Trustees’ Annual Report for the period
From 01 April 2023
To 30 April 2024
Charity name: MORECAMBE BAY PULMONARY FIBROSIS SUPPORT GROUP
Charity registration number:1198516
Objectives and Activities
The Objectives of the charity are;
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To provide support to anyone in the Morecambe Bay area that is diagnosed with pulmonary fibrosis and their carers, family and friends;
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To provide a safe place to provide peer support.
The principal activities are aimed to relieve the needs of persons suffering from pulmonary fibrosis, primarily, but not exclusively, in the Morecambe Bay area by raising awareness of the lung disease pulmonary fibrosis and to support group activities
The principal services provided include the following activities
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Network meetings providing mutual support and professional support from experts both from a medical and non-medical background in both in person and virtual meetings
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Website with signposted links for support services
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Facebook page to signpost meetings and other services available.
The trustees have had regard to the guidance issued by the Charity Commission on public benefit and are aware of the guidance and take it into account when making decisions.
Achievements and Performance
There are now just over 70 patients and carers registered with us and we have continued to grow attendance. We also have a website and Facebook page to advertise our services and activities.
We now meet every month in person at Burton Memorial Hall and meet every other month in Barrow in Furness. Meetings are generally now all face-to-face as this provides greater interaction and enables mutual support and was requested by most of the attendees. We had a mix of speakers or watched educational webinars in the meeting. Speakers attending included a local member of parliament, respiratory physio and a researcher from Oxford.
We utilised some of the funds to provide free access to the BreathTec App. We have 10 patients using the app which uses cognitive behavioural therapy to help ease breathlessness. The effectiveness and ease of use is constantly being reviewed and we hope to be able to provide this as an ongoing service to all that need going forward and have negotiated a significant reduction cost for us and providing it free to our members.
The group were represented at the Morecambe Bay Respiratory Network to publicise the group amongst local health care professionals
Financial Review
The Charity ended the financial year with a cash balance of £1854. The principal sources of income were a range of small donations and a grant of £800 from The Parish of Torrisholme. The charity is now in its second year and slightly increased its income compared to last year although costs were slightly higher because of the purchase of a number of Christmas Cards for subsequent sale and the licences for the Breathtec App. Revenue and cash reserves held should cover the most likely operating costs for the next financial year and hence the trustees consider the current reserves held to be sufficient. The trustees have not received any remuneration and only the expenses of running the meetings have been charged to the accounts.
The charity has no investments beyond the bank account which is now a free account reducing the costs to the charity.
Structure, Governance and Management
Type of governing document: Constitution
How is the charity constituted: Charitable Incorporated Organisation
Registered 5[th] April 2022
Trustees are appointed at any meeting of the Trustees and are appointed for a period of three years. In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO. The trustees meet at least 4 times a year
Names of the charity trustees who manage the charity
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Name of person (or body)
Dates acted if not for
Trustee name Office (if any) entitled to appoint trustee (if
whole year
any)
1 Wendy Jones Chair
2 Dr Patrick Haslam Trustee
3 Dr Timothy Gatheral Trustee
4 Martin Jones Treasurer
5 Natalie Waddington Trustee
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Reference and Administrative details
| Charity name | Morecambe Bay Pulmonary Fibrosis Support Group |
|---|---|
| Other name the charity uses | Not Applicable |
| Registered charity number | 1198516 |
| Charity’s principal address | 9 HAZELMOUNT CRESCENT MILLHEAD CARNFORTH LANCASHIRE LA5 9HS |
Funds held as custodian trustees on behalf of others
There are no funds held on behalf of others
Exemptions from disclosure
There are no non-disclosures
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
Martin Jones |
|---|---|
| Martin Jones | |
Treasurer |
|
| 4thJuly 2024 | |
| 4thJuly 2024 |
| Morecambe Bay Pulmonary Fibrosis Support Group | |||||||
| Statement of Financial Position | |||||||
| For the Year Ended 30 April 2024 | |||||||
| 2023-24 | Prior Year | ||||||
| Unrestricted Funds |
Restricted **Funds ** |
Total Funds |
Total Funds |
||||
| £ | £ | £ | £ | ||||
| Receipts & Payments | |||||||
| Grants & Donations | 1492 | 0 | 1492 | 1374 | |||
| Sales | 190 | ||||||
| Gift Aid Recpts | 57 | 0 | 57 | 118 | |||
| Total Reipts | 1739 | 0 | 1549 | 1492 | |||
| Payments | |||||||
| Room Hire | 125 | 125 | 34 | ||||
| Event Costs | 149 | 149 | 13 | ||||
| Office/Admin | 818 | 818 | 144 | ||||
| Cost of Sales | 307 | ||||||
| Bank Charges | 0 | 0 | 15 | ||||
| Total Payments | 1399 | 0 | 1092 | 206 | |||
| Net of reciepits/(Payments) | 340 | 0 | 457 | 1286 | |||
| Cash funds atprioryear | 1514 | 0 | 1514 | 228 | |||
| Cash funds for thisyear end | 1854 | 0 | 1971 | 1514 | |||
| Assets & Liabilities | |||||||
| Cash funds(Cash at Bank) | 1854 | 0 | 1854 | 1514 | |||
| Other monetaryassets | 0 | 0 | 0 | 0 | |||
| Investment Assets | 0 | 0 | 0 | 0 | |||
| Liabilities | 0 | 0 | 0 | 0 | |||
| Signed(on Behalf of Trustees) | Martin Jones | ||||||
| Martin Jones |