## **Gorlin Syndrome Group**
## **Trustees report**
## **Charity Commission number 1197282**
**Period under review: 1[st] April 2024 until 31[st] March 2025**
Registered office: 44 Gatley Road, Cheadle, Greater Manchester SK8 1QE. Registered Charity Number 1197282
## **Trustees report for the period 1st April 2024 until 31[st] March 2025**
The trustees present their report together with the financial statements for the charity for the period 1[st] April 2024 until 31[st] March 2025.
The financial statements have been prepared in accordance with accounting policies as set out by charity law and are based on a receipts and payments format adopted by the trustees.
## **1. Structure, Governance and Management**
## **Governing Document**
The charity was granted CIO (Charity Incorporated Organisation) status by the Charity Commission, England and Wales on the 22[nd] of December 2021.
This report covers the period from the 1[st] April 2024 until the period end date of the 31[st] March 2025, a total of 365 days. The end date is in line with previous year end dates for the charity.
The charity is administered by the executive committee comprising the chair, treasurer, secretary and four additional trustees.
Executive committee members usually hold office for 3 years but may be re-appointed for a further term(s) that may be for less than 3 years.
The Committee shall hold at least 2 ordinary executive meetings each calendar year, which are quorate if at least 3 of its members are present, and minutes will be kept.
## **Executive meetings held:**
In the period (NB. 365 days) 1[st] April 2024 until 31[st] of March 2025, a total of 6 ordinary executive meetings were held. All of which were quorate.
## **Recruitment and appointment of new trustees**
The Group have a written policy pertaining to the recruitment and re-election of trustees. An annual review of the roles and responsibilities of trustees is undertaken to ensure a fair distribution of the work of the charity. This policy underlines the principle of equal opportunity within an open and efficient process of recruiting, retaining, and supervising a diverse Executive Committee.
To become a trustee, applicants are required to complete an application form including a declaration of eligibility. Following this stage, suitable applicants are invited to meet the trustees so that they can be further assessed and fully informed about the role and in turn ask questions of the trustees. All successful applicants are contacted within 48 hours and personal referees contacted.
New trustees are formally appointed at the next AGM or EGM and provided with an induction pack and training program based on individual need.
Seven trustees currently form the executive committee: Vicky Gill, Chair Andrew Gill, Treasurer Martin Hill Stephen Morton, Secretary Andrew Wilkinson Howard Tyers Claire Brunt
## **Risk management:**
The trustees identify and record internal and external risks envisaged in any action, situation, or
program of activities. After due consideration, action will be taken to avoid or minimise the risk. This includes not proceeding with a program. Where a risk has been identified but the benefits to Gorlin Syndrome Group or its beneficiaries are deemed worthwhile, then transfer of risk through outsourcing, insurance or other constitutional action is considered.
## **2. Objects:**
## **The Gorlin Syndrome Group objects are:**
- a. The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related conditions. This includes their families and carers but not restricted to.
- b. The advancement of the education of the medical profession and the general public into Gorlin syndrome and its implications for the family.
- c. The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate the useful results thereof.
## 3. **Public Benefit:**
The Trustees have reviewed the activities for the year to ensure they remain focused on the group's stated aims and objects and continue to deliver benefits to the public. The Trustees are satisfied that the charity's activities provide a wide public benefit.
## **4. Achievement and Performance:**
## **Chair’s report – Vicky Gill**
This report covers a period of time (365 days) from 1[st] April 2024 until the year end on the 31[st ] of March 2025.
Another year has come to an end, and we continue to do our very best to raise awareness of Gorlin syndrome and the work of the Gorlin Syndrome Group. This work is carried out by our dedicated team of trustees and ambassadors, supported by our medical advisors. During the year, we were also pleased to welcome Claire Brunt as an additional trustee to the team.
Our annual conference took place at Crewe Hall on Saturday, 1 June 2024. The event was supported by our medical advisors, Gareth Evans, Catherine Harwood and Aine Kelly, whose expertise and commitment were invaluable. Two of our trustees shared their personal testimonies, and several attendees were invited to speak and share their own experiences, creating an open and supportive environment.
One attendee arrived feeling particularly low, having undergone multiple surgical procedures and with other family members also affected by the syndrome. By the end of the day, he left feeling far more positive and less alone. Moments like this remind us why our work is so important and are incredibly rewarding for everyone involved. They encourage us to continue building on the remarkable legacy left by our founders, Margaret and Jim Costello.
## **5. Financial review**
## **Treasurer’s report- Andrew Gill**
## **Financial position**
In the last 365 days, the charity recorded an income of £6309 plus £430 in interest payments totaling £6739. Expenditure was £10270 creating a deficit for the year of -£3531. The amount of £4653 for the GSG conference accounted for the bulk of the spending. At the period end the total in unrestricted funds (No 1 Account £11920 + No 2 Account £17676) was £29597.
The trustees are satisfied that the reserves held are sufficient to support the ongoing work of the charity. There are sufficient funds at the signing of these accounts to enable the charity to pay suppliers on time for the foreseeable future.
## **Reserves and investment policy:**
The trustees have resolved to maintain surplus funds on the deposit account, whilst they further develop the strategic plan for the group. The level and use of reserves will be reviewed.
