## **Albinism Fellowship** (Registered charity, number 1196004) **Financial statements for the year ended 31 March 2025** |**Page**|**Contents**|| |---|---|---| |2 - 4|nnual report|| |5|Independent e|report| |6|Receipts & payments account|| |7|Statement of assets & liabilities|| |8|Notes to the accounts|| ## **Albinism Fellowship annual report for the year ended 31 March 2025** **Full name** Albinism Fellowship **Organisation type** Charitable incorporated organisation **Registered charity number** 1196004 **Principal address** PO Box 2535 Ilford, LG1 9NY ## **Trustees** Eshita Unadkat, Co-chair Rosaleen Dempsey Kristinna Venning-Rose, Co-chair Jenny Wensley, from 01/02/25 Joanne Bennett, Treasurer Laura Edwards, from 01/03/25 Helen Ward, Secretary Karina Lear, until 01/02/25 Danielle Lawrence Helen Letseka, until 31/12/24 ## **Independent examiner** , employee of Community Accounting Plus, Units 1 & 2 North West, 41 Talbot Street, Nottingham, NG1 5GL ## **Governance and management** The Charity was registered in England and Wales on 1 October 2021 under number 1196004. ## **Objectives and activities** The charity's objects are to: - To preserve and protect the health of people with Albinism and their families and carers. - Providing information about Albinism, including to Professionals working with and advising people with Albinism and other appropriate interested parties. Raising positive awareness of the condition. - Arranging opportunities for people with Albinism and their families to meet for support and encourage the sharing of experiences. - Proving such other information, advice and support as the Trustees deem appropriate. ## **Summary of the main activities undertaken for the public benefit** The services we offer include: Virtual support for specific groups of people where albinism is part of their lives: Adults with albinism, New Parents, BAME - Yearly magazine, Albinism Life. - Website resource. - Local support and events through Contact Persons. Email support at info@albinism.org.uk - Conference every two years or so. 2 ## **Albinism Fellowship** ## **Public benefit statement** The Trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission's general guidance on public benefit, 'Charities and Public Benefit'. ## **Summary of the main achievements during the period** The past year has been one of change, planning, and renewed drive to move the Albinism Fellowship forward in an exciting new direction. Like many small charities, we have faced financial hardship. Much of our energy has been devoted to securing funding, with a particular focus on applying for grants to support our 2025 conference. In June 2024, for International Albinism Awareness Day, we recorded and released a series of short videos across our social media platforms. These were well-received and generated encouraging levels of interaction and engagement. We also continued to run a variety of online Zoom sessions to support people with albinism, including: - Teen sessions - New parent sessions - BAME community sessions Adults with albinism sessions In September 2024, we hosted a London family event which welcomed 101 attendees from across the country. Families enjoyed a wide range of activities for children, while parents benefited from a Q&A session with ophthalmologist Miss Maria Theodorou from Moorfields Eye Hospital. During the year, my co-chair was unfortunately absent for much of her term due to illness. In response, we began planning a trustee recruitment campaign to strengthen our board. In January 2025, trustees met in person to review and revise our membership programme, ensuring it remains fit for purpose and relevant to our One of our most ambitious projects this year has been our collaboration with Dr Jay Self. Together, we have recorded and edited a series of 70 MythBusters and Q&A videos about albinism. This significant body of work, produced in the first part of the year, will be released on social media later in 2025. Our work in Ireland has also grown. We held an event in Portlaoise, Republic of Ireland, in June 2024, attended the Féach conference in September 2024, and ran an event in Belfast in October 2024. Our work in Ireland has also grown. Despite the challenges, this year has laid strong foundations for growth, innovation, and community connection. I am deeply grateful to our members, volunteers, and trustees who continue to give their time, energy, and expertise to support people with albinism and their families. 3 ## **Albinism Fellowship** ## **Financial review** Although we have a surplus of funds in our bank account, we will be focussing on raising as much as possible in the coming months to fund the conference in November 2025. It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month's expenditure. The major part of unrestricted funds is built up to support the cost of running the conference. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity's current activities while consideration is given to ways in which additional funds may be raised. ## **Financial risks** Reduction in donations/fundraising in current economic climate. Increased competition for grants to support our work. As a volunteer led charity, time restrictions on trustees to source grants and actively fundraise. Signed _____________________________________________ Date __________ Kristinna Venning-Rose, Co-chair of Trustees 4 ## **Independent e report to the trustees of Albinism Fellowship for the year ended 31 March 2025** I report to the trustees on my examination of the accounts of Albinism Fellowship (the charity) for the year ended 31 March 2025. ## **Responsibilities and basis of report** As the trustees of the charity you are responsible for the preparation of the accounts in accordance w section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of the charity as required by section 130 of the Act; or 2. the accounts do not accord with those records. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Signed _________________________ Date ______________________18/08/2025 Jo A, FCIE Employee of Community Accounting Plus 5 ## **Albinism Fellowship Receipts & payments account for the year ended 31 March 2025** 6 ## **Albinism Fellowship Statement of assets and liabilities at 31 March 2025** These financial statements are accepted on behalf of the charity by: Signed ___________________________________ Dated ___________ Joanne Bennett, Trustee 7 ## **Albinism Fellowship Notes to the accounts for the year ended 31 March 2025** ## **1. Receipts & payments accounts** Receipts and payments accounts contain a summary of money received and money spent during the period and a list of assets and liabilities at the end of the period. Usually, cash received and cash spent will include transactions through bank accounts and cash in hand. ## **2. Funds analysis** We had a restricted fund to provide Baby Boxes to all new parents who are members with children with albinism, aged two years and under. ## **3.** Trustees received no expenses, remuneration or benefits in this period. ## **4. Related party transactions** There were no related party transactions during the period. ## **5. Glossary of terms** **Creditors:** These are amounts owed by the charity, but not paid during the accounting period. **Prepayments:** These are services that the charity has paid for in advance, but not used during the accounting period. **Restricted funds:** These are funds given to the charity, subject to specific restrictions set by the donor, but still within the general objects of the charity. 8