Charlty No. 1198938 LONG COVID SUPPOltr FINANCIAL STATEME[5 FOR THE YEAR ENDED 31 MAY 2024 CHARLES OSEI, BSG. Msc. ACIE. MCIPP. AF* ATA CHARITY INDEPENDENT EXAMINER I ACCOUNTAwr FLAT 3. 11 ROCHDALE WAY LONDON SE8 4LY
LONG COVID SUPPORT Reglstered Charity No. 1198938 TRUSTEES. REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2024 CONTENTS Page Legal and Administrative Details Trustees ReF(Yt Independent Examinerts report Balanc* Sheet Statement of Financial Actmtles 10 ststement of Cash fiow 11-16 Notes to the Accounts
LONG COVID SUPPORT Registered Charity No. 1198938 OR ANISATIONAL PROFILE FOR THE YEAR ENDED 31 MAY 2024 TRUSTEES Joanne Daincml Chair Gareth Evans lan Martin Fraylin9 James William McGoldrlck T8mitope Oyefuga Aimle Cole Professor Dan181 Altmann Dr Margaret O'hara Natalle Ro9ers REGISTERED OFFICE: Ltmg Covld Support 87 Standen Road London SW18 STR BANKERS: ACCOUNTANTS: Charles Qsei, Bsc (Hons). MS¢, ACIE. AFA. ATA. MCIPP Flat 3, 11 Rochdale Way. D8Ptford London SE8 4LY
LONG Trustees, Annual Report for the period Period start date 01 Ju Period end date 31 SUPPORT 2024 From Section A Reference and administration details Charity name LONG COVID SUPPORT Othèr names charlty Is known by WA Reglstered charlty number (If any) 1198938 Charltys prlnclpal addre83 87 Standen Road LorKlon P08tcode SW18 STR Names of the charity tru8tee8 who manage tho charlty Oat•* acl•d11 not for •ntlr• Trust•• narn• Offlce IW any) N•ffl• of p•Tn {or body) •ntitl•d toa nt trust•• Olan Joanne Dalnow Dr Margaret O'Hara Cha Natalie Rogers Gar8th Evans lan Martin Frayling James Wiliam M¢Goldrick Temitope Oyefuga Aimle Cole Professor Daniel Altman Tr8asur8r 10 Names of the trustees for the charity. rf any, (for oxamplo, any cu8todlan trustees) Name Datss actèd if not for entire ear Names and addros805 of advlsors (Optional infomialion) TAR May 2024
of advisor Name Address Name of chief executive or names of sonior staff members (Optional information) Section B Structure, governance, and mana ement Descriptlon of the charfty's trusts Artides of Assoctation Type of govemlng dOrnent leg. trust deed. consb'tutlM) How th8 charity is constituted {eg. Irusl. assoclation. company) Company Trustee selection methTrJs lsg. appointed by, elected by) Appointed by the Board of Trustees Addltlonal governance188ue8 (Optional inforniation) Inductlon and Tralnlng of Trustees." The charity has clear policies and proc8dures for the inducts'on and training of trustees, ensuring they understand their roles and responsibilities. The EDI Policy outllnes the approach for irustee apwxntrnents. promots'NJ faimess and diversity in th8 seleclK)n process. You rnay choose to include additional information, where relevant, about.. poIici8s and procedures adopted for the induction and training of trustees. the charity's organisational structur8 and any wider netsvork wlth which the charfty works. Organlsational Structurn and Notworks: The charrty operates a flat structure and uses Peer Support Groups to foster collaboration and communty involvement. It also engages with a fjdar n8twork of organisations to enharKe service delivery and advocacy. Related Party Relatlonshlps: Thera are no related party transactions or relatlonships. • rélationship wtth any related Partles. truste8s' consideratlon of major risks and th8 System and proc8dur8S to manag8 them. Rlsk Manag6m•nt: Trust88s reM8w major risks regularly through a Risk Reglster to Id8nffj* and manage potential threats effeGttvely. Section C Ob-ectives and activities The key ottyective of Long COVID Support (LCSI is lo advocate for, provKle resources to, a1 support individuals experiencing th9 prolongod effects of COVID-19. This includes addressing the physical, emolional. and social challenges of those living wtlh Long COVID by increasing awareness. influencing FK)Mcy. and fostering a sense of wmmunity. Summary of the objocts of the charity set out in its governlng document TAR May 2024
