2024-07-24-accounts

Face Everything And Rise Charity No: 1196975 Date: 24[th] July 2024

Annual General Meeting Notes - July 2023 – July 2024

Hosted by: Kim Purkis (KP)

Opening Remarks:

Kim Purkis opened the meeting by welcoming everyone warmly and expressing her heartfelt gratitude for the ongoing support and involvement of all participants, sponsors, and team members. KP expressed the immense pride the organisation feels as it reflects on a year of outstanding progress, inclusion, and impact.

Apologies:

None

Minutes of Previous AGM:

The minutes from the previous Annual General Meeting were reviewed and agreed upon unanimously.

Key Highlights and Successes: July 2023 – July 2024

Brief monthly breakdown

July 23-

• This week marks a year since we held out first ever ‘FEAR event’!! … and since then we’ve held 2/3 events a month! It’s certainly been a busy year

• 2,982 people have joined our swim events.

• 268 people are now swimming with FEAR Drysuits.

• 283 people have joined other FEAR events this year,

• and 4,145 FEAR Bears have been donated.

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

Aug 23-

• Launch of the FEAR Award.

• Packed with countless ‘firsts’ for children, and adults, in their FEAR Drysuits…

Kaiden “ I’ve had the best day ever! I can’t believe I’m in the pool” Harry “I’m the happiest boy on the planet”

Poppy “living the best life”

- Sept 23

• Announced - ‘FEAR events’ will soon be held at the London Aquatics Centre !! Home of the 2012 Olympics. There’ll be opportunity for beneficiaries to try out some diving in the future too!

• ‘FEAR Day’ at Avon Tyrrell Outdoor Centre was a beautiful way to end the summer… It was another super busy day, filled with archery, canoeing and climbing… but most importantly, we all had lots of fun!!

Oct 23-

• FEAR on the front page of the CIMSPA magazine

Nov 23-

• ‘Eddie the FEAR Van’ joined the FEAR team

• Eddie is a fully converted VW Van, and will be used as a safe space for people with feeding tubes and central lines to connect and disconnect their feeds or treatments

• Eddie be at all of our future FEAR events and will be at big public events across the country; enabling beneficiaries to go to music festivals without the worry of where to ‘connect’ or store their feed. It is also fully accessible for wheelchair users, has a sensory twist inside, and has all the storage people could possibly need for ancillaries!

• The sole purpose of Eddie is to support beneficiaries, and to give them the confidence to visit music festivals and events, without the worry of where to store their feed or medication, or where they can connect and disconnect themselves safely.

• Eddie is named after an extremely special man I met in July, who believed in me and my vision for FEAR, and helped make the dream become a reality!!

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

Dec 23-

• I was invited to speak at the House of Commons about the importance of Medical Technology within the world of ‘artificial nutrition’, and how it empowers us as a patient…

• It was an absolute honour to speak to MPs, Ministers, Directors and the Chief Executives of NHS England, NICE and the Department for Health and Social Care

• After lots of planning and 80+ days of counting down the days, we finally made it to France!! …. A week’s ‘FEAR Holiday’ in France. Three families, 3 individuals on TPN. We met at Folkestone to catch the LeShuttle to Calais and then drove 3 hours to where we stayed at Center Parcs France. This was just a mini practice before doing a bigger FEAR Holiday next year, with more families

December 2023 summary for the newsletter was published:

• We’ve held a total of 28 FEAR events across the Country.

• A total of 3,061 people have attended our events over the year.

• A whopping 204 people have borrowed a FEAR Drysuit and have been able to swim safely.

• In September we introduced the 'FEAR Award',

• In November, Eddie the 'FEAR Van' joined the team

• We’ve trialled our first ‘FEAR Holiday’, and will be making it an annual event!

Jan 24-

• First event was held in Romsey

• Welcomed a large order of new FEAR Drysuits

• Introduced FEAR Ski events

Feb 24-

Announced that ‘FEAR Van’ (Eddie) will be at the following festivals this summer …

• 21st July - Raver Tots (Reading)

• 25th-28th July - Camp Bestival Dorset

• 15th- 18th August - Camp Bestival Shropshire

• 23rd August - Victorious Festival (we will be there for Friday only)

• 24th & 25th August - CarFest (we will be there for Saturday and Sunday only)

• 26th August - Raver Tots (Southend)

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

- March 24

• Annouced- FEAR is now an official charity partner with Give Kids The World !!

• FEAR will soon be sending families on a once in a life time trip to Florida.

Apr 24-

• I was presented with a HUGE cheque from Horley Swimming Club for £2,430!!! Going towards buying 5 more FEAR Drysuits and booking 3 more FEAR events… which is incredible!!

• Every year, 9 year old Robin challenges himself to raise money for charity and this year he chose FEAR…Robin cycled a whopping 300 loops of his neighbourhood and spent just over 5 hours on his bike. His aim was to raise £390 so that we could buy a new FEAR Drysuit.… Robin has raised a fantastic £400!

July 24-

• We had the most amazing FEAR day at Official LEGOLAND Windsor!!

