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2025-05-26-accounts

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Trustees' Annual Report for the period
Period start date Period end date
01 June 2024 31 May 2025
From To
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Section A Reference and administration details

Charity name LONG COVID SUPPORT Other names charity is known by N/A Registered charity number (if any) 1198938 Charity's principal address 87 Standen Road London Postcode SW18 5TR

Names of the charity trustees who manage the charity

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Name of person (or body)
Trustee name Office (if any) Dates acted if not for entire year entitled to appoint trustee (if
any)
1 Joanne Dainow Chair till May 2025
Dr Margaret
2
O’Hara
3 Natalie Rogers
4 Gareth Evans
Dr Ian Martin November 2023 to January
5
Frayling 2025
James William
6
McGoldrick
7 Temitope Oyefuga Treasurer
8 Aimie Cole
Professor Daniel
9
Altmann
10 Nigel Rothband Chair from May 2025
Larry Mindel March 2023 to September
11
2024
Alison Hills November 2023 to June
12
2024
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Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for entire year

Names and addresses of advisers (Optional information)

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Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance, and management

Description of the charity’s trusts

Type of governing document

Articles of Association

How the charity is constituted

Company

Trustee selection methods

Appointed by the Board of Trustees

(e.g. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Induction and Training of Trustees : The charity has clear policies and procedures for the induction and training of trustees, ensuring they understand their roles and responsibilities. The EDI Policy outlines the approach for trustee appointments, promoting fairness and diversity in the selection process.

Organisational Structure and Networks : The charity operates a flat structure and uses Peer Support Groups to foster collaboration and community involvement. It also engages with a wider network of organisations to enhance service delivery and advocacy.

Section C Objectives and activities

The charitable objects of Long Covid Support are to promote and protect the health of the public and to relieve the needs of people with Long Summary of the objects of the Covid and their families and carers, in particular by providing information, charity set out in its support, advocacy and guidance, and by supporting and disseminating governing document research into diagnosis, treatment and rehabilitation.

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The trustees confirm that, in planning and delivering the charity’s activities, they have had due regard to the Charity Commission’s guidance on public benefit.

During the year, Long Covid Support delivered its objects through three interconnected strands of work:

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

  1. Support and Community – Providing peer-to-peer support for people with Long Covid and their carers through online groups, check-in sessions, and wellbeing activities. The charity’s Facebook Support Group now connects over 67,000 members worldwide and offers specialist sub-groups for men and carers. A new Volunteer Strategy was launched to strengthen recruitment, onboarding and retention of volunteers who sustain this work.

  2. Advocacy and Policy Engagement – Representing the voices of people living with Long Covid in national and devolved policy forums. Highlights included helping to establish the All-Party Parliamentary Group on Long Covid, contributing to the UK Covid-19 Inquiry, and continued collaboration with NICE, NHS England and the Clinical Post-Covid Society on service provision and clinical guidance.

  3. Research and Evidence – Championing patient-led research through the charity’s Research Involvement Consultancy, partnerships in multiple UK and international studies, and publication of evidence such as the Disabled, Discharged and Disappearing from View report on clinic closures.

The charity’s work is supported by more than forty volunteers with lived experience, ensuring that its activities remain informed by and accountable to the community it serves.

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

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Section D Achievements and performance

Summary of the main achievements of the charity during the year

1. Peer Support and Community Outreach  Supported 67,750 members worldwide in the main Facebook Support Group (+ 2,000 on year).

Ran weekly Check-in & Chat sessions with 6–20 participants each week, including Carers’ and Men’s Groups.

Introduced new member-led sessions (career support, working with moderate Long Covid).

Established buddy systems, induction interviews, and retention
strategies.
Future plans include volunteer briefings and milestone recognition
schemes.
3. Advocacy and Policy Influence
Partnered with Jo Platt MP to form the All-Party Parliamentary
Group (APPG) on Long Covid (Dec 2024).
Co-organised joint APPG meeting with the APPG on ME (May
2025) — presented lived-experience evidence to Minister
Stephen Timms MP.
Delivered briefing paper with #ThereForME, Action for ME, and
others; gathered 1,200+ testimonies.
Ongoing collaboration with NICE, NHS England, JCVI, and ICBs
on clinical guidance, vaccine access, and clinic closures.
Wales advocacy: presented at Senedd ‘Marketplace;’ led to
parliamentary debate chaired by Hefin David MS.
Member of Overlapping Illness Alliance (Long Covid SOS, Action
for ME, etc.), launching publicly in 2025.

