REGISTERED CHARITY NUMBER: 1200737
Report of the Trustees and
Unaudited Financial Statements for the Year Ended 30 June 2024
for - Cure and Action for Tay Sachs (CATS) Foundation
Thornton Springer LLP Chartered Accountants
67 Westow Street London SE19 3RW
- Cure and Action for Tay Sachs (CATS) Foundation
Contents of the Financial Statements for the Year Ended 30 June 2024
| Page | |
|---|---|
| Report of the Trustees | 1 to 4 |
| Independent Examiner's Report | 5 |
| Statement of Financial Activities | 6 |
| Balance Sheet | 7 to 8 |
| Notes to the Financial Statements | 9 to 15 |
| Detailed Statement of Financial Activities | 16 |
- Cure and Action for Tay Sachs (CATS) Foundation
Report of the Trustees for the Year Ended 30 June 2024
The trustees present their report with the financial statements of the charity for the year ended 30 June 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives and aims
The Charity is committed in finding a way to effectively treat both Tay-Sachs and Sandhoff disease. This is why we are actively involved with the team leading the research into a potential treatment. Until this is available we will continue to support all families affected by the disease in any way we can.
Our defined aims are:
-
Raise awareness of Tay-Sachs and its associated diseases (such as Sandhoff disease) to the public by providing relevant information on our website.
-
Raise money for the research into the diseases for a potential treatment.
-
Provide an information resource centre, support network and equipment for families affected by the disease.
The objectives in the trust deed which govern the charity are the relief of sickness and the preservation of good health among sufferers of Tay-Sachs and Sandhoff disease which is achieved by supporting research, families, providing equipment and financing trips at home or overseas for treatment.
Public benefit
In planning our activities we have complied with the duties required by the Charities Act 2011 to have due regard to guidance published by the Charity Commission in relation to public benefit. During the year the charity continued to work for the good of society by continuing to make grants to support children and their families in need. The public benefit of the charity's activities are outlined under 'Objectives and Activities' and 'Achievements and Performance'.
Social investments
Our policy is to provide grants for equipment which can improve a sufferer's quality of life where it is not available on the NHS. One condition is that the family must seek funding from their health care provider first and, if the piece of equipment they require is not available or an inferior alternative is suggested, then the charity will provide funding. Each piece of equipment must be kept in an acceptable condition so that it may be passed onto another family when they are no longer required. Also, the equipment remains the property of the charity and not the individual.
Grantmaking
In order for us to meet our charitable objectives we have to ensure that certain policies are in place. These allow us to set our standards for making grants to the research team and ensuring we can always meet our goals by having a reserve policy for the charity. We also have policies for respite trip grants, equipment grants and research grants that we offer to families who are affected by both Tay-Sachs and Sandhoff disease. These vital policies safeguard the future of The CATS Foundation which in turn will enable us to continue supporting families affected by Tay-Sachs and Sandhoff disease. Each of our policies at The CATS Foundation are reviewed on a yearly basis to ensure that they are meeting the charity's aims and objectives as set in our governing document, the Trust Deed. The trustees meet at the end of each financial year to determine whether any changes are required or if new policies and procedures are required. During the year we did not need to update any of the policies. Each policy is also written so that they are in line with our overall reserves policy. This is to ensure that if there is an event which means the charity cannot raise any additional funds for a year that we are still able to offer our services to member families.
Volunteers
We have continued to work closely with our volunteers and involving them in several projects that are turned into patient engagement and research for treatments for the diseases.
Page 1
- Cure and Action for Tay Sachs (CATS) Foundation
Report of the Trustees for the Year Ended 30 June 2024
ACHIEVEMENTS AND PERFORMANCE
The CATS Foundation's main focus is supporting families affected by Tay-Sachs and Sandhoff whilst also raising awareness of the diseases. The charity provides a support network, respite trips and vital equipment so that a sufferer's quality of life is as high as possible.
