## **Trustees’ Annual Report for the period** ## **From 18/10/2022 Period start date To 30/06/2023 Period end date** ## **Charity name:** ## **Charity registration number:** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The objectives in the constitution document
which governs the charity is the relief of
sickness and the preservation of good
health among sufferers of Tay-Sachs and
Sandhoff disease.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|-
Support research through grants
-
Support patients and families by
educating, empowering and
connecting them
-
Provide equipment to improve the
sufferer’s quality of life| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees are responsible for the
preparation of financial statements for each
financial period which give a true and fair
view of the charity’s incoming resources
and application of resources during the
year, and of its state of affairs at the
period end. In preparing these financial
statements the trustees are required to:
• Select suitable accounting policies and
then apply them consistently;
• Make judgments and estimates that are
reasonable and
prudent;
• State whether applicable accounting
standards and
statements of recommended practice have
been followed,
subject to any material departures
disclosed and explained
in the financial statements; and
• Prepare the financial statements on the
going concern
basis unless it is inappropriate to presume
that the charity
will continue in operation.| **Additional information (optional)** You may choose to include further statements where relevant about: SORP reference |Policy on grant making|Para 1.38|Our research grant making policy is based
on our donations to the research into a
potential treatment for Tay-Sachs and
Sandhoff disease. Grant applications are
submitted to the charity directly for review
by the trustees and a funding decision is
agreed. The charity does run a grant call,
and all grant applications are submitted on
an ad hoc basis. Researchers from the UK
and abroad are encouraged to apply for
funding.
The charity sets aside a maximum of 10%
of all money raised during the year to be
made available as a grant to research into
a treatment for Tay-Sachs and Sandhoff
disease. The charity is under no obligation
to donate the full 10% of the money raised
during the year and can use this to further
other charitable objectives.
As is our standard practice, the research
grant policy will be reviewed on a yearly
basis depending on our activity levels and
fundraising.| |---|---|---| |Policy on social investment
including program related
investment|Para 1.38|Our equipment funding policy is based on
an allocation basis per family who are a
member of The CATS Foundation. To
become a member, families complete a
short form which contains their contact
details and the way their family is affected
by Tay-Sachs or Sandhoff disease.
Each family is allocated £250 which can be
used for equipment through the financial
year of the charity. Families must apply
through our grant making application form
which details the costs and type of
equipment they require, and it is up to the
trustees to approve or refuse to provide
funding.
The charity has a stock of equipment which
can be shared amongst members. All
equipment which is purchased must be
returned to the charity so that another
family can benefit from it.
Only direct family members can apply for
equipment funding (i.e. the affected
individual, their parents or main carer). All
costs are approved by the trustees and
they reserve the right to refuse funding if
the equipment does not fall within the
framework of what the charity deems
reasonable.
As is our standard practice, the reserve
policy will be reviewed on a yearly basis| depending on our activity levels and fundraising. Para 1.38 Contribution made by volunteers Other ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|The CATS Foundation’s main focus is
supporting families affected by Tay-Sachs and
Sandhoff whilst also raising awareness of the
diseases. The charity provides a support
network, respite trips and vital equipment so
that a sufferer’s quality of life is as high as
possible.
The CATS Foundation also provides funding
and support in the form of advice to several
research teams who are investigating a
potential treatment for both Tay-Sachs and
Sandhoff disease, our efforts to run a European
registry and advocacy work has placed these
two ultra-rare diseases on the radar for
researchers and pharma companies and we are
now actively involved in 11 research projects
for the diseases. One of them has stared
recruitment at the end of 2019 and is currently
showing some promising results.
Through the European Tay-Sachs Charity
Consortium (ETSCC), we have established
strong links with other charities in Europe so
we can work together at finding a treatment
for the
diseases. We believe collaboration as a group
with our US counterparts will also aid this
process.
This year has been marked by a strong
response to the community´s needs as it reels
back from the pandemic and what have been
extremely difficult years. Our fundraising
activities have certainly been affected by the
cost-of-living crisis, as have our service users.
We have trained and made our Family Support
Officers available to provide extra support and
care to all patients and families. Access to
health and social service remains extremely
difficult and frustratingand this is also hugely| impacting time to diagnosis, that in turn severely affects patients and families´ ability to plan, to accept and the overall quality of life of the individual affected and those surrounding them. In May 2023 we applied to the National Lottery Community Fund to increase their grant in order to be able to offer more hours of support to our patients and community. This was accepted and increased to allow us to offer 60hrs of support per week. ## **Additional information (optional)** You may choose to include further statements where relevant about: |Achievements against
objectives set|Para 1.41|| |---|---|---| |Performance of fundraising
activities against objectives
set|Para 1.41|| |Investment performance
against objectives|Para 1.41|| |Other||| ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Our reserve policy is based on the charity
being able to provide some level of support
to families affected by Tay-Sachs. We have
set a policy that requires:
• Reserves to be maintained at a level
which ensures that the charity’s core
activity could continue during a period of
unforeseen
difficulty.| |Amount of reserves held|Para 1.22|£5,000.00| |Reasons for holding zero
reserves|Para 1.22|| |Details of fund materially in
deficit|Para 1.24|| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|No uncertainties about the charity
continuing as a going concern. The
trustees are aware that a small charity
mostly reliant on community funding needs
to be managed very closely at all times.