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Section D Achievements and performance

4. Research and Evidence Work  Launched Research Involvement Consultancy (RIC) (June 2024): 37 enquiries, 6 sessions, 2 desk reviews.

Collaborated in major studies: LOCOMOTION, PHOSP-COVID, PHOSP-I, REACT-LC, HERITAGE, Episodic Disability, etc.

Co-authored 10 peer-reviewed papers (June 2024 – May 2025) in The Lancet , BMJ Global Health , Nature Genetics , etc.

Ran 11 Fireside Chats (40,700 views to date) connecting experts and patients.

Ran 11 Fireside Chats (40,700 views to date) connecting experts
and patients.
Partnered with Costello Medical to create a Research
Dissemination Toolkit and launched a Zotero library.
Conducted economic impact analysis feeding into Covid-19
Inquiry Module 9 and APPG briefings.
5. UK Covid-19 Inquiry
Active Core Participant in Modules 2, 3 and 9.
Provided written submissions and oral evidence (Natalie Rogers).
Advocacy highlighted economic and healthcare impacts of Long
Covid; collaborated with legal team Bhatt Murphy.
6. Fundraising and Financial Growth
Raised £57,000 (nearly double previous year).
Secured £10,000 grant from Assura (reflected in the 2026 FY)
and £2,500 from Marketors’ Trust.
Merchandise (Awareness pins and ribbons) successful;
community fundraising highlights:
o
Kate Weinberg – Via Francigena walk (£8,000)
o
Rose McGoldrick – Half Marathon (£1,900)
o
Marcus & Henry Hudson – Geneva Marathon (£1,600)
Expanded fundraising team and recruited two new volunteers.
Introduced funders’ database and grant-application capacity.
7. Communications and Public Profile
Partnership with Confido Collective (pro bono support) to develop
strategic communications.
Delivered Long Covid Awareness Day 2025 video series featuring
high-profile voices (Prof Rachael Evans, Dr Maria Van Kerkhove,
Morgan Fairchild, etc.).
Maintained active social media across X, Facebook, Instagram,
LinkedIn, Bluesky, strengthening visibility.

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Section E Financial review

Brief statement of the charity’s policy on reserves

The trustees aim to maintain unrestricted reserves equivalent to approximately six months of operating expenditure to ensure financial stability and the ability to respond to unforeseen needs. At 31 May 2025, reserves exceeded this target, reflecting the charity’s prudent financial management and growing income base. Surplus funds are held in interest-bearing accounts in line with our finance policy, which prioritises capital security and ethical use of funds.

Details of any funds materially in deficit

None

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Total income for the year was approximately £60,000, representing over double of the previous year. Income sources included community fundraising and donations (around 74%), Patient and Public Involvement (PPI) and consultancy income (about 16%), Merchandise Sales (approximately 5%), and grants (approximately 4%). Significant grant awards included £2,500 from the Marketors’ Trust.

Expenditure was primarily directed toward activities advancing the charity’s objectives. Total expenditure was approximately £35,000.

The charity continues to operate with minimal fundraising overheads, as most campaigns and events are led by volunteers. The trustees are satisfied that the year’s financial performance places Long Covid Support on a secure footing for continued development and delivery of its mission.

Section F Other optional information

Volunteers and People

Governance and Leadership

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Partnerships and Collaboration

Organisational Development

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

y
Signature(s)
Full name(s)
Position (eg Secretary, Ch
 u u u

CHAIR
TREASURER

Date

9/12/25

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Charity No. 1198938

LONG COVID SUPPORT

FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MAY 2025

CHARLES OSEI, BSc, MSc, FCIE, MCIPP, AFA, ATA CHARITY INDEPENDENT EXAMINER / ACCOUNTANT

FLAT 3, 11 ROCHDALE WAY

LONDON

SE8 4LY

LONG COVID SUPPORT

Registered Charity No. 1198938

TRUSTEES' REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

CONTENTS

Page
1 Legal and Administrative Details
2-3 Independent Examiner's report
4 Balance Sheet
5 Statement of Financial Activities
6 Statement of Cash flow
7-12 Notes to the Accounts

