Digitally Signed Document Document ID: E1A92CEBE27613
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Filename: C1184-CATS YE 30.06.2025.PDF Client of: Thornton Springer LLP
Signature Details
| Name: | Dan How |
|---|---|
| Email: | dan@cats-foundation.org |
| Date & Time: | 17/04/2026 14:02:18 PM (BST) |
| IP Address: | 149.90.143.230 |
| Signing Statement: | Dan How agrees and approves the contents of this document. |
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REGISTERED CHARITY NUMBER: 1200737
Report of the Trustees and
Unaudited Financial Statements for the Year Ended 30 June 2025
for
- Cure & Action for Tay Sachs (CATS) Foundation
Thornton Springer LLP Chartered Accountants 67 Westow Street London SE19 3RW
- Cure & Action for Tay Sachs (CATS) Foundation
Contents of the Financial Statements for the Year Ended 30 June 2025
| Page | |||
|---|---|---|---|
| Report of the Trustees | 1 | to | 4 |
| Independent Examiner's Report | 5 | ||
| Statement of Financial Activities | 6 | ||
| Balance Sheet | 7 | ||
| Notes to the Financial Statements | 8 | to | 17 |
| Detailed Statement of Financial Activities | 18 | to | 19 |
- Cure & Action for Tay Sachs (CATS) Foundation
Report of the Trustees
for the Year Ended 30 June 2025
The trustees present their report with the financial statements of the charity for the year ended 30 June 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives and aims
The Charity is committed in finding a way to effectively treat both Tay-Sachs and Sandhoff disease. This is why we are actively involved with the team leading the research into a potential treatment. Until this is available we will continue to support all families affected by the disease in any way we can.
Our defined aims are:
-
Raise awareness of Tay-Sachs and its associated diseases (such as Sandhoff disease) to the public by providing relevant information on our website.
-
Raise money for the research into the diseases for a potential treatment.
-
Provide an information resource centre, support network and equipment for families affected by the disease.
The objectives in the trust deed which govern the charity are the relief of sickness and the preservation of good health among sufferers of Tay-Sachs and Sandhoff disease which is achieved by supporting research, families, providing equipment and financing trips at home or overseas for treatment.
Public benefit
In planning our activities we have complied with the duties required by the Charities Act 2011 to have due regard to guidance published by the Charity Commission in relation to public benefit. During the year the charity continued to work for the good of society by continuing to make grants to support children and their families in need. The public benefit of the charity's activities are outlined under 'Objectives and Activities' and 'Achievements and Performance'.
Social investments
Our policy is to provide grants for equipment which can improve a sufferer's quality of life where it is not available on the NHS. One condition is that the family must seek funding from their health care provider first and, if the piece of equipment they require is not available or an inferior alternative is suggested, then the charity will provide funding. Each piece of equipment must be kept in an acceptable condition so that it may be passed onto another family when they are no longer required. Also, the equipment remains the property of the charity and not the individual.
Grantmaking
In order for us to meet our charitable objectives we have to ensure that certain policies are in place. These allow us to set our standards for making grants to the research team and ensuring we can always meet our goals by having a reserve policy for the charity. We also have policies for respite trip grants, equipment grants and research grants that we offer to families who are affected by both Tay-Sachs and Sandhoff disease. These vital policies safeguard the future of The CATS Foundation which in turn will enable us to continue supporting families affected by Tay-Sachs and Sandhoff disease. Each of our policies at The CATS Foundation are reviewed on a yearly basis to ensure that they are meeting the charity's aims and objectives as set in our governing document, the Trust Deed. The trustees meet at the end of each financial year to determine whether any changes are required or if new policies and procedures are required. During the year we did not need to update any of the policies. Each policy is also written so that they are in line with our overall reserves policy. This is to ensure that if there is an event which means the charity cannot raise any additional funds for a year that we are still able to offer our services to member families.
Volunteers
We have continued to work closely with our volunteers and involving them in several projects that are turned into patient engagement and research for treatments for the diseases.
Page 1
- Cure & Action for Tay Sachs (CATS) Foundation
Report of the Trustees
for the Year Ended 30 June 2025
ACHIEVEMENTS AND PERFORMANCE
The CATS Foundation's main focus is supporting families affected by Tay-Sachs and Sandhoff whilst also raising awareness of the diseases. The charity provides a support network, respite trips and vital equipment so that a sufferer's quality of life is as high as possible.
