ithese are annual events but 2 have fallen within this period due to the extended accountsng period). Trustee8 irttend to revie* the regulanty of due to the amount of time these events taka lo organise but ￿11 to continue to organise at least one event a year which is open to wdei family and friend8. Community Engagement & promoting indus1￿". Education & INder Community Befo￿ the stsrt of the Autumn s¢hooJ term in 2023 we kiunched a 'School BLK*k Pack, project which involved our member3 nomin8tsTr9 their child's schwl to receive a pack of ficI￿n lkn)ks whKh feaiufe characters wrth DfY•vn's Syndrome. The aim ofthis woject W83 to ensure that there are books available in all of our members classr(￿m$ wth charactws like them and to provhle teachers wilh a basis on which to discuss Down's Syndrome other pupils. Wth the pad( we also provhled ￿llets on the importance of using the correct language around D{14￿.$ Syndrome and a poster for their staff room on the same. We also included a Jelterwith a offerfor us to delNera talk to staff on key iSSLres $urround*ng Down's Syndrome. Th8 uptake from parents was good with 22 pack5 being requested but to date we have only had o request for a talk whth we have delivered and wtwch was very well receivgd. We have also pr￿uced and deliVe￿d a talk to a local Care Homg have subswjenty norrynaled s lo be their chty of the year. We continue to accept nominations and will gwe rt fo¢us in advance of the start of the sch¢)ol year in September. This year our focus i8 going lo ￿ on eroagement medical profsssionals but WIN continue to consider ways to increase engagement wiéh educth.onal setbngs. Community Engagement & promoting inclusion.. Medical Save for agreements to dtstr￿ute our New Parent Hosprtal Packs, we have fwnd rt difficutt to obtain er￿gement trom medical wofessionals and yet we continue to receNe reports from our members of the use of inappropriate language. diagnostic overshadvwing and negative experience$ surrounding diagnosis. Duiing tt)e early stages, these experiences can frame the parents, atbtude and feelings towards their Ghild's diagnosis and clear that our l(*al medtal profes$r)nals would ￿nefft from considering a parents perspectlve. We have very reCen￿Y obtalned a commitment from the Head of MithrFery at University Hospitals Dorsel for them lo engage wtth us and for us to provth training lo staff on an annual ba*$. In the torthcoming year we will be focusing of producin9 a wality session for medical professionals on the pargnts perspective ol ￿el￿n9 their child's diagTr)sis of D(Mfn'$ Syndrome and we will then be offer¢ng this training lo other ho$￿'talS and medtsl seth'ngs. Supporting Development: Financial Grants Another key element of our support services 1$ ￿ offer of fnanci81 grants to membors lo a88i$I with the costs of acce881ry speci81ist reswrces and therap￿. In this perkjd the trustees agreed to a sum of £300 per grant aKI 13 grants have been given In this perk)d {9 within the financkgl year). This year we intend lo continue offering these grants whkh help parents to support their child'$ development. Trusteo WMI revie* level of grant arKI c￿$1¢•r rf the level can be maintained or ncreased. Supporting Development.. Early Development Groups 11 rèmain$ intention lo set up fomial Earty tk¥ek)pment Groups njn by sumably tralnei1 volunteers or profes&onal$ simi￿r gfOUPS operate in other parts of the country and provhje vital $peciali51 1nttsrventy.on thai Is not provlded in the UK through medical or educatson services. We have