LONG COVID SUPPORT

Registered Charity No. 1198938

ORGANISATIONAL PROFILE FOR THE YEAR ENDED 31 MAY 2025

TRUSTEES

Joanne Dainow Chair Gareth Evans Ian Marrtin Frayling James William McGoldrick Temitope Oyefuga Aimie Cole Professor Daniel Altmann Dr Margaret O'hara Natalie Rogers

REGISTERED OFFICE:

ACCOUNTANTS:

Long Covid Support 87 Standen Road London SW18 5TR Charles Osei, BSc (Hons), MSc, FCIE, AFA, ATA, MCIPP Flat 3, 11 Rochdale Way, Deptford London SE8 4LY

Page 1

LONG COVID SUPPORT

Registered Charity No. 1198938

INDEPENDENT EXAMINER'S REPORT ON THE FINANCIAL STATEMENTS TO THE TRUSTEES OF LONG COVID SUPPORT

I report on the financial statements for the year ended 31 May 2025 set out on pages 4 - 12.

This report is made solely to the Trustees of Long Covid Support, as a body, in accordance with regulations made under section 145 of the Charities Act 2011 and Charity SORP. My work has been undertaken so that I might state to the Trustees matters I am required to state to them in an independent Examiner's report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity and Charity's trustees for my independent examination work, for this report, or for the statement I have given below.

Respective responsibilities of Trustees and independent examiner

As charity trustees of the organisation and for the purposes of charity law, are responsible for the preparatio of the financial statements. The Trustees consider that an audit is not required for this year under section 144(2) of the Charites Act 2011 (the Act) and that an independent examination is needed.

I report in respect of my examination of the Charity's accounts carried out:-

Basis of independent examiner's statement

My examination was carried out in accordance with the general Directions given by the Charity Commission An examination includes a review of the accounting records kept by the Charity, and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as Trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion given as to whether the accounts present a “true and fair view” and the reports limited to those matters set o in the statement on the next page.

Page 2

LONG COVID SUPPORT

Registered Charity No. 1198938

INDEPENDENT EXAMINER'S REPORT ON THE FINANCIAL STATEMENTS TO THE TRUSTEES OF LONG COVID SUPPORT

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

have not been met; or

Charles Osei, BSc (Hons), MSc, FCIE, AFA, ATA , MCIPP Date: 10th November, 2025 Flat 3, 11 Rochdale Way Deptford London SE8 4LY

Page 3

LONG COVID SUPPORT

Registered Charity No. 1198938

BALANCE SHEET AS AT 31 MAY 2025

Fixed Assets
Current Assets
Prepayments and accrued income
Debtors
Trade receivables
Cash at Bank and in hand
Creditors
Amount due withinoOne Year
Net Assets/Liabilities
Reserves
General Funds
Restricted Funds:		 Notes
5
5
5
6
7		 2024/25
£
-
690
200
3,310
57,595
(615)
61,180
58,680
2,500
61,180		 2023/24
£
-
225
1,402
-
34,830
(350)
36,107
36,107
-
36,107

The financial statements were approved by the Board of Trustees and authorised for issue on 10th November 2025 and were signed on its behalf by:

……………………………………………………. Joanne Dainow Chair

Page 4

LONG COVID SUPPORT

Registered Charity No. 1198938

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MAY 2025

Notes
Unrestricte
d Funds
£
Resources Arising
Donations and Legacies
2
44,624
Other Trading Activities
2
12,990
Grants
200
Total Income
57,815
Expenditure:
Raising Funds
3
235
Charitable Activities -General
3
3,030
Charitable Activities -Direct
3
31,977
Total Expenditure
35,242
Resources retained for further use
22,573
Transfer between Funds
-
Reconciliations of Funds
Brought forward 01/06/2024
36,107
Carried forward 31/05/2025
58,680		 Restricted
Funds
£
-
0
2,500
2,500
-
-
-
0
2,500
0
-
2,500		 2024/25
Total
Funds
£
44,624
12,990
2,700
60,315
235
3,030
31,977
35,242
25,073
-
36,107
61,180		 2023/24
Total
Funds
£
27,800
1,477
-
29,277
386
4,957
883
6,226
23,051
0
13,056
36,107

The charity made no recognised gains and losses other than those reported in the income and expenditure account.