The CATS Foundation also provides funding and support in the form of advice to several research teams who are investigating a potential treatment for both Tay-Sachs and Sandhoff disease, our efforts to run a European registry and advocacy work has placed these two ultra rare diseases on the radar for researchers and pharma companies and we are now actively involved in 11 research projects for the diseases.
FINANCIAL REVIEW
Financial position
This year has marked a significant strengthening of the charity's financial position, underpinned by the continued generosity and commitment of our community. Total income increased to £130,940 (2024: £88,824), with a notable rise in unrestricted donations. This growth reflects the success of community-led fundraising efforts, which have been nurtured through our sustained investment in engagement over recent years, particularly through the NLCF-funded "Family Support Officers for GM2" project, which concluded during this financial year.
Our expenditure remained firmly focused on delivering meaningful charitable impact, with £91,654 invested directly in charitable activities. This reflects our ongoing commitment to supporting individuals and families affected by GM2, ensuring that the resources entrusted to us are directed where they are needed most.
The charity closed the year with a net income of £38,526, a significant turnaround from the previous year's deficit. As a result, total funds carried forward have increased to £56,170 (2024: £17,644), placing the organisation in a much stronger and more resilient position.
Importantly, this strengthened financial footing enables us to build on the legacy of the Family Support Officers project. The Board of Trustees has committed further funding to ensure continuity of this vital engagement and support, allowing us to maintain strong connections with our community and continue delivering meaningful impact in the years ahead.
Principal funding sources
The charity's principal sources of income during the year comprised donations and legacies, which totalled £130,736 (2024: £88,523). A substantial proportion of this income (£86,611) was unrestricted, arising primarily from voluntary donations and community-led fundraising activities. This reflects the continued growth and engagement of the charity's supporter base and provides essential flexible funding to support the charity's core activities.
Restricted income of £44,125 was received in the year to fund specific projects and initiatives. The National Lottery Community Fund (NLCF) remained a key contributor, supporting the "Family Support Officers for GM2" project, which concluded during the financial year. This funding enabled the delivery of targeted support, guidance and information to patients and families within the community.
Additional restricted funding was received from corporate and philanthropic partners, including Sanofi, Azafaros B.V., and Intrabio Ltd. These contributions supported a range of activities aligned with the charity's objectives, including community engagement projects, research-related initiatives, educational programmes, and participation in international conferences and collaborations.
The charity's fundraising activities are predominantly community-based, with supporters organising events and initiatives to raise funds and awareness. The trustees consider this approach to be effective and consistent with the charity's aims, whilst also strengthening relationships within the community it serves.
Investment income remained modest at £204 (2024: £301), reflecting the trustees' policy of prioritising the application of funds towards charitable purposes.
Overall, the trustees are satisfied that the charity has a diversified income base, with a strong level of unrestricted funding complemented by restricted grants and partnership income, supporting both financial sustainability and the delivery of its charitable objectives.
Page 2
- Cure & Action for Tay Sachs (CATS) Foundation
Report of the Trustees
for the Year Ended 30 June 2025
FINANCIAL REVIEW
Reserves policy
Our reserves policy is based on the charity being able to provide some level of support to families affected by Tay-Sachs. We have set policies that require:
-
Reserves to be maintained at a level which ensures that the charity's core activity could continue during a period of unforeseen difficulty.
-
A proportion of reserves to be maintained in a readily realizable form.
Therefore we have set a minimum of £10,000 free reserves to be held in the charity to ensure we are able to maintain running the charity and meeting the main objectives set for the charity.
The breakdown for our minimum free reserves is shown below:
-
Providing equipment: £2,500 (25% of reserve)
-
Respite trips: £2,500 (25% of reserve)
-
Administration: £5,000 (50% of reserve)
This reserve breakdown will allow us to meet a minimum level of our charitable objectives if there is a significant decrease in our donations during the next financial year. As is our standard practice, the reserve policy will be reviewed on a yearly basis.
Going concern
No uncertainties exist about the charity continuing as a going concern. The trustees are aware that a small charity mostly reliant on community funding needs to be managed very closely at all times. Trustees follow strict grant policy and guidelines when they make decisions concerning grants and expenses and the overall running of the charity. The charity is run on absolutely minimal costs, and all trustees invest a lot of time and experience in the running of the charity.
STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document
The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.
Charity constitution
Charitable Incorporated Organisation (CIO).