## **Statement of Assets and Liabilities at 31 March 2025:**
||**Charity Name**|**Charity Name**|**Charity Name**|**Charity Name**|**Charity Name**|**Charity Name**|**Charity Name**|No (if any)|No (if any)|No (if any)|No (if any)|
|---|---|---|---|---|---|---|---|---|---|---|---|
||**GORLIN SYNDROME GROUP**|||||||1197282||||
|**For the period from**
**01/04/2024**|||||**To**
**31/03/2025**|||||||
|**Section A Receipts and payments**||||||||||||
|||**Unrestricted**
**funds**|||**Restricted**
**funds**||**Endowment**
**Funds**|||**Total**
**funds**||
||||||**to the nearest £**|||||||
|**A1 Receipts**||430
6309
6739
-
6739
60
1076
1927
2092|||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|||||
|Interest on deposit accounts||430||||||||||
|Donations||6309||||||||||
|Fees for charitable servies||||||||||||
|||||||||||||
|||||||||||||
|||||||||||||
|**_Sub total_**
_(Gross income for AR)_||6739||||||||||
|||||||||||||
|**A2 Asset and investment sales**||||||||||||
|**_Sub total_**||-||||||||||
|||||||||||||
|**_Total receipts_**||6739||||||||||
|||||||||||||
|**A3 Payments**||||||||||||
|Bank charges||60|||**-**||**-**|||**60**||
|Voluntary receipts||1076|||**-**||**-**|||**1076**||
|General running cost||1927|||**-**||**-**|||**1927**||
|Update leaflets||2092|||**-**||**-**|||**2092**||
|Conference/away day|5115||**-**||**-**||**5115**||
|---|---|---|---|---|---|---|---|---|
||||**-**||**-**||||
|**_Sub total_**|10270||-||-||**10270**||
||||||||||
|**A4 Asset and investment**|||||||||
|**purchases**|||||||||
||-||**-**||**-**||**-**||
||||||||||
|**_Totalpayments_**|10270||**-**||**-**||**10270**||
||||||||||
|**_Net of receipts/(payments)_**|- 3531||**-**||**-**||**- 3531**||
|**A5 Transfers between funds**|-||**-**||**-**||**-**||
|**A6 Cash funds last year end**|33128||**-**||**-**||**33128**||
|**_Cash funds thisyear end_**|29597||**-**||**-**||**29597**||
## **Section B Statement of assets and liabilities at the end of the period**
|**period**||||||||
|---|---|---|---|---|---|---|---|
|**Categories**||**Unrestricted**
**funds**||**Restricted**
**funds**||**Endowment**
**funds**|
|
|**B1 Cash funds**
Sum of two Bank Accounts||**29597**|
|**-**|
|**-**||
|||**-**||**-**||**-**||
|||**-**||**-**||**-**||
|**_Total cash funds_**||**29597**||**-**||**-**||
|(agree balances with receipts and payments
account(s))||O.K.||||||
|||**Unrestricted**
**funds**||**Restricted**
**funds**||**Endowment**
**funds**||
|||**to the nearest £**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**Current value**
**(optional)**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**Current value**
**(optional)**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**When due**
**(optional)**||||||
|**B2 Other monetary assets**||||||||
|||||||**Current value**
**(optional)**||
|||||||**-**||
|**B3 Investment assets**||||||||
|||||||**Current value**
**(optional)**||
|||||||**-**||
|**B4 Assets retained for the**
**charity’s own use**||||||||
|||**Fund to which**
**liability relates**||||**When due**
**(optional)**||
|||||||||
|**B5 Liabilities**||||||||
Signed by one or two trustees on behalf of all the trustees
Print Name Date of approval
## **Notes to the Accounts for the Year Ended 31 March 2025:**
## **Accounting Policies**
- a. These accounts have been prepared on a receipts and payments basis in accordance with the Charities Act 2011 and adopted by trustees.
- b. Fund Accounting
- Unrestricted Funds can be used in accordance with the charitable objects at the discretion of the trustees
Restricted Funds arise when the use of a donation or legacy is stipulated by the donor, or funds are raised for a specific purpose. All Restricted Funds are used within the objects of the charity.
|**Donations and Legacies**|**01/04/2024~31/03/25**|
|---|---|
|Enthuse Donors|802|
|Just GivingDonors|3,565|
|Other Donors|1,942|
|**Total**|**6,309**|
Restricted Funds: NIL
## **Payments to trustees:**
There are no known related party transactions and no remuneration or expenses paid to the trustees, apart from that described above.
## **Reference and administration details:**
**Registered charity number England and Wales:** 1197282
**Principal address:** 43 Tor View, Tregadillett, Launceston, Cornwall, PL15 7HB
**Website:** www.gorlingroup.org
## **Contact:**
Stephen Morton, trustee and secretary, 64 Albatross Avenue, Strood, Rochester, Kent, ME2 2XP Telephone: 07835368526 Email: steve@gorlingroup.org
## **Trustees as of the 31st of March 2024:**
|VickyGill|Chair|||
|---|---|---|---|
|Andrew Gill|Treasurer|||
|Martin Hill|Trustee|||
|---|---|---|---|
|Stephen Morton|Secretary|||
|Andrew Williamson|Trustee|||
|Howard Tyers|Trustee|||
|Claire Brunt|Trustee|Appointed 18thNovember 2024|3-year term|
## **Trustees resigned**
N/A
## **Constitution:**
CIO (Charity Incorporated Organisation) Foundation Model 22nd December 2021
## **Bank:**
CAF Bank 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ
Date approved by trustees:
Signed:
Andrew Gill, trustee and treasurer:
Signed:
Stephen Morton, trustee and secretary: