REGISTERED CHARITY NUMBEK. 1198256 [4 Knights Lowe Chartered Accountants & Business Advisers Knlghts Lth¥e Chartered A(￿untants Eldo House Kempson Way Suffolk Business Park Bury Si Edmunds Suffolk IP32 7AR EldoHow, Kemp5¢)nWay, Suffolk &Biness Park Bury St Edmunds SurrolK IP32 7AR .4 0)284 70131MI inftr8knightsk)%¥exo.uk knighislowexo.uk nd li_ Indewndent Ex•mlntrfs Rtwt Statem•nt of Flnan¢l•l ￿tIVItIeS Notes to the Flftand￿ St•t•rnnts 9 10 11 l>elalled St•lement ol An•￿111 Aclh7ltle5 12 East 01.En Grou Re rt of theTrustees forthe Pevlod 15 A "12022 to 31 Ma The trustees p￿se￿I t￿1r report wth the finandal statements of the d￿rity for the period 15 Aprll 2022 10 31 March 2023. The trustees have adopted the provblons of A¢countlnB and Reporting by Charities.. Staternent of Recommended Practice appllcable to charities preparin8 ihelr accounts in accordan￿ with the Fbnanual Reportin8 Standard applitsble in the UK and Republic of Ireland IFRS 1021 leffertive l January 20191. OBftCTIVES AND AcnvmES Objectlves and alm5 The oblectlve5 of the ao are; - to relleve ￿Ckne4 and to preserveand protect good htslth for the publi¢ benefrt. by 5VPPOrtln8 me50thelioma canèbr pallents, through such means as the trustee5 deem appropriate, in particular but not limited to fundlng a spedallst mesothelloma c4ncw nurse speualist ro work in the Norfolk and Suffolk fw'on. -to campal8n for the awareness In respect to the daw of asbestos exposure. and: - to promote pJtlent si8np05t to Mesothelloma UL In order to explore all Current medlcal treatment optlon>.:. i.. and clinlcal trlals avallable. In.settln8 objertlves and plannln8 lor artmtbes, Ihe Trusw have 8lven due conslderatlon to 8eneral 8uldance publlshed by the Charlty Commbsslon relatlng to publlc benefil Indudln8 8uHlan￿ 'Publi¢ benefft: runnln8 a char.fty IP821. Slinlficant artlvlt1•5 Sincè Incory)tsration the charity has has Bone from strength io stren8th. During the year the charity opened a bank account wlth Char￿leS Ald Foundatlon ICAFI. a non-proflt company, to allow effi¢lent telephone and Internét bank1￿ as well as allow use of a deblt Card to make payments where necessary. A Gwt Ald application wa5 made whkh was subsequenuy approbed ￿ HMRC A JustGlvln8 proflle was also set up durln8 the pffiod to enable onllne donatlons through fvndralsln8. The use of QR codes Is beln8 promoted, In order lo rabse funds In an In¢reaslnB tashle5s sodety, however collectlon boxes are stlll avallable. Puwlc benefft The Trustee5 have Bfven conslderatlon to the question of the Charity's stalus. wllh speclal reqard to the benefit of the community beyond its own membershlp. They have referred to the guidelines on the Charlty Commisslon web51te and are satfjsfied that both its actmtles and its use of funds fvllyjustify its charitable status. They have a150 glven regard to the Charlty Commissk*n Guideline5 on publlc benefft In fomiln8 the oblectlves and aciivities of the charity. Page I Eart Of.En far the Perlod 15 A 112022 to 31 M ACHIEVEMEMfAND PERFORMANCE CharTtable artmtles In every area of development. the charlty ensu￿ that all attivltles are aligned wlth its charftable object The team have been very proacti￿ at raisln8 thè profjle of the charity and mesothelloma/asbest05 related condltlons in 8eneral, through the use of sodal media and by distributire flyers and prtnted materlals across the GP surgeries In the East of EnBland. Social medial thannels Indude Twitter. Facebook and Unkedln, all of whlth have growlhg nurnbers of followets,. 522. 