sought advice from groups who operate such SesS￿n5 and are explofing QFrtI'ons avalable to ensure that these sessions are effe¢live as p￿ble. Feedback This year we have introduced event specffj￿ feedback fomjs as VAI as more general feedback forms to enable people to gbVÈ us feedback on the support we offer as a whole. These fomis can all be completed antsnYn￿usty to en¢Lwrage people lo give both posth've and negative feedback wherever they wish. Som6 examples of the feedba¢k recepRd thi$ year can t* found at'Annex: Feedback.. Financial Review The accounts filed are for the period 2 November 2022 to 31 March 2024 as a result of ourconversion to a Charitable Incorporated Organisation. Our accounts forthis period showthe transfer of funds from the previous charity 1159214 of £33,473 on S April 2023 a5 approved by the tharity Commission. When deciding upon the financial strategy for the year, the trustees kept in mtnd three key considerations. First, with the charity hawn8 become inartive until May 2022 and emba￿l￿g on a relaunch with a new team in pla￿, the trustees recognised that raising funds with no followin& reputation, contacts or actounting records it would be challenging to raise funds from lundrèisin& donations or grants. Se￿nd. Ltrpon taking overthetnjstees received very little in the way of resources and it was therefore anticipated that resour￿ and equipment would need to be purchased to enable the tharity to meet its objectives. Third. in order to work out what forTns of support our beneficlarles need, there would be benefrt In trialling different projerts some of which would require additional costs to set up. Having regard to the above conslderations. at the bew"nning of the period the trustees set a budget anticipating a c.£13k loss; however. our acrval loss has been £4,182. Thetrnstees have been delighted that income of £14k has been received rather than the anticipated £4k whlch has been a result of a number of successful grant applications and the generosity and support in fundraisinB effort5 from the charlties beneflclades. There Is still work to be done to Increase awareness of the charity In our local community but this financial period has shown us the potential finanoal security of the charity achieved with the current strategy of buildin8 member and community support as well as seeking grant support for speciflc projects. Policy on reserves During thi8 year the Charity ttas maintained a Reserves Policy expSaming thal res￿48¥ of £8,845 are kept being the basic costs ol yoviding our core 8eTvKes for 12 M￿th8. The Charty 18 currentty holding £25,015 being £16.170 more than our current Reserves Policy. In view of our plans to estsblish fom)al Earty Deve10Frfr￿7I Groups, which will involve Set up costs and costs of regularfy paying professiona Iherapsts, Ihe trustees have taken a wiservative approach to spending in anticipation of these increased costs. Once the trustees know what these costs will be, the Reserves Policy wll be reviewed lo reflect Ihese Ir￿rease￿ operab.ng costs and the reseNe$ posthon reviewed generally. Declaration Th• trustees de￿a￿ that Ihey have approved the Iwstees rewt above on 21* June 2ff24. Signed on behaK of the charity'8 trustee8'. SKJnalur8'. Sunature.. Full navw." Emma Louise Cro88 Full name: P*ience Saunders Posilw)rt." Chair of TTUStees Posrtion.. Tn*lee Date.. 21￿ June 2024 Date.. 2111 June 2024 ANNEX.. FEEDBACK Preschoolers: What would y(Ju like mole or less of al Ihe groups? l.e. do Y￿ weferiust free play or do you like having