## **INTRACTABLE EPILEPSY**
**(A company limited by guarantee)**
**Report and Financial Statements For the Period Ended 31 March 2023**
**Charity Number: 1199192 Company Registration Number: 13019024**
## **Contents**
Reference and administrative details of the charity, its Trustees and advisers......................................3 Report of the Trustees...........................................................................................................................4 Independent Examiner's Report to the Trustees....................................................................................7 Statement of Financial Activities for the period ended 31 March 2023.................................................8 Balance Sheet as at 31 March 2023.......................................................................................................9 Cashflow Statement for 31 March 2023...............................................................................................10 Notes forming part of the Financial Statements for the Period ended 31 March 2023..................11-15
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## **Reference and administrative details of the charity, its Trustees and advisers**
**Members of the Council:** Graham Howard Levy Ronald Jack Cowan MP Emily Carkeet Joanne Marjorie Justine Griffiths Karen Gray **Chairman** Graham Howard Levy **Company Secretary: Joanne Griffiths**
**Registered office and Principal address:** Fir Tree Barn Preston Road Crossmoor Preston PR4 3XB
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## **The Report of the Trustees**
The Trustees present their report and the financial statements of the charity for the year ended 31 March 2023 which are also prepared to meet the requirements for a directors’ report and accounts for Companies Act purposes.
The financial statements comply with the Charities Act 2011, the Companies Act 2006, the Articles of Association, and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015).
## **Structure, Governance and Management**
## **Legal Status**
The organisation is a charitable company limited by guarantee, incorporated on 15[th] Nov 2020 and registered as a charity on 06[th] June 2022. The company was established under a Memorandum of Association setting out the objects and powers of the charitable company and is governed under its Articles of Association.
## **Members of the Council**
Members of the Council (who are directors for the purpose of company law and trustees for the purpose of charity law) who served during the year and up to the date of this report are set out on page 3. Potential new additions to the Council are considered by the existing members on the basis of the organisation’s needs.
## **Objectives and Activities**
## **Principal activity and charitable status**
The company is registered charity established to raise funds to help Families in need raise funds for Medication currently legal but not available on the NHS. Its registered charity number is 1199192 and its company registration number is 13019024.
## **The public benefit**
The public Benefit is to raise funds to assist families who are financially suffering to pay for the necessary medication that can relieve their children's suffering.
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## **Financial Review Reserves policy**
Total reserves at 31 March 2023 amounted to £17,906 of which £17,906 were unrestricted funds and £nil restricted funds. This will be covered by income or capital.
The Trust recognizes the need for an adequate level of reserves, in particular given the uncertainties of funding and the frequent delays in the actual provision of the financial resources agreed by funding bodies. The current reserves policy is to hold a minimum of 4-6 months budgeted annual expenditure as reserves to cover core costs. At 31 March 2023 the free reserves of the company amounted to £17,906 which is comfortably in line with the reserves policy. The balance sheet is set out on page 9.
## **Risk Management Policy**
Potential risks facing the Trusts are the uneven flow of project finance, the late payments of grants agreed for projects and the associated foreign exchange risk, where relevant. The former is most effectively managed by ensuring firstly that there are clear, unambiguous arrangements in place with a donor prior to substantive project development and secondly that the financial monitoring and reporting on projects is timely, thereby permitting prompt claims to donors. Foreign exchange risk will be minimized by prompt switching into the currency where the maximum costs are incurred.
## **Small Company Provisions**
This report has been prepared in accordance with the special provisions for small companies under Part 15 of the Companies Act 2006.
