OpenCharities

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

2024-03-31-accounts

Charlty reglstratlon number 1196170 Long Covid Kids and Friends Annual Report and Financial Statements Year ended 31 March 2024

Long Covid Kids and Friends Contents Page Reference and Administrative Details Trustees, Report Independent Examiner's Report Statement of Financial Activities Balance Sheet Notes to the Financial Statements 9-14

Long Covid Kids and Friends Reference and Administrative Details Chair C Whitby Trustees Dr l Rossman - resigned 14.11.24 N Webster-Hart- resigned 14.11.24 Lsmith M Leston resigned 3.9.24 W Lee - appointed 19.10.23, resigned 14.11.24 S Craner- appointed 12.11.24 C Whitby- appointed 12.11.24 Dr M Faghy- appointed 13.12.24 Charity Registration Number 1196170 in England and Wales SC052424 in Scotland Chief Executive Officer S McFarland Registered Office Crown Chambers Bridge Street Salisbury Wiltshire SPI 2LZ Bankers CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ Independent Examiner S J L Ellingham BA FCA DChA Fawcetts LLP Chartered Accountants Windover House St Ann Street Salisbury Wiltshire SPI 2DR

Long Covid Kids and Friends Trustees Report for the year ended 31 March 2024 The Trustees present their Annual Report for the year ended 31 March 2024. The accounts comply with the Ch8riti&s Act 2011, Accounting 8nd Reporting by Charities.. St8tement of Recommended Pr8Ctice ISORPI 3pplicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS1021 issued on l January 2019. ObJectlves and actlvltles Long Covid Kids and Friends exists for the public benefit, to promote and protect the physical and mental health and well-being of children and young people anywhere in the world with Long Covid and related illnesses. We define 'Long Covid, to mean anyone experiencing signs and symptoms that develop during or after an infection consistent with COVID-19 that continue for more than 4 weeks and are not explained by an alternative diagnosis. 'Related illness, means any post-viral illness or autoimmune disease with a suspected or evidenced link to COVID-19. We work towards our mission through.. lal the provision of advice, support and counselling to such children 2nd young people and anyone connected with their care., Ibl facilitating, conducting and/or promoting research into the causes, diagn051S, treatment and prevention of Long Covid and related illness provided that the useful results of any such research are rn3de public,. Icl raising awareness Wlthin the gener31 public of Long Covid and related illne55 in children and young people 3nd in particular to promote recognition of the condition and establish suitable care pathw8ys for the identification, treatment and ongoing support of children and young people with Long Covid and related illness, and the support of all those involved in their care. Public Benefit We, the trustees confirm that we have considered the guidance from the Charity Commission regarding public benefit when reviewing the Charity's aims and objectives and in planning future activities. We are satisfied that the activities undertaken during the year fully meet these requirements.

Long Covid Kids and Friends Trustees Report for the year ended 31 March 2024 Icontinuedl Achievements and Performance This has been a landmark year for Long Covid Kids and Friends, marked by continued advocacy, wider recognition, and a deepened commitment to supporting children, young people, and families affected by Long Covid and and SARS Cov-2 associated related diagnoses including Paediatric Multi-inflammatory Syndrome IPIMSI, Myalgic Encephalomyelitis IMEI I Chronic Fatigue Syndrome ICFSI, Postural Tachycardia Syndromel POTS), Paediatric Acute-onset Neuropsychiatric Syndrome IPANSI, and Mast Cell Activation Syndrome IMC4SI. As the world's first charity focussed on children and young people with Long Covid. we have represented. and provided support to over 11,000 families. Our achievements include: Research & Education.. Our participation in UK and international research projects ha5 helped shape the future of Long Covid funding and understanding and raise awarene55 of the demand for appropriate 5ervice5. 31ongside challenging stigma and misinformation. We have presented insights and shared lived experiences and contributed to clinical and paediatric research di5CU5sions in Toronto, Dublin. Chicago. and London. We have collaborated in peer-reviewed scientific publications and articles in leading joumals, including Nature, PLOS, BMC and PLOS One. We launched our Educational Toolkit Video series providing free essential information for educators. Advocacy & Policy Engagement.. We have continued to play a pivotal role as core participant5 in both the UK and Scottish Covid Inquirie5, ensuring that the voice5 of affected families were heard through participation, witnes5 Statements, appeals, and in-per50n carnpaigns in London. We a150 represented familie5 at NHS Long Covid services forums and WHO & NIHR expert panels, influencing global and nation31 policy and practice. Public Awareness and Media.. Through media camp3igns, documentaries, 3nd social media outr&3ch, we have amplified the voices of affected families, ensuring their challenges are recognised at both national and international levels. We continue to challenge misinformation and advocate for Ereater understandinE and support. This included our participation in the second International Long Covid Awareness Day when we launched an animated campaign raising awareness for children affected by Long Covid. Family Support & Community Initiztives.. We have continued to provide peer support sessions, self- advocacy workshops, and safeguarding guidance. empowering farnilies as they navigate the complexities of Long Covid. We led a youth community project developing awareness stickers with members of our Youth Advisorv Panel. Our Long Covid Kids Children's Choir has provided a creative and therapeutic outlet for children, achieving international recognition.