• We have been very lucky to have had a large number of tickets donated to us from Merlin's Magic Wand Charity. We were able to invite 21 families to LEGOLAND!… and in September, we be took another 30 families

• The music festival season officially started for Eddie the ‘FEAR Van’ … July 23rd we were at the Raver Tots festival in Reading. We welcomed 13 families to use Eddie. Our next festival was only a few days away… Camp Bestival Dorset (25-28 July).

Sport England Funding – Extended!

KP proudly confirmed that Sport England has renewed its funding of £10,000 for another year. This crucial support enables FEAR to continue running monthly swimming and adventure-based events across England for individuals receiving artificial nutrition or long-term IV treatments.

Thanks to Sport England’s initial grant, from July 2022 to July 2023, FEAR successfully hosted 28 events, welcoming 2,182 participants. For the current period (July 2023 to July 2024), FEAR once again hosted 28

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

dynamic and inclusive events , reaching 3,061 attendees — a testament to the growing popularity and trust in the organisation.

Program Expansion & Event Successes

Throughout the year, FEAR expanded its offerings beyond swimming to include activities such as sailing, rock climbing, archery, canoeing, and even theme park visits like the event at Alton Towers and a memorable run/walk/push event in Windsor .

Each event provided vital social and physical engagement opportunities for both participants and their families. KP expressed deep appreciation to everyone who attended and helped make these events a safe, joyful, and empowering experience.

Notable Events:

• Christmas Takeover at Camberley Leisure Centre – An emotional and festive event.

• Avon Tyrell Adventures – Archery and climbing challenges.

• Sailing Days & First Time Skiing Plans – Promoting new experiences.

• Disneyland Paris Holiday – An unforgettable international trip for children with complex health needs.

FEAR Drysuit Initiative

One of the most transformative aspects of the year was the growth and impact of the FEAR Drysuit Program .

• Since February 2023 alone, 504 people have borrowed Drysuits,

• • These suits make it safe for children and adults with central lines and medical devices to swim and enjoy water activities.

Major Sponsors:

FEAR extended its deepest thanks to generous donors:

• Hendy Foundation

• • Sport England

• Air Control Industries

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

• Places Leisure (sponsor of 10 suits, one of which enabled Ella to swim for the first time in years!)

• NEC UK

• BOOST Charitable Trust (2 suits for children in Hampshire)

• ABBVIE Pharmaceutical Company (10 suits to be distributed in 2024)

Special Mention:

• Jane and Paul raised funds for 9 suits via a JustGiving page in lieu of Christmas gifts.

Personal Stories: The Human Impact

Arley’s Story

Diagnosed with T-cell Acute Lymphoblastic Leukaemia in July 2021, Arley was fitted with a Hickman line that kept him out of the water for over a year. Thanks to a FEAR-sponsored Drysuit, Arley was able to return to the water, resume swimming lessons, and eventually compete in swim meets. Today, he swims twice a week and has become a symbol of perseverance and hope.

Miley’s Holiday

Miley’s Drysuit enabled her to enjoy water parks in Spain during her first holiday abroad. Her joyful experience in the water, after years of restrictions, left a lasting impression on her and her family.

Molly’s Journey

Molly attended every single FEAR event this year, often travelling long distances. From barely letting go of her mother in the water to confidently diving, swimming, and participating in archery and canoeing, Molly has truly blossomed. Despite a recent surgery, she even joined FEAR for a magical trip to Disneyland Paris. Molly’s courage and dedication earned her this month’s FEAR Award .

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

The FEAR Award

Introduced in September 2023 , the FEAR Award recognises achievements by individuals who receive artificial nutrition or long-term IV treatments. Family members, carers, and nurses are also eligible for nomination.

Award recipients are celebrated monthly, and the number of nominations has continued to grow, reflecting the community’s spirit and resilience.

To nominate , individuals simply fill out a form on the FEAR website.

Meet Eddie: The FEAR Van

In November 2023 , FEAR proudly introduced Eddie the Van – a fully accessible, wheelchair-friendly, converted VW van.

Key Features:

• Safe space to connect/disconnect feeds and treatments

• Storage for medical supplies

• Sensory-friendly interior

• Event-ready presence for use at festivals, public events, and FEAR gatherings

Named after a remarkable supporter who helped bring the vision to life, Eddie is a symbol of mobility, safety, and inclusivity. The Van will be attending all FEAR events and a number of small, and large, festivals across the UK. This will enable hundreds of people to access events safely, without the need to leave early to connect nutrition, or treatments.

New Swim Instructors

FEAR welcomed Emily and Tash as their newest certified swim instructors. Their energy, dedication, and experience have brought warmth and confidence to the swimming program.

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

At the Beginning of 2024

KP announced the organisation is currently planning its 2024 schedule. Although some dates (like the Camberley events) are still to be confirmed, plans are already in place for:

• 3-4 swim events in Camberley

• Expanded swim locations across England

• Additional sailing and skiing events

• Public events where Eddie will be present

Participants are encouraged to visit the website regularly for updates and registration opportunities.