183 and 296 respectivety. Hu8h Jame5 solkttofS klndP¥ sponsored the annual cost of the chartvs subsldtsed venue hire In Norfolk aThl Suffolk, as well as all printine costs. EEA PSG was Invlted to attend the ESNEFf Ipswlch and Colchester Hospltal Lung Cancer and Mesothelloma study day at Trlnlty Park In November 2022. A comprehenstve awareness stall encouraged nuryAng delegates to learn about the dangers of asbestos wfthln the built environment. and the ways In whlch people can be exposed to asbestos. The tharlty took port in Acllon Me50thenorna Day IAMOI on the firsi Frlday in JU￿. The wents for AMD resuked In St Edmund5bury Caihedral tower and St l¥es brSd8e belng Ilt up In blue In hon¢)ur of AMD. A meetln8 was held at the Council Chamber. Kirfs Lynn tO8ether wlth Mesothellorna UK then hèad of nursln& the charltvs trustee and West Suffolk Counclllor Mr Patrkk Churq and the Lord Mayor of Klng's Lynn. Monthly meetln8s have been hdd at the Cotte5ey Centre INor•lthl, the Southgate Centre (Bury St Edmunds) and at Coastal Wellbeln8 (Wells next to the Sea. Norfolkl. The group focuses on provldSng hollstic support to patlents and thelr famllles. Various outln8s were held during the year such as,. Southwold Beach Hut, hlstorSc MSd-Suffolk Ughi Rallwav. Stowmarket and Christma5 luncheons held at Moreton Hall and Ravenwood Hall In Bury St Edmunds. Durlng the Autumn of 2022. edltorlal comments were Pra￿ded to BBC Radlo Norfolk for thdr show, seekln8 to raise asbesios awareness. The ¢harlty supports the national campaign 'Don't let the dust settle, and continues to reach out to local MPS to Instigate the remo¥al of asbe5t05 In schools* pU￿1C bulldings and military accommodotlon. Fundralslng actlvttles There has been Breat success with regards to fundralgn8 and awareness events durln8 the summer, such as at the Norfolk cla￿1¢ Car Show and Duxford Community Centre (Café 191, ¢elebratln8 the eattle of Brltaln Memorial Shows. Page 2 land A￿est0$ Pathnt Su Re Period 15 of the Tru rf12022 to 31 M FINANCIAL REVIEW Flnan¢lal posltlon The period to 31st March 2023 ￿as the first incorrM)rated perlod for the tharity. The period proved dlfficult in temis of furrfIraiy￿ wlth the afte￿ath of the Covkl pandemTrc and the dlfficult finandal climate affertln8 all dements of lundralslng aclmtles. In Some cases events where EEA-PSG ICIOI would have had a fundralsln8 andlor raising awareness presence; these events were elther postponed or cancelled. This applled to both historical events and what would have been new opportunltle5. The dlfflcult finarKlal climate. In partlcular hltllng the rural areas of Suffolk and Norfolk ￿thin ¥¥thlch the tharlty works and derives a large portion of its Income from were parti0j￿rI¥ affÈcted. Corporate donors proved a new Innovation and whlLst onty confined to three Indmdual ￿mpanIes, all from the legal professlon. These proved valuable sources of Income for the chadty and resulted in much of the charlty's costs, e& statlonery. Toom hlre for patlent support group meetings and uterlng for patlentlcarer lTrhouse event5. At the end of the perlod, reserves held were £7,147. FLITURE PLANS In the sprln8 the tharlty wlll attend a chalr exertise sessbn ¥Ath a physlotheraplst from St Nlcholas Hospice Care. In Aprll 2023, funds I￿1[ be disiributed to the Sandra Chapman unlt at Jame5 Pad8et hospltal. donated to the Hospltal Charlty lor the Pr￿s1on of a chemotherapy chair. Trusteè and Chalrperson. Phoebe 05borne has been In¥lted to attend the House of Commons In November 2023 10 attend Slr Stephen Tlmms MP Cost-beneflt for Asbestos Removal launch event. STRUCTURE. GOVERNANCE AND MAPIAGEMEiir Govemlng doctsment The tharlty Is ¢ontroJled by Its 8ovemln8 document. a deed of trust and constltutes an unlncorporated charlty. These accounts present ihe results for the flrst year of tradln8. Thè financlal statements have been prepared In ac¢ordarKe wth the accountlng pollcie5 set out hereln and comply wlth Accountln8 and Reportifj8 by Charities.. Statement of Recommended Practlce ISORP 20151. Chlrlty constltullon East of England Asbestos Patlent Support Group became a Charitable Incorporated Organlsation ICIOI wlth a UK reglstered char￿V