Recruitment and appointment of new trustees
Trustees are appointed for a five-year term but can remain on the board for an undetermined period and candidates are usually found amongst people known to the existing trustees. New trustees will be directed towards the advice available from the Charity Commission and additional training will be given where it is considered necessary.
Organisational structure
The organisation transitioned from an unincorporated association to a Charitable Incorporated Organisation (CIO) in 2022. This change was undertaken to strengthen governance, provide trustees with limited liability and modernise the organisation's structure.
The Trustees are confident that this structural change enhances the charity's long-term sustainability, regulatory compliance, and capacity to fulfil its mission effectively.
REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number
1200737
Page 3
- Cure & Action for Tay Sachs (CATS) Foundation
Report of the Trustees
for the Year Ended 30 June 2025
Principal address Suite 3 Peel House 30 The Downs Altrincham Cheshire WA14 2PX
Trustees L ap Gwilym K Lewi D How Ms S Choudhury
Independent Examiner Thornton Springer LLP Chartered Accountants 67 Westow Street London SE19 3RW
Approved by order of the board of trustees on ............................................. and signed on its behalf by:
........................................................................ D How - Trustee
Page 4
Independent Examiner's Report to the Trustees of - Cure & Action for Tay Sachs (CATS) Foundation
Independent examiner's report to the trustees of Cure & Action for Tay-Sachs (CATS) Foundation
I report to the charity trustees on my examination of the accounts of Cure & Action for Tay-Sachs (CATS) Foundation (the Trust) for the year ended 30 June 2025.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or
-
the accounts do not accord with those records; or
-
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Z. Saleem
The Institute of Chartered Accountants in England and Wales
Thornton Springer LLP Chartered Accountants 67 Westow Street London SE19 3RW
Date: .............................................
Page 5
- Cure & Action for Tay Sachs (CATS) Foundation
Statement of Financial Activities
for the Year Ended 30 June 2025
| Unrestricted fund Notes £ INCOME AND ENDOWMENTS FROM Donations and legacies 86,611 Investment income 2 204 Total 86,815 EXPENDITURE ON Raising funds 60 Charitable activities Charitable 47,121 Total 47,181 NET INCOME/(EXPENDITURE) 39,634 RECONCILIATION OF FUNDS Total funds brought forward 8,971 TOTAL FUNDS CARRIED FORWARD 48,605 |
Restricted funds £ 44,125 - 44,125 700 44,533 45,233 (1,108) 8,673 7,565 |
30.6.25 Total funds £ 130,736 204 130,940 760 91,654 92,414 38,526 17,644 56,170 |
30.6.24 Total funds £ 88,523 301 88,824 - 96,186 96,186 (7,362) 25,006 17,644 |
|---|---|---|---|
The notes form part of these financial statements
Page 6
- Cure & Action for Tay Sachs (CATS) Foundation
Balance Sheet
30 June 2025
| 30.6.25 | 30.6.24 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | funds | funds | funds | ||
| Notes | £ | £ | £ | £ | |
| FIXED ASSETS | |||||
| Tangible assets | 5 | 781 | 378 | 1,159 | 2,051 |
| CURRENT ASSETS | |||||
| Debtors | 6 | 86 | - | 86 | 1,640 |
| Cash at bank | 57,021 | 7,684 | 64,705 | 24,865 | |
| 57,107 | 7,684 | 64,791 | 26,505 | ||
| CREDITORS | |||||
| Amounts falling due within one year | 7 | (9,282) | (498) | (9,780) | (10,912) |
| NET CURRENT ASSETS | 47,825 | 7,186 | 55,011 | 15,593 | |
| TOTAL ASSETS LESS CURRENT | |||||
| LIABILITIES | 48,606 | 7,564 | 56,170 | 17,644 | |
| NET ASSETS | 48,606 | 7,564 | 56,170 | 17,644 | |
| FUNDS | 8 | ||||
| Unrestricted funds | 48,606 | 8,971 | |||
| Restricted funds | 7,564 | 8,673 | |||
| TOTAL FUNDS | 56,170 | 17,644 |
The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by:
............................................. D How - Trustee
The notes form part of these financial statements
Page 7
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements for the Year Ended 30 June 2025
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure.
Tangible fixed assets
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.
Equipment on loan - 10% - 20% on cost Computer equipment - 33% on cost
Taxation
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
Pension costs and other post-retirement benefits
The charity operates a defined contribution pension scheme. Contributions payable to the charity's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.
continued...