Page 5

LONG COVID SUPPORT

Registered Charity No. 1198938

STATEMENT OF CASHFLOWS FOR THE YEAR ENDED 31 MAY 2025

Notes
Cash flows from operating activities
Cash generated from operations
11
Net cash (used in)/provided by operating activites
Change in cash and cash equivalents in the reporting period
Cash and cash equivalents at the beginning of the reporting period
Cash and cash equivalents at the end of the reporting period		 2024/25
£
22,765
22,765
22,765
34,830
57,595		 2023/24
£
21,857
21,857
21,857
12,623
34,830

Page 6

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2025

1. Accounting Policies

Basis of Preparation.

These accounts have been prepared on an accrual basis and include income and expenditure as they are earned or incurred, rather than as cash received or paid. Reference to the "Charities SORP" refers to the Charites SORP (FRS 102): Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland. 2nd edition effective 1 January 2019.

1a. Income

All income is recognised once the Charity has entitlement to the income, it is probable that the income will be received, and the amount of income receivable can be measured reliably.

Grants are included in the Statement of financial activities on a receivable basis. The balance of income received for specific purposes but not explended during the period is shown in the relevant funds on the Balance Sheet. Where income is received in advance of entitlement of receipt, its recognition is deferred and included in creditors as deferred income. Where entitlement occurs before income is received, the income is accrued.

Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Income tax recoverable in relation to investment income is recognised at the time the investment income is receivable.

1b. Expenditure

Expenditure is recognised once there is a legal or consrtructive obligation to transfer economic benefit to a third party, it is possible that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably.

Expenditure on charitable activities is incurred on directly undertaking the activities which further the Charity's objectives, as well as any associated support costs.

All expenditure is inclusive of irrecoverable VAT.

1c. Government grants

Government grants are credited to the Statement of financial activities as the related expenditure is incurred.

1d. Fund accounting

Unrestricted Funds are receivable or generated for the objects of the charity without further specified purpose and are available as general funds. Restricted Funds are subjected to restrictions on their expenditure imposed by the donor. Designated Funds are unrestricted funds but earmarked by the trustees for particular purposes.

Page 7

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MARCH 2025

1e. Taxation

The Charity is considered to pass the tests set out in Paragraph 1 Schedule 6 of trhe Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the Charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

1f. Debtors

Trade and other debtors are recognised at the settlement amount. Prepayments are valued at amount prepaid.

1g. Cash at bank and in hand

Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or openinig of the deposit or similar account.

1h. Liabilities and provisions

Liabilities are recognised when there is an obligation at the balance sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.

Liabilities are recognised at the amount that the Charity anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.

Provisions are measured at the best estimate of the amounts required to settle the obligation. Where the effect of the time value of money is material, the provision is based on the present value of those amounts, discounted at the pre-tax discount rate that reflects the risks specific to the liability. The unwinding of the discount is recognised in the Statement of financial activities as a finance cost.

1i. Financial Instruments

The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are susequently measured at amortised cost using the effective interest method.

1j. Critical accounting estimates and areas of judgement

Estimates and judgements are continually evaluated and are based on historical experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances. The Charity does not currently have any significant accounting estimates or areas of judgement.

1k. Tangible Fixed Assets

Equipment and other tangible fixed assets are capitalised when the cost is £500 or more

Depreciation is provided at the following annual rates in order to write off each assst over its estimated useful life.