numl)er 1198256 in March 2022. It is governed by its Constitutlon whl¢h was amended 28 February 2022. Page 3 rt Grou Re ort ofthe Tn￿ee$ 12022 to 31 Mardh 2023 STRUCTURE, GOVERNANCE ANO MANAGEMENT Recruttment and Jppolrtment ol new trustees The initial tru5tee'5 were selected to prowde a range of expertisè to ensure successful estabfthment of the tharlty and cover the kntswled8e needed in the legal and accountlng aspects of governance. Appointments were made on an Inltlal two year term. with the exception of those klentified below. Trustees who served durfng the year were.. P Osborne Ifour year appolntmentl P Chung S Green E Mcconnell P Layland R Green (three year •ppolntment} B Chamenrywallls (for Ilfe or until Tetlrementl T Boddy L Dernp5 Apart from the first charity trustees, every trustee must be appointed for a term of three years by a resolutlon passed at a properly convened meetin8 of the charity tnjstee As set out In the Constltutlon the Board QfTn￿tee5 must comprlse at least three and not more than èight Indlvlduals. Ranlsatlonal structure The board of trustees conslsts of nlne per￿Th, whom admlnlster the CIO. Volunteers support the board, who number between a sln8le person support OT group siipport. dependin8 on the fundralsln& awareness andlor patlent support required at a varlety of events. Three of the board members reslde In the dwrlvs centre of operatlons. D•¢lslon maklni The board of trustees Is the prlnclple deCI￿On making body of the charlty. Any decisitins taken by the trustee5 In Ihe runnln8 of the charlty are done so in regular meetings of the trustee boaid. Inductlon and tr•ln5n8 ol tfUsQ••5 There Is an Informal induction process for new trustees. each one meetln8 wlth the Chalr of the Board prlor to attendlng thelr flrsi full board meetln8. Copies of the Constitutkn, thè latest Trustees, Annual Report and statement of accounts are made avallable to the new Trustee. REFERENCE AND ADMINisfRATIVE DEfAILS ReBlsiered Chartty numb 1198256 Prlndpal address 4 Cedar aose Chestnut Grove Southend on Sea Essex S525HW Page 4 Of.En nd Asbestos Patlont Trnstees Mlss P Osbome Chairman P Chun8 Trustee S F P Green Trustee E M Mcconnell Trustee P R Layland Trustee R Green Trustee 8 V C Wallis Trustee T W Boddy Trustee L M Dernpsey Trustee Indepe*￿ent Examln•r Knlghts Lowe Chartered Accountants Eldo House Kempson Way Suffolk Buslne55 Park Bury St Edmund5 Suffolk IP32 7AR srATEMENTOF TRUSTEES, RESPONSIBIUTIES The trust￿ are responsible for preparlng the Report of the Trustees and the financlal statements In accordance wlth appllcable law and United Klngdorn Accountlng Standards Iunited Kingdom Generalty Accepted Accountlng Pra￿l¢e1. The law appllcable to charltles In England and Wales, the Charities Act 2011, Charlty (Acwunts and Report51 Re8ulatlons 2008 and the provlslon5 of the trust deed requires the truslees to prepare flnanclal statements for each financlal year which 8we a true and falr vlew of the state of affairg of the charity and of the In¢omln8 resources and appllcation of resources, including the income and expendlture. of the charity lor that perlod. In preparln8 those flnanclal statements, thè tft15tÈes are requlreil to select sultable a¢countlng polldes and then apply thern consisientfy,. obseTre the metho(ts and prlnciples in the Charlty SORP: make lud8ements ènd estimates that are reasonable and prudent; prepare the flnanclal statements on the going concern basis unless It Ls Inapproprlate to presume that the charlty 11 contlnue in buslne55. The trustees are responsible for keeping proper attountln8 re￿5 whlth disdose with reasonable accuracy at any time the financlal positlon ol the charity and to enable them to ensure that the finanaal statements comply with the Charities Art 2011, the Charlty (Accounts and Reports) Regulations 2008 and the prO￿$10￿S of the trust dee