a group Siory l aets.vity 4 Te$ponses I l*e Ihe themes/group actiwty. l apFweci8ie I￿se18ke exlra effort. But li makes tF*m mcfe f¢rmy de* IsitAing). AThJ cieates a bit 6Ywinthe rwn I ftél. I ITr￿k itSa1x¢n￿e ￿have umeto chw and go 10 Ihe senxry room. I like a ol boih. K￿leth￿a￿¢S aThJ inNrt iworn wofessi(￿￿￿Id beg￿1. I have onty anended a lewlin￿ I'￿ ItwNywitrJrdthemix of ITeeF4ay¥r#J strwred xtiviiles I lik¢ hawng agroup siory/•ctivrty neai the IxginThry 8￿fj Tl*n a chwe forfree [4ty and oL*Jl¢S io thai. It's nice to bring everyone iogeitsr and then .'1 Would you bt Interested in attending group Earty Development sessions with a therapist? 6 rtsponses •Y•• Whal benefit do you 9et fri)m attending the gro￿9? S¢¢ialising With other par￿& f¥e d￿lOped from FeCpleV￿ undws¢¥nd xffleol oui challenges. I lovtthat the otk• parenis w extrted abwt our rnilestones- Irs really9enuine and is juli kyety. I've leamt ￿aCtIC￿ thiThJs too frorn other ptrents. My y¢xwi erwjages %*iih acii¥ffl￿ and so¢iali$es wth peok*. The opponunrty to chai ￿th Olther par¢m$ eilher h)wiWiackled tI￿e0r fo have 8orkxty>e Ythen lIn￿. Meeting newpart4114 ￿%￿lon ￿ ￿'ll[leS Ivs a sale $pacewih ¢>1twswho ￿kn¥and a chikl DS. The Sup￿ is and Id be kn avery differeni place finding Ihe group ch*ityas a %thde. We're rnakity frieTrJs and betotning a c(Ynmunrty thai 1$ Jtrwiarn Ic* LK)th athjlls and (xjr liiiie onÈs as iw wup. I spoke to a Iiiend or rriend who lives In Keni aTrJ she Sa￿ thwr sth¢es donl al￿￿ vdwieervthal's on ofler eg *rythothÈ(apy- en she metitioned it ai ithysN)ihey said.oh yesl We'll onl- and shewwkkn'i have fourKI ihai ¢yJt ihout rnewing othws locally. Its almosi like a arKI info shMty¢thnparJng oppxxwnrty. Any other Commenls? 6 iesponse$ We ¢Jseil to love comiryj and ￿111 like io c(¥YY lorihe on other we can Mortdays dash with preschool rth unImun￿elY I Ihlnk lis great thai yow activit￿ a￿ Ireeu sthJsKth5ed. l thinkthis ￿$ io mikethem acCeSs￿le Ir The weSch￿)IerS groups are really benefici& and gi¥e an oPF<$rt￿lrtY lorw d￿ldren to play in a sale space where you wonl t* yjged * havethe ofother> I wish I ￿1￿ attend rtwe Irequentty trxrt under*and yw ha%E %Mth woths for the majority The sensory ri*m 1$ lab. a massive plus ioihe Venue. Th￿￿y￿ all ederyrhing Y￿ do, we tweciaie you all so much: Re eaty developrnent $ession5. we'red(¥"NJ okwiih CDC arkl ￿￿age *ay and tA8y t*A l know noi eryone can anend ¢r access those easily so l thylk ll W￿ld k benefic4al In weral. Yle are PADS PEGS Ihis ierm and Ihe videos are lab tsA I've four￿ the zooms 10 be great- in person localty would be goodl We live on Portland. I hwe ttcked I canl w io s(¥Mhbourr*. I rts JUSI a thaNerwJe. I would LOVE an eaily development group and very k¢eTr on any 9rw thw wemtre ceniral w west. ￿111 do Qui besi in Ihe mean lirne 10 get io souihbourne h*en we ¢•k Hlgh Mead Communlty Fami Day Trlps: Whal did you like abwl Iht event? S r•stW6e5 A lovely iime. very relaxed ¥i$il to the fami 4Th1 •Ne 10(*at io ¢>Ywrrttheaglly. Verywell tygaThsed and 88fety laken seriiwsly with voluntetrs the 9•tesand Kaih¥#*weding us on arrival. Scavenwr h￿1 was greatl Huge thank you lo ieam DPI. Different activiiies for kid$, Ireaswe hunt iJ*nie lawyiie wi chicken leeth.ng IASex favotile pani coffeeaTrd gweei$ Imine favoriiel... I likethe f*t Ihjt I1￿ fwrn wa$ tiKhJsive of kids dilfewenl disabdiiies gtve themchance io dg somey￿rK s[¢￿1 iimevA %wh wimals Very welcoming ¢eam rt*rt*rs. Theeveffl was also very rdaxed Martha ccojkl lakethlr￿ ai her p8ce so she re•lly erffjoged and eryo￿d herself. Relaxed. easy to find rnwquee Yoy ￿re rnade ￿ fill welcome*iwas very svel ￿ganised with auivrties for all JJge& Weihmthly enpyed the day. What could have been better al the event? 