The CATS Foundation also provides funding and support in the form of advice to several research teams who are investigating a potential treatment for both Tay-Sachs and Sandhoff disease, our efforts to run a European registry and advocacy work has placed these two ultra rare diseases on the radar for researchers and pharma companies and we are now actively involved in 11 research projects for the diseases.
FINANCIAL REVIEW
Financial position
The charity performed well this year, with a increase in donations which is connected directly to better engagement with the community it serves.
We continue to work with our partners to secure restricted grants that help us deliver specific projects that go directly into benefiting our community.
Principal funding sources
The Cure and Action for Tay-Sachs (CATS) Foundation continues to rely heavily on the generosity of its community through fundraising efforts to support its core operations and deliver vital charitable activities. Grants are typically sought for specific projects that align with the Foundation's charitable objectives.
During this financial year, we were awarded an additional £31,485 from the National Lottery Community Fund (NLCF), in the final year of this 3-year grant we were able to develop strong bonds with our community thanks to the work of our Family Support Officers.
Our pharmaceutical partners have also played a critical role in supporting several important ongoing projects within the community:
Sanofi Pobo Aventis Pharma contributed a total of £18,950 to multiple initiatives, including:
-
Our attendance at the WORLD Symposium, which provides an essential platform for engagement with both patient advocacy and pharmaceutical partners.
-
Our attendance at the NTSAD Research Conference, an event focused on Tay-Sachs and Sandhoff diseases and its patients. This event brought together the top researchers on the field worldwide and allowed for the patient voice to be part of research plans.
-
Production of Tay-Sachs and Sandhoff New Diagnoses Packs, following on 10 years of great feedback on the initial packs, this vital tool for patients and carers is getting reviewed and re-written in order to include progresses in standard of care and the experiences that the community has gained through the last decade, making it an up-to-date tool that truly helps from the diagnosis point.
-
eAcademy App Update in order to incorporate more languages and to review some of the content that is now outdated.
-
10th Tay-Sachs and Sandhoff Family Conference, held virtually, this conference is the opportunity for all patients, carers and researchers to share updates, questions and experiences.
Page 2
- Cure and Action for Tay Sachs (CATS) Foundation
Report of the Trustees for the Year Ended 30 June 2024
FINANCIAL REVIEW
Reserves policy
Our reserves policy is based on the charity being able to provide some level of support to families affected by Tay-Sachs. We have set policies that require:
-Reserves to be maintained at a level which ensures that the charity's core activity could continue during a period of unforeseen difficulty.
-A proportion of reserves to be maintained in a readily realizable form.
Therefore we have set a minimum of £10,000 free reserves to be held in the charity to ensure we are able to maintain running the charity and meeting the main objectives set for the charity.
The breakdown for our minimum free reserves is shown below:
-Providing equipment: £2,500 (25% of reserve)
-Respite trips: £2,500 (25% of reserve)
-Administration: £5,000 (50% of reserve)
This reserve breakdown will allow us to meet a minimum level of our charitable objectives if there is a significant decrease in our donations during the next financial year. As is our standard practice, the reserve policy will be reviewed on a yearly basis.
Going concern
No uncertainties exist about the charity continuing as a going concern. The trustees are aware that a small charity mostly reliant on community funding needs to be managed very closely at all times. Trustees follow strict grant policy and guidelines when they make decisions concerning grants and expenses and the overall running of the charity. The charity is run on absolutely minimal costs, and all trustees invest a lot of time and experience in the running of the charity.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing document
The charity is controlled by its governing document, a deed of trust and constitutes a charitable incorporated organisation.
Charity constitution
Charitable Incorporated Organisation (CIO).
Recruitment and appointment of new trustees
Trustees are appointed for a five-year term but can remain on the board for an undetermined period and candidates are usually found amongst people known to the existing trustees. New trustees will be directed towards the advice available from the Charity Commission and additional training will be given where it is considered necessary.