AGlivlties Allgned with LCS Objectives: 1. Support and Resources.. Hosting online support groups or fcKums for individuals affeded by Long COVID. Providing infomiational fftaterials. such as guidance on managing symptoms aThJ navKJating healthcare servic8S. Summary ofthe maln activitles undertaken for the public bgnefit in relatlon to these objects (include within this section the statutory declaration that truslees have had regard to the guidanrA Issued by tho Charlty Commission on public benefit) 2. Abyareness and Advocacy.. Organising Long COVID awareness G9mpaigns to educatè the public and heatthcare providers about Long COVID. Engaging wrth media and policymakers to highlight the ved exp8ri8nc8s of those affected. 3. Pollcy Infiuan¢e: CollaLK)ratlng with govemment bodies, heafthcare organisations, and r8S8arch institutions to shape polici8S. Part1patIng in the Long COVID Inquiry, submitting evKlence or recommendations to inquiries committees focus8d on pandemic r8spons8 and r8habilitation. 4. Communlty Bulldlng: Creating opportunitTres for pe8r-ttrP88r supp)rt through events, webinars. (x worf(shops. Developing partnerships with some Long COVID charltles to extend im acL Addltlonal detai18 of objectives and activities (Optional inforniation) You may Choose to incknd8 further statements, wh8re relevanl, about.. policy on grant maklng. policy programme related investment. contribution made by volunteers. TAR May 2024
Section D Achievements and performance 1. Employrnent Adv¢)cacy: Influenced policy reforms and workplace indusrvity through consultations arKI webirTar5. Highlighted the lived experiences of Long Covid patients to combat sbgma and drive legislative change. Supported workers through limited indivldual advocacy. Summary ofthe maln achlevements of the charity during the year 2. Peor Support.. Support8d a gkjbal community of over 65,000 individuals, th new groups for men and carers. Partnered with Oxford University to develop tools like body mapping workshops for peer suppcyt. 3. Fundraising.. Rais8d £30,OLX) through campaigns, merthandise, and corporate partherships. Adopted a Strateg fundraising plan to diversrfy income streams. 4. Advocacy: Prevented dlnlc dosures. engaged with policymakers, and contributed to natlonal forums. o Hosted aw8renes8 campalgns and collaborated with NICE and NHS on key iniiiatives. 5. Rosearch.. Advanced patlènt Involvement in studies like LQCQMOTION and PHOSP-COVID. Organised webinars and launched a consultancy to gulde research desn. Section E Financial review The charitys polry is to maintain rgserves equivalent to six months of operating expenses. At th8 8nd of th8 financk?l yeaT, the charity held surplus that signfficantly exceeded this target. Aft8r the balance sh88t date, the charity inv8Sted thls surF4us into an interest savings account. Brlef statement of the charity's policy on reserves Dètalls of any funds mat•rlally in deficit Non8 TAR M8y 2024
