Trustees’ Annual Report for the period from
Period start date 1[st] April 2025 Period end date 31[st] March 2026
Charity name: Breathe On
Charity registration number: 1200377
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | We are a charity for Long Covid who provide: • Patient advocacy • Providing online resources to direct patients to appropriate health services • Designing & creating a shared knowledge hub for people (and family/carers) living well with Long COVID • Our mission is to be an honest broker in the provision of decision support information on living well with Long Covid, for all ages. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
(a) To collate and share evidence-based best practice information on living well with Long COVID with affected families, representatives and carers in the Dorset area (b) To advocate for and encourage the local regional and national development of multi- agency integrated care pathways for long Covid (c) To facilitate clear communication between suffers of Long COVID and their families, carers, medical professionals and all parties involved in health and social care sectors (d) To build effective partnerships with public, private, voluntary and community organisations to deliver co-ordinated services. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | All trustees endorse the guidance issued by the Charity Commission https://www.gov.uk/guidance/public- benefit-rules-for-charities |
Additional information (optional) You may choose to include further statements where relevant about:
| SORP reference | ||
|---|---|---|
| Policy on grant making | Para 1.38 | N/A |
| Policy on social investment including program related investment |
Para 1.38 | N/A |
| Contribution made by volunteers |
Para 1.38 | Contributions are primarily made through voluntary participation to weekly Zoom Calls, monthly board meetings and bi annual face to face meetings. |
| Other |
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The main achievements of the charity during 2025-06 have been • Establishing & maintaining the website providing free online access to the most recent and reliable evidence-based advice on living well with Long COVID • Establishing the office hub in Dorset that will be used for engaging with patients, their families, representatives and carers • Developing partnerships with public, private & voluntary organisations involved with long covid • Assisting in the design of clinical definitions for each stage of the Long Covid care pathway |
Additional information (optional)
You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | • Online Patient advocacy • Collating and making freely accessible online resources to direct patients to appropriate health services • Creating a shared knowledge hub on the website on living well with Long COVID |
|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | The charity has focussed on establishing it’s governance structures and processes and internet presence during 2025/26 with a view to commencing fundraising opportunities in the latter half of 2026/07. |
| Investment performance against objectives |
Para 1.41 | Investment of £1000 received from the estate of Edna May Conning contributed to the registration of 2 website domains, website hosting and design and maintenance of a BT Business account, desktop computer and mobile phones. |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | Day to day running costs of the Breatheon.co.uk website hosting and domain registration are currently met by the Chair & CEO. Trustees and volunteers contribute their own personal time using their own IT infrastructure to enable participation in the weekly Zoom meeting calls and regional meetings. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Reserves are currently being held in the CAF account and by a dedicated account for the charity by the founder to enable the charity to proceed with an application for Associated Charity Status planned for the Autumn of 2024 |
| Amount of reserves held | Para 1.22 | £200 held in the Breathe On CAF account plus £5,000 grant being held on account by the founder. |
| Reasons for holding zero reserves |
Para 1.22 | Due to the politically unstable environment the board decided to maintain a minimum financial risk, voluntary and not for profit status during 2025-26. |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | Trustees and volunteers are committed to continue to contribute their personal time and IT maintenance to enable participation in the weekly Zoom calls and regional meetings. This arrangement is reviewed on an annual basis. |
| Additional information (optional) You may choose to include further statements where relevant about: |
Additional information (optional) You may choose to include further statements where relevant about: |
Additional information (optional) You may choose to include further statements where relevant about: |
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The charity currently secures it’s funding sources via Trustees and volunteers. We have chosen not to seek or accept external donations while we build our capacity governance and resilience, pending our planned submission for Associated Charity status in the 2ndhalf of 2026- 27. |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | The principle risks to the charity are: Political –Cultural resistance to recognising Long Covid as a condition Environmental – Regional dispersity Social – Workforce recruitment & retention Technical – securing support via the online non profit networks |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
Breathe On | ||
|---|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 |
Foundation Charity | |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO | |
| Trustee selection* methods** including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Job Adverts via Reach Invites through websites & by email Interviews on Zoom CV’s |
Additional information (optional) You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | Included in all job descriptions as a default |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | Westminster Health Forum Microsoft Non-Profit Network NHS Commissioner and Provider Networks The Long Covid Support Group Long Covid Kids |
| Relationship with any related parties |
Para 1.51 | During 2023/04 we signed up to a mutually supportive, non-financial arrangement with Responsum to secure free access to their Long Covid App for residents in Dorset. We supported Responsum’s bid to secure approval from Google. The app is available for free access on IPhone and Android phones. |
| Other |
Reference and Administrative details
| Charity name | Breathe On |
|---|---|
| Other name the charity uses | N/A |
| Registered charity number | 1200377 |
| Charity’s principal address | KNIGHTS COTTAGE, SACKMORE LANE, MARNHULL |
Names of the charity trustees who manage the charity
| 1 2 3 4 |
Trustee name | Office (if any) | Dates acted if not for **whole year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Edward Stuart Rowe | Chair & Acting CEO | 2021 to /2022 2022 to 2023 2023 to 2024 2024 to 2025 2025 to 2026 |
The Board | |
| Victoria Townsend | Founder | 2021 to /2022 2022 to 2023 2023 to 2024 2024 to 2025 2025 to 2026 |
The Board | |
| Lance Forbat | Clinical Director | 2021 to /2022 2022 to 2023 2023 to 2024 2024 to 2025 2025 to 2026 |
The Board | |
| Moybul Ali | Director of Operations and HR. |
2023 to 2024 2024 to 2025 2025 to 2026 |
The Board |
| Corporate trustees–names of | the directors at the date the report was approved | the directors at the date the report was approved |
|---|---|---|
| Director name | ||
| Edward Stuart Rowe | 27.01.26 | |
| Lance Forbat | 27.01.26 | |
| Victoria Townsend | 27.01.26 | |
| Moybul Ali | 27.01.26 |
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year | |
|---|---|---|
| N/A | N/A | |
Funds held as custodian trustees on behalf of others
Edward Stuart Rowe holds the registration of Description of the assets The Name of the Charity held in this capacity The Website Domain Name(s) and Website Hosting Registration with the Charity Commission Name and objects of the charity on whose behalf the Edward Stuart Rowe holds the registration of the CAF assets are held and how this account falls within the custodian charity’s objects Details of arrangements for Victoria Townsend holds a separate bank account for safesafe custody and holding of £5000 in reserves. segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Type of | Name | Address |
|---|---|---|
| adviser |
Name of chief executive or names of senior staff members (Optional information)
N/A
Exemptions from disclosure
Reason for non-disclosure of key personnel details
N/A
Other optional information
N/A
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
By email confirmation | |
|---|---|---|
| Edward Stuart Rowe | ||
Chair & Acting CEO |
||
| 27/01/2026 | ||
| 27/01/2026 |
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) By email confirmation Full name(s) Victoria Townsend Position (eg Secretary, Chair, etc) Founder Date 27/01/2026
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
By email confirmation | |
|---|---|---|
| Lance Forbat | ||
Clinical Director |
||
| 27/01/2026 | ||
| 27/01/2026 |
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
By email confirmation | |
|---|---|---|
| Moybul Ali | ||
Director of Operations and HR |
||
| 27/01/2026 | ||
| 27/01/2026 |