Page 3
- Cure and Action for Tay Sachs (CATS) Foundation
Report of the Trustees for the Year Ended 30 June 2024
STRUCTURE, GOVERNANCE AND MANAGEMENT Organisational structure
The charity underwent a significant structural change involving a formal change to its legal form. This was a fundamental development in the charity's governance and operations, and is disclosed in accordance with reporting requirements. On 18 October 2022, the organisation transitioned from an unincorporated association to a Charitable Incorporated Organisation (CIO). This change was undertaken to strengthen governance, provide trustees with limited liability and modernise the organisation's structure.
As a result of this restructure, the charity was assigned a new charity registration number:
-
New registration number: 1200737
-
Former registration number: 1144543
Both the former and new entities reflect the continuity of the charity's purpose and activities. Assets, liabilities, and ongoing commitments were transferred to the new legal entity as part of the restructure, ensuring no disruption to our beneficiaries, stakeholders, or the delivery of our charitable objectives.
The Trustees are confident that this structural change enhances the charity's long-term sustainability, regulatory compliance, and capacity to fulfil its mission effectively.
REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number 1200737
Registered office
Suite 3 Peel House 30 The Downs Altrincham WA14 2PX
Trustees
D P R How Ms S Choudhury T L ap Gwilym Ms K R Lewi
Independent Examiner
Thornton Springer LLP Chartered Accountants 67 Westow Street London SE19 3RW
Approved by order of the board of trustees on ............................................. and signed on its behalf by:
........................................................................ D P R How - Trustee
Page 4
Independent Examiner's Report to the Trustees of - Cure and Action for Tay Sachs (CATS) Foundation
Independent examiner's report to the trustees of Cure and Action for Tay-Sachs (CATS) Foundation
I report to the charity trustees on my examination of the accounts of Cure & Action for Tay-Sachs Foundation (the Trust) for the year ended 30 June 2024.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Z. Saleem
The Institute of Chartered Accountants in England and Wales
Thornton Springer LLP Chartered Accountants 67 Westow Street London SE19 3RW
Date: .............................................
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- Cure and Action for Tay Sachs (CATS) Foundation
Statement of Financial Activities for the Year Ended 30 June 2024
| 30.6.24 | 30.6.23 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | funds | funds | funds | ||
| Notes | £ | £ | £ | £ | |
| INCOME AND ENDOWMENTS FROM | |||||
| Donations and legacies | 33,089 | 55,434 | 88,523 | 73,603 | |
| Investment income | 2 | **301 ** | - | **301 ** | 114 |
| Total | 33,390 | **55,434 ** | 88,824 | 73,717 | |
| EXPENDITURE ON | |||||
| Charitable activities | |||||
| Charitable Activities | 37,755 | **58,431 ** | 96,186 | 84,914 | |
| NET INCOME/(EXPENDITURE) | (4,365) | (2,997) | (7,362) | (11,197) | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 13,336 | 11,670 | 25,006 | 36,203 | |
| TOTAL FUNDS CARRIED FORWARD | **8,971 ** | 8,673 | 17,644 | 25,006 |
The notes form part of these financial statements
Page 6
- Cure and Action for Tay Sachs (CATS) Foundation
Balance Sheet 30 June 2024
| 30.6.24 | 30.6.23 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | funds | funds | funds | ||
| Notes | £ | £ | £ | £ | |
| FIXED ASSETS | |||||
| Tangible assets | 6 | 1,257 | 794 | 2,051 | 1,414 |
| CURRENT ASSETS | |||||
| Debtors | 7 | 1,243 | 398 | 1,641 | 4,589 |
| Cash at bank | 14,216 | 10,649 | 24,865 | 24,412 | |
| 15,459 | 11,047 | 26,506 | 29,001 | ||
| CREDITORS | |||||
| Amounts falling due within one year | 8 | (7,745) | (3,168) | (10,913) | (5,409) |
| NET CURRENT ASSETS | 7,714 | 7,879 | 15,593 | 23,592 | |
| TOTAL ASSETS LESS CURRENT | |||||
| LIABILITIES | 8,971 | 8,673 | 17,644 | 25,006 | |
| NET ASSETS | **8,971 ** | 8,673 | 17,644 | 25,006 | |
| FUNDS | 9 | ||||
| Unrestricted funds | 8,971 | 13,336 | |||
| Restricted funds | 8,673 | 11,670 | |||
| TOTAL FUNDS | 17,644 | 25,006 |
The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by:
............................................. D P R How - Trustee
The notes form part of these financial statements
Page 7
- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements for the Year Ended 30 June 2024
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure.