Computer equipment - straight line over 3years

Page 8

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2025

2 DONATIONS AND LEGACIES
Donations and gifts
PPI Income
Research
Income
Merchandise
Total Capital Project Income
Grants
Total Income		 Unrestricted
2025
£
44,624
9,450
130
100
3,310
57,615
200
57,815		 Restricted
2025
£
-
-
-
-
-
2,500
2,500		 2024/25
£
44,624
9,450
130
100
3,310
57,615
2,700
60,315		 2022/23
£
27,800
75
-
-
1,402
29,277
-
29,277

Page 9

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2025

3 CHARITABLE ACTIVITIES COSTS

Charitable Activities
4 DIRECT/SUPPORT COSTS OF CHARITABLE
Fundraising agents
Regulatory Expenses
PPI
Merchandise
Office/General Administrative Expenses
Subscriptions
Independent Examination
COVID Inquiry
Advocacy Costs
Research
Direct Charitable Project Activities
Total resources expended		 Raising Funds
(see note 5)
£
235
AUnrestricted
2025
£
235
103
-
1,384
2,364
457
500
209
5,557
150
24,282
35,242		 Charitable
Activities -
Direct

(see note 5)
£
31,977
Restricted
2025
£
-
-
-
-
-
-
-
-
-
-
-		 Support Costs
(see note 5)
£
3,030
Total
2024/25
£
235
103
-
1,384
2,364
457
500
209
5,557
150
24,282
35,242		 Total
£
35,242
Total
2023/24
£
386
48
322
388
2,900
821
350
886
-
125
-
6,226

5 DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

Debtors
Prepayments and accrued income
Trade receivables
6 Cash at Hand and Bank
Llyods - Current
Llyods - Savings
Llyods - Fixed Deposit		 2025
£
200
690
3,310
4,200
2025
£
4,438
33,157
20,000
57,595		 2024
£
1402
225
-
1,627
2024
£
34,830
-
-
34,830

Page 10

7 CRFEDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

Accruals
Independent Examiner fee		 2025
£
115
500
615		 2024
£
0
350
350

Page 10

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2025

8 ANALYSIS OF NET ASSETS BETWEEN FUNDS
Unrestricted
fund
£
Fixed assets
-
Current assets
61,795
Current Liabilities
(615)
61,180
9 MOVEMENT IN FUNDS
Unrestricted funds
General fund
Restricted funds
Restricted fund
Net movement in funds, included in the above are as follows:
Unrestricted funds
General fund
Restricted funds
Restricted fund
TOTAL FUNDS		 Restricted
fund
£
0
-
0
-
At 1.6.24
£
36,107
-
36,107
2025
Incoming
resources
£
57,815
2,500
60,315		 2025
Total
funds
£
-
61,795
(615)
61,180
Net
movement
in funds
£
22,573
2,500
25,073
2025
Resources
expended
£
(35,242)
0
(35,242)		 ..
2024
Total
funds
£
0
36,457
0
36,457
At
31.5.25
£
58,680
2,500
61,180
2025
Movement
in funds
£
22,573
2,500
25,073

Page 11

LONG COVID SUPPORT

Registered Charity No. 1198938

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2025

10 RELATED PARTY DISCLOSURES

There were no related party transactions for the year 31st May 2025.

11 RECONCILIATION OF NET (EXPENDIYURE)/INCOME TO NET CASH FLOW FROM OPERATING ACTIVITIES

Net (expenditure)/income for the reporting period (as per the
Statement of financial activities)
Adjustment for:
Fixed Assets
Depreciation charges
(Increase)/decrease in debtors
Increase/(decrease) in creditors
Net cash (used in)/provided by operations		 2025
£
25,073
0
-
(2,573)
265
22,765		 2024
£
23,051
-
0
(1,194)
0
21,857

12 ANALYSIS OF CHANGES IN NET FUNDS

Net Cash
Cash at Bank and in hand
Total		 At 1.6.24
£
34,830
34,830
34,830		 Cash flow
£
22,765
22,765
22,765		 At 31.5.25
£
57,595
57,595
57,595

Page 12

LONG COVID SUPPORT Registered Charity No. 1198938 INDEPENDENT EXAMINER'S REPORT ON THE FINANCIAL STATEMENTS TO THE TRUSTEES OF LONG COVID SUPPORT Independent examiner's statement In connection with my examinalion, no matter has come to my attention= 1) which gives me reasonable cause to believe that in any material respect the requirements a} to keep accounting records in accordance with Section 130 of the Charities Act., and b} to prepare accounts which accord with the accounting records and comply wth the accounting requirements of the Charities Act have not been met., or 2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached. Charles Osei, Bsc (Honsl, MSC, FCIE, AFA, ATA , MCIPP Flat 3, 11 Rochdale Way Deptford London SE8 4LY Date.. 10th November, 2025 Page 3