**Approve by the members of the Council on 3 1 /03/2025 and signed on their behalf by:**
**Graham Howard Levy**
**On behalf of the Council Members**
**Chairman**
**Member of Council**
Prepared by
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## **INTRACTABLE EPILEPSY**
## **Statement of Financial Activities (incorporating an income and expenditure account) for the Period from 01[st] December 2021 to 31 March 2023**
|**Notes**
**Income and endowments from:**
Donations and legacies
1
Charitable activities 2
Investments and other income
3
**Total income and endowments**
**Expenditure on:**
Raising funds
4
Charitable activities
4
**Total expenditure**
**Net income / (expenditure) for the year**
**Net movement of funds**
**Reconciliation of funds**
Total funds brought forward
**12**
**Total funds carried forward**|**Unrestricted**
**Restricted**
**Total Funds**
**Total Funds**
**Funds 2023**
**Funds 2023**
**2023**
**2021**
**£**
**£**
**£**
**£**
22,832
4,637
-
-
22,832
4,637
5,021
-
12
-
12
-|
|---|---|
||27,481
-
**27,481**
5,021|
||6,967
-
6,967
191
7,438
-
**7,438**
-|
||14,405
-
**14,405**
191|
||13,076
-
**13,076**
**4,830**|
||13,076
-
**13,076**
4,830|
||4,830
-
**4,830**
-|
||17,906
-
**17,906**
4830|
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## **INTRACTABLE EPILEPSY Balance Sheet as at 31 March 2023 (Company registration number 13019024)**
|**Notes**
**Fixed Assets**
Tangible assets
**8**
**Current Assets**
Debtors
**9**
Cash at bank and in hand
**10**
**Creditors: Amounts falling**
**due within one year**
**11**
**Net Current Assets**
**Net Assets**
Unrestricted Funds
**13**
Restricted Funds
**13**
**Total Funds**|**2023**
**2021**
**£**
**£**
**-**
-
**1,200**
-
**17,306**
4830
**18,506**
4830
**(600)**
-
**17,906**
4830
**17,906**
4830
**17,906**
4830
**-**
-
**17,906**
4830|
|---|---|
These financial statements have been prepared in accordance with the special provisions for small companies under Part 15 of the Companies Act 2006.
The Trustees consider that the charitable company is entitled to exemption from the requirement to have an audit under the provisions of section 477 of the Companies Act 2006 ("the Act") and members have not required the charitable company to obtain an audit for the year in question in accordance with section 476 of the Act.
The Trustees acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.
Approved by the members of the Council on 3 1 /03/2025
and signed on their behalf by:
**Graham Howard Levy**
**On behalf of the Council Members**
**Chairman**
**Member of Council**
Prepared by
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## **INTRACTABLE EPILEPSY**
## **Cash Flow Statement for the period ended 31 March 2023**
|**Net cash flow from operating activities**
**Cash flow from investing activities**
Interest received
Purchase of tangible fixed asset
**Net cash flow from investing activities**
**Net increase / (decrease) in cash and cash equivalents**
**Cash and cash equivalents at start date 01 December 2021**
**Cash and cash equivalents at end date 31 March 2023**
**Cash and cash equivalents consist of:**
Cash at bank and in hand
**Cash and cash equivalents at end date 31 March 2023**
**Reconciliation**
**of**
**net**
**income**
**/**
**(expenditure)**
**to**
**net**
**cash**
**flow**
**from**
**operating**
**activities**
Net income / (expenditure) for year/period
Interest receivable
(Increase)/Decrease in debtors
Increase/(Decrease) in creditors
**Net cash flow from operating activities**|**2023**
**£**
**2021**
**£**
**12,464**
4,830
12
-
-
-|
|---|---|
||12
-|
||12,476
4,830
4,830
-|
||**17,306**
4,830|
||**17,306**
4,830|
||**17,306**
4,830|
||**2023**
**2021**
**£**
**£**
13,076
4,830
(12)
-
(1200)
-
600
-|
||**12,464**
**4,830**|
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## **Notes forming part of the Financial Statements for the Year ended 31 March 2023**
## **General information**
The Intractable Epilepsy for Giving Children Their Lives Back is a charitable company, limited by guarantee, domiciled in England and Wales.
The registered office as detailed on page 3.
## **Company limited by guarantee**
The company is limited by guarantee and does not have a share capital.
## **Accounting Policies**
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)) and the Companies Act 2006.
The Intractable Epilepsy for Giving Children Their Lives Back meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognized at historical cost or transaction value unless otherwise stated in the relevant accounting policy.
The charitable company’s functional and presentational currency is GBP, rounded to the nearest GBP.
