# PCD RESEARCH

## Details

- **Country:** England & Wales
- **Charity number:** 1197528
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 17, 2022
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1197528


## Contact

- **Address:** 31A Berrymede Road, LONDON
- **Postcode:** W4 5JE
- **Phone:** 07920572992
- **Email:** info@pcdresearch.org
- **Website:** www.PCDresearch.org



## Activities

**Objects:** THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING: • FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION; • ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; • PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND • RAISING AWARENESS ABOUT INHERITED CILIOPATHIES.  NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008

**Activities:** To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups, The General Public/mankind



## Areas of operation

- Australia
- Denmark
- France
- Germany
- Greece
- Israel
- Italy
- Japan
- Norway
- Portugal
- Spain
- Switzerland
- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Jan. 1, 2025 | £238634 | £19254 | — | — |
| Jan. 1, 2024 | £40802 | £11691 | — | — |
| Jan. 1, 2023 | £153776 | £2468 | — | — |



## Trustees

- **Dr Harriet Holme** (Chair) — appointed Jan. 1, 2022
- Dr Gurhan Erturan — appointed Jan. 1, 2022
- Florence Barkats — appointed Nov. 4, 2024
- Monica Dawes — appointed Nov. 24, 2023
- Natalie Gehl — appointed Jan. 1, 2022