4 ie$ponses N/a The farm was a lillle Nsiic. exadty a swpn.se blrt thwe a few thp h￿rdS ete fu ￿￿￿OMing event they were ¢xganising. Printed iiinw for the ieeth'ng iimings. n¢A realty nè¢e5SWy Nothing Would your child benelbt from any adaptions at our events which woukt make them more accessible lo them? E.9. Doesn't like loud music. requires a quiet breakoui space 4 reswsès No Noi required at this Mage Martha prefers smaller grou￿ vtherèthereis less ntyseae What Is most I￿rtant lo you when attendlng an wenv. 4 i•*ptyw•s 2$% Exchtr*u5e 01lh• th• ofi gJ*t ￿e￿￿￿j14r+* I wefu gro • I Typvd What type of event$ would you like Downrlghl Perfect to Organise in the future? 3 r*iDon9•8 Similar io these w SI￿ (Alex ltyesihem) Hands on efftis s￿h as these. partthwty dM"rg il* SChts￿ h01th￿. 1nfrrniaiTr￿ shwiffj evenis eg Sa Phy510 eic This k¥nd Any other comments? 3 iespffi5e5 Thank you very much. we are so grateful io every{￿ Ytho makes the events and ￿(m1p haF*w and lrfe would be ¥*rydillérenl ￿lI￿Art the support of t)p. Thank ytyJ for orgarA&ng had h It was 9reai trj reconnea With Othwht Perfea after a lyi ol an abs￿. World Down's Syndrome Day Family Party: Overall did you enjoy the paw. 73 io oio%i OlfA) OIN) Please let us know ytyjr thoughts on the party 9enerally 13 re6wn8e8 Lovely having dilferenl areasfor kids, wdl rAganis¢d. rthihiry was io eat [￿e everything else lab Was ieally lovety, the venue was greai Vmh ￿ nKKh it didn't leel The eNertainmeni was fantastic ew the fa¢ep*nter who was sokkndio u$. We loved the stalls tr￿. Lovdyl incredible organizaiicffj. ev￿￿h1r￿j realty was m)de vmh the￿1 li was very well organised. L¢Mty and spacious ￿1th lots goirvj ¢)n io keep eVer￿)ne￿￿￿e￿ Welcomin4 IrieW, and Iwtr Well organised. ewe was very IrierKIIy. Very well organlsed 10 So graield forall iheih)ughi, iiNEand eff(Mts N inio making sueh a lovetyeveTrt, thank youl. we liked ihat Ihere were differeni-areas" Iihe chtll zone was ￿111 quite loud as near ihe halll, very well planned and great to have ihe iimdable ￿f￿ehalld. Id s￿)ken io a fri￿ who weni last year and said it was"a lot- wilh both grcup& noi necesswity a bad thing had we rM)i bew prepared I Ihink it c¢)ull have been overwhelming. Jusi in tertns of Ihe number ol wle. I loved thai theye were so many young people theré because they have someihing In common and yet the wouldn'i know. our e￿eThJed 18mify children w0￿dn't know they didn'i have th￿"¢un￿￿- thiry. rt was indu*ve and bea￿1(￿1. Good space ￿￿thIn the vtnue, li vms lovelyio see different lamilie5 aKlkKls.. ¥KxKI enienainmeni and prizes. So much effort ard Flentyferf all kth to do We had a reaNy lovety lime and it was well organised. yw. Loved theparty pknty lorihethildren io do. Bella l￿d having ￿rIate pwnie¢ balloons and the eniertainmeni Please let us know y*yJr ihoughls on the entertainmenl. Is there anything you would like lo see al fulure events? Perfect entenainment. Very nice, it lovety to see all ihtclilthn eng&yed and enJtywwJ then￿¢118• Everyihing was great lun espKialty ehil wi mOm￿lIT￿j idea. We th'drit get o Chw face painiiThJ as we're ntst iold imfèwas a h.