# SEDSCONNECTIVE

## Details

- **Country:** England & Wales
- **Charity number:** 1199724
- **Other names:** SUSSEX EHLERS-DANLOS SYNDROMES AND HYPERMOBILITY DISORDERS (SEDS) CIC, Symptomatic Hypermobility Ehlers-Danlos EDS HSD Neurodivergence Autism ADHD Dyspraxia Dyslexia TS +
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 20, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1199724


## Contact

- **Address:** PLANET HOUSE, NORTH HEATH LANE INDUSTRIAL ESTATE, HORSHAM, W SUSSEX
- **Postcode:** RH12 5QE
- **Phone:** 07376973688
- **Email:** general@sedsconnective.org
- **Website:** www.sedsconnective.org



## Activities

**Objects:** THE OBJECT OF THE CIO, TO BE CARRIED OUT FOR THE PUBLIC BENEFIT PRIMARILY IN SUSSEX, THE SURROUNDING AREAS AND BEYOND, AS THE TRUSTEES SEE FIT, IS:TO RELIEVE THE NEEDS OF PEOPLE (AND THEIR FAMILIES AND OR THEIR CARERS) LIVING WITH EHLERS-DANLOS SYNDROME (EDS), HYPERMOBILITY SPECTRUM DISORDERS (HSD) OR SYMPTOMATIC HYPERMOBILITY, NEURODIVERGENT CONDITIONS AND ANY ASSOCIATED CONDITIONS OR SYMPTOMS, IN PARTICULAR BUT NOT EXCLUSIVELY, BY: A) PROVIDING ADVICE, INFORMATION AND PEER SUPPORT AS WELL AS FUNDING FOR ACTIVITIES, SUPPORT SERVICES AND EQUIPMENT; AND B) ADVANCING THE EDUCATION OF THE PUBLIC AND ALLIED PROFESSIONALS BY RAISING AWARENESS OF THE ABOVE CONDITIONS;FOR THE PURPOSE OF THIS CLAUSE “NEURODIVERGENT CONDITIONS” INCLUDE, BUT NOT EXCLUSIVELY, AUTISM, ATTENTION DEFICIT HYPERACTIVITY DISORDER (ADHD), DYSPRAXIA AND TOURETTE’S SYNDROME. “ASSOCIATED CONDITIONS OR SYMPTOMS” INCLUDE, BUT ARE NOT LIMITED TO, FIBROMYALGIA,M.E/CFS (CHRONIC FATIGUE SYNDROME), ALLERGIES AND POSTURAL TACHYCARDIA SYNDROME (POTS).

**Activities:** SEDSConnective improves and actively supports the lives of people with Symptomatic hypermobility EDS HSD and Neurodivergence (primarily autism, ADHD, dyspraxia, TS) and associated conditions, families and carers,  in health, education, social care, employment, and transport accessibility.




## Classification

- **How:** Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, The Prevention Or Relief Of Poverty, Human Rights/religious Or Racial Harmony/equality Or Diversity, Recreation, Other Charitable Purposes
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups, The General Public/mankind



## Areas of operation

- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Nov. 30, 2024 | £42309 | £20035 | — | — |
| Nov. 30, 2023 | £40949 | £26768 | — | — |



## Trustees

- **Jane Fiona Green MBE** (Chair) — appointed July 21, 2022
- Andrea Sanchez — appointed July 15, 2024
- Areeba Javaid Qureshi — appointed Oct. 9, 2025
- Katy Brizell — appointed July 15, 2024
- Kelly Elizabeth Harris — appointed July 21, 2022
- Lkhagvadulam Battumur — appointed Aug. 22, 2025
- Sonal Bisht — appointed April 18, 2025