Rare Disease Nurse Network
Rdnn
Address
- Address
- 71-75 Shelton St
Covent Garden
London
WC2H 9JQ
Contact
- Phone
- 07738697979
- kay.parkinson@rdnn.org
- Website
rdnn.org
Activities
Developing a rare disease nurse network to help support families, carers and professionals working with people affected by rare diseases.
Objects: The Relief Of Sickness Of Persons With Rare Diseases, In Particular But Not Exclusively Through The Provision Of: A) Specialised Support, Advice, Information And Assistance Directly And Indirectly To People Affected By Rare Diseases Including But Not Limited To The Establishment Of A Nurse’s Network To Provide Such Support. B) Education To Healthcare Professionals Working In The Rare Disease Arena And The General Public And Promote Public Awareness Of Rare Diseases And Related Syndromes, Including But Not Limited To The Subjects Of Diagnoses, Potential Cures And Treatments, And The Support Required By People Affected By Rare Disease. C) The Promotion, Support And Assistance Of Research Into Rare Diseases And Related Syndromes, Both In The UK And Abroad And The Public Dissemination Of The Useful Results Thereof.for The Purposes Of These Objects, “Persons Affected By Rare Disease” Includes Reference To People Who Have A Rare Disease (Whether Diagnosed Or Undiagnosed), Their Carers, Family Members And Friends, Clinicians And Nurses And Others Working With Affected Individuals Or Affected Directly Or Indirectly In Some Capacity By A Rare Disease.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- Education/training, The Advancement Of Health Or Saving Of Lives
Geography
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Jan. 31, 2025 | £0 | £296 |
| Jan. 31, 2024 | £5,000 | £2,225 |
| Jan. 31, 2023 | £0 | £4,784 |
Trustees
| Name | Appointed |
|---|---|
| Neil Dugdale | July 17, 1998 |
| Simon Stuart Mouncer | July 29, 2022 |
| Zoe Georgina Morrison | April 19, 2024 |
Nearby
- The Oluwanifise Foundation 0.0 mi
- Diversity (UK) 0.0 mi
- The Pagan Federation 0.0 mi
- Naz And Matt Foundation 0.0 mi
- Peniel Foundation UK 0.0 mi