SAG ANNU REPO 22/ 10000 +IASAG Il ASBESTOS DISEASE SUPPORT
HASAG – LIVING, BREATHING, AND INHABITING THE WORLD OF MESOTHELIOMA IN 2023
Our very first education day for nurses in January was a huge success. We brought together world-leading experts on treatments, fellow clinical nurse specialists and clinicians all sharing their knowledge with an audience of 75 delegates.
Our 8 speakers were made up of oncologists, surgeons, palliative care experts, thoracic mesothelioma nurse specialists and solicitors. The feedback from the nurses who attended was really encouraging. We are holding our next conference for them in January 2024 and plan to hold the event annually.
ACTION MESOTHELIOMA DAY 2022
Action Mesothelioma Day took place on 1st July. The day itself was a great success and extremely well-attended. We had 3 speakers –Consultant Medical Oncologist Doraid Alrifai discussed treatment options and trials; BBC journalist Kate Williams, discussing her personal mesothelioma journey; Lee Wymess from DaSH Global demonstrating their Your Health Companion app allows patients to make more control in the management of their cancer by enabling them to record, monitor and communicate how they are feeling with a view to improving their care and treatment outcomes Specialist Mesothelioma Nurse Rachel Thomas demonstrated a number of relaxation techniques.
The day raised £40000, which, with the cost-ofliving crisis, surpassed our expectations. The money was split between the June Hancock Mesothelioma Research fund and funding specialist nurse positions within the NHS.
GRANTS
We received a grant of £2110 in April 2022 from the Essex Community Foundation to help fund our the coffee mornings we hold in Basildon and Braintree for 12 months. We would like to thank them for their generosity. The funding made a real difference to the 2 support meetings and to all those who attend.
In November 2022, we were successful in obtaining a grant of £234,000 from the National Lottery Community Fund. This money is ring-fenced to help cover the costs of our home-visits and our counselling service. This is a huge financial boost for us, and ensures that we can continue delivering the same excellent service to our
community. We would like to say a huge thank-you to the National Lottery and to all the players who make this possible.
PATIENT VISITS
We went on 695 separate home visits to our patients during the financial year. A home visit is the beginning of our relationship with both our patients and their families. We discuss their situation and give expert advice and guidance. The services we provide at the home visit is a lifeline to our patient at a time when they feel lost and isolated. From a home visit, we can also identify services a patient needs outside of the services we offer.
Our aim is to give all the support we can to our patients and their families, and to get all the support they need from outside agencies. From our own lived experience, we know how distressing it is for the whole family when a terminal diagnosis of mesothelioma is given. We want to take away as much of this stress as we can. Arrange for benefits to be paid, help with compensation claims, arrange counselling to improve their mental health.
“I WANTED TO PERSONALLY THANK YOU ALL AT HASAG FOR THE WONDERFUL WORK THAT YOU DO. HASAG HAS PROVIDED AMAZING AND KIND SUPPORT AND ADVICE TO MY FATHER THIS YEAR AS I’M SURE YOU DO TO HUNDREDS OF OTHER PEOPLE EVERY YEAR AT A TIME WHEN THEY MOST NEED THAT KINDNESS.”
BENEFITS
“MY HUSBAND AND INDEED ALL OUR FAMILY CANNOT THANK YOU AND THE WHOLE HASAG TEAM ENOUGH FOR ALL YOU DID IN THOSE EARLY DAYS WHEN HE WAS FIRST DIAGNOSED WITH MESOTHELIOMA. YOU TOOK UP HIS CASE AND ALL HE HAD TO DO WAS SIT BACK AND LET YOU DO THE WORK. THIS IS NOT WHAT HE IS USED TO AND EVERYTHING JUST FELL INTO PLACE THANKS TO YOU.”
Every occurrence of an asbestos-related illness will probably create additional costs for patients and their families. It is important that we act to protect their financial security. We do this by pursuing State Benefits for our patients.
----- Start of picture text -----
Benefits Awarded 22/23
0 200 400
IIDB 504
PWCA 467
Attendance Allowance 306
Blue Badge 306
Constant Allowance 109
2008 63
PIP 44
War Disablement Benefit 21
Change of Circumstance 5
ESA 5 Benefits Awarded
----- End of picture text -----
Those who were exposed to asbestos whilst serving the military are not entitled to the typical benefits. We can claim for them under a scheme run by the Ministry of Defence. In this financi al year, we claimed a total of £2,527,312 for those that were entitled to this payment.
PATIENT DIAGNOSIS
We aren’t sure whether the numbers of those diagnosed with an asbestos-related illness have peaked.
The figures for our patient diagnosis in the financial year 2022/2023 shows no slowing down of asbestos-related illnesses in the UK.
Patient Diagnosis 2022/2023
----- Start of picture text -----
0 200 400
Mesothelioma 534
Asbestosis 104
Pleural Thickening 22
Lung Cancer 16
Asbestosis & Pleural Thickening 8
Lung Cancer with Asbestosis 8
Other 2
Pleural Plaque 1
Unsure 1
----- End of picture text -----
“I CAN’T EVEN BEGIN TO THANK YOU FOR ALL THE HELP YOU’VE GIVEN, BOTH TO ME BUT ALSO TO G HIMSELF. HE WAS SO IMPRESSED WITH YOU WHEN YOU WENT TO SEE HIM AND I’VE BEEN NO LESS IMPRESSED SINCE HE PASSED AWAY. YOU’RE SO PROACTIVE AND SEE EVERYTHING THROUGH TO THE END WHICH IS JUST WONDERFUL FOR US LEFT BEHIND.”
COUNSELLING
We continue to offer free professional counselling to our patients and their loved ones.
When someone is diagnosed with an asbestos-related disease their first thoughts will probably be that their 'normal' lives are about to change. This often leads to feelings of shock, disbelief, anger, fright, and worry, not just themselves but also their loved ones. When diagnosed, your emotions play an important role in your well-being and talking to family and friends definitely helps. However, some people are scared of the emotions and upset that this could bring up and won't or indeed can't talk to their family and this can lead to strained family relationships.