Gratitude and Closing Remarks

KP closed the meeting by reiterating her immense gratitude to:

• Every participant and family who joined events

• Our dedicated volunteers

• Our generous sponsors and fundraisers

• The FEAR team, for their passion and hard work

She shared her deep pride in how far FEAR has come, and excitement for the year ahead, stating:

“It’s been an unforgettable year. Every story, every smile, every step forward is what makes FEAR so special. Thank you all for rising with us. Here’s to continuing to face everything and rise – together.”

A.O.B. None.

The AGM was officially closed.

Face Everything And Rise (FEAR) AGM – July 2024 Charity No: 1196975

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Andover Ashington Ashton Keynes Aylesbury Barnsely Barn51ey Bedford Blackwood Bradford Cambridge Chestèrfièld Clatterbridge Corby County Derry Craigavion Donegal, Ireland Dronfield East Cowes Essex Gloucester Halesowen Hampshire Hull Hylgh Wycombe Kent Kettering Lancashire Llncoln Llverpool London Melton Mowbray NantwSch North Somerset Northampton Nottingham Oaklelgh Oxford Shrop5hire Somercotes South Woodford Strafford Suffolk Truro Wadesmlll Wadhurst Wantage Waterlooville Weldon Corby West Midlands West Sussex Wigston Wolverhampton Face Everything And Rise (FEAR) AGM - July 2024 Charity No; 1196975

Face Evrything And Rise 1196975 Receipts and payments accounts CC16a For the period 25th July 2023 25th July 2024 To from

Section A Receipts and payments

A1 Receipts	Unrestricted funds to the nearest £ 18 930 - - - - - - - 18 930 - - - 18 930 - 2 174 778 2 213 568 362 - 18 430 - 24 524 - - - 24 524 - 5 595 - - - 5 595	Restricted funds to the nearest £ - 118 339 - - - - - - 118 339 - - - 118 339 14 632 - - - - - 12 602 - 62 403 89 637 - - - 89 637 28 703 - - 28 703	Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Total funds to the nearest £ 18 930 118 339 - - - - - - 137 269 - - - 137 269 14 632 2 174 778 2 213 568 362 12 602 18 430 62 403 114 161 - - - 114 161 23 108	Total funds to the nearest £ 18 930 118 339 - - - - - - 137 269 - - - 137 269 14 632 2 174 778 2 213 568 362 12 602 18 430 62 403 114 161 - - - 114 161 23 108	Last year to the nearest £
Donations	18 930					-
Grants	-					-
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Sub total(Gross income for AR)	18 930					-
A2 Asset and investment sales, (see table).
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Sub total	-					-
Total receipts A3 Payments
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Event costs	-					-
Post	2 174					-
Travel	778					-
Promotion	2 213					-
IT	568					-
Insurance	362					-
Specialised resources(Drysuits)	-					-
General	18 430					-
FEAR Van	-					-
**Sub total **	24 524					-
A4 Asset and investment purchases, (see table)
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**Sub total **	-					-
Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end
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	- 5 595	28 703	-	23 108		-
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	- 5 595	28 703	-	23 108		-

CCXX R1 accounts (SS)

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Section B Statement of assets and liabilities at the end of the period

Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds	Details Details Total cash funds (agree balances with receipts and payments account(s)) Cash in Bank Details Details Details Tessa Hurst Signature Kim Purkis	Unrestricted funds Restricted funds to nearest £ to nearest £ 23 108 - - - - - 23 108 - Agreement Error Agreement Error Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Kim Purkis Tessa Hurst	Endowment funds to nearest £
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			Current value (optional)
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			Current value (optional)
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			Date of approval
	Kim Purkis	Kim Purkis	22/05/2025
	Tessa Hurst	Tessa Hurst	22/05/2025

CCXX R2 accounts (SS)

2

CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trustsesl membors of Face Everylhing And Rise On accounts for the year ended 25° July 2024 Charity no (If any) 1196975 Set out on pages I report to the trustees on my exarnination of th8 ac£ounts of thè at¥Jve tharity (Ihe Twsf) for the year ended 251T12024. Responslbllltles and As Ihe tharity trustees of the Trust, you are responsib18 for the preparation basis of report of the ac£ounts in acrnrdance with the requirements of the Charities Act 2011 ('the Ad.). I report in reS￿t of my examination of the Trust's accounts Ca￿led out under section 145 of the 2011 Act and ￿ carying out my examination. I have folk)wed th8 appluble Directions given by the Charity Commission undersectKJn 1495)(bl ofthe Ad. I have completed my examination. I Ix)nfinn that no material matters have Fr￿ to my attentN)n in connection with the examination which gives me cause to believe that in. any material respect: acci)unting recorts were not kept in a[￿rdanCe WFlh section 130 of the Act or the accounts do not accord with the accwnting re￿rdS Independent examlnerfs statement Ihaven thlh n￿rnS and have come ac¥oss no other matters in connection amination to whtch attentM)n should te drawn in order to enable a derstanding of the ac£ounts to be reached. Slgned: Date: 24, May 2025 Name: ohnson Relevant professlonal quallfi¢atlon(s) or body (If any): ounts Manager Address: 35 Seward lise, Roms8y S0518PE