||||||||| |---|---|---|---|---|---|---|---| ||**Trustees' Annual Report for**||||**theperiod**||| |**From**|Period start date|||**To**|Period end date||| ||**01**|**10**|**2021**||**30**|**09**|**2022**| ## Section A Reference and administration details **Charity name** Cavernoma Alliance UK **Other names charity is known by** CAUK **Registered charity number (if any)**[England and Wales 1197257 ] Scotland SC048458 |**red charity number (if any)**|England and Wales 1197257
Scotland SC048458|England and Wales 1197257
Scotland SC048458| |---|---|---| |**Charity's principal address**|
Po Box 366|| ||Watlington|| ||Oxfordshire|| ||**Postcode**|OX10 1GF| ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
0|**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body)**
**entitled to appoint**
**trustee (ifany)**| |---|---|---|---|---| ||Mark J Farrar (F)|Chair/Treasurer|Resigned as Chair
and appointed as
Treasurer 24.06.2023|| ||David White (F)|Secretary/Treasurer|Resigned 31.12.2022|| ||Barbara Edmonds (F)|||| ||Jade Davies (C)|||| ||Heather Dunbar (C)|Chair|Appointed as Chair
24.06.2023|| ||Lee Smith (F)||Resigned 24.06.2023|| ||Sharon Veiger (F)||Resigned 24.06.2023|| ||Roxanna Dixon (C)|||| ||Joe Freeman|Treasurer|Resigned 21.04.2022|| ||Sian Oliphant|Treasurer|Appointed 01.02.2023
Resigned 24.06.2023|| 10 Cavernoma Alliance UK is a charity run by and for the cavernoma community. Given the importance of lived experience we pride ourselves on having a Board of Trustees that is reflective of the community we support. C = Trustee with cavernoma F = Trustee who has immediate family with cavernoma. ## **Names of the trustees for the charity, if any, (for example, any custodian trustees)** ||**Name**|**Dates acted if not for whole year**| |---|---|---| ||N/a|N/a| 1 ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---| |**Type of adviser**
**Name**
**Address**||| |Clinical Medical
Advisor|Professor Rustam Al-
Shahi Salman|University of Edinburgh| |Clinical Medical
Advisor|Mr Neil Kitchen|National Hospital for Neurology and Neurosurgery| ## **Name of chief executive or names of senior staff members (Optional information)** Joanne Noakes, CEO ## **Section B Structure, governance and management** **Description of the charity’s trusts** Constitution Type of governing document (eg. trust deed, constitution) Charitable Incorporate Organisation (CIO) How the charity is constituted (eg. trust, association, company) Elected / re-elected at Annual General Meeting Trustee selection methods Between AGMs, can be elected by the Board (eg. appointed by, elected by) - (eg. trust, association, company) ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. ## **Section C Objectives and activities** **Summary of the objects of the charity set out in its governing document** 1. To promote and protect the physical and mental health of those with cavernoma through the provision of support, education, research and practical advice. 2. To advance the education of the general public in all areas relating to cavernoma. 2 Cavernoma Alliance UK (CAUK) is in the process of changing its legal entity from an unincorporated charity (charity registration number 1114145) to a Charitable Incorporated Organisation (charity registration number 1197257). The transfer of assets from the unincorporated charity to the CIO and closure of the unincorporated charity will take place 30.09.23. In the meantime, for this reporting period 01.10.21 to 30.09.22 the CIO has been dormant and there are no activities to report. **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** ## **Additional details of objectives and activities (Optional information)** You **may choose** to include further statements, where relevant, about: - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. ## Section D Achievements and performance **Summary of the main achievements of the charity during the year** 3 Section E Financial review To relain a minimum reserve of 50% ot the expondiluro. exw that 11 the expenifiiure figura8 are abnorn￿ly high or low th8n the Minimum reseNe is based on the budgeL ch&rIt￿8 ￿1¢Y ￿ rn8efft$ D•talls ol any tunds materlally In deflclt Further fmncknl rnview dotall• {Op16onal intwr ènd Cash funds thls yw •nd Section B Statement of assets and liabilities at the end of Ihe period unl•*t￿o R••tYlc4•d nd• nds raaM*tC fvnds fvnds O*iJ115 F¥*ot• whleth IfA•NI io Vbidils ehwirf• own uge 85 Uablllll 101412023 11.1.23 MAILk FhrL