Long Covid Kids and Friends Trustees Report for the year ended 31 March 2024 l¢ontlnuedl We extend our heartfelt gratitude to all those who have supported us whether through donations, P8rtnerships, or volunteer efforts. Your contributions have been instrument81 in helping us build brighter future5 for children and young people affected by Long Covid and related illnesses. Together, we will continue to bring hope, advocacy, and meaningful change. Flnanclal Revlew The total income for the year ended 31 March 2024 was £79,29612023.. £137.3851 including income from donation5 including Gift Aid of £64,94412023.. £134.8791, National Lottery Grant of £IO,00012023'. nill, sales from the online shop of £2.27812023.. £1,632) and incorne from the on line choir and courses of £1,14512023.. £3461. Income from presentations totalled nil12023.. £4501, research participation £7512023.. nil) and interest receivable was £65412023.. £781. £200 in compen58tion was awarded for don3tions witheld in error. Expenditure totalled £103,37912023.. £74,4351 including c05ts for Occupational Therapist, Educational Psychologist. marketing and administrative support as well as the educational video projert. At 31 March 2024 the charity had net a55ets of £38,86712023.. £62,950) held as unrestricted reserve5 including cash at bank of £34.83112023.. £55.9251. Financial prudence and transparency remain at the heart of our operation5, and we are dedicated to upholding the highest standards of governance while 5eekiNg new funding avenues to 5UPPOrt our mi55ion. In the year ahead. we will continue to explore innovative ways to raise awarerie5s, influence policy, and offer direct support to those who need it most. Reserves Policv Our reserves policy is to hold approxirnately 3 months unrestricted charitable expenditure which is currently £15,000. At 31 March 2024, free reserves were £38,37312023.. £61,961). Structure, gtwemance and management Long Covid Kid5 and Friends is a Charitable Incorprated Organisation ICIOI incorporated in England and Wales on IS October 2021 and in Scotland on 22 March 2023. The registered charity number is 1196170 in England and W31es 8nd in Scot13nd SC052424. The trustees at the end of the period are listed on page l. Trustees are appointed by the existing Trustees. The day to day running of the charity 15 carried out by the Chief Operating Officer. Chief Executive Officer, Operations Manager and a team of volunteer5. Neither the CEO or the COO are remunerated for their work with the charity. Unfortunately both needed to take a Leave of Absence for health reason5 at the beginning of 2024 which impacted on the scale of activities that could be delivered during the period.

Long Covid Kid5 and Friends Trustees Report for the yezr ended 31 March 2024 Icontinuedl The Trustees declare th3t they have 3pproved the trustees. report above. Signed on behalf of the Charity's Trustees C Whitby Chair and Trustee Date.. 29 January 2025

Long Covid Kids and Frlends Indepèndent Examlt)er's report to the Trustèes of Long Covid Kids and Friends I report to the trustees on my examination of the accounts of Long Covid Kids and Friends for the year ended 31 March 2024, which are set out on pages 7 to 14. RESPONSIBILITIES AND BASIS OF REPORT As the charity tru5tee5 of Long Covid Kids and Frierids you are responsible for the preparation of the accounts in accordance with the requirements of the Charitiès Act 20111 The Act l. I report in respect of rny examination of the Long COv￿d Kids and Friends. account5 carried out under section 145 of the 2011 Act and in carrylng out my examination I have followed all the applicable Direction% Eiven by the Charity Commission undeT section 145lsllbl of the 2011 Act. INDEPENDENTEXAMINER'S STATEMENT I have completed my examination. I confirm that no material matters have come lo my attention in connection with the examination giving me cause to believe that in any material respect.. 1113ccountin8 record5 were not kept in respect of the Trust 3s required by section 130 of the Act,. or 121 the accounts do not accord with those records., or 131 the accounts do not cornply with the applicable requirements concerning the form and content of accounts set out in the Charities (Account% and Reports) Regulations 2008 other than any requirement that the accounts give a 'true and fair view, which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Signed.. S J L Ellingham BA FCA DChA Fawcetts LLP Windover House St Ann Street Salisbury Wiltshire SPI 2DR Dèted..

