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2022-04-01-accounts

ALBINISM FELLOWSHIP

REPORT OF TRUSTEES AND RECEIPTS AND PAYMENTS ACCOUNT FOR THE PERIOD 1 OCTOBER 2021 TO 1 APRIL 2022

Charity Incorporated Organisation Charity Number1196004 (England & Wales)

ALBINISM FELLOWSHIP Trustees’ report for the period 1 October 2021 to 1 April 2022

CONTENTS

Page 1 Reference and administrative details 2 - 6 Trustees’ report 7 Independent Examiner’s report 8 Receipts and payments account 9 Statement of financial position 10-12 Notes forming part of the financial statements

Legal and Administrative Information

Trustees All appointed on incorporation 1 October 2021 Akeel Bari Joanne Bennett – Treasurer Danielle Lawrence Deidre Ni Cheallachain Karina Lear - Chair Roselle Potts – resigned as Trustee and Chair on 8 June 2022 Judith Spencer-Gregson Kristina Venning-Rose Helen Ward

Charity Number 1196004 Charity Incorporated Organisation England & Wales)

Principal PO Box 2535, Ilford, IG1 9NY address

Bankers Nat West, 120/122 High Street, Hornchurch, Essex RM12 4UL Independent Patricia Nicholson, BA, FCA, DChA Examiner: 30, Fitzwarren Gardens, London N19 3TP

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ALBINISM FELLOWSHIP Trustees’ report for the period 1 October 2021 to 1 April 2022

The trustees present their first report and accounts for the period 1 October 2021 to 1 April 2022.

Structure, governance and management

The charity was established as an Incorporated Charity Organisation(CIO). The Charity was registered in England and Wales on 1 October 2021 under number 1196004. All activities and assets from the Scottish Registered Charity: The Albino Fellowship known as Albinism Fellowship were transferred to this charity. The charity continues the same activities as previously run by Albinism Fellowship.

Objectives and activities

The charity's objects are to:

The services we offer include:

In shaping our objectives for the year and planning our activities the trustees have considered the Charity Commission guidance on public benefit.

Highlights of the first six months

During the period we held two zoom meetings which were well attended. On 10[th] February 2022 we held a zoom meeting for adults Albinism and

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ALBINISM FELLOWSHIP Trustees’ report for the period 1 October 2021 to 1 April 2022

on 4 March 2022 we held a zoom meeting for parents of newly diagnosed children.

We have continued the activity of the Scottish registered charity of offering a” baby box” to parents who have a baby under 12 months which is full of really useful items, for children with albinism, to welcome them to the Albinism Fellowship community. The gifts are a sun hat, sun cream samples, baby sunglasses, a sensory toy, and a black & white board book plus our Understanding Albinism booklet. The feedback we have had has been really positive. We are very grateful to the Four Acre Trust for funding this scheme.

Due to Covid-19 we have not been able to have any face-to-face events this year. We also had to postpone the conference that should have taken place in October 2021as the situation was still too uncertain at the time we would have made firm bookings and the conference is now scheduled for October 2022.

Achievements and performance

Providing information and support

Our website continues to be our main ‘shop window’ to the world. It enables people to join our charity, book to attend events, email us or to make a donation with ease. We are really proud that all the images on the website are of our members and that these reflect the diversity of our membership. Our volunteer Bhavit Shah has been a huge help in maintaining the website which continues to have lots of engagement and positive feedback.

Our ‘Understanding Albinism’ booklet continues to be really popular with families and professionals alike. We are planning an update on the genetic information in the coming year.

The vast majority of enquiries to the Fellowship come via our website and Facebook pages. All emails sent to the charity are channelled through our online OS Ticket system. Enquiries range from contacts from new families seeking advice, requests from the media, opportunities to link with other sight loss charities and information about new products and gadgets. These are shared across our trustees. We continue to receive a small amount of postal communication and trustee Akeel Bari does a good job of fielding messages left on our phone advice line.

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ALBINISM FELLOWSHIP Trustees’ report for the period 1 October 2021 to 1 April 2022

We promote our activities through our Facebook page and Twitter.