Tangible fixed assets
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.
Equipment on loan - 10% - 20% on cost Computer equipment - 33% on cost
Taxation
The charity is exempt from corporation tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
Pension costs and other post-retirement benefits
The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.
continued...
Page 8
- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2024
2. INVESTMENT INCOME
| INVESTMENT INCOME | ||
|---|---|---|
| 30.6.24 | 30.6.23 | |
| £ | £ | |
| Deposit account interest | **301 ** | 114 |
3. NET INCOME/(EXPENDITURE)
Net income/(expenditure) is stated after charging/(crediting):
| 30.6.24 | 30.6.23 | |
|---|---|---|
| £ | £ | |
| Depreciation - owned assets | 608 | 654 |
4. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 30 June 2024 nor for the year ended 30 June 2023.
Trustees' expenses
There were no trustees' expenses paid for the year ended 30 June 2024 nor for the year ended 30 June 2023.
5. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted Restricted fund funds £ £ INCOME AND ENDOWMENTS FROM Donations and legacies 27,169 46,434 Investment income 114 - Total 27,283 46,434 EXPENDITURE ON Charitable activities Charitable Activities 47,863 37,051 NET INCOME/(EXPENDITURE) (20,580) 9,383 RECONCILIATION OF FUNDS Total funds brought forward 33,916 2,287 TOTAL FUNDS CARRIED FORWARD 13,336 11,670 |
Total funds £ 73,603 114 73,717 84,914 (11,197) 36,203 25,006 |
|---|---|
continued...
Page 9
- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2024
| 6. | TANGIBLE FIXED ASSETS | ||||
|---|---|---|---|---|---|
| Equipment | Computer | ||||
| on loan | equipment | Totals | |||
| £ | £ | £ | |||
| COST | |||||
| At 1 July 2023 | 7,743 | 2,577 | 10,320 | ||
| Additions | - | 1,245 | 1,245 | ||
| At 30 June 2024 | 7,743 | 3,822 | 11,565 | ||
| DEPRECIATION | |||||
| At 1 July 2023 | 6,329 | 2,577 | 8,906 | ||
| Charge for year | **504 ** | **104 ** | 608 | ||
| At 30 June 2024 | 6,833 | **2,681 ** | 9,514 | ||
| NET BOOK VALUE | |||||
| At 30 June 2024 | 910 | 1,141 | **2,051 ** | ||
| At 30 June 2023 | 1,414 | - | 1,414 | ||
| 7. | DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | ||||
| 30.6.24 | 30.6.23 | ||||
| £ | £ | ||||
| Other debtors | - | 1 | |||
| Other debtor | 1,641 | 4,588 | |||
| 1,641 | 4,589 | ||||
| 8. | CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | ||||
| 30.6.24 | 30.6.23 | ||||
| £ | £ | ||||
| Workplace pension control | 319 | - | |||
| Accruals and deferred income | **10,594 ** | 5,409 | |||
| 10,913 | 5,409 |
continued...