This situation causes great anguish for both patients and their loved ones. Their mental well-being is adversely affected.
The counselling service we provide gives the coping mechanisms that our patients and their families need to deal with what is a really devastating situation.
We receive evaluations from our Counsellors, based on scores taken from the participants. Those attending the sessions are asked for a score on several questions at their first and last sessions, from this a clinical score of their mental well-being is calculated. Comparisons can then be made as to how much they have benefitted from the counselling. During the financial period we paid for 271 separate counselling sessions. The evaluations showed an incredible 40% increase in mental well-being from first to final sessions. Not one person had a negative evaluation.
COFFEE MORNINGS
We continued to hold monthly coffee mornings in Southampton, Portsmouth, Guildford, Uckfield, Reading. A new coffee morning was established in London and is held every 2 months. We also hold a monthly coffee morning in Essex, split between venues in Basildon and Braintree.
For those who prefer, or find travelling difficult, we held a ‘coffee morning’ every 2 months online via Zoom. All of our coffee mornings are attended by ourselves, specialist mesothelioma nurse professionals and specialist lawyers. There is a wealth of face to face support for our patients. More importantly, our patients get to know each other and swap stories about their situations, building new relationships and support networks.
The coffee mornings remain so important to our organisation. HASAG was originally formed as a single monthly coffee morning and thanks to our community has grown into what we are now.
“JUST WANTED TO SAY THANK YOU FOR INVITING US ALONG TO THE COFFEE MORNING TODAY AT THE HOLIDAY INN GUILDFORD.
WE WERE BOTH UNSURE OF WHAT TO EXPECT BUT FOUND IT SO HELPFUL TO BE ABLE TO SPEAK TO OTHERS AT VARIOUS POINTS ON THE SAME JOURNEY. R PARTICULARLY FOUND IT HELPFUL TO CHAT TO THE GUY YOU INTRODUCED HIM TO WHO HIMSELF HAS BEEN THROUGH CHEMO. THE HELP AND SUPPORT WE HAVE RECEIVED FROM YOU HAS BEEN INVALUABLE SO A MASSIVE THANK YOU.”**
FUNDING OF MESOTHELIOMA NURSES
We continue to fund a number of specialist mesothelioma nurse positions within the NHS through Mesothelioma UK.
We are extremely proud of our partnership with Mesothelioma UK. We hope to contribute towards these posts in the future.
Anne Moylan – Portsmouth QA Sophia Holden – Guys and St Thomas
Helen Wilkes – Southampton General Catherine Stoten – University College London Samantha Jayasekara – Broomfield Lou Gilham – Tunbridge Wells
Charlty r•gl8trallon numIr 1197946 HASAG ASBESTOS DISEASE SUPPORT ANNUAL REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2023
HASAG ASBESTOS DISEASE SUPPORT LEGAL AND ADMINISTRATIVE INFORMATION Trust••5 J Oakley S Hdling J Lashly J Edon V ThCaS {Appoint•d 21 Aprfl 20221 {Appoinled 21 S8Ptemb8r 20231 (Appointed 14 September 20231 S Hempshaw Charlty number 1197946 Audltor Az•ts Authl SeNces Se¢ure House LuV0rth Close Chandlers Ford South3rnplon Hampshke S053 3TL
HASAG ASBESTOS DISEASE SUPPORT CONTENTS Page Trust8os' reF*yt Independent auditors report Statèment of financkal activities Balance sh88t Slalement of ¢a$h fflows 10 Notss to the fin8ndal statements
HASAG ASBESTOS DISEASE SUPPORT TRUSTEES. REPORT FOR THE YEAR ENDED 31 MARCH 2023 The trustees PTe8ont th8lr annual rtpjrt and fin8ndal statements for the year ended 31 March 2023. Th¢ financial stateNnts have been prepared in aGrdance wth the aco)unting pdiaes set out in note 1 to the financi81 $18temonts and comply wlth the ¢harfty's govemlng doojment, the Charities Act 20118nd "Aw)untlng and Reporting by Charitles: Stslemgnt of Rewmmonded Prèetic• applicablo to cknarities preparin9 Ihoir acwints in accordance with the Fin8n¢ial Reporting Stsndard appIlbI¢ in the UK ond Republk of Ireland IFRS 1021. (effective 1 January 2019}. Obl•¢t19 and •¢tlvltl•s The prlncipal objects of the charity are Ihe relief of persons who suffer ill-heath, Injury or be¢ome disabled from their exposure lo agbestos and Ihelr famllies by the provlslon of support, advice, and as8istsnce and also by lInng wlth olher asbestos support groups throughout Ihè UK and abroad lo ensure all those injured by asb8stos am offweAI Ihe 3UPPOrt and as$l$tan¢e 88 requlred. Fundralslng is undertaken for the purposes of mesothelloma research. Th• trustees have paid due regard lo guidance issued by the Charty Commi$$i¢n in deriding what aCtNeS Ihe ch?rlty should undèrtake. We give arfvice to anyone diagnosed wrfh asbestos r¢l8ta dl$eases. adwce about wetrare elaim$, h¢x to seek adv8 for compensation and advic& about making cNil cL8im8. We as a $uppc•rt group for vktlms and carers and hlghlight the dangers ol exposure to asbeslos. Achlev•m•nts and pgrfomi•n¢• LN4n breathin and inhabitin the worfd of Our very first èducatlon day lor nurses In January was a huge success. We brought together worhsleadlng experts on treatments, fdlow dinical nurse spedalists and eliniaans all sharing their knowledge with an audience of 75 delegates. Our 8 speakers were made up ol oncobjlsts, surgeons. palliiv8 Ca axperts, Ihora¢l¢ mssothelloma nurse specialisls and solicitors. The leedback from the nurses who attended was really ancouraglng. We are holding our next conference for them in January 2024 and plan to hold the event annually. Da 2022 Action Me8Othelioma Day took 8¢? on 1st July. Tho day Itself was a great $uccess and gxtromety well-8ttènd¢d. We had 4 speaker8- Consultant Medic81 Oncologist Doraid Mrifai diseussed treatsn•nt options and trials., BBC journolist Kate Williams discussed her personal m8sothelioma journey; Lee Wymess from DaSH Global dgnKJnstrated thelr Your Health Companlon app sthlch allows patients lo tak¢ fflorg cpntrol in the managemenl of their cèneer by enabling them to record, nv)nitor and communicate how they aré feeling wllh 8 Vtew lo improving their ¢are aNI treatment outcomes,. Spedallst Mesothelioma Nurse Rachel Thoma5 demonstrated a number ol rdaxalion t8chniquss. The day raised £40.000, which, the ¢o$t-of-living $1$, surpassed our exp8ctaUons. The mon&y was splll between the June H8nwck Me80theliom8 Research fund and funding speaalisl nurse positlons wlthin the NHS. We received a grant or £2.110 in Aprtl 2022 from the Essex Community Foundatlon to h8lp fund thè coffee momin9S we hdd In Baslldon and Bralntree for 12 monlhs. We would like to thank them for thelr generoslty. The fundlro made a real diffar•nc• to thè 2 supwi m8eb.ngs and to all those who attend. In Novernber 2022. wg wgre succgssful in obtaining a grant of £234,000 from the Nathjnal Lottery Communmy Fund. This money is ring-fenced to help mver Ihe costs of our hs)me-ViSits and our counselling serviee. This 15 A hugÈ ffinancial boost for us, and ensures that wo Can conts'nue dellverfng the same eXcelnt seICe to our ¢ommunty. We would Ilke to say a huge thank you to the National Lottery and lo all thè play4rs vA)o Ma thls K)ossible.
