## **Trustees’ Annual Report for the period from**
**Period start date 1[st] April 2023 Period end date 31[st] March 2024**
## **Charity name: Breathe On**
**Charity registration number: 1200377**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes
of the charity as set out in
its governing document|Para 1.17|We are a charity for Long Covid who
provide:
Patient advocacy
Providing online resources to direct patients
to appropriate health services
Designing & creating a shared knowledge
hub for people (and family/carers) living well
with Long COVID
Our mission is to be an honest broker in the
provision of decision support information on
living well with Long Covid, for all ages.|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|(a) To collate and share evidence-based best
practice information on living well with Long
COVID with affected families,
representatives and carers in the Dorset
area
(b) To advocate for and encourage the local
regional and national development of multi-
agency integrated care pathways for long
Covid
(c) To facilitate clear communication between
suffers of Long COVID and their families,
carers, medical professionals and all parties
involved in health and social care sectors
(d) To build effective partnerships with public,
private, voluntary and community
organisations to deliver co-ordinated
services.|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|All trustees endorse the guidance issued by the
Charity Commission
**https://www.gov.uk/guidance/public-**
**benefit-rules-for-charities**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
||
SORP reference||
|---|---|---|
|Policy on grant making|Para 1.38|**N/A**|
|Policy on social investment
including program related
investment|Para 1.38|**N/A**|
|Contribution made by
volunteers|Para 1.38|Contributions are primarily
made through
voluntary participation to weekly Zoom Calls,
monthly board meetings and bi annual face to
face meetings.|
|Other|||
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**The main achievements of the charity**
**during 2023-04 have been**
Establishing the website providing free
online access to the most recent and
reliable evidence-based advice on living
well with Long COVID
Establishing the office hub in Dorset
that will be used for engaging with
patients, their families, representatives
and carers
Developing partnerships with public,
private & voluntary organisations
involved with long covid
Assisting in the design of clinical
definitions for each stage of the Long
Covid care pathway|
**Additional information (optional)**
You may choose to include further statements where relevant about:
|
Achievements against
objectives set|
Para 1.41|
Online Patient advocacy
Collating and making freely accessible
online resources to direct patients to
appropriate health services
Creating a shared knowledge hub on the
website on living well with Long COVID|
|---|---|---|
|Performance of fundraising
activities against objectives
set|Para 1.41|The charity has focussed on establishing it’s
governance structures and processes and
internet presence during 2023/24 with a view to
commencing fundraising opportunities in the
latter half of 2024/05.|
|Investment performance
against objectives|Para 1.41|Investment of £1000 received from the estate of
Edna May Conning contributed to the
registration of 2 website domains, website
hosting and design and maintenance of a BT
Business account, desktop computer and
mobile phones.|
|Other|||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|Day to day running costs of the
Breatheon.co.uk website hosting and domain
registration are currently met by the Chair &
CEO. Trustees and volunteers contribute their
own personal time using their own IT
infrastructure to enable participation in the
weekly Zoom meeting calls and regional
meetings.|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Reserves are currently being held in the CAF
account and by a dedicated account for the
charity by the founder to enable the charity to
proceed with an application for Associated
Charity Status planned for the Autumn of 2024|
|Amount of reserves held|Para 1.22|£200 held in the Breathe On CAF account plus
£5,000 grant being held on account by the
founder.|
|Reasons for holding zero
reserves|Para 1.22|Due to the politically unstable environment the
board decided to maintain a minimum financial
risk, voluntary and not for profit status during
2023-24.|
|Details of fund materially in
deficit|Para 1.24|N/A|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|Trustees and volunteers are committed to
continue to contribute their personal time and IT
maintenance to enable participation in the
weekly Zoom calls and regional meetings. This
arrangement will be reviewed during 2024-2025
and thereafter on an annual basis.|