Page 10
- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued
for the Year Ended 30 June 2024
9. MOVEMENT IN FUNDS
| MOVEMENT IN FUNDS | |||
|---|---|---|---|
| Net | |||
| movement | At | ||
| At 1.7.23 | in funds | 30.6.24 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 13,336 | (4,365) | 8,971 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 1,211 | (417) | 794 |
| NLCF Family Support Officers Grant | 1,529 | (1,529) | - |
| Translation of eAcademy App Grant | - | 76 | 76 |
| Azafaros - Clinician Toolkit | 54 | (54) | - |
| WORLD Symposium Travel and | |||
| Attendance | - | 585 | 585 |
| Awareness & Educational Campaign | 3,148 | (713) | 2,435 |
| GM2 Company Consortium Support | 5,728 | (5,568) | 160 |
| NTSAD - Research Conference Attendance | - | 190 | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | - | 4,433 | 4,433 |
| 11,670 | (2,997) | 8,673 | |
| TOTAL FUNDS | 25,006 | (7,362) | 17,644 |
| Net movement in funds, included in the above are as follows: | |||
| Incoming | Resources | Movement | |
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 33,390 | (37,755) | (4,365) |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | (1) | (416) | (417) |
| NLCF Family Support Officers Grant | 31,485 | (33,014) | (1,529) |
| Translation of eAcademy App Grant | 4,000 | (3,924) | 76 |
| Azafaros - Clinician Toolkit | - | (54) | (54) |
| WORLD Symposium Travel and | |||
| Attendance | 3,200 | (2,615) | 585 |
| Awareness & Educational Campaign | - | (713) | (713) |
| GM2 Company Consortium Support | - | (5,568) | (5,568) |
| NTSAD - Research Conference Attendance | 2,000 | (1,810) | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | 9,750 | (5,317) | 4,433 |
| Virtual Tay-Sachs and Sandhoff Family | |||
| Conference | 5,000 | **(5,000) ** | - |
| **55,434 ** | (58,431) | (2,997) | |
| TOTAL FUNDS | 88,824 | **(96,186) ** | (7,362) |
continued...
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- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2024
9. MOVEMENT IN FUNDS - continued
Comparatives for movement in funds
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.7.22 | in funds | 30.6.23 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 33,916 | (20,580) | 13,336 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 1,627 | (416) | 1,211 |
| NLCF Family Support Officers Grant | 660 | 869 | 1,529 |
| Azafaros - Clinician Toolkit | - | 54 | 54 |
| Awareness & Educational Campaign | - | 3,148 | 3,148 |
| GM2 Company Consortium Support | - | 5,728 | 5,728 |
| 2,287 | 9,383 | 11,670 | |
| TOTAL FUNDS | 36,203 | (11,197) | 25,006 |
| Comparative net movement in funds, included in the above are as follows: | |||
| Incoming | Resources | Movement | |
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 27,283 | (47,863) | (20,580) |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | - | (416) | (416) |
| NLCF Family Support Officers Grant | 21,782 | (20,913) | 869 |
| Azafaros - Clinician Toolkit | 8,000 | (7,946) | 54 |
| WORLD Symposium Travel and | |||
| Attendance | 3,152 | (3,152) | - |
| Awareness & Educational Campaign | 6,000 | (2,852) | 3,148 |
| GM2 Company Consortium Support | 7,500 | (1,772) | 5,728 |
| 46,434 | (37,051) | 9,383 | |
| TOTAL FUNDS | 73,717 | (84,914) | (11,197) |
continued...
Page 12
- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued
for the Year Ended 30 June 2024
9. MOVEMENT IN FUNDS - continued
A current year 12 months and prior year 12 months combined position is as follows:
| Net | |||
|---|---|---|---|
| movement | At | ||
| At 1.7.22 | in funds | 30.6.24 | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 33,916 | (24,945) | 8,971 |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | 1,627 | (833) | 794 |
| NLCF Family Support Officers Grant | 660 | (660) | - |
| Translation of eAcademy App Grant | - | 76 | 76 |
| WORLD Symposium Travel and | |||
| Attendance | - | 585 | 585 |
| Awareness & Educational Campaign | - | 2,435 | 2,435 |
| GM2 Company Consortium Support | - | 160 | 160 |
| NTSAD - Research Conference Attendance | - | 190 | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | - | 4,433 | 4,433 |
| 2,287 | 6,386 | 8,673 | |
| TOTAL FUNDS | 36,203 | (18,559) | 17,644 |
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 60,673 | (85,618) | (24,945) |
| Restricted funds | |||
| CAF COVID-19 Emergency Fund | (1) | (832) | (833) |
| NLCF Family Support Officers Grant | 53,267 | (53,927) | (660) |
| Translation of eAcademy App Grant | 4,000 | (3,924) | 76 |
| Azafaros - Clinician Toolkit | 8,000 | (8,000) | - |
| WORLD Symposium Travel and | |||
| Attendance | 6,352 | (5,767) | 585 |
| Awareness & Educational Campaign | 6,000 | (3,565) | 2,435 |
| GM2 Company Consortium Support | 7,500 | (7,340) | 160 |
| NTSAD - Research Conference Attendance | 2,000 | (1,810) | 190 |
| Tay-Sachs and Sandhoff New Diagnosis | |||
| Packs | 9,750 | (5,317) | 4,433 |
| Virtual Tay-Sachs and Sandhoff Family | |||
| Conference | 5,000 | (5,000) | - |
| 101,868 | (95,482) | 6,386 | |
| TOTAL FUNDS | 162,541 | (181,100) | (18,559) |
continued...