￿ to w your ntffton. Pffsonally I love a btswe enierialner. Loi$ ol ¥￿Iety I think Ihe DJ ¢ould have téen a lfftle qlHeler twt thtsjust pttsffiall Somdhing Ihe realty Iffile ones wotjld be great. very happy hi thè soft pSaytArt a mini Se$S￿ like something like ihe Saiurday Clubs would be g¢xd z have a k¥)k ai con¥notiw dt4Kirg Irm by DFC)... il a good MI￿￿e. Alex loved li Pethaps oarty games and kids on the il iw like. trwlds I￿1r c￿1￿1¥￿0 arkl I￿Y Celebrnie Ihemselves. Also a gfeai n*mory for them and lanwty Really good entertainment. The kids k)ved the ballth)n mctyjelling and d￿ing. Foce painier was gre81 bul long queue. Mayt* a eraft station lor I￿lse interesied wtyjld be gc#)d- ￿aYdOU9h, drawing. Is Iheie anything we can do or facililies that we could provide io improve your child's experience when attending an event such as this? 5 iespunses Forus, thiswas realty wd. Cani ihink ol an￿h1n91th8f wererftthere alreaty. Think eve￿hts￿ w88 great 11 w89 wrfect loe us Would you like lo have a party every year for World Oowrfs Syndrome Day or would pofer it to take place every olher yea •E￿ye Would you Ilke us to put together an Inlllaiive lo provlde Informatlon to s¢hools about Downs Syntjromè in the lead up to WDSD? 12 i•w¥•# •Y¢* 91.r% 12 Do you have any suggestions on how we could celebrale Wortd Down's Syndrome Day in the future? 5 re5ponse7 Maybe have a $thTwner cdebr8iw)n ai a beoth some*th¢*e If the weather is light pethaps * event h"keiiws ¢ythsKle in natwe. I Keep doing whal ￿ are (￿j Thai byds the lirsi I have attached *¢J wealty enIty￿r it Think what you a￿￿tyha￿ is perfea Som&ny oldeF wetheywiry the pa￿. General: What do you believe the tharity is doiNJ well? 2 I95pons•$ Lots ofvari¢d e¥eMs rnixed regular ar￿ retthfart pareni orty workshcys. Organisation ol evenis including Soitwt1ay¥ owicvl f¢Y Ihose Can'i allend m weekdays. Arranging guest speaker$ issues iel•ting to DS. Parents caD apply lor linp4Kial l*, vAJth 18 lair based ¢)n needs and 8ppli¢ation kYc¢es¥ What could Ihe charity do diflerenlly lo beller support your child? 2 Te5PMS•$ Maybe a resouree lrtation IN key inlo. EIKP ath8e. krycomaas d¢ Not swe What would you Ilke the charity to focvs it$ time and funds on? 2111))V•l Farr#ty 211(tr￿> o (0%? ErwHgemèni k¢41 ￿d￿... 13 How has the charity helped you? 2 ies?onses Reliabte social group, in1￿mall¥e thshlws ial evenis, Ch￿￿10 me* other parents. wofesskwl thice. gram$ What does having a lo¢al group mean to you? 2 iesponse7 Realty inval¢Jablèto be ableio chat inlormalty wilh otherparerfs who a￿ throwh similar processes. Ser>se of cemmunity vthich ¢* olfer fr*ThJshy, feelirrfp of ith.on What are the challenges you have faced or are currently dealing with? 2 re$ponies EHCP, a¢¢essing irw'sis ihrrW NH& sethmng a sdKK)I pl8£e. Inclusion of w ¢hildrth in normal fwnity enfftnment Any other comments 2 r*&pm6éS Thank you. Keep uplhe gieai ¥￿1 Thank you lor b*'ry aciive. the seMceark4 hdp you atready wtyide 14 CHARITY COMMISSION FOR ENGLAND ANO WALES DOWNRIGHT PERFECT Charity Receipts and payments accounts For the period Oiif2022 1200893 31M2024 Section A Receipts and payments Unrestricted lunds Restricted nds Total funds >th• rn¥••t £ ts th• rn•r•st£ R•¢oiPts Transferlrorn charfty 1159214 FundTa&ng DonAtion$ Grants JJ.473 4118 1102 33A73 5.118 2,102 5.387 4887 8tsan merchandis•l 1.392 Sub total(Gross income forAR) 42.586 4M87 47,4n Total ty￿Pts 4W7 47An Pa nts Bank charg95 Web*ts lemall Idcrfn*n 2>•4r& **b8its 3 s. omall 1 Volunteer expenses Inc Irav•l Staliwffjryl ptstaye Yrainlng 51 51 721 170 721 170 92 175 934 1.202 169 175 Marketing lll1¥￿￿jre Fundraising e%￿n&6￿ New pw8nl ￿5￿￿trI b898 Por8nt 3upFut lit* even￿) PF&S¢hoDlew I S81 RostyJv¢es lequiw8nt Olh8r Inityatlves