Further financlal review detalls (Optional inforniatlon) You may choose to includg The charivs income VRS primarily derived from donations, including addrtional inforrnation. where thos8 generdted through fundraising activibes and unsolicited r81evant alx)ut'. contributM)ns from members and subscribers. Addits'onal income was the charity's principal generated from the sale of merthandise and a small contribLJtion fn)m sources of funds (including PPI income. Notabty, most fvndraising acliviti8S W8re conducted by any ftindraising). individuds at no cost to the charity. keeping fundraising expenses to a minimal level of just 1% of donations. Donations constituted 950A of the how expendttur8 has total incomg for the year under review. supported the key objectP4es of the charily. investment pollcy and objectives including any ethical investrnent pcAicy adopted. Expenditure on the Long COVID Inquiry accounted for 190A of total operating costs and 3% of total in)rne, reflecting the charity's core focus on advocacy for policy change. This approach aims to address th8 root caus8 of lh8 ISSU8 by influencing govemm8nt, a key Stakeholder, to adopt a different Pgr5PeCtNe on the disease. Suth a shtft would pave the way for more sustainable outcomes, ensuring other critirAI areas, such as research and support. are adequalely addressed. Section F Other optional information Impact of Voluntsers: Over foty volunteers across all WQTkstreams contributed significantty to advocacy, pe8r support, fundraising, and research. Their commitment enabled the charity to expand its reach despite limited resources. Collaboratlon and Communlty Bulldlng: Partnetshlps wlth organlsations Ilke the TUC. Oxford UnNersity, and NHS England enhanced the charlty's capacty to address Long Covld chaHenges hollstlcalty. Section G Declaration The trustees declare that they have approvèd the truste88' report above. Slgnod on behall of the charity's trusloOS Signature(s) Full name(s) Position (eg Secretary, Chair, etc) JO DAINOW TEMITOP OYEFUGA CHAIR TREASURER Date 1&12-2024 TAR May 2024
LONG COVID SUPPORT Registered Charity No. 1198938 EPENDEN INER'S REPORT ON TH TO THE TRUSTEES OF LON COVID SUPPORT ANCIAL STATEMEN I report on the financial siatements ts the year ended 31 May 2024 set out on pages 8- 16. This report 1$ made solely to the TnJstees of Long Covid Support. as a bc*Jy. in accor(lance with regulations made under seth'on 145 of th8 Chariknes Act 2011 and Charlty SORP. My work has been undertaken so that I might stste to the Trustees matters l am UIred to stste to them in an independent Examinerfs report and for no other purpose. To the fvllest extent permitted by law. I do not accept or assume responsibility lo anyone other than the Charity and Charity's trustees for my independent examlnation work. for this repo¢ or for the statement I have given balow. R88poCtIvo r08ponslbllttlos of T and Indowndont •xamln As charity trust88s of the organisation and for the purpo of ch8rity18w. are responsible for the preparallon of the financial statements. The Trustee3 consider that an audit Is not required for this year undèr sécllon 144{2} of Ihe Charites Act 2011 (the Act) and Ihat an indep8ndent examination 1$ needed. I report in res[t of my 8xaminats.on of the Charfty$ a¢Vn ¢8rnied 1:. a) examlne the accounts under section 145 of th8 2011 Act. b) foll¢)w the procedures laid down in the general Directions glven by Ihe Charity Comml$$toners under Section 145{51(b) of thè 2011 Ad: and c) slate whether particular matters have o)me to my att8nlbm. Ba81$ of Indopendont oxamln•rf8 statomont My examination wa5 carried out in acGordanGe with the general Directions given by the Charity Commission. An examination includes a review ol th8 accounting records kept by the Charity, and a companson of Ihe accounts presented those r8c¥)rds. It also includes consideration of any unusual Items or disdosur8s in the accounts and seeking explanations from you as Tru$lee$ conceming any such matters. The procedures undertaken do not providg all the evidence that would be r6yuirga in an audit. and consequently no opinion 15 given as to whether the accounts present a Inje and fair VI and the reports limiled lo those matters sel out in the stalemanl on the n8xI page. Page 6