## **Additional information (optional)** You may choose to include further statements where relevant about:
|
The charity’s principal
sources of funds (including
any fundraising)|
Para 1.47|
The charity currently secures it’s funding
sources via Trustees and volunteers. We have
chosen not to seek or accept external donations
during the first two years while we build our
capacity governance and resilience, pending our
planned submission for Associated Charity
status in the 2ndhalf of 2024.|
|---|---|---|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46||
|A description of the
principal risks facing the
charity|Para 1.46|The principle risks to the charity are:
Political –Cultural resistance to recognising Long
Covid as a condition
Environmental – Regional dispersity
Social – Workforce recruitment & retention
Technical – securing support via the online non
profit networks|
|Other|||
## **Structure, Governance and Management**
||Description of charity’s
trusts:||**Breathe On**|
|---|---|---|---|
||Type of governing document
(trust deed, royal charter)|Para 1.25|Foundation Charity|
||How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**CIO**|
||***_Trustee selection_**
**_methods_**
including details of
any constitutional provisions
e.g. election to post or name
of any person or body
entitled to appoint one or
more trustees|Para 1.25|Job Adverts via Reach
Invites through websites & by email
Interviews on Zoom
CV’s|
|**Additional information (optional)**
You may choose to include further statements where relevant about:||||
|Policies and procedures
adopted for the induction
and training of trustees||Para 1.51|Included in all job descriptions as a default|
|The charity’s organisational
structure and any wider
network with which the
charity works||Para 1.51|Westminster Health Forum
Microsoft Non-Profit Network
Linkedin
NHS Commissioner and Provider Networks
Facebook|
|Relationship with any
related parties||Para 1.51|During 2023/04 we signed up to a mutually
supportive, non-financial arrangement with
Responsum to secure free access to their Long
Covid App for residents in Dorset. We
supported Responsum’s bid to secure approval
from Google. The app is now available for free
access on IPhone and Android phones.|
|Other||||
## **Reference and Administrative details**
|Charity name|Breathe On|
|---|---|
|Other name the charity uses|N/A|
|Registered charity number|1200377|
|Charity’s principal address|KNIGHTS COTTAGE, SACKMORE LANE, MARNHULL|
|||
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6|**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Edward Stuart Rowe|Chair & Acting CEO|2021 to /2022
2022 to 2023
2023 to 2024|The Board|
||Victoria Townsend|Founder|2021 to /2022
2022 to 2023
2023 to 2024|The Board|
||Lance Forbat|Clinical Director|2021 to /2022
2022 to 2023
2023 to 2024|The Board|
||Moybul Ali|Director of
Operations and HR.|2023 to 2024|The Board|
||||||
||||||
– Corporate trustees names of the directors at the date the report was approved
|
**Director name**|
16.08.24||
|---|---|---|
|Edward Stuart Rowe|**16.08.24**||
|Lance Forbat|**13.08.24**||
|Victoria Townsend|**16.08.24**||
|Moybul Ali|**16.08.24**||
Name of trustees holding title to property belonging to the charity
|**Trustee name**|**Dates acted if not for whole year**||
|---|---|---|
|**N/A**|**N/A**||
||||
||||
## **Funds held as custodian trustees on behalf of others**
Edward Stuart Rowe holds the registration Description of the assets The Name of the Charity held in this capacity The Website Domain Name(s) and Website Hosting Registration with the Charity Commission Name and objects of the charity on whose behalf the Edward Stuart Rowe holds the registration of the CAF assets are held and how this account falls within the custodian charity’s objects Details of arrangements for Victoria Townsend holds a separate bank account for safesafe custody and holding of £5000 in reserves. segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
**Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**N/A**
## **Other optional information**
**N/A**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** By email confirmation **Full name(s)** Edward Stuart Rowe **Position (eg Secretary,** Chair & Acting CEO **Chair, etc) Date** 16/08/2024
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** By email confirmation **Full name(s)** Victoria Townsend
**Position (eg Secretary, Chair, etc)** Founder **Date** 16/08/2024
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** By email confirmation **Full name(s)** Lance Forbat **Position (eg Secretary,** Clinical Director **Chair, etc)**
**Date**
16/08/2024
## **The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** By email confirmation **Full name(s)** Moybul Ali
**Position (eg Secretary,** Director of Operations and HR **Chair, etc)**
**Date** 16/08/2024