HASAG ASBESTOS DISEASE SUPPORT TRUSTEES, REPORT (CONTINUED) FOR THE YEAR ENDED 31 AIARCH 2023 Patient Vislts We went on 695 separats horne visSts to our paU•nt$ during thè financial year. A home vlslt is the beginning of our Telatti)nship with both our patients and their familie5. We di5¢uss IheK silualion and ¥? expert advic6 and guIdan. The sorvic8s wa provid¢ at a home visit is a lifeline to our patients at a Ime when Ihey f88110818nd Isatj. From a homè M¥it, we can also identify services a patient needs ouislde of the s¢rvice8 we offèr. Our aim 1$ lo give 311 thg support we can to our patients 8nd thèlr famlllès, 8nd to gel all Ihe support they need from outside 8gencie$. From our own INed experience. we kn¢)w how distressing it is for the whole famly when terminal diagnosis of mesothelloma Is gfven. Vve want lo take away as much of this stress as we can by arranginy for benefits to be paid, helping with compensation dalms and arranglng rInSlng to improva thelr mentsl heallh. .1 wantgd to personglly Ihank you all al HASAG for ¢he Ivonderfvl WO th8t you do. HASAG has prowded 8m8zing and kAnd support gnd advice lo my fath8r this ar as Im sura you do to hundreds ofofher 0p1$ every year el a time byhan they nK>St n&that kindness.. Every 4xcurren¢¢ of an a8b&8108-related illness wll probably creale additSonBI ¢osts for pallents and thèir f8milie8. 11 is important that wg act to protect thelr flnanclal sacurlty. Wg do this by pursuing Stste Benefits for our patients. Those who were exposed to asbestos whllst servlng the military are not ènliued lo the typical beneffts. We can elaim for them under a scheme run by thè Ministy of Dgfence. In this financial year, we dalmed a total of £2,527.312 for those that were entlued to this paymenL yhusbbnd gnd Indeed avourtsmily Gannot thank you and the wholè HASAG tèam énough for all you thd in those e8Ay days when h& w&$ first diagnosed with mesolhelioma. You I)k up hi$ ¢ase and all he had to do was sit b8Gk andlèt you do the work. This is not what he is used to and everything just fellinto place thanks to you.- Patlent Dla osis We arenm sure whglhor tr¢e numbèr8 of those diagnosed with an asbestOS•relatail Illrw8 have peak•d. The figures for patl6nt dlagno$rs in the finandal year 202212023 show no slovAng down ol asbèslos-relaled illnesses in tha UK. .1 cany gven b8gin to thankyou for Bll the help youtr8 giv&n, IKJth to me bul also to G himself. He was so iMpssed wilh you when you went to see hlm and I've been no less impssed slnGe he passgd awoy. You're so pro&ctlve ond see eveiithing through lo the enLI whlch 1$ just wonderful for us left behind.- Couns•llin We ¢ontlnu8 lo offer freo profes8ional counsellirg to our pallents 8nd thelr loved ones. Vlhen soméone 1$ diagnosed with an asbestts>rèlated di89889 their first thou9hls will probabty b• that Ihelr'normal, lives are about lo change. Thls often lead8 to tsolings of shock. disbelief. anger. frlght, and Try, not ILrst themselves but also thoir lov•d onès. Wh9n diagnosed, your emotions play an Important rolg in your welkbelng and talking to famlly and frfends definitely helps. Ht)wever, 80me people are scared of the emotions aThJ upsèt that Ihi$ could brlng up and ww'l or indeed canl talk lo thelr family and this can lead to stralned famity latIonshIps. Thls $ltu8lon causes gat angu15h for both patFents and thelr loved ones. Thelr mèntal well-being is 8dvgrsely aff8Ct8d. The eounselling Servi we provlde glvos the ¢opin9 me¢hanisms Ihat our patients and Ihelr families need to deal wikn what Is a realty devastating situation. We recewe evaluations trom our C¢)unstll¢)rs, bxs8d on $cor8$ tsken Irom the partlclpants. Those aitendlng the sesslons are asked for a score on sevèral queslkjns at thelr first and last sessK)ns, from this a clinical score of thèlr mental well-being Is calculated. Comparisons can then be made as lo how mud) they have benefitied from the counselling. Durlng the financial period we paid for 271 separate counselling sessions. Thè èvaluations sh<)wed an increditA& 40% in¢rg8s9 in mentsl w8lkb8ing fmm firsl to final sessions. Not on8 rSOn had a negative $valuat'on.
