# LONG COVID SOS

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1199120
- **Other names:** LONGCOVIDSOS
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 30, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1199120


## Contact

- **Address:** 5 PLAINVIEW CLOSE, ALDRIDGE, WALSALL
- **Postcode:** WS9 0YY
- **Phone:** 07941 578807
- **Email:** info@longcovidsos.org
- **Website:** www.longcovidsos.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE FOR THE ADVANCEMENT OF HEALTH AND RELIEF OF NEED AMONG PEOPLE WITH LONG COVID, THEIR FAMILIES AND CARERS FOR THE PUBLIC BENEFIT BY:1.RAISING AWARENESS OF LONG COVID, ITS TREATMENT, RECOVERY AND REHABILITATION AMONG HEALTH POLICYMAKERS, HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC;2.ADVOCATING FOR AND MAKING KNOWN TO HEALTHCARE PROVIDERS, HEALTH POLICYMAKERS AND OTHER RELEVANT POLICY MAKERS THE VIEWS AND LIVED EXPERIENCE OF MEMBERS OF THE GENERAL PUBLIC SUFFERING FROM OR AFFECTED BY LONG COVID;3.SUPPORTING OR CARRYING OUT RESEARCH INTO THE CAUSES, PREVENTION, DIAGNOSIS AND TREATMENT OF LONG COVID, AND PUBLISHING THE USEFUL RESULTS OF SUCH RESEARCH.FOR THE PURPOSE OF THE OBJECTS ‘LONG COVID’ MEANS POST-ACUTE COVID-19 SYNDROME, WHERE SYMPTOMS AND/OR LONG-TERM COMPLICATIONS OCCUR BEYOND FOUR WEEKS FROM INITIAL INFECTION OR SYMPTOM ONSET TO INCLUDE ANY POST VIRAL ILLNESS WITH A SUSPECTED OR EVIDENCED LINK TO COVID-19.

**Activities:** Long Covid SOS advocates for recognition, research and rehabilitation for people with Long Covid




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Other Defined Groups



## Geography

- Throughout England





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Sarah Barley-McMullen** | Chair | April 14, 2026 |
| Caroline Elizabeth Stewart |  | Nov. 20, 2025 |
| Helen Lunt Davies |  | April 14, 2026 |
| Kim Horstmanshof |  | April 14, 2026 |
| Melanie Ann Cassoff |  | April 25, 2023 |
| Professor Amitava Banerjee |  | May 31, 2022 |