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- Cure and Action for Tay Sachs (CATS) Foundation
Notes to the Financial Statements - continued for the Year Ended 30 June 2024
9. MOVEMENT IN FUNDS - continued
The restricted funds operating during the year were as follows:-
NLCF - We secured £66,000 for 3 years to pay for two Family Support Officers to work part-time in providing support, guidance and information to our community of patients and families. This was the second year of benefiting from the grant and we have submitted a request NLCF to increase the grant so that we can provide a total of 60hrs/week of support to our community.
In May 2023 the request was granted and we were awarded a further £13,572 to add to the £66,000 previously agreed.
For the financial year of 23/24 we received £31,485 towards our Family Support Officers work at the charity. The project ends in October 2024.
Sanofi Pobo Aventis Pharma contributed a total of £18,950 to multiple initiatives, including:
-
Attendance at the WORLD Symposium, which provides an essential platform for engagement with both patient advocacy and pharmaceutical partners;
-
NTSAD Research conference attendance;
-
Tay-Sachs and Sandhoff new diagnosis packs;
-
eAcademy app update;
-
10th Tay-Sachs and Sandhoff Family Conference.
10. RELATED PARTY DISCLOSURES
There were no related party transactions for the year ended 30 June 2024.
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- Cure and Action for Tay Sachs (CATS) Foundation
Detailed Statement of Financial Activities for the Year Ended 30 June 2024
| Detailed Statement of Financial Activities for the Year Ended 30 June 2024 |
||
|---|---|---|
| 30.6.24 | 30.6.23 | |
| £ | £ | |
| INCOME AND ENDOWMENTS | ||
| Donations and legacies | ||
| Donations | 33,088 | 12,669 |
| Grants | 55,435 | 60,934 |
| 88,523 | 73,603 | |
| Investment income | ||
| Deposit account interest | **301 ** | 114 |
| Total incoming resources | 88,824 | 73,717 |
| EXPENDITURE | ||
| Charitable activities | ||
| Family service | 4,253 | 6,854 |
| eAcademy App | 873 | 322 |
| Project costs | 5,766 | 11,078 |
| 10,892 | 18,254 | |
| Support costs | ||
| Management | ||
| Wages | 71,832 | 54,658 |
| Pensions | 1,578 | 1,489 |
| Membership andl licences | 1,131 | 1,225 |
| Legal and professional fees | 995 | 1,120 |
| Postage and stationery | 50 | 599 |
| Office costs | 52 | 37 |
| Travel | - | 33 |
| 75,638 | 59,161 | |
| Information technology | ||
| Computer expenses | 5,022 | 3,246 |
| Other | ||
| Bank charges | 126 | - |
| Fixtures and fittings | 504 | 562 |
| Computer equipment | **104 ** | 91 |
| 734 | 653 | |
| Governance costs | ||
| Accountancy and IE fees | 3,900 | 3,600 |
| Total resources expended | 96,186 | 84,914 |
| Net expenditure | (7,362) | (11,197) |
This page does not form part of the statutory financial statements
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