HASAG ASBESTOS DISEASE SUPPORT TRUSTEES, REPORT (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 Coffee Momin We contlnued lo hold rnonth ¢offe& momlng$ In Southampton, PtsMOUth, Guil(If¢rd, Uckfleld and Readlng. A new coffee morning was established in London and is hèld èvèry 2 month5. Wt 8180 hold a monthly coff•• rnorning In Ess8x. splll be1n venues in Basildon and Brainlre6. For those who prefer, or find travelling dTh¢ult. we 1 a 'rnff•• mornFng' gvgry 2 months online via Zoom. Afi of our coffee mornlngs are attended by ourselves, slaP1st mesothelloma nurs8 profe88ionals and speclallsl lawyers. There is a wealth of face to face support lor our patiants. Mom importantly, our pabents get to know ea¢h other and swdp stories about th8ir situBlion8. bulkling new Telallonships and ¥upport netsvorks. The coffee nY>mings remÈin 30 import8nt lo our organisalion. HASAG was originalty formed as a single monthly ¢offee moming and thanks lo our communmy has grown into what we are now. "Jusl wanted to say thank you for inwtlng us along to the coffee momlng today at the Holiday Inn Guildford. We wefft JSoth unsure of what to expect bul lound 11 $0 helpful to bo able to SP88k to others at various wnts on th& sameioumey. R'particulsrty fourJL4 It hèlpful to eh8t to thé guyyou Introducèd him to who himself has be8n thn)uglJ chemo. Tho help ènd support we have Trcelved from you has bgen Invaluable so a massive Ihankyou." Fundin of Mesothelioma Nurses We continue to fund 6 specialisl mesothelioma nurse positions bmthin the NHS through Mesothelloma UK. We ore eXtmelY proud of our partnèrshlp wlth M&solhelloma UK. W& hopg to ¢onlrlbule towards these posts In the future. Fln4ncial revigw Incoming resourc&s lotall8d £1.033,166 12022: £646.82418nd ro$our expended were £631,009 12022: £535,505), glvlng 8 surplu5 of £402,157 12022.. £111.319} for the period and total funds carrigd forvrdrd of £1,225.213 {2022.. £823.0561. The trustees aim to ensu that sufficlent reserves are held for the purpose of ensuring the conlinualon of th& services and acliwties of th8 charity durfng a p8rlod of unlorasèèn driClty. A proportion of these reserve$ should b• in a rèadily reÈlisabl8 form. The trustees have determined that this level of Yree. reserves should èquat8 10 9 monlhs, worth of exntUre. Free reserves are £723,020 at 31 March 2023. These were comprised of unrestrScted res8rvgs of £1.006.661. 18ss funds designated tor a spec4fic purpjse of £280.157 and less tanglble fixed assets of £3.484. Struetur•. goY•rnanc• and m•n•g¢m¢nt The charity is a charitable incorporatad organSsatk)n and Is govemed by a trust da•d. Thè trusteas who seNad during lh• year #nd up to the d•lg of $ign8turs of Ihg finandal slalements woro.. Joak S Holling J Lashly H Wilangowskl R C Thomas DLee J Edèn V Thomas S Hempshaw (Appointed 21 April 20221 IR8$1gn8d 16 Mar¢h 20231 (Resigned 1 September 20231 (Resigned 19 October 20231 (Appointed 21 Sopt9mber 20231 (Appointed 14 September 20231 Committee members have been seEected from ¢tIm$ of asbestos related dl8e8se or have èxperienees related to the ¢ondlfjons. Over811 management of the charity is th8 respx)nsibility of the trustees who are 818Cted and eo-optsd under the tèrm$ of the goveming d¢xument. DaY-ldaY prolect activity t5 managed and carried out by volunteers and paid staff.
HASAG ASBESTOS DISEASE SUPPORT
TRUSTEES. REPORT (COPrnNUED)
FOR THE YEAR ENDED 31 MARCH 2023
vthK give a aThJ lair ¥thv of tho slale ol affairn of Ihg and of
lrt pMparfN4 Ihw finand•l Slateml8, the trustees ar• r6wlfad ts..
. mak•lthJwnwts •nd 8¥limalo5 •r6 rna90nJWe pud6nt:
Ilm tho finandal ol tho charbty en Ihom lo enBure Ihat Ihe ftn8nrAèl SMnts c4yrWy wlm the
ChawlU¢s AL 2011. tho Chwy (Act and R8prKts) Ra9#1 2008 811 tho provlslons
HASAG ASBESTOS DISEASE SUPPORT INDEPENDENT AUDITOR'S REPORT TOTHE TRUSTEES OF HASAGASBESTOS DISEASE SUPPORT Oplnlon Wg hav• auditsd the financk?I slalements of HASAG Asbe$lo8 Dlsoase Support Ilhe 'charrty'l for the year ended 31 March 2023 vthlch ¢ompAse 1he statement of financial activlties, the balance sheeL the statement of cash flows and notes lo the financial slalgmants, Indudlng slgnfficant accounting policies. The financial r8porting fram¥work that has been applled In thelr yeparatSon Is Bpplicable law and United Kingdom Accounting Standar(Js. Indu¢Jlny Financial RepDrting Standard 102 Tho Fin8nci&I Rèporting Standanl applkoble In the UK 8nd R$pulJhc of Ireland Iunitsd Kin9dcffi G8netallyAccepted Accwnlng Pr8d1}. In our opinion, the fin¥n¢ial $tstemonts'. glve a tru8 and falr vlew of the state ol the charfty's affairs as 8131 March 2023 and of its incoming resources $nd application of msourc•s, for tho yèar then ended.. have bgen prop8rly propared in acwrdance wth United Kingth)m Ggnernlty Accepted AOUntIng Practic•", ond have been prepared in accordance with the requirements ofthe Charilies Act 2011. Basis for oplnion We ¢ondu¢tsd our audit In accordance ¥th Intemational Standards on Audrting {UKI IISAS IUKII and oppllcable law. Our responslbllitk8S undw thL Standards are further described in the Auditorfs responw"btsth8s for the audit ol the ffnanGlal statements section of our raport. We are independent of the charity in accordance with the trthical requirements that are relevant to OUT audll of th¢ finandal statements in th8 UK. Includlng the FRC'S Ethical Standard, and we have fvlfilbd our other elhlcal respsIbilItieS in 8cix)rdance with these requirgments. We believe that the audlt edence we have obtained15 9uffi¢bnl and approprfale to provodg a basis for wr Ok4nK)n. Con¢lu¥lon$ r•lotlno to golng eoneern In alItIng the finanaal statements, we have conduded that Ihe trusts¢$' uso of the going concem basls of accountin9 tn Ihe prep8ralion of the financial slatemenls is appropriate. Based on thè work w¥ h8vè rfOrma. wa have not identified any maierlal uncertaintias ralallng to avents or conditions that. individualty or collectively. may cast Slgnific8nt doubt on the charitys ability Io rgntinue as a going concem for a period of al least tsyelve months from when the financial ststements are aulhorised for Issue. Our fesponsibllitks and the responsibilities of the trustee$ respect to gdng concern are described in the rdevant Sections of thls report. Other information