## **Going Concern**
The charity has reported a cash inflow for the year of £12,464. The charity is currently self-financing, and the trustees are in the fortunate position that they do not rely on external finance to operate.
After reviewing the charity’s forecasts and projections the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. The charity therefore continues to adopt the going concern basis in preparing its financial statements.
## **Debtors and prepayments**
Trade and other debtors are recognized at the settlement amount due after any trade discounts. Prepayments are valued at the amount prepaid net of any discounts.
## **Creditors and provisions**
Creditors and provisions are recognized where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount to settle the obligation can be measured or estimated reliably.
## **Income**
Income is recognized once the charitable company has entitlement to the funds, any performance conditions have been met, it is probable that the income will be received, and the amount can be measured reliably.
Income from grants, whether ‘capital’ grants or ‘revenue’ grants, is recognized when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, it is probable that the income will be received and the amount can be measured reliably and is not deferred.
Donations and legacies receivable for the general purposes of the charity are credited to ‘unrestricted funds’. Donations and legacies for purposes restricted by the wishes of the donor are presented in ‘restricted funds’.
Where legacies have been notified to the charity, or the charity is aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy is treated as a contingent asset and disclosed if material
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Interest is included when receivable and the amount can be measured reliably by the charity.
## **Expenditure**
Expenditure is recognized once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required, and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:
- Costs of raising funds comprise the costs of marketing.
- Expenditure on charitable activities includes the costs of salaries, and other activities undertaken to further the purposes of the charity and their associated support costs.
- Other expenditure represents those items not falling into any other heading.
## **Tangible Fixed Assets**
Fixed assets with a cost price of more than £500 are capitalized at cost and depreciation is calculated on a straight- line basis over their useful economic life of 3 years.
## **Foreign Exchange**
All foreign transaction gains and losses are determined using the date of the foreign transaction.
## **Funds**
Unrestricted funds comprise incoming resources receivable or generated for the objectives of the charity without further specified purpose and are available as general funds.
Restricted funds are for the specific purpose specified by the donor and relevant expenditure is charged to the fund.
## **Financial instruments**
The charitable company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognized at transaction value and subsequently measured at their settlement value.
## **Critical accounting judgements and key sources of estimation uncertainty**
In preparing the financial statements, management is required to make estimates and assumptions which affect reported income, expenses, assets, liabilities and disclosure of contingent assets and liabilities. Use of available information and application of judgements are inherent in the formation of estimates, together with past experience and expectations of future events that are believed to be reasonable under the circumstances. Actual results in the future could differ from such estimates.
Management do not consider there to be any material accounting estimates or judgements that need disclosure in these financial statements.
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## **1) Donations and legacies**
|Donations|**Unrestricted**
**£**
**Restricted**
**£**
**2023 Total**
**£**
**2021 Total**
**£**
22,832
-
**22,832**
5,021|
|---|---|
||22,832
-
**22,832**
5,021|
Income from donations and legacies was £22,832 (2023 - £5,021) was attributable to unrestricted funds.
## **2) Incoming Resources from Activities to further the Charity’s Objectives**
|Day Events
Fundraising Websites
Lottery
Other Revenue|**Unrestricted**
**£**
**Restricted**
**£**
**2023 Total**
**£**
**2021 Total**
**£**
250
-
250
-
3,065
-
3,065
-
540
-
540
-
782
-
**782**
-|
|---|---|
||4,637
-
**4,637**
-|
Income from charitable activities is all attributable to unrestricted funds in the current year **.**
## **3) Income from Investments**
|Interest Received|**Unrestricted**
**£**
**Restricted**
**£**
**2023 Total**
**£**
**2021 Total**
**£**
12
-
**12**
-|
|---|---|
||12
-
**12**
-|
Income from investments was all attributable to unrestricted funds in the current and prior year.