LONG COVID SUPPORT Rogistsred Charlty No. 1198938 DEP ENT EXAMINER'S ORT ON THE FINANCIAL STATEMEN TO THE TRUSTEES OF LONG COVID SUPPORT Indepondent examin•rfs sLitsment In connection vth my examination, no matter has corn8 to my att&ntlon: 11 which 9ive8 me reasonable cause to beS1gve tt)at In any rnatsrl resF Ihe reqU1ments al to keep accounting records In 8rdance with Sockn 130 of the Charlues Act; and b) to prepare accounts which accor(I with the acwunting rnC4)rds and comply with the a¢c>)unting requirements of the Charities Act have not b&en mel. or 2) to which. in my opinion, 8tt8nkn.on shoukl be drawn in (Kder to enablè a proper undorstsndlng of the accounts to be 8¢hed. Chartes Osei, 8Sc IHons>. MSC. ACIE. AFA. ATA . MCIPP Flat 3, 11 Rochdale Way Cieplford London SE8 4LY Datfj: 291h November 2024 Page 7
LONG COVID SUPPORT Reglstored Charlty No. 1198938 BALANCE HEE AS AT 31 MAY 2024 Notes 2023124 2022r23 Fixed A55ets Current Assets Prepayments and accrued Irne Debtors Cash al Bank and in hantj 225 1,402 34.830 433 12,623 Creditors Amount du8 withinoone Year Net Assetsluabllitles 36,457 13,056 General Funds 36,457 13.056 Resldcted Funds.. 36.457 13,056 The financial statements were approved by the Boanl of Trustees and authorised for issue on 28th November 2024 and hre signed on Its b8half by. Joanne Dainow Chalr
LONG COVID SUPPORT Registered Charity No. 1198938 STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MAY 2024 2023124 Total Funds 2022123 Total Funds Unrestri¢t• Noles d Funds Restrlcted Funds Resources Arising Donations and Legacies 27.800 27.800 3,711 Other Trading Actiwties 1,477 1,477 7,830 Total Income 29,277 29,277 11,541 Expendlturn: Raising Funds 386 386 750 Charitable Activltles -General 4.607 4,607 640 Other Tradlng Adlvltles 4,671 Total Expendlture 5,876 5,876 6,061 Resourcos retalnod for further use 23,401 23.401 5,480 Transler between Funds Net Movomont In Funds R8conclllatlons of Funds 8rought forward 0110W2023 13,056 13.056 7,578 Carrlod loThvard 3110512024 36.457 36.457 13.056 The company made no recognised gains and losses other than Ih05e reported in the income and expenditure account. Pag8 9
LONG COVID SUPPORT Registerod Charity No. 1198938 STATEMENT OF CASHFLOWS FOR THE YEAR ENDED 31 MAY 2024 2023124 2022123 Notes Cash flows from op8ratlng actlvltles Cash generated from operations 11 22,207 5,047 Net cash (used Inyprovided by operatlng activrtes 22.207 5.047 Change in cash and cuh oqulvalents in tho reporting perl¢xl 22,207 5,047 Cash and cash equlvalents at the beglnnlng of the rnportlng perlod 12,623 7.576 Cash and ca$h oqulvalents at th• ènd of th• rnportlng perlod 34,830 12,623 Page 10
LONG COVID SUPPORT Regl8tsrod Charlty No. 1198938 OTES ORTH THE ACCOUNTS ENDE 31 MAY 2024 1. Accounting Polki•s Basls of Preparatlon. These accounts have been Fwrwj on an accrual bas& 01K418 iThXMT and eyndrtufè 8$ th8y are eamed or inctsrred, rather than as tssh rec8iV8d pald. Reference to the-charrties SORP refers to the Charites SORP IFRS 1021.. AcwJnliThJ ReFKNlrrfJ by Chaiibes." Statement of Rerxjmmended Practi( appllcabl8 to charftlès preparing thr att(MJnts In acc(Ydance wth the Finala5 ReFMirtsng Standard appllcabl8 in th8 UK and Republk of Ir8laThJ. 