# ESME'S UMBRELLA

## Details

- **Country:** England & Wales
- **Charity number:** 1197087
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 13, 2021
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1197087


## Contact

- **Address:** 26 Western Gardens, LONDON
- **Postcode:** W5 3RU
- **Phone:** 07793594738
- **Email:** judith@charlesbonnetsyndrome.uk
- **Website:** www.charlesbonnetsyndrome.uk



## Activities

**Objects:** TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF ALL AGES IN THE UK, WHOSE LOSS OF SIGHT HAS LED TO THE DEVELOPMENT OF CHARLES BONNET SYNDROME (CBS), BY: A) RAISING AWARENESS OF CBS TO HEALTHCARE PROFESSIONALS AND THE WIDER COMMUNITYB) CREATING SUPPORT FOR THE CARE AND WELFARE OF ANYONE WHO DEVELOPS CBS AND THEIR FAMILIES/CAREGIVERS C) SOURCING AND RAISING FUNDING FOR CBS RESEARCH AND TO PUBLISH ALL USEFUL RESULTS ARISING FROM THE RESEARCH.

**Activities:** Esme's Umbrella raises awareness of Charles Bonnet Syndrome to all healthcare professionals and out into the community. Offering up-to-date information about CBS, creating ways to support people who develop the condition and sourcing funding for research, the charity plays a vital role in reassuring and supporting adults and children who develop CBS after losing 60% of sight.




## Classification

- **How:** Provides Services, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £19086 | £10073 | — | — |
| Dec. 31, 2023 | £14716 | £6470 | — | — |
| Dec. 31, 2022 | £16359 | £3201 | — | — |



## Trustees

- **Professor Dominic Hannes ffytche** (Chair) — appointed Dec. 13, 2021
- Helen Khan — appointed Dec. 13, 2021
- Judith Anne Potts — appointed Jan. 31, 2023
- Professor Mariya Fakhrudin Fidahusen Moosajee — appointed Dec. 13, 2021