## **4) Analysis of Expenditure on Charitable Activities**
|Cost of Generating Funds
Charitable Activities|**Activities**
**undertaken**
**directly**
**£**
**Support**
**costs**
**£**
**2023 Total**
**£**
**2021 Total**
**£**
5,897
1,070
**6,967**
191
5,389
2,049
**7,438**
-|
|---|---|
||
11,286 3,119**14,405**
191|
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## **5) Employee Remuneration**
|**Payroll Details:**
Wages and Salaries
Pension|**2023 Total**
**£**
**2021 Total**
**£**
-
-
-
-|
|---|---|
||-
-|
The total amount of employee benefits received by key management personnel is £nil (2021 - £nil).
## **6) Trustee Remuneration & Related Party Transactions**
There were no related party transactions in the current year (2023 - none). No trustee received any remuneration or reimbursed expenses during the year (2021- £nil).
## **7)Taxation**
As a charity, Intractable Epilepsy for Giving Children Their Lives Back is exempt from tax on income and gains to the extent that these are applied to its charitable objects. No tax charges have arisen in the Charity.
## **8) Tangible Fixed Assets**
|**Cost:**
At 1 December 2021
Disposals
Additions
At 31 March 2023
**Accumulated Depreciation**
At 1 December 2021
Disposals
Current year depreciation
At 31 March 2023
**Net book value**
At 31 March 2023
At 30 November 2021|**Office**
**Equipment**
**Total**
**£**
**£**
**-**
-
**-**
-
**-**
-|
|---|---|
||**-**
-|
||**-**
-
**-**
-
**-**
-|
||**-**
-|
|||
||**-**
-|
|||
||**-**
-|
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## **9) Debtors**
|Trade debtors
Prepayments
Accrued Income
**10) Cash at bank and in hand**
Bank and cash at hand
**11) Creditors: Amounts Falling Due within One Year**
Trade Creditors
Accruals and deferred income
Taxation and social security
Other Creditors|||**2023 Total**
**£**
**2021 Total**
**£**
**1,200**
-
**-**
-
**-**
-
**1,200**
-
**2023 Total**
**2021 Total**
**£**
**£**
**17,306**
**4,830**
**17,306**
4,830
**2023 Total**
**£**
**2021 Total**
**£**
**-**
-
**600**
-
**-**
-
**-**
-|
|---|---|---|---|
|||||
|||||
||||**600**
**-**|
## **10) Cash at bank and in hand**
## **11) Creditors: Amounts Falling Due within One Year**
The was no income deferred at the end of the year (2021: Nil).
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## **12) Movement in Funds**
|**Current year:**
Restricted Funds
Unrestricted Funds
**Total Funds**
**Prior Year:**
**Restricted Funds**
**Unrestricted Funds**
**Total Funds**|**At 1**
**December**
**2021**
**£**
**Incoming**
**Resources**
**£**
**Outgoing**
**Resources**
**£**
**Transfers**
**£**
**At 31**
**March**
**2023**
**£**
-
-
-
-
**-**
**4,830**
27,481
(14,405)
-
**17,906**|
|---|---|
||**4,830**
**27,481**
**(14,405)**
**-**
**17,906**|
||**At 15 Nov**
**Incoming**
**Outgoing**
**At 30**
**Nov**
**2020**
**Resources**
**Resources**
**Transfers**
**2021**
**£**
**£**
**£**
**£**
**£**
**-**
-
-
-
**-**
-
5,021
(191)
-
4,830|
||**-**
**5,021**
**(191)**
**-**
**4,830**|
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## **13) Analysis of net assets between funds**
|**Current year:**
Fund balances at**31 March 2023**are represented by:
Tangible fixed assets
Current assets
Creditors: amounts falling due within one year
**Prior year:**
Fund balances at**30 November 2021**are represented by:
Tangible fixed assets
Current assets
Creditors: amounts falling due within one year|**Unrestricted**
**funds**
**Restricted**
**funds**
**Total**
**£**
**£**
**£**
-
-
**-**
18,506
-
**18,506**
(600)
-
**(600)**|
|---|---|
||17,906
-
**17,906**|
||**Unrestricted**
**funds**
**£**
**Restricted**
**funds**
**£**
**Total**
**£**
-
-
**-**
4,830
-
**4,830**
-
-
**-**|
||4,830
-
**4,830**|
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