2Tra lIb)n affthe 1 Jarwary 2019. la. Incom• 1 Sncom8 ts r8cagnised onc8 th8 Charfty ha8 en1liknt to ts Irthme, It IB rnbJlg that the Income VAI be received, and the arnnI of incom6 r8cbfvaL4e c4n b8 rrw8ur8d rdlaily. Grants arg included In thè Ststsment of finandal on a rBceivat4& b8$1s. The balan ol income recdv8d lor spBrAfic purposes but not exFlerthd durtNJ the p8ricJ18 in the reknnt funds on thè Balance SheeL Wh•r8 Income Is received In advance of entillemem of 18C8iPt. Its recognition is deferred and Indud8d In cr8dilor8 as defeThed Inccffig. Whw8 enlknent c#xur8 tjelore kno)Fre18 re1¥&. tho IntxJme18 accrued. Incom8 tax recoverable In rolalon lo th)nalkJr uThJ8r Gift Aid or deod8 of o)venant is rncognised at th8 tsmè of the dation. Incom8 tax re(x)vorab18 in relatk)n to Inv8strn8nl is re$9 al thè tlm8 the Investrwt income18 rpcèivable. Ib. Exp•ndltur• Expandilure is recjnIs$d there is a legal or con8thti oL4¥Jats)n to trafer oconomr trefft to a third party, it is possiblo that a transfer of ac0MIC b8fil5 ill bg required in setttemgnt 8nd Ihe 8rn¢)unl of the obh'gation can be m8a8ured rdiably. Expenditur8 on charitabkn aclivrti8s i8 incurr•J diro¢ty uThknkiTrJ th& actpiiti88 furlhor the ChanV8 c&jgth"vès, as well as any associated supFKffi ¢xts. All axpgndilurg indusivo of irrocoveraL49 VAT. le. Gw•mment grant• Govemmenl grants are lo the Statement d fmancial athilias as tr* ralated expendiknre is inrTed. 1d. Fund accountlng Unr&strted Funds are r8C8Nablg or 98n8rnt•J for thè objgth of the chaiity further sp&Erfi8d purp¢A88 and are aValab as g$nèral funds. Restricted Funds are su4"8Ct8d to r8stn"clK)ns M Iheir 8drB imposed ty &Jnor. 088ignated Funds arn unrsstrictsd furKls but earmarked bythe trusteas kn Parular purwtsas. Pagtr11
LONG COVID SUPPORT Register Charlty No. 1198938 TES TO THE R THE YEAR ENDED 10. Taxatlon The Charfty Is con5K1 to Pass the iests set tyjt kn Pw8grnph 1 Sthwjule 6 of trhe Fin8nc Aci 2010 and therefo it meeis the definilion of a thantsile company f(Y UK coOrthn tax purF4)$8s. A(sydlngty, 11 Charity is polenbally exempt taxation in resFed of income OT Ca g8ins recewed within categories covere(I by Chapter 3 Part 11 of CworaKffl Tax Act 2010 or Section of the Taxatitin of Charge8b G81ns Act 1992. to the axtwl that gakns ¥e appl oxdusNdy to ¢antabl9 wrF4)$8S. It. Dobtorn Trade 8nd olher debtors 8r• at tho $g¢tkn1 anwJunL PrepayIrts are w81 at 8mwnt prgpald. lg. Ca•h at bank and In h•nd Cash at bank and in hand indud&s cash and sh(4¢M hwJhly liquid imiesimenls %%ith a shr#t M?nty of three moYbth$ or18ss from Ihe dale of acqui&tion or openinu of th& doFogt wmlar ac4>JunL 1h. U•bllltlM •nd provlskx Liabilities arg rgcognisod ther81s an ot11li0Th at th& balancg sho01 date as a result ol 8 P8$18venl. it18 probable th81 a transfer of benefitll bo rnquirgj in 801llen1. and Ihg ¥MnI of tho 8eill8mont can be esllmaled relabty. Llabilties are recognised at the 8mwn¢ thal ts Charity aUp•te$ it %ill p8y to settkn Ihe debt or the mcnt il has rèceived as 81fvon(d ponts for Ihe urd)ds tx services bt mu$1 p¥ovlde. Provlslons are m88sw8d al thè tr81 e8lwmats oftha ants 80IYe the thlb3atbn. Where the Bffect ol the knme vabje of monèy is malen4, ts provision is based on tr* Fvesenl value of Ihose arnount8, discounted at the taX disc(1 rale that rgngcis the rtsk8 speafic io the li8kn'1ty. The unwinding of the dbscount is recognised in the Staemenl ol finanaal acliviknes as a financo cost. 11. Fln•n¢l4 In$trum•nts The Ctr8rity has fin8n¢i4 assets and finantyal labilities ol a kind ihat qualify 8$ basic financi81 inslwments. Basi¢ finan¢ial instrnmgnts a initially recoJni8ed al transacti value and subsequentty nwsyred at ihe settlement value %%ilh the exc9p117 of bank loans %thTrch are susoquendy measured al amty1i8ed cost Using the effective inter¢sl mgllkxl. 