IS MISE CARA BRAIN DISEASE FOUNDATION
REGISTRATION NUMBER 1200525 ANNUAL REPORT 2025
This is the third Annual Report of the Trustees / Directors of Is Mise Cara Brain Disease Foundation (Foundation).
Included are the Financial Statements of the Foundation for the Year to 31[st] March 2025, and which are set out on pages 1 and 2 of the attached Charity Commission form CC16a.
UK Charity Commission Registration:
The Foundation was granted registration on 29th September 2022.
Aim and Purposes:
The Foundation was set up to provide support and wellbeing for families and their carers who are undergoing brain disease treatment especially children. This will also include providing breaks and holidays. The Foundation's purposes remain the same as per its original Constitution.
Objectives and Activities:
The Foundation's overall objectives remain the same. Consequently, the short-term tasks are:
Fund Raising: During this financial year, the Management Team has approved and actioned fundraising through events, additional sponsorship options, and general volunteer donations. We made plans to be able to have merchandise for sale to enhance income in the year 25/26. The merchandise is now in stock and will be available for sale in the year 2025-2026.
Grants: Consideration and discussions were had as to how the Foundation might offer patients and their families locally, to have holiday opportunities in the Yorkshire area. Good feedback was received from the Leeds Hospital Paediatric Oncology Department.
Policies: The following policy documents were put in place:
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Safeguarding
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Conflict of Interest
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Complaints
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Bullying and Harassment
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Social Media
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Privacy and GDPR
Additional policies to be developed are:
Financial rules
Health and wellbeing
- Investment policy Money laundering Disaster management
Website: The Foundation website is now fit for purpose, but work is needed to implement a donor management system and ongoing improvements in 2025-2026.
Relationship building : The Foundation continued to build relationships with both the medical and educational professions to ensure the neediest will be able to benefit from the facilities we are hopeful of putting in place.
In Year 3, we sourced merchandise to sell via the Foundation's eCommerce-based website and in Year 4 the merchandise will be available for sale.
The Foundation will also continue to seek sponsorship and donor funding and submit grant funding proposals. Two grant applications were made (unsuccessfully) this year. However, the Foundation will continue to persevere.
Achievement and Performances:
The Foundation's website has since been improved in the light of experience: www.carabraindiseasefoundation.com
Donations:
Donations were received amounting to £2508 during the financial year to the 31.3.2025. This includes donations from the Foundations events in Leeds. Costs were kept to a minimum amounting to £200.
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The Foundation Christmas event in November 2024 which raised a total of £1000.00.
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The St Patrick's Day (March 17[th, ] 2025) raised a further £450.
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A Shakespeare Charity Run in late March 2025 raised a further £765.00. However, the funds, although they have been received, are not included in the Financial Statements to 31[st] March 2025.
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The Foundation’s main donor was Finncara Consulting Ltd and remains the to be a firm supporter of the work we do. We remain optimistic about future growth and the positive impact it will have on our donations.
Grants Made:
Through our relationship with the Leeds Hospital Paediatric Oncology Unit we were made aware of individual families in particular need over the Christmas period and the Foundation was able to make grants to these families though the organisations concerned. The grants totalled £750.00.
Relationship Building
Contacts in Leeds have continued with the paediatric oncology professionals for discussions in anticipation of finding appropriate families to receive short breaks. Likewise, the Foundation has been in touch with The Brain Tumour Charity and the Yorkshire Brain Tumour Charity to ascertain their potential interest in the Foundation’s operational activities and to identify any areas for cooperation and collaboration.
Contacts were also made in Year 3 with a view to corporate sponsorship through our Lead Trustee, including a British financial advice and wealth management company however we did not receive a favourable response.
We have identified two runners for the Oct 2025 Jersey marathon. Contacts have been made with local businesses with a view to engaging with them to secure support and potential sponsorship. We hope to do more of this kind of activity during this next year.
Contacts have been made with property agents in York to ascertain the viability of property rental to support patients and families and a property owner with a house within 5 minutes’ walk from the Royal Victoria Hospital in Belfast. Conversations are ongoing as we seek funding to enable us to provide long-term rental services to patients and families. In Year 3 we have provisionally partnered with an ethical travel company ‘The Brave’ travel and have offered four, 4-week holidays to patients and families from the Paediatric Oncology Day Unit at Leeds, LGI hospital. The first four families will avail of holidays to Italy, Spain, Greece or Hungary in the summer of 2025. We are due to meet with senior clinicians and staff from Candlelighters and Yorkshire Brain Tumour Charity to discuss the holiday opportunities, and also to support Candlelighters’ memory-maker gifts for parents of deceased children.
