Albinism Fellowship (Registered charity, number 1196004) Financial statements for the year ended 31 March 2024 Page Contents Trustees, annual report Independent examiner's report Receipts & payments account Statement of assets & liabilities Notes to the accounts (*) capLUS COMMUNITY ACCOUNTING ## **Albinism Fellowship annual report for the year ended 31 March 2024** **Full name** Albinism Fellowship **Organisation type** Charitable incorporated organisation **Registered charity number** 1196004 **Principal address** PO Box 2535 Ilford, LG1 9NY ## **Trustees** Eshita Unadkat, Co-chair Rosaleen Dempsey Kristinna Venning-Rose, Co-chair Helen Ward Joanne Bennett, Treasurer Helen Letseka Karina Lear Danielle Lawrence Akeel Bari, until 03/2024 Deidre Ni Cheallachain, until 12/2023 ## **Independent examiner** , employee of Community Accounting Plus, Units 1 & 2 North West, 41 Talbot Street, Nottingham, NG1 5GL ## **Governance and management** The Charity was registered in England and Wales on 1 October 2021 under number 1196004. All activities and assets from the Scottish Registered Charity: The Albino Fellowship known as Albinism Fellowship were transferred to this charity. The charity continues the same activities as previously run by Albinism Fellowship. ## **Objectives and activities** The charity's objects are to: - To preserve and protect the health of people with Albinism and their families and carers. - Providing information about Albinism, including to Professionals working with and advising people with Albinism and other appropriate interested parties. - Raising positive awareness of the condition. - Arranging opportunities for people with Albinism and their families to meet for support and encourage the sharing of experiences. - Proving such other information, advice and support as the Trustees deem appropriate. ## **Summary of the main activities undertaken for the public benefit** The services we offer include: - Virtual support for specific groups of people where albinism is part of their lives: Adults with albinism, New Parents, BAME - Yearly magazine, Albinism Life. - Website resource. - Local support and events through Contact Persons. - Telephone and email support at info@albinisrn.org.uk - Conference every two years or so. 2 Albinism Fellowship In shaping our objectives for the year and planning our activities the trustees have considered the Charity Commission guidance on public benefit. Public benefit statement The Trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission's general guidance on public benefit, 'Charities and Public Benefit,. Summary of the main achievements during the period The Albinism Fellowship had a productive year in 2023124: Summer '23 We hosted a summer family event in London, which welcomed over 40 attendees from across Southeast England. Our Information, Advice, and Guidance (IAGI work continued, connecting new families to the Fellowship through social media and referrals from other organizations. '23 We remain active in the international albinism community, including our participation in Intemational Albinism Awareness Day. In October 2023, we held a successful weekend conference in Derbyshire, attended by around 140 people. The event featured information sessions tailored to the diverse needs of our community. We held an Albinism get together in Dublin and another in Belfast in 2023124. Children with Albinism and their families and adults with Albinism had the opportunity to meet up and share their experiences and take part in various activilies as well as finding oul about support services in their local communities. In March 2024. our London family day brought together over 75 people for social engagement and infomiative presentations, further strengthening our community. The charity's policy on reserves It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to belween three and six month's expenditure. The major part of unrestricted funds is built up to supporl the cost of running the conference. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to conlinue the charity's current activities while consideration is given to ways in which additional funds may be raised. Financial risks Reduction in donations I fundraising in current economic climate. Increased competition for grants to support our work. As a volunteer led charity, time restrictions on trustees to source grants and actively fundraise. Signed on behalf of the charity's trustees.. Signed Eshita Unadkat, Co-chair of Trustees Date 1711212024 Independent examiner's report to the trustees of Albinism Fellowship for the year ended 31 March 2024 I report lo the trustees on my examination of the accounts of Albinism Fellowship (Ihe charily) for the year ended 31 March 2024. Responsibilities and basis of report As the trustees of the charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act'}. I report in respect of my examination of the charity's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145{5)(bl of the Act. Independent examiner's ststement I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect.. accounting records were not kept in respect of the charity as required by section 130 of Ihe Act., or 2. the accounts do not accord with those records. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Signed John O'Brie CCA, FCIE Employee of Community Accounting Plus Date 1811212024 Albinism Fellowship Receipts & payments account for the year ended 31 March 2024 2023 Total 2024 Total Unrestricted Restricted Funds Funds Funds Funds Receipts Subscriptions Donatior Corference fees 2022 Conference fees 2023 Grants Other income Total receipts 2647 10531 11565 1765 9500 100 36108 3916 8701 3916 8701 18783 18783 399 31799 399 31799 Payments Regional & national events Fu￿raisIng Baby information boxes Magazne costs Literature & merchandise Corference costs 2022 Conference costs 2023 Conference costs 2024 Insurance ststionery & office costs costs Other costs Governance Bank charges Total payments 610 518 197 860 453 34814 6680 281 216 281 216 778 778 26145 4259 10458 36603 4259 340 466 1192 330 197 1078 1005 147 34436 330 197 1078 1005 147 44905 46130 10469 (10022) 26262 16240 Net receiptsl(payments) Cash furKJs at start of this period Cash funds at end of this period (2637) (10469) {13106) 5455 10785 16240 2818 316 3134 Albinism Fellowship Statement of assets and liabilities at 31 March 2024 2023 2024 Cash assets Bank accourts 16240 16240 3134 3134 Liabilities Creditors- legal & professional fees 510 {510) 570 570 These financial statements are accepted on behalf of the charity by: Signed Joanne Bennelt, Dated ee •ILI4 Albinism Fellowship Notes to the accounts for the year ended 31 March 2024 1. Receipts & payments accounts Receipts and payments accounts contain a summary of money received and money spent during the period and a list of assets and liabilities at the end of the period. Usually, cash received and cash spent will include transactions through bank accounts and cash in hand. 2. Funds analysis Opaning Re￿Ipts IPaym9nts) balance Closng balance Restricted funds Support family activities Baby boxes information Conference 23 childcare 958 327 9500 10785 (958) (11) 9500 10469 316 316 Unrestricted funds General fund 5455 5455 31799 34436 2818 31799 2818 34436 3. Trustees, remuneration Trustees received no expenses, remuneration or benefits in this period. 4. Glossary of terms Creditors: These are amounts owed by the charity, but not paid during the accounting period. Restricted funds: These are funds given to the charity, subject to specific restrictions set by the donor. but still within the general objects of the charity.