# MARFAN TRUST

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1198847
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 5, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1198847


## Contact

- **Address:** 24 Oakfield Lane, KESTON, Kent
- **Postcode:** BR2 6BY
- **Phone:** 0333 011 5256
- **Email:** info@marfantrust.org
- **Website:** www.marfantrust.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE: TO ADVANCE EDUCATION REGARDING, AND PROMOTE RESEARCH INTO THE NATURE OF, MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS, METHODS OF TREATMENT AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC; AND THE PRESERVATION AND PROTECTION OF THE HEALTH OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THE RELIEF OF NEED OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THEIR FAMILIES BY PROVIDING ADVICE AND SUPPORT.

**Activities:** Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term.  Our helpline and website www.marfantrust.org provide information.  An annual supporter information day is held in October.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body, Other Charitable Activities
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Geography

- Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Dr Anne Child** | Chair | Dec. 12, 2021 |
| Andrew Scadding |  | Dec. 7, 2021 |
| Dr Nitha Naqvi |  | Dec. 7, 2021 |
| Edward Stilliard |  | Dec. 7, 2021 |
| Eleanor Hyde |  | Dec. 7, 2021 |
| Helen Syms |  | Dec. 7, 2021 |
| James McCallum |  | Sept. 25, 2025 |
| Mohamed Essam Gamil Abdelrazek |  | Dec. 7, 2021 |
| Robin Randall |  | Aug. 5, 2018 |