Long Covid Kids and Friends 1196170 Financial Statements for the year ended 31 March 2024 Statement of financial artivities Unrestricted funds Restricted funds Note5 Total funds 2023 Incoming resources Income and endowments from: Donatlons and legacies Charitable activities Other trading activities Investments Other Total Income 64,944 1,220 2,278 654 200 10,000 74,944 1,220 2,278 654 200 134,879 796 1,632 78 69,296 10.000 79,296 137,385 Resour￿5 expended Expenillture on: Raising funds Charitable activities Totsl expenditure 13,626 79,753 93,379 13,626 89,753 103,379 12,259 62,176 74,435 10.000 10.000 Net lexpendlturel/ln¢ome Net movement in fund5 124,0831 124,0831 124,0831 62,950 124,0831 62,950 Reconciliution ollunds.. Total funds brought forward Total funds carried fotward 62,950 38,867 62,950 38,867 li 62,950 The notes on pages 9 to 14 form part of these financial statements

Long Covid Kids and Friends Balance Sheet as at 31 March 2024 Unresirlcteil funds Restrlcted funds Total thls Totsl 2023 Notes vear Fixed assets Tangible assets 494 494 989 989 494 494 Current assets Stocks 1,688 8,766 34,831 45,285 1,688 8,766 34,831 45,285 1,680 10,766 55,925 68,371 Debtors Cash at bank and in hand Creditors.. amounts falling due within one year io 6,912 6,912 6,410 Net current assets 38,373 38,373 61.961 Net assets 38,867 38,867 62,950 Funds of the Charlty Restricted funds Unrestrl¢ted funds Total funds 38,867 38,867 38,867 38,867 62,950 62,950 The financial statements on pages 7 to 14 were approved by the trustees, and authorised for issue on 29 january 2025 and signed on their behalf by.. C Whitby Chair and Trustee The notes on pages 9 to 14 form part of these financial statements

Long Covld Klds and Frlends Notes to the Flnanclal Statements for the year ended 31 March 2024 Note l Accounting policles Basis of preparation These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant notes to these account5. The accounts have been prepared in accordance with the Statement of Recommended Practice.. Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021 issued on I January 2019 and with the Charities Act 2011. The charity constitutes public benefit entity as defined by FRS 102. The charity does not meet the definition of a large charity and therefore is exempt from the requirement to prepare a cash flow statement. Going tontèrn The trustees have prepared the financial statements on a going concern basis, which assumes that the charity will continue to tsperate ftsr the f()reseeable future. The trustees have reviewed the charity's financial position. including cash flow forecasts, and have concluded that the charity has adequate resources to continue in operational existence for the foreseeable future. Therefore, they continue to adopt the going concern basis of accounting in preparing the financial statements. Income All income is recognised once the charity has entitlement to the income, its receipt is probable and the amount of the income can be measured reliably. Donations are recognised when received. Income tax recoverable on gift aided donations is recognised as income in the same period as the donation. Investment income is recongised when interest becomes due and payable. Expendlture retognltlon Liabilities are recognised where it is more likely than not that there is a legal or constructive obligation committing the charity to pay out resources and the amount of the obligation can be measured with reasonable certainty. Governance and support Costs Support costs have been allocated between governance costs and other support. Governance costs comprise all costs involving public accountability of the charity and it5 compliance with regu13tion and good prartice. Volunteer help The value of any voluntary help received is not included in the accounts but is described in the trustees, annual report.

Long Covid Kid5 and Friend5 Notes to the Flnantial Statements for the period ended 31 March 2024 Itontlnuedl Charitable Artivities Charitable expenditure comprises those costs incurred by the charity in the delivery of its artivities and services for its benefitiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them. Tangible fixed assets Expenditure on fixed assets is capitalised and valLJed at historical cost except for expenditure on assets costing less than £500 which is written off immediately. Depreciation is calculated to write off the cost of tangible fixed assets less their residual values on a straight line basis over the expected useful lives of the assets concerned. Computer equipment is written off over 3 years. Stock Stocks held for sale as part of non-charitable trade are measured at the lower or cost or net realisable value. Debtors Debtors (including trade debtors and loan5 receivable) are measured on initial recognition at settlement amount after any trade discounts or amount advanced by the charity. Subsequently, they are measured at the cash or other consideration expected to be received. Creditors The charity ha5 creditors which are mea5LJred at settlement 3mount5 le55 zny trade discounts. Fund accounting General funds are unrestricted funds which are available for use at the discretion of the Trustee5 in furtherance of the general objectives of the Charity and which have not been designated for other purposes. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the Charity for particular purposes. The costs of raising and 3drnini5tering such fLJnds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements. Investment income, gains and105ses are allocated to the appropriate fund. Financlal Instruments The charity only ha5 financial assets and financial liabilities of a kind that qualify as basic financial instruments. 8aslC financial instruments are recognised at the settlement amount due after any trade discounts offered. io