The olh8r informatKJn comprises the infomialion induded in the annual report other than the nalat statements and our auditorfs report IhgrÈon. The trustees ara r8sponsible for the other Infomiation ntained wlthln the Bnnual report. Our opinion on thg fin8ncial statem8nts do•s not covèr th8 Other infomiation and do not axprgss any form of assurance concluslon Iheiaon. Our responslbi16ty Is to read the other infomiation and. In dolng so, ¢on$lder whether the other information is mat411Y incon&'stsnl wlh tho finandal ststgmenls or our knowlodge obtalned in th8 urs8 of th8 audit. or otherwise 8ppeaTS to be materially mL¥st8t$d. If w• i¢Jentify such materi81 inconsistencies or apparent material misstatements, we are requireLI to detsmln& wh&th&r th18 glves lo a malerHI misstatement In the finanogl ststements themsdves. If, based on the work we have pgrformed, we InClude that ihere Is material misstatement of this other infomiatsjn, we are required lo report that fact. We have nothing to r•ptsrt in this rngard. Matt•rs on whlch w• are r•qulred to report by exception Wve have nothing lo report In rgSPQ¢t of Ihe followng matters in relat lo whlch lha CharSUes (Accounts and Reports} Regulations 2008 r4uir8 us to rèpjrt to you rf. in our opinKsn'. the infomation 9on In th8 flrkindal statements is inconsislenl in any rnaterial spect wlth th• trusteo$' report," or sufficiént accounting records have not been kept,. or the financial slatemenls are not in 8greemènt with thè 8ceounts.ng racords-, or we have not received all the Infom)alltsn and 8xpknations w& raquirg for our audh.
HASAG ASBESTOS DISEASE SUPPORT INDEPENDENT AUDITOR'S REPORT (CONTINUED) TOTHETRUSTEES OF HASAGASBESTOS DISEASE SUPPORT Re$pon$lbllltl•8 of trusl•o8 As •xplaln•d mor8 fully in th& statement of trustees, responsibilities, the trustee5 are responsitle for th• pr•paratn of the fin8n¢lal $tatemonts and for being satIsfd that they gwe a true and fair wew, and for such Intemal as the truslge¥ d$l$mSn¢ 1$ n$¢ss$ary to enabb Ihe preparatlon of financlal stalements Ihal 8r& fro$ from m8tgrial misstalemenl. whether due lo fraud or error. In prgparfng tho finondol statemènts, tho tru$toe8 are respK)nslble for assessing the charity's abilty to continue as a golng concern, di$do¥ing. 8s applic8blg, m8tter3 related to going concern and using lh8 going concem basis of accounting unle33 the tru8leg8 e(fher intend to cease cp6rations. or hav& M realistic altemative but to do so. Auditorfs r•¥pon¥ibililiw4 for th• •udit of th• flnanelal stat•m•nls We have been appointed as auditor und&r seciion 144 of the Charities Act 2011 and report In accordar thé Ad and kn¥¥nt régulatkns mad& or havlng effect thereunder. Our oblectives are to obiairb reasonable assurance about whether the ffinanrial 8lalemenls as a whole are free from material misstatement. whether due to fraud or error, and to issue an audilorfs reporl that includes our oynion. Reagonabla assurancg is a high level of assurance but is not a guarantee that an audll conducted in accordancg th ISAS IUKI wll aayS detect a material misstatement when it exists. Misstatements can aris& fr¢m fraud or orror and a consldered m8l&rial K. Indlvldually or In the aggregate, they could reasonably be expectod to inflUee the oconomic dS1on$ of u$¢rs tskon on th$ basi$ ofth&s$ financial statèm•nts. A fijrther description of our r8sponsibllitles is available on the Finaw81 Reporting Council's website at- http8:11 v.frc.org.ukJaUd1tOrsr0SponSibilitl&$. This description forms part of auditorfs report. Extsnt to whl¢h th• audlt was eonsldèrèd capabl• of d•t•etlng Irr•gularftl•s. Includlnll fraud IrTegul8ri1ie5, including fraud. are in5tanrxs of non-compli8nc8 with laws and r8gulatK)ns. Wè dèsvJn procedures in line with our responsibllitie5. ouuined abovo and on the Flnandal Repong CouncS1's web8tte. lo d&t8Ct matèrial mlsstatements In respect of Irregularities, induding fraud. We obtsln and update our understanding of the entlty, its Edvities, ks control enwronment, oThJ Ilkely future devdgpments, Including in relation to the169al atyj rogulalory framework applicable and how the 8ntity is eomplying wmh that framèwork. Bosed on this undeTStBndin9. we identify and assess the risks of moterial misststèmant of the fjnancial statèmants, wh&thar dug to fraud or grror. deslgn and perfom) audlt procedurès responslvo to tho86 rl8ks, and obtsin audit evidence that is suffi¢i8nt and appropriat8 to provid6 a basis for our opinion. This indudes cor¢sideration of the risk L)f acts by th8 entity th81 were ntrary lo applicable laws and regulations. induding traud. In response to the risk of irregulafiti'es and non-¢ompliarKe with laws 8nd rogulations. induding fraud. we desuned procdure5 which included- Enqulry of management and those charged with governance around actual and potenllal litigotion and ¢18lms as w911 as a¢tual, Suspted and alleg fraud- Rgvièwing minutès of meetings ol those charged wth govemance., Assessing the extent of ¢omplian¢e th the laws and regulations consldered to h8ve a di1 material e)Yecl on the financial st81gm¢nt$ or th& owrations of thè èntFiy through ènquiry and inspgdion. Reviewng finanaal Statèment dls¢108ure$ and lesliw to supportfing do¢um8ntstSon lo assèss r)lIance applicable laws and regulations,. Perfomiing audit work over Ihe risk of manwient br83 and overr8 of conlr(A8, induding testing ol loumal entries and other adjustments for appropriateness, evaluatiTrJ th8 business rationale ol significanl l¥ansadons outslde the nomal course of buslness and reviewlng accountlng estimates for iThJIcato ol potentlal bias. 8ecausg of th8 inhèrènt limitations of an audh. th8r• is a risk that w• wll not detect all Irr•gulariti8s. tnduding those leading t¢ a material ml$$tslemenl In the lInanoI statements or non.complk4rw with fe9u1atlon. ThL8 rlsk increases the more thal compliance wilh a law oi regulalion 1$ romovwj fr¢m th¢ ¢v&nts and tran$acthons reflectsd in the financial stalernenly, as we will be 1Èss likèty to beeome aware ol instances of noTrcA)mpliance. The risk ol nol detecbng a material misslatsment resulbng frc*m fraud is higher than for one rg$ulling from ernr. as fraud may Involve collusion, forgery, intentional omissions, misr8Frfesentations, rx the overrid8 of intemal control.