Volunteers
Volunteer recruitment was undertaken, especially in the Leeds area and good contact here was again made with Leeds Teaching and Hospital Trust. We already have many volunteers who are based here in the UK and abroad.
Financial Review:
Considering the Foundation has only been truly operational with a banking service for a period of just over 3 years, positive steps are in train for 2025/26.
The costs so far have been bank charges, website and IT costs as well as some modest merchandising . The balance in the account as at 31[st ] March 2025 was £6828, an increase of £1342 over the financial year.
Administrative Information
Foundation Trustee/Directors:
Charles Stevens
John Croke
Claudia Rusenescu
Management Committee
Chair and Trustee Director, Charles Stevens
Trustee Director, John Croke
Trustee Director, Claudia Rusenescu Chief Executive Officer, Dr Kieran Mervyn Chief Marketing Officer, Faye Mervyn
Advisor and Volunteer, Khalid Mukhtar
Email: ismisecara@gmail.com
Approved by the Is Mise Cara Board on 29.8.2025 and signed on their behalf by Charles
| IS MISE CARA BRAIN DISEASE FOUNDATION | IS MISE CARA BRAIN DISEASE FOUNDATION | IS MISE CARA BRAIN DISEASE FOUNDATION | 1200525 | 1200525 | CC16a | |
|---|---|---|---|---|---|---|
| Receipts and payments accounts | ||||||
| For the period from | 1.4.2024 | To | 31.3.2025 | |||
| Section A Receipts and payments | ||||||
| A1 Receipts | Unrestricted funds to the nearest £ 1,108 1,400 - - - |
Restricted funds to the nearest £ - - - - - |
Endowment funds to the nearest £ - - - - - |
Total funds to the nearest £ 1108 1,400 - - - |
Last year to the nearest £ |
|
| Donations | 1,108 | - | - | - | ||
| Events | 1,400 | - | - | 1,400 | - | |
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| - | - | - | - | - |
| - | - | - | |||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| - | - | ||||||||||
| - | - | - | |||||||||
| - | - | ||||||||||
| - | - | - | |||||||||
| - | - | ||||||||||
| Sub total(Gross income for AR) | 2,508 | - | - | 2,508 | - | ||||||
| A2 Asset and investment sales, (see table). | |||||||||||
| - | - | - | - | ||||||||
| - | - | - | - | - | |||||||
| Sub total | Nil | - | - | Nil | - | ||||||
| Total receipts | 2508 | - | - | 2508 | - | ||||||
| A3 Payments | |||||||||||
| Bank Charges | 66 | - | - | 66 | - | ||||||
| IT Costs | 3 | - | - | 3 | - | ||||||
| Grants Made | 750 | - | - | 750 | - | ||||||
| Merchandising | |||||||||||
| 131 | - | - | 131 | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| Sub total | |||||||||||
| 950 | - | - | 950 | - |
| A4 Asset and investment purchases, (see table) |
- - Nil 950 1,558 - - 7,042 |
- - - - - - - - |
- - - - - - - - |
- - Nil 950 1,55 8 - - 7,042 |
|
|---|---|---|---|---|---|
| - | |||||
| - | |||||
| Sub total Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
Nil | - | |||
| - | |||||
| 1,558 | - | - | 1,55 8 |
- | |
| - | - | - | - | - | |
| - | - | - | - | - | |
| 7,042 | - | - | 7,042 | - |
| Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | |||
|---|---|---|---|---|
| Categories B1 Cash funds |
Details HSBC Total cash funds (agree balances with receipts and payments account(s)) |
Unrestricted funds to nearest £ 7,042 - - 7,042 OK |
Restricted funds to nearest £ - - - - OK |