Page 8
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued
for the Year Ended 30 June 2025
2. INVESTMENT INCOME
| INVESTMENT INCOME | ||
|---|---|---|
| 30.6.25 | 30.6.24 | |
| £ | £ | |
| Deposit account interest | 204 | 301 |
3. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 30 June 2024 nor for the year ended 30 June 2023.
Trustees' expenses
There were no trustees' expenses paid for the year ended 30 June 2025 nor for the year ended 30 June 2024.
4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted Restricted fund funds £ £ INCOME AND ENDOWMENTS FROM Donations and legacies 33,089 55,434 Investment income 301 - Total 33,390 55,434 EXPENDITURE ON Charitable activities Charitable 37,755 58,431 NET INCOME/(EXPENDITURE) (4,365) (2,997) RECONCILIATION OF FUNDS Total funds brought forward 13,336 11,670 TOTAL FUNDS CARRIED FORWARD 8,971 8,673 |
Total funds £ 88,523 301 88,824 96,186 (7,362) 25,006 17,644 |
|---|---|
continued...
Page 9
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
| 5. | TANGIBLE FIXED ASSETS | |||
|---|---|---|---|---|
| Equipment | Computer | |||
| on loan | equipment | Totals | ||
| £ | £ | £ | ||
| COST | ||||
| At 1 July 2024 and 30 June 2025 | 7,743 | 3,822 | 11,565 | |
| DEPRECIATION | ||||
| At 1 July 2024 | 6,833 | 2,681 | 9,514 | |
| Charge for year | 477 | 415 | 892 | |
| At 30 June 2025 | 7,310 | 3,096 | 10,406 | |
| NET BOOK VALUE | ||||
| At 30 June 2025 | 433 | 726 | 1,159 | |
| At 30 June 2024 | 910 | 1,141 | 2,051 | |
| 6. | DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |||
| 30.6.25 | 30.6.24 | |||
| £ | £ | |||
| Other debtors | - | (1) | ||
| Other debtor | 86 | 1,641 | ||
| 86 | 1,640 | |||
| 7. | CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |||
| 30.6.25 | 30.6.24 | |||
| £ | £ | |||
| Taxation and social security | 991 | - | ||
| Other creditors | 8,789 | 10,912 | ||
| 9,780 | 10,912 |
continued...
Page 10
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS
| MOVEMENT IN FUNDS | |||
|---|---|---|---|
| Net | |||
| movement | At | ||
| At 1.7.24 | in funds | 30.6.25 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 8,971 | 39,635 | 48,606 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 794 | (416) | 378 |
| Sanofi & Azafaros - WORLD Symposium | 585 | (564) | 21 |
| Sanofi - Awareness and Educational | |||
| Campaign | 2,435 | (2,435) | - |
| Sanofi & Azafaros - Mutation Analysis of | |||
| GM2 Gangliosidosis: Preparing families | |||
| for the future | 160 | (160) | - |
| Translation of eAcademy App Grant | 76 | - | 76 |
| Sanofi - NTSAD Research Conference and | |||
| GGGA Clinical Meeting | 190 | (190) | - |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | 4,433 | (4,433) | - |
| Sanofi & Azafaros - Voices of Tay-Sachs | |||
| and Sandhoff Disease | - | 2,357 | 2,357 |
| Intrabio Ltd - Community Engagement | |||
| Projects | - | 4,732 | 4,732 |
| 8,673 | (1,109) | 7,564 | |
| TOTAL FUNDS | 17,644 | 38,526 | 56,170 |
continued...
Page 11
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
Net movement in funds, included in the above are as follows:
| Unrestricted funds General fund Restricted funds CAF COVID-19 Emergency Fund NLCF Family Support Officers Grant Sanofi & Azafaros - WORLD Symposium Sanofi - Awareness and Educational Campaign Sanofi & Azafaros - Mutation Analysis of GM2 Gangliosidosis: Preparing families for the future Sanofi - NTSAD Research Conference and GGGA Clinical Meeting Tay-Sachs and Sandhoff New Diagnosis Packs Sanofi & Azafaros - Voices of Tay-Sachs and Sandhoff Disease Intrabio Ltd - Community Engagement Projects TOTAL FUNDS |
Incoming resources £ 86,815 - 12,125 6,500 - 6,500 2,000 - 7,000 10,000 44,125 130,940 |
Resources Movement expended in funds £ £ (47,180) 39,635 (416) (416) (12,125) - (7,064) (564) (2,435) (2,435) (6,660) (160) (2,190) (190) (4,433) (4,433) (4,643) 2,357 (5,268) 4,732 (45,234) (1,109) (92,414) 38,526 |
|---|---|---|
continued...