HASAG ASBESTOS DISEASE SUPPORT INDEPENDENT AUDITOR'S REPORT (CONTINUED) TO THE TRUSTEES OF HASAG ASBESTOS DISEASE SUPPORT Oth•r matt•rs The flnancial statements for the year ended 31 March 2022 were unaudited. U•? ol our rèport This report is made solely to the charitrfs trustees, as a body. in accordance wrfth part 4 of the Charities (Accounts and Reports) Rggulations 2008. Our audit work has bggn und&rt8ken so that wg mwdht stste to the charitys trustees thosè mattsrs we ara quird to slatè lo thèm in an auditoes rgport and for n¢ othèr purpjse. To the fvllest extent pemmted by law, we do not accept or assume responslbllty lo anyone other than the charlty and the charlty's trustees as a body. for our audit work, lor this report, or for the opinions we have fOrnd. Mlchaèl W•sl•y FCA IS•nlor Statthory Audltort flx and on b•haW of Az•ts Audll S•r4kg$ 2o£t Chart•r•d Accountants Stalutory Audltor Secure House Lurth Clos9 Chandlers Ford Soulhamplon Hampshlre S053 3TL
HASAG ASBESTOS DISEASE SUPPORT STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2023 Unr•*triel•d Rw4tricted nds fund$ 2023 2023 Total UnrMtrict•d R•strietgd funds lynds 2022 2022 TrAal 2023 2022 Not•s Incom8 fr4)m: Donations and Iggacies Investments 789,305 2.751 241.110 1.030.415 2.751 633.836 2,988 lo,0 643.836 2,988 Total In¢om• 792,056 241,110 1.033.166 636.824 10,OIJI 646.824 Raising funds 10,710 10,710 3,375 3,375 Charitablo activrbas 597,741 22,558 620,299 522.130 lo,0 532.130 Total expendlture 608.451 22,558 631,009 525,505 10.000 535,505 Nd Incomo lor th• y•arf N•t movgment In funds 183,605 218,552 402.157 111.319 111,319 Fund balon¢e$ 811 Aprll 2022 823.056 823.058 711.737 711.737 Fund balanc•s at 31 March 2023 1,006,661 218.552 1,225,213 823.OS6 823,0 The statement of finanaal aciwities indude$ all gains and losses recogni5pd in the year. All incom• and exp8nditure d8rNe from continuing activiti8s.
HASAG ASBESTOS DISEASE SUPPORT BALANCE 8HEEr ASAT31 AIARCH 2023 11 12 88,415 96.2SS 13 14 191.0 89,078 709.692 8.5TI Cash al baE* #nd n ho1 651.450 .370 746J)47 Crndlt•rn: •mwnl• t•lllng du• wlthln 15 (24,661> (19246) 728.801 1,725213 823.056 17 218.5S2 280.157 726,504 2.1 1.IK)SffiI 1225213 kley
HASAG ASBESTOS DISEASE SUPPORT STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 31 MARCH 2023 2023 2022 Cash flo from op•ratlng actlvlU•s Cash gonorat8d frorn operations 22 226,603 127,731 Investlng actlvltl•s Purch8se of tangible fixed assets Cosh equivalents with maturity of more than Ihreg monlh$ Investment income receoved 14491 {3,6421 1170.6631 2,751 14.435) 2.988 Net ¢g¥h u¥od In Inv•stlng aetlvlll•¥ {168,3611 15,0891 N•t cash u$•d In flnan¢lng actl¥ltl•$ N•1 In¢r•• In ¢•sh and ¢h •qUI1•t$ 58,242 122.642 Cash and eash equlvalent8 al b&3lnnlng of year 651.450 528,808 Cash and eash •qulval•nts at •nd of y••r T09.692 651.450 10-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2023 Ae¢ountlng poll¢l•s 1.1 Ac¢ounting Convention Th financial slatèmènts hava b8•n prepared in accordance wf(h the charitls goveming document, the Ch8rfl8$ A¢t 2011, FRS 102 'The Financial Reporting Standard applicable in the UK and Republic of Irdand. I'FRS 102.) aTrd the Charities SORP "AccountlrvJ and Reporting by Charltles.. Siatement ol Recommended Practice applicable lo ¢haritias preparing their accounts in accordance with the Finanaal Reporting Standard applicable in the UK and Republ1¢ of Irèland IFRS 1021" lefftIvé 1 January 20191. The charlty 1$ a Publ1¢ Bènefft Entlty as doffined by FRS 102. Thè financlal $talemenl8 are prep8red In slerflng, whlch Is the funclional currerKy of the charity. Monetary amounts in Ihese financial stslements rouThl•d to the nearest £. Tho financAal $latem¢nts have been prepared undgr the historical wst ¢onvgntKK). The principal accwnling policiès adoptèd am OLrt baknv. 1.2 Golng concfrrn At the lime of approving the fln8n¢lal st8ments. ihe twstees have a reasonable expeCtatn that Ihe charity has adequate resources lo continu8 In 0rational existence for the foreseeable fubjre. Thus the tntstees conllnue to adopt the golng concern basls of ¥¢ts)untln9 in preparing the financial statemenls. 1.3 Charltable funds Unre$tri¢led funds are dtrnations and other Incoming resources TeceNatle or generated for the objects of the charity without lurther spgcthed purpose and arg available as general fvnds. Designated fvnds ¢omprf8e funds whl¢h have been set aside at tha distretion of the trustees for specafic purposes. Re$tri¢ted funds are subject lo Sped ¢ondlUons by donors as to thay may be used. 1.4 Income Grants. donation$ gnd InMe from charltable tradiro activit$ arg r8coynis8d in full in th¢ year in which they a antitled. 