1J. ctI¢d a¢cntIng ••tlm•l•• and are•s of Judg•m•tt Estimates and judgeThntS 8r• evaluated w#J ? bowj on hi8torThl tiypwienc• and oth8rf8ctor8, induding exFeciatsons of I events that are be.eV lo be wx)nable under tho t?r(xJmstsrKes. The Charity dogs not ¢urMtty have any s4nrfi¢8nt accounling estimates or areas oljudgement. 1k. Tanglbl? Fix¢d Assèts EqUien1 and other tangibb fixed assels we rwwj TAthen the o35t 15 £500 CY Depreciation is provi¢Jed al Ihe fdkfftiThJ Trtes ordwlo lIe dt eh assst (Ner rts estimated useful lrfe. C(xmputsr equipment Page 12
LONG COVID SUPPORT R8glstargd Charlty No. 1198938 TE THEA FOR THE YEAR ENDED 31 MAY 2024 2 DONATIONS AND LEGACIES 2024 2024 2023124 2022123 Donatlons and glfts Research ppl Merchandlse Totsl C8Pit81 Project Incorne 27.800 27.8CKI 3,711 6,000 75 75 1,402 29,277 29,277 Total In¢om• 29.277 9.711 P13
LONG COVIO SUPPORT R•gi5ternd Charlty P40. 1198938 NOTES O THE ACCO FOR THE Y ENDED 31 MA 3 CHARITABLE AcnvmES COSTS Other Trndlng RaSglng Funth Activitie• 1•99 nolo S) Is•• nots 51 Support Costs {•w note 5) Total Charftable AdvlUès 4,607 S.878 4 DIRECTISUPPORT COSTS OF CHARITABLE IUnr••trl¢t•d 2024 ToLg1 2023124 Tot•1 2022123 2024 Fundrai51ng agents Regulatory Expenses ppl Merchandlse OfflcelGeneral Admlnlstratlve Expenses Subscriptlons COVID Inqulry Research Webslte Depreclatlon - equlpment D1ct Charltable Projett Actlvltles Total resourcm exp•nd•d 386 750 1.021 322 322 248 392 821 821 125 125 3,650 5.876 5.87e 6,061 5 DEBTORS: AMOUNTS FALUNG DUE wrTriM ONE YEAR 2024 2023 D8bttsrs PpaYrnents and acuugd infX)mg 225 1,627 433 423 6 Cash at Hand and Bank 12.623 P•38 14
LONG COVID SUPPORT Registered Chavity No. 1198938 NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2024 ANALYSIS OF NET AssEfs BEtWEEN FUNDS 2024 Total fund8 2023 Totsl funds fund fund Fixed assets Current assets Current Liabilities 36.457 36.457 13,056 36.457 36,457 13,056 9 MOVEMEKf IN FUNDS movom•nt In fund$ At 31.5.24 At 1.6.23 Unre81ricted funds General fund 13.056 23,401 36,457 Restricted funds Restriclgd (und 13,056 23,401 36A57 Nel movoment in funds, in¢Suded in the above are as folkM8'. 2024 2024 Incomlng R08ource8 r9¥ou8 fjxpondod 2024 Mov•m8nt In fund• UnrgStri¢tsd funds General fund 29277 15,8761 23,401 R&8lricted funds Reslricled fund TOTAL FUNDS 29,277 15,876) 23,401 P¥15
LONG COVID SUPPORT Reglstered Charlty No. 1198938 OTES TO THE ACCOUNTS FOR THE YEAR ENDED 31 MAY 2024 MOVEMENTS IN FUNDS- )ntInU•d A current year 12 mnlhs and prior year 12 months combhed net nN)vement in funds. induded in th8 above are as fdlows.. Incomlng Roourcos •xp&nd•d ovgmont In funds Unrn8trlct•d fvnds General fund 40.818 11.937 28.881 Restrlctsd fund6 Reslricled fund TOTAL FUNDS 40.818 11.937 28,881 10 RELATED PARTY DISCLOSURES There there no rolaled party tran8aclion$ for tho year 3181 May 2024. 11 RECONCILIATION OF NET (EXPENDIYuRENCOmE TO 14Ef CASH FLOW FROM OPERATING ACTIVITIES 2024 2023 Nel lexpondttur8Wncome for th8 reportlrKJ {85 per the statement of financial aclNitiesl Adjustment for.. Fixed Assets Depreciallon ch8rgas Ilncreaseydecrease in debtors Increaselld8cr8asel In cre(lrtors Nét cash (used Inyprovldèd by oporatlons 23.401 5,480 (433} (1.1941 22,207 5,047 12 ANALYSIS OF CHANGES IN NET FUNDS At 1.6.23 Cash flow At 31.5.24 Net Cash Cash ot B8nk and in haThJ 12,623 12.623 22.207 22.207 34,830 34,830 Total Page16