Endowment funds to nearest £ |
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| OK |
Unrestricted funds
Restricted funds
Endowment funds
B2 Other monetary assets
B3 Investment assets B4 Assets retained for the charity’s own use
| Details | to nearest £ - - - - - - |
to nearest £ - - - - - - |
to nearest £ |
|---|---|---|---|
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - |
| Details Details |
Fund to which asset belongs 0 Fund to which asset belongs 0 |
Cost (optional) - - - - - Cost (optional) - - - - |
Current value (optional) |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) | |||
| 0 | - | - | |
| - | - | ||
| - | - | ||
| - | - |
B5 Liabilities
Signed by one or two trustees on behalf of all the trustees
| Fund to which liability relates 0 |
Amount due (optional) |
|---|---|
| 0 | - |
| - | |
| - | |
| - | |
| - |
When due (optional)
Details
| Signature | Print Name CB STEVENS J CROKE |
Date of approval | |
|---|---|---|---|
| CB STEVENS | 29.8.2025 29.8.2025 |
||
| J CROKE |
IS MISE CARA BRAIN DISEASE FOUNDATION FINANCIAL STATEMENTS YEAR TO 31ST MARCH 2024
| FINANCIAL STATEMENTS YEAR TO 31ST MARCH 2024 |
||||
|---|---|---|---|---|
| 2024 | 2023 | |||
| INCOME | ||||
| DONATIONS and | ||||
| EVENTS | 4335 | 2118 | ||
| EXPENDITURE | ||||
| ADMINISTRATION and | ||||
| IT | 129 | |||
| GRANTS | 750 | |||
| BANK CHARGES | 67 | 21 | ||
| TOTAL COSTS | 945 | 21 | ||
| NET EARNINGS | 3389 | 2097 | ||
| IS MISE CARA BRAIN DISEASE FOUNDATION | ||||
| BALANCE SHEET AS AT 31SR MARCH 2024 | ||||
| 2024 | 2023 | |||
| ASSETS | ||||
| HSBC BANK BALANCE | 5486 | 2097 | ||
| LIABILITIES | 0 | 0 | ||
| FOUNDATION AVAILABLE FUNDS | 5486 | 2097 |
IS MISE CARA BRAIN DISEASE FOUNDATION FINANCIAL STATEMENTS YEAR TO 31ST MARCH 2025
| 2025 | |||
|---|---|---|---|
| INCOME | |||
| DONATIONS | 1108 | ||
| EVENTS | 1400 | ||
| TOTAL | 2508 | ||
| EXPENDITURE | |||
| ADMINISTRATION | |||
| & IT | 3 | 129 | |
| MERCHANDISING | 131 | 0 | |
| BANK CHARGES | 66 | 67 | |
| GRANTS | 750 | 750 | |
| TOTAL | 950 | ||
| NET EARNINGS | 1558 | ||
| IS MISE CARA BRAIN DISEASE FOUNDATION | |||
| BALANCE SHEET AS AT 31ST MARCH 2025 | |||
| 2025 | |||
| ASSETS | |||
| HSBC BANK - BALANCE | 6828 | ||
| CREDITORS | 214 | ||
| TOTAL | 7042 | ||
| LIABILITIES | |||
| FOUNDATION FUNDS 2024 | 5486 | ||
| NET EARNINGS 2025 | 1558 | ||
| FOUNDATION AVAILABLE FUNDS | 7042 |
NOTES
2024
CREDITORS
Registration fees for 2 sponsored marathons were paid in advance, Shakespeare Marathon and the Jersey Marathon. Earnings from the will arise in in 2025 and be shown in the 2025/2026 Financial Statem Err:509
| Event 1 - Nov 2024 | Annual Dinner | ||
|---|---|---|---|
| Receipts | |||
| Sale of meal tickets | 1409 | ||
| Rafe & Auction | 400 | 1809 | |
| Costs | |||
| 945 | Ameens restaurant | -700 | |
| 3390 | PROFIT | 1109 | |
| Event 2 -March 2025 | St. Patrick's Day | ||
| Receipts | |||
| Takings / Donations | 320 | ||
| Costs | -30 | ||
| 2024 | PROFIT | 290 | |
| 5486 | Marathons | ||
| Event 3 - March 2025 | |||
| 5486 | Shakespeare Marathon | Registration fee | 40 |
| Event October 2025 | |||
| Jersey Marathon Registration fee | 174 | ||
| TOTAL | 214 | ||
| Financial statements 2025 | |||
| 5486 |
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