{"country": "England & Wales", "charity_number": "1197528", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1197528", "name": "PCD RESEARCH", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2022-01-17", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "31A Berrymede Road, LONDON", "postcode": "W4 5JE", "phone": "07920572992", "email": "info@pcdresearch.org", "website": "www.PCDresearch.org", "lat": 51.500315, "lng": -0.263732, "activities": "To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING: \u2022 FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION; \u2022 ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; \u2022 PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND \u2022 RAISING AWARENESS ABOUT INHERITED CILIOPATHIES.  NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008", "classifications": [{"type": "How", "code": 301, "description": "Makes Grants To Individuals"}, {"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 202, "description": "Elderly/old People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 206, "description": "Other Defined Groups"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Australia"}, {"area_type": "Country", "area_description": "Denmark"}, {"area_type": "Country", "area_description": "France"}, {"area_type": "Country", "area_description": "Germany"}, {"area_type": "Country", "area_description": "Greece"}, {"area_type": "Country", "area_description": "Israel"}, {"area_type": "Country", "area_description": "Italy"}, {"area_type": "Country", "area_description": "Japan"}, {"area_type": "Country", "area_description": "Norway"}, {"area_type": "Country", "area_description": "Portugal"}, {"area_type": "Country", "area_description": "Spain"}, {"area_type": "Country", "area_description": "Switzerland"}, {"area_type": "Country", "area_description": "United States"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 238634, "latest_expenditure": 19254, "fin_period_start": "2024-01-02", "fin_period_end": "2025-01-01", "financial_years": [{"start": "2024-01-02", "end": "2025-01-01", "income": 238634, "expenditure": 19254, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-01-02", "end": "2024-01-01", "income": 40802, "expenditure": 11691, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-01-17", "end": "2023-01-01", "income": 153776, "expenditure": 2468, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Dr Harriet Holme", "chair": true, "appointment": "2022-01-01"}, {"name": "Dr Gurhan Erturan", "chair": false, "appointment": "2022-01-01"}, {"name": "Florence Barkats", "chair": false, "appointment": "2024-11-04"}, {"name": "Monica Dawes", "chair": false, "appointment": "2023-11-24"}, {"name": "Natalie Gehl", "chair": false, "appointment": "2022-01-01"}]}