Page 12
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
Comparatives for movement in funds
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.7.23 | in funds | 30.6.24 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 13,336 | (4,365) | 8,971 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 1,211 | (417) | 794 |
| NLCF Family Support Officers Grant | 1,529 | (1,529) | - |
| Azafaros - Clinician Toolkit | 54 | (54) | - |
| Sanofi & Azafaros - WORLD Symposium | - | 585 | 585 |
| Sanofi - Awareness and Educational | |||
| Campaign | 3,148 | (713) | 2,435 |
| Sanofi & Azafaros - Mutation Analysis of | |||
| GM2 Gangliosidosis: Preparing families | |||
| for the future | 5,728 | (5,568) | 160 |
| Translation of eAcademy App Grant | - | 76 | 76 |
| Sanofi - NTSAD Research Conference and | |||
| GGGA Clinical Meeting | - | 190 | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | - | 4,433 | 4,433 |
| 11,670 | (2,997) | 8,673 | |
| TOTAL FUNDS | 25,006 | (7,362) | 17,644 |
continued...
Page 13
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
Comparative net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 33,390 | (37,755) | (4,365) |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | (1) | (416) | (417) |
| NLCF Family Support Officers Grant | 31,485 | (33,014) | (1,529) |
| Azafaros - Clinician Toolkit | - | (54) | (54) |
| Sanofi & Azafaros - WORLD Symposium | 3,200 | (2,615) | 585 |
| Sanofi - Awareness and Educational | |||
| Campaign | - | (713) | (713) |
| Sanofi & Azafaros - Mutation Analysis of | |||
| GM2 Gangliosidosis: Preparing families | |||
| for the future | - | (5,568) | (5,568) |
| Translation of eAcademy App Grant | 4,000 | (3,924) | 76 |
| Sanofi - NTSAD Research Conference and | |||
| GGGA Clinical Meeting | 2,000 | (1,810) | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | 9,750 | (5,317) | 4,433 |
| Virtual Tay-Sachs and Sandhoff Family | |||
| Conference | 5,000 | (5,000) | - |
| 55,434 | (58,431) | (2,997) | |
| TOTAL FUNDS | 88,824 | (96,186) | (7,362) |
continued...
Page 14
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
A current year 12 months and prior year 12 months combined position is as follows:
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.7.23 | in funds | 30.6.25 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 13,336 | 35,270 | 48,606 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 1,211 | (833) | 378 |
| NLCF Family Support Officers Grant | 1,529 | (1,529) | - |
| Azafaros - Clinician Toolkit | 54 | (54) | - |
| Sanofi & Azafaros - WORLD Symposium | - | 21 | 21 |
| Sanofi - Awareness and Educational | |||
| Campaign | 3,148 | (3,148) | - |
| Sanofi & Azafaros - Mutation Analysis of | |||
| GM2 Gangliosidosis: Preparing families | |||
| for the future | 5,728 | (5,728) | - |
| Translation of eAcademy App Grant | - | 76 | 76 |
| Sanofi & Azafaros - Voices of Tay-Sachs | |||
| and Sandhoff Disease | - | 2,357 | 2,357 |
| Intrabio Ltd - Community Engagement | |||
| Projects | - | 4,732 | 4,732 |
| 11,670 | (4,106) | 7,564 | |
| TOTAL FUNDS | 25,006 | 31,164 | 56,170 |
Page 15
continued...