Lon8 Covld Klds and Frlends Notes to the Financial Statements for the year ended 31 March 2024 Icontinuedl Note 2 An8￿$￿5 of Income Unrestritted Re￿rfrted funds fund5 Total funds Totrl 20Z3 Analysls Donation5 and Donation5 and gifts legacles: 63.4 63.400 134,638 241 1.544 1.544 lo.￿0 74,944 Grants io.ooo 10,000 64,944 114,879 Charitable Choir 1,145 1,145 273 a¢UvlUes: Courses 73 Speakerfees Research 450 75 75 1,220 1,220 796 Othertradin¥ 9ales of T shirt5 adlvitles.. Sales of books Sale5 of Don't Send Me a Card Sales of sticker5 Sales of pins Cornmi55iOn 544 544 1,175 278 179 323 1,394 13 2,278 323 1,394 13 2,278 1,632 Income from Investments.. Interest income 654 654 78 Other.. Cornpen5ation 200 TOTAL INCOME 69,296 10,000 79,296 137,385 Note 3 Anatysls of expendlture Unrestricted Re51ricted funds fund5 Analysls Total funds 2023 Expenditure on rai5in¥fund5'. Website costs C05t5 of goods sold and running on line shop B3nk charges incurred collecting donations Advertising, marketing, direct mail and publicity Administrative support Total expenditure on raisingfund5 399 940 327 4,116 7.844 13.626 399 940 327 4,116 7.844 13.626 1,315 363 7,677 2,304 12.259 Expenditure on charitable activities: Support of children wlth Long Covld Raising awareness of Long Covid Support costs- note 4 Total expend￿￿re on charltable artl¥fjlles 33,495 33.869 12,389 79,753 10,000 43,495 33.869 12,389 89,753 31,097 25,075 6,003 62,176 10,000 TOTAL EXPENDITURE 93,379 10,000 103,379 74.435 li

Long Covid Kids and Friends Notes to the Financial Statements for the year ended 31 March 2024 Icontinuedl Note 4 Support and Governance Costs 2024 2023 Administrative support Insurance 8,417 3,215 362 79 Legal fees Human resources 220 1,288 228 Stationery Computer and website costs Bank charges Depreciation of equipment Governance costs- independent examiner's fee Total 218 399 600 60 96 495 495 1.140 1.080 12,389 6,003 Note 5 Trustee remuneration and benefits None of the trustees have been paid any remuneration or received any other benefits from the charity during the year12023.. nill. No trustees have received any reimbursed expenses from the charity during the year12023.. nill. The charity considers its key management personnel comprise the trustees as well as the CEO and COO. Key management personnel are not remunerated. 12

Long Covid Kids and Friends Note5 to the Financial Statements for the year ended 31 March 2024 (continued) Note 6 Tangible fixed assets Computer Equipment Total Cost at l April 2023 Additions 1,484 1,494 C05t at 31 March 2024 1.484 1,484 Depreciation At l April 2023 Depreciation 495 495 495 495 At 31 March 2024 Net book value Net book value at 31 March 2023 Net book value at 31 March 2024 990 990 989 494 989 494 Note 7 Stock 2024 2023 Stock 1,688 1,680 Note 8 Debtors and prepayments 2024 2023 Other debtors Prepayments and accrued income 5,644 3,122 8.766 241 10,525 10,766 Note 9 Cash at bank and In hand 2024 2023 Cash at bank and on hand Other 31,912 2,919 34,831 51,953 3,972 5S,92S Note 10 Creditors and accruals Creditors Arnount5 falling due within one year 2024 2023 Trade creditors Accruals and deferred income 2,920 3,992 6,912 3,390 3,020 6,410 13

LonE Covld Klds and Frlends Notes to the Financial Statements for the year ended 31 March 2024 {continuedl Note 11 Movement of Funds Fund balances brought forward Gains and losses Fund balances carried forward Income Expenditure Transfers Fund n3me5 Unrestricted funds 62,950 69,296 10,000 193,3791 Iio,DOOI 38,867 Restricted funds Otherfunds Totsl Funds 62.950 79.296 1103,3791 38,867 Unrestricted Funds.. General This represents funds which have been accumulated forthe general purposes of the charity. Re5trirted Fund5'. The Natlonal Lottery Communlty Fund This represents a grant received during the year ended 31 March 2024 from The National Lottery Community Fund to support the charity's work In the community. The grant was fully utillsed during the year. 14