# THE MIKAERE FOUNDATION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1200720
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 18, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1200720


## Contact

- **Address:** 90 York Rd, London
- **Postcode:** SW11 3GT
- **Phone:** 0330 088 7313
- **Email:** hello@mikaerefoundation.org
- **Website:** http://mikaerefoundation.org/



## Activities

**Objects:** THE OBJECTS ARE:THE RELIEF OF PEOPLE LIVING WITH NONKETOTIC HYPERGLYCINEMIA/GLYCINE ENCEPHALOPATHY, IN PARTICULAR, BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT, ADVICE, GRANTS AND INFORMATION FOR SUCH PERSONS, THEIR FAMILIES, CARERS AND/OR THOSE WORKING WITH AFFECTED INDIVIDUALS.

**Activities:** The Mikaere Foundation:- Funds research into Nonketotic Hyperglycinemia (NKH) to advance the knowledge of effective treatments- Provides support and information about Nonketotic Hyperglycinemia (NKH) to children living with NKH, their families and supporting medical professionals.- Champion initiatives related to NKH, that benefit children with NKH and their families




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Disability
- **Who:** Children/young People, People With Disabilities, Other Defined Groups



## Geography

- Throughout England





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Melanie Gedye** | Chair | Oct. 18, 2022 |
| Andrew Hulance |  | Oct. 18, 2022 |
| Anthony Collins |  | Oct. 18, 2022 |
| Kirsty Lester |  | Oct. 18, 2022 |
| Samuel Hulance |  | Oct. 18, 2022 |
| Sreeram Ramagopalan |  | Oct. 30, 2025 |
| Wendy Hulance |  | Oct. 18, 2022 |