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
| Unrestricted funds General fund Restricted funds CAF COVID-19 Emergency Fund NLCF Family Support Officers Grant Azafaros - Clinician Toolkit Sanofi & Azafaros - WORLD Symposium Sanofi - Awareness and Educational Campaign Sanofi & Azafaros - Mutation Analysis of GM2 Gangliosidosis: Preparing families for the future Translation of eAcademy App Grant Sanofi - NTSAD Research Conference and GGGA Clinical Meeting Tay-Sachs and Sandhoff New Diagnosis Packs Virtual Tay-Sachs and Sandhoff Family Conference Sanofi & Azafaros - Voices of Tay-Sachs and Sandhoff Disease Intrabio Ltd - Community Engagement Projects TOTAL FUNDS |
Incoming resources £ 120,205 (1) 43,610 - 9,700 - 6,500 4,000 4,000 9,750 5,000 7,000 10,000 99,559 219,764 |
Resources Movement expended in funds £ £ (84,935) 35,270 (832) (833) (45,139) (1,529) (54) (54) (9,679) 21 (3,148) (3,148) (12,228) (5,728) (3,924) 76 (4,000) - (9,750) - (5,000) - (4,643) 2,357 (5,268) 4,732 (103,665) (4,106) (188,600) 31,164 |
|---|---|---|
The restricted funds operating during the year were as follows:-
NLCF - We secured £66,000 for 3 years to pay for two Family Support Officers to work part-time in providing support, guidance and information to our community of patients and families. This was the second year of benefiting from the grant and we have submitted a request NLCF to increase the grant so that we can provide a total of 60hrs/week of support to our community.
In May 2023 the request was granted and we were awarded a further £13,572 to add to the £66,000 previously agreed.
For the financial year of 24/25 we received £9,093.50 towards our Family Support Officers work at the charity. The project ended in October 2024.
Sanofi Pobo Aventis Pharma contributed a total of £14,000 in restricted funds to multiple initiatives, including: - Attendance at the WORLD Symposium, which provides an essential platform for engagement with both patient advocacy and pharmaceutical partners;
-
Mutation Analysis of GM2 Gangliosidosis: Preparing families for the future
-
Voices of Tay-Sachs and Sandhoff disease
-
NTSAD research conference & GGGA clinical meeting
Intrabio Ltd. contributed a total of £10,000 in restricted funds to:
- Community Engagement Projects
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continued...
- Cure & Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued
for the Year Ended 30 June 2025
8. MOVEMENT IN FUNDS - continued
-
Azafaros B. V. contributed a total of £8,000 in restricted funds to the following initiatives:
-
WORLD Symposium
-
Mutation Analysis of GM2 Gangliosidosis: Preparing families for the future
-
Voices of Tay-Sachs and Sandhoff disease
9. RELATED PARTY DISCLOSURES
There were no related party transactions for the year ended 30 June 2025.
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- Cure & Action for Tay Sachs (CATS) Foundation
| Detailed Statement of Financial Activities | ||
|---|---|---|
| for the Year Ended 30 June 2025 | ||
| 30.6.25 | 30.6.24 | |
| £ | £ | |
| INCOME AND ENDOWMENTS | ||
| Donations and legacies | ||
| Donations | 77,611 | 33,088 |
| Grants | 53,125 | 55,435 |
| 130,736 | 88,523 | |
| Investment income | ||
| Deposit account interest | 204 | 301 |
| Total incoming resources | 130,940 | 88,824 |
| EXPENDITURE | ||
| Other trading activities | ||
| Event fees | 760 | - |
| Charitable activities | ||
| Family service | 9,287 | 4,253 |
| eAcademy App | 909 | 873 |
| Project costs | - | 5,766 |
| 10,196 | 10,892 | |
| Support costs | ||
| Management | ||
| Wages | 62,066 | 71,832 |
| Social security | 2,119 | - |
| Pensions | 1,456 | 1,578 |
| Consultancy fees | 3,040 | - |
| Membership & licences | 968 | 1,131 |
| Legal fees | 1,013 | 995 |
| Postage and stationery | 294 | 50 |
| Office costs | 183 | 52 |
| 71,139 | 75,638 | |
| Information technology | ||
| Computer expenses | 4,786 | 5,022 |
| Other | ||
| Bank charges | 21 | 126 |
| Equipment on loan | 477 | 504 |
| Computer equipment | 415 | 104 |
| 913 | 734 |
This page does not form part of the statutory financial statements
Page 18
- Cure & Action for Tay Sachs (CATS) Foundation
Detailed Statement of Financial Activities for the Year Ended 30 June 2025
| Detailed Statement of Financial Activities for the Year Ended 30 June 2025 |
||
|---|---|---|
| 30.6.25 | 30.6.24 | |
| £ | £ | |
| Other | ||
| Governance costs | ||
| Accountancy and IE fees | 4,620 | 3,900 |
| Total resources expended | 92,414 | 96,186 |
| Net income/(expenditure) | 38,526 | (7,362) |
This page does not form part of the statutory financial statements
Page 19