1.5 Expendl¢ur• R¢sourc6s oXP8nded are induded on an accrual basi5. in¢lu$iw ol mn-rg¢ovgrablg VAT. GornOne• costs comprise all costs of the charity as well as its compllance wlth regulation an(J wyl practice. Thos9 ¢0sts indudg(l ¢osts rolated to the sialutory indgpgndgnt èxamination. 1.6 Tanylblé flx•d assets Depredatlon is recogn15ed so as to wrtte oll the co81 or valuatbn of assets18ss their re$iduAI v8lu$$ ovgrthglr usefijl lives on Ihe followng bases.. Land and buildlngs FlxbJr•s and fittlngs Computers 10% Slrauht lina 33% Slralghl Iln8 33% Str8KJht line The gain or loss arising on the disposal of an asset 1$ detsminsd as the dlfference beleen the proceeds and the Carrylng valuè of the asset, and 1$ rKoynised In the statement of financral activities. 11
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS {CONTINUED> FOR THE YEAR ENDED 31 MARCH 2023 Ae¢ounting policie Icontlnuèdl 1.7 Flxed auet Investments Investm8nts relats lo cash depostts wlh 8 frAed term of al least 12 nwjnths. 1.8 C•¥h and ¢a•h equivalents Cash and cash équivalènts include rash in hand, deposits hekl al call with banks. 0th9r $hort4wm liquid Invéstments with origlnal maturflbs of three months OT less. and bank overdrafts. Bank ov•rdrafts are shown wllhin borrowngs in Current liabilities. 1.9 R•tlrement b•n•llts Payments to defined Contri1) retirement benefft schemes are charged as èn expense they fall du•. 12-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 Domtlons and I•yGi•¥ Unr¢strktsd R•$trict fvnds fund$ Total Unmtrlctsd Rostrletod nd$ funds Total ZD23 2023 2023 2022 2022 2022 Donats"ons and gifts Lega¢le$ re¢eNable Grants rgcgivable 640,602 148.393 250 645.662 148.393 236,360 622,874 10.000 962 622,874 10,000 10,962 236.110 10,000 789,305 241,110 1.030.415 633,838 10,000 fA3,836 Donatlons and glfts Solicitor panel donations Other 360.042 280.620 5,000 365,042 280.620 348,100 274.774 348.100 274.774 640.662 845,662 622,874 622.874 13
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED> FOR THE YEAR ENDED 31 MARCH 2023 InstM¢n Unrnstrieled Unre•trictsd fund funds 2023 2022 Bank interest 2,751 2,988 Ral$lng fund$ Unr•¥trict•d Unr•strfct•d funds funds 2023 2022 Fundraisin and ublicil Seeking donations, grants and legae8 10,710 3.375 10,710 3,375 14-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 Charltabl• Ktivitl•s Asbgstos A5besto$ Di¥eas• Dls•as• Support Support 2023 2022 Staff wsts Depr&¢lallon and Impalmgnt EducBtional conferences Rent, rates and r£ hir Local projects DonÈtions Funding of Meso UK nurses 334,408 4.805 12.636 32.641 11.616 27.060 88.288 299,914 5,906 28.133 341 20,000 74,111 E li Sundry expen8es Travd co)s1s Stslongry Postage Subscripllon8 Equipment T8l•phone Bank charges A(Lountancy and bookkeeping Leg818nd pr¢)fg$$lonal fe&s 4,774 44,546 2.583 3.896 1,564 9,140 6.124 827 1,872 25.519 3.418 37.029 4.805 6.513 657 7.412 4,752 756 8.328 27,653 612,299 529,730 Shar8 of gov•manc• costs {s8a nol& 6) 2,400 620,299 532.130 Anatysls by fund Unrestricted fv4nd$ Restrictéd funds 597,741 22,558 522.130 10.000 820,299 532.130 15-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 Support eosts Support Governance 2023 Support Governance costs costs 2022 Audit faès Ind&p8ndenl examinalion fees 8,000 8,000 2.400 2,400 8,0fy) 2.400 2,4CKI Analysed betweBn Charitabl8 activiti85 8.000 8.000 2.400 Audltofs r•mun•r•tion Fees payable to the ¢harlty's audltor and a$$o¢latss.' 2023 2022 Audtt ofthe chaws annu81 a(tounts 8.000 Trustees None of the Iru$ts¥s lor ony persons connected them) rerEsved any remunèration or benefits from the charity during the year. Employ•es Tha 8ver0 monlhty number ol employees during the ye8T was: 2023 Number 2022 Number Employm•nt ¢Mts 2023 2022 VVag95 and $8L4rie$ Social s8curity cthts Oth0r penslon costs 277.621 32.242 24.545 261,089 23.410 15.415 334,408 299,914 There were no employe&s we annual remun•ration was mor8 than £60,000. 