lknc. serA￿tsa95 Sch￿1 Ix)ok packs Other events IWWI nual Grwd DayQJl Xma$ 2022 Xmas 2023 WDSD 2D23 WDSD 2024 Financhil (knts Coun¥elllng Gwants Sundry 21 21 547 547 1,580 1.620 220 220 618 812 618 812 705 705 1.199 1,199 1,3B8 2.9n 77 Sub total 17AT1 610 18.181 Totalpayments 17W1 61 18,181 25.01 42 29292 Transtsrs beiwe•n funds Cash funds last year end Cash funds this year end 25.015 43 29.292 Section B Statèment of assets and liabllities at the end of the period Unrestricted Restricted funds to nearost£ *iiivgvTie5 L)eTaiis to near95t £ B1 Cash funds Bank 25,015 4277 PollycaGh Total cash funds 25,015 4,277 Unregtrict•d fijnds to n•ar•Bt£ Restrict•d D•talls NIA to n•aro¥¢ £ B2 Other monetary assets ¢Wr•nt￿IUfr optlonal Detalls IA ¢•81 1*Jpthn￿I 83 Inveslrnent assots Details CoBt1othn•fj B4 Assets retalned lor tho char1t￿S own use 8yTrb￿ and foam m en du• tlonal Detalls NIA B5 Llabllltlgs Signed by or In￿18¢$ on behamol all Ihe trustees SbJnature Dats of roval Emma LoL4se Cros5 Patsnct Saunders 2110612024 2110612024 Notes l. Accountlng Policles The financial statements ofthe Charity have been prepared in accordance with the guidan￿ of the Charity Commission using the Re￿iptSand Paymerts basi5. The Charity wa5 previOus￿an unin¢orwrated associatlon registered under number 1159214. An applKation wa5 made to convert the Charity to a CIO and on 2 November 2022 3 new (harity number 12(M)893 wa5 registered and on S April 2023 the assets ol charity IIS9214 were transferred to new ao number 12CK1893. The accountin# ￿nOdfor￿alIty 1159214 ran from 28Julyto 27Juty. The accountlng permxl forcharity I20L￿93 run5 Irom l April to 31 Marth. In accordance with Chartty commiss￿nBUldaTrce, folbwingthe con¥ersicffi to a CIO. these accOUr￿ are forthe period 2 N0￿Mber 2022 Ibeing the date the ao was registered) to 31 Morch 2023. Th15 is therefore thE tir5t accounting period for charity IZLKk893 and ac(1)rdin￿¥ no fiEures for ￿￿¥1￿U$￿na￿1aJ yeaf are shown. 2. Resthrtedfunds The CIO ha5 received the folbwin88rants which ha¥e been awarded fora partfjcular purp¥￿ and are the￿fore treated as restricted lund5. Tesco Groundworks Grant of £1StX)1£1250 received to datel for the runnlng to%t5 of Pre-schoolers Groups and the purchase of some 8roup resour￿$. £429.50 of thisgrant has been Ltsed leaving a balance of £820.50 of the grant monies received to da￿. c￿0P Community Grant of £3761.60 for supwrrin8 the mental heatthOfpa￿ftts through the provtslon tsf ounselling. £180 of this 8raM ha5 been used leaVi￿a balarKe of £3581.￿. 3. Loans During the year the CIO did not have a ban in place and- - no one agreed to pay a loan If the CIO could not I'ut)def 8Uarnltee'l no loan was secured a8alnst the CIO'S assets ## **Independent examiner’s report to the trustees of Downright Perfect, charity number 1200893** I report to the trustees on my examination of the accounts of Downright Perfect (the CIO) for the year ended 31 March 2024. ## **Responsibilities and basis of report** As the charity trustees of the CIO you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’). I report in respect of my examination of the CIO’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. ## **Independent examiner’s statement** I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the CIO as required by section 130 of the Act; or 2. the accounts do not accord with those records. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. ## Signed: **Steve Place** Name: Steve Place Address: 54 West Street, Wareham, BH20 4JZ Date: 23 September 2024