Trustees follow strict grant policy and
guidelines when they make decisions
concerning grants and expenses and the
overall running of the charity. The charity is
run on absolutely minimal costs, and all
trustees invest a lot of time and experience
in the running of the charity.| ## **Additional information (optional)** You may choose to include further statements where relevant about: |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|| |---|---|---| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the principal
risks facing the charity|Para 1.46|| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|Trust Deed Dated October 2022| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Charitable Incorporated Organisation**| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees are appointed for a five-year term
but can remain on the board for an
undetermined period and candidates are
usually found amongst people known to the
existing trustees. New trustees will be
directed towards the advice available from
the Charity Commission and additional
training will be given where it is considered
necessary.| **Additional information (optional)** You may choose to include further statements where relevant about: Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other ## **Reference and Administrative details** |Charity name|Cure and Action for Tay-Sachs (CATS) Foundation| |---|---| |Other name the charity uses|| |Registered charity number|1200737| |Charity’s principal address|Suite 3
Peel House
30 The Downs
ALTRINCHAM
Cheshire
WA14 2PX| ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee (if any)**| |---|---|---|---|---| ||Llywelyn ap
Gwilym|||| ||Kathryn Lewi|||| ||Daniel How|||| ||Shara Choudhury|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---| |**Type of**
**adviser**
**Name**
**Address**||| |||| |||| |||| |||| |**Name of chief executive or names of senior staff members (Optional information)**||| |||| ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** |**Signature(s)**
**Full name(s)**
**Position (eg Secretary,**
**Chair, etc)**
**Date**||Daniel How (Apr 29, 2024 17:57 GMT+1)|| |---|---|---|---| ||
Daniel How||| ||||| ||
29 April 2024||| ||
29 April 2024||| **Cure and Action for Tay-Sachs (CATS) Foundation No (if any) Receipts and payments accounts CC16a For the period 10/18/2022** 6/30/2023 **To from** ## **Section A Receipts and payments** |**Section A Receipts and payments**||||| |---|---|---|---|---| |**A1 Receipts**
**5,000**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**5,000**
**-**
**-**
**_Sub total_ -**
**_Total receipts_ 5,000**
**A3 Payments**
No transactions
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**_Sub total_ -**
**-**
**-**
**_Sub total_ -**
**_Total payments_ -**
**_Net of receipts/(payments)_ 5,000**
**A5 Transfers between funds**
**-**
**A6 Cash funds last year end**
**-**
**_Cash funds this year end_ 5,000**
**Unrestricted**
**funds**
**to the nearest £**
Cure and Action for Tay-Sachs (CATS)
Foundation (1144543) transfer of funds for
set up
**_Sub total_**_(Gross income for AR)_
**A2 Asset and investment sales,**
**(see table).**
**A4 Asset and investment**
**purchases, (see table)**|**to the nearest £**
**Restricted**
**funds**|**to the nearest £**
**Endowment**
**funds**|**Total funds**
**to the nearest £**|**Last year**
**to the nearest £**| ||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**5,000**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**5,000**|**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||| ||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| |||||**-**| |||||**-**| |||||| ||**-**|**-**|**5,000**|**-**| |||||| ||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||| ||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| |||||| |||||**-**| |||||| ||**-**|**-**|**-**|**-**| |||||| ||**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**|**5,000**
**-**
**-**
**5,000**|**-**| |||||**-**| |||||**-**| |||||**-**| ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
**B1 Cash funds**
**B2 Other monetary assets**
**B3 Investment assets**
**B5 Liabilities**
**B4 Assets retained for the**
**charity’s own use**
Signed by one or two trustees on
behalf of all the trustees|**Details**
**Details**
**Details**
**Details**
**Details**
Signature
**_Total cash funds_**
(agree balances with receipts and payments
account(s))|**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**5,000**
**-**
OK
OK
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
Print Name
Daniel How
**Unrestricted**
**funds**
**Restricted**
**funds**
**Unrestricted**
**funds**
**Restricted**
**funds**
**Fund to which**
**asset belongs**
**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**|**to nearest £**
**Endowment**
**funds**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**to nearest £**
**Endowment**
**funds**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| |||Daniel How|4/29/2024| |||||