16-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 10 Taxatlon The charty is exempt from tax on irKom8 and 9ains falling wlhin section 505 of th8 T8xas Act 1988 or section 252 of the Taxationof Chargeable Gains A¢t 1992 to the oxtent that thes& are appli•d lo its thadtablè 0*'8cts. 11 Tanglble flxed awts L•nd and Flxtur•g •nd Ccthput•r• I1110• Total Co¥t At 1 April 2022 Additktns 18,354 20.366 12,070 449 50.790 449 Al 31 March 2023 18,354 20,366 12.519 51,239 Deprnclatlon and Impalrni•nt Al 1 April 2022 DeprecSation d)8rged In the ye8r 15.599 1.835 17.808 1,458 42.951 1,511 At 31 March 2023 17,434 19.266 11.OS5 47,755 Carrying amount At 31 March 2023 920 1.1 3,484 At 31 March 2022 2.755 2.559 2,526 7,840 12 Flxed asset Investments Cash In porttollo Cost or valuatlon At 1 April 2022 Addon5 Recl88Stfic8tion a$ ¢uYrent asset Investsnents 88.415 256,683 189,0781 At 31 Mar¢h 2023 256,020 Carrylng amount At 31 Marth 2023 256,020 At 31 March 2022 88.415 17-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 13 D•bto 2023 2022 Amounts falling due wSthln on• y•ar'. Trad• dèbtors Prepayments and acc¥ugd Ino)mg 1,535 190.065 1,530 7.047 191.600 8.577 14 Curr•nt asse* invft¥b)1onts 2023 2022 Unlist8d inv8slm8nts 89.078 86.020 Current asset investments relate to cash d8postts with a fixed term of more Ihan 3 months Ixrt less than 12 months. 15 Credltors: amounls falllng duè wlthln Con• yg•r 2023 2022 Othertaxation end social secuiity Trade Creditors A¢¢rual$ and dèferred income 7,169 10,122 7.370 7.893 5,292 6,061 24,661 19.246 16 Retirnrnent ben•frt sch•m•s D•flned Contrlbutlon xh•m•• The tharity operates 8 definod ¢¢ntribution n$[1)n s¢heme for all qualifylns employeey. The assets of th• schemg arg hekl separately from ltrwe of the charity In an IndeperentlY administered fund. Th& charge to profft or loss In respgct of defined contrSbutkJn schomas was £24,54512022- £15,415). 18-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 17 R•strletsd fundx The income frjnds of the charrty include restrided fttnds comprising Ihè following unaxpènded balan of d¢)nattons and grants hald on trust for $pgdfic purposes: Movemont In funds l#¢omlng R•$our¢o8 Bal¥nM •¢ •xp•ndd l Aprll 2022 Mov•m•nt In fund InwTrlnq Rvsow¢o8 8alanco at expond•d 31 Marth 2023 Counsglllro 10,000 110,(KJOI 234,CMX) 115,4481 218,552 The restricted fvnd relale8 to Big Lotlery Fund grants sp*crfically for counsalling. 19-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023 18 D•$lgnat•d fund$ Th$ inLy)mg fvnd$ ol Charity indude the following dosEgnated funds whl¢h havo b99n sgt aslde out ol UnrCld funds by the trustees for spgdffic purrxi888: Movement In lunds In¢omlng R•goure•s ruour¢e# •xpondèd B•l•ne• at R•8ourc•$ 1 Aprfl 2021 •XP•hdod Balameè t l Aprll 2022 Transl• Balance at 31 Mzr¢h 2023 Mssoth81iom8 Nursos Propety fund Research fund 225,000 20.000 20.tX)O 174,1111 99,111 250,000 20,QOO 20,000 86,178 (86.178) (9.843) 240,157 20.000 20.000 265,CilO 174.1111 99.111 290,000 86.178 186,1781 {9.843) 280,157 The deskJnal8d fund for Masothèltha Nurses rdatès to the pamlal fftlnillng f( Mesothgllctha ClInl1 Nurso Swdallsts for thg next yeais. The property fund rèlat8$ to lease and property costs and the research funds are designated for research. -20-
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR ThIE YEAR ENDED 31 MARCH 2023 19 Analys18 of not as60ts hotOn fund8 Unr•strl¢tsd R•slrfcted funds lunds 2023 2023 Total Unrnstrleted Restrleted fvnd$ fund$ 2022 2022 Total 2023 2022 Furxl balances at 31 March 2023 ar& represented by.. Tanglblo 88$&ts Inv•stmants Current assetsllliabilitiesl 3.484 256.020 965,709 7,840 88.415 726,801 256.020 747,1 $7 88.415 726.801 218.552 1.006,061 218.552 1.225.213 823,056 823.056 20 Rol•t•d p•rty tr•nsaetlons Remuneratlon ol key mJnJg8menl pol•1 The remuneration of k$y manaoèmonl parsonnel Is as follows. 2023 2022 Aggregate compensotton 120,219 115,829 Tr•ngaction• with rolatsd parths During thg year, dose family membets to Key Management Personnel received remuneration of £110,613 (2022.. £89,862). 21 Conv•rslon to ¢harltablo In¢orpwaled 0ryon1$on Tha charlty is th& successor lo HASAG Asbestos Disease Support Iregi51gred tharity number 1122105}- It was registered as a CharitaNe Incorporated Organisation on 16 Febnjary 2022, with all the activities, assets and liabiltbes of tho unincorporated ¢harlty tr3nsf8rr8d to thls Charitable Inc4)rporated Organlsatk)n. 21
HASAG ASBESTOS DISEASE SUPPORT NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 AIARCH 2023 22 Cash g•n•rat•d from op•ratlon• 2023 2022 Surplus for the year 402.157 111.319 Adlu$knonts for. Investment income recognised In stslernont of finandal acllvllles DeprecIaOfi and Impalment of t#nglblg fixed as1$ 12.751) 4.805 {2.9881 5,906 Movemènts in working capital= IlncreaseVdecTease in debtor Increase in creditors 11B3,023) 5.415 9,315 4,179 Cash generaied from opfrratlons 226,603 127,731 23 An#ly#is of Chang in nèt funds chartty had no d8bt during th8 year.