Membership & Baby Box Scheme

Our membership is slowly growing via our website and we are really encouraging new members to set up renewable PayPal payments so we don’t lose members who just forget to renew each year. We still have some old memberships to transfer to the website but hope this will be completed soon.

Fundraising

Despite the Covid situation our fantastic members have still fundraised for us which is so appreciated. This has included sponsored walks, school ‘wear white for International Albinism Awareness Day’ and baking cookies to sell to neighbours. We are enormously grateful for all donations large and small. We are now able to claim back Gift aid which will really help our finances as this enable an extra 25% on donated income providing we have a signed Gift aid form from donors. Membership can also be claimed for Gift Aid.

Plans for the future

We are working with other organisations to help reach as many families and individuals affected by albinism as we can. We also want to improve our new website to attract more members. Since the year end we have held family days in London and Dublin.

We are planning a conference in October 2022 so we can all meet and support one another after Covid.

Financial review

The charity’s overall income for the first period was £26,285 being a combination of subscriptions and donations of £7,348, deposits for the October 2022 conference of £5,692 and a transfer of funds from the Scottish registered charity of £16,973. Our fundraising costs are minimal at £237, and our costs of charitable activities were £3,414. Unrestricted reserves carried forward at 1 April 2022 were £22,715. Funds are built up in order to support the planned biennial conference Restricted funds were £3,547 at 1 April 2022. Donors of these funds gave agreement to transfer funds from the Scottish charity to this charity.

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ALBINISM FELLOWSHIP Trustees’ report for the period 1 October 2021 to 1 April 2022

Reserves Policy

It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month's expenditure. The major part of unrestricted funds is built up to support the cost of running the conference. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity's current activities while consideration is given to ways in which additional funds may be raised.

A conference is to be held every two years, and, in the period leading up to the conference, we are accumulating the income necessary to finance it. Reserves at 1 April 2022 are therefore relatively high. as they are earmarked to fund the October 2022 conference.

Impact of Covid 19

The pandemic Covid19 has curtailed our planned activities in various ways. Our costs have been contained, but like so many charities our fundraising has been impacted. We are still in a strong financial position.

Our chair Roselle Potts

Roselle Potts has stood down as Chair and trustee of this charity and the Scottish Albinism charity after many years. We are immensely grateful to her for all her work and support in promoting the charity, raising awareness of Albinism and supporting families. Karina Lear has been appointed chair .

The trustees’ report was approved by the board of trustees on 14th September 2022.

Karina Lear Chair of Trustees

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ALBINISM FELLOWSHIP

INDEPENDENT EXAMINER’S REPORT TOTHE TRUSTEES OF ALBINISM FELLOWSHIP

I report to the charity trustees on my examination the receipts and payments accounts of the Albinism Fellowship (Charity Incorporated Organisation-CIO) for the first period 1 October 2021 to 1 April 2022 set out on pages 8 to 12..

Respective responsibilities of Trustees and Examiner

As the charity’s trustees of the charity, you are responsible for the preparation of the accounts in accordance with the Irequirements of the Charities Act 2011 (“the Act”). I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act, and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent Examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

Patricia Nicholson BA, FCA, DChA Address: 30 Fitzwarren Gardens, London N19 3TP 15th September 2022

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ALBINISM FELLOWSHIP

RECEIPTS AND PAYMENTS ACCOUNTS FOR THE PERIOD 1 OCTOBER 2021 to 1 APRIL 2022

Note
Incoming resources:
Donations
Subscriptions
Receipts from Albino Fellowship
(Old Charity)-Albinism
Fellowship-Scottish registered
Charitable activities
-October 2022 Conference fees
Total incoming resources
Resources expended:
Fundraising
Charitable activities
2
Total resources expended
Net Surplus for the period
Total funds carried forward		 Unrestricted
funds

£
4,929
2,419
13,242
5,692
26,282
237
3,330
3,567
22,715
22,715		 Restricted
funds
£
-
-
3,631
-
3,631
-
84
84
3,547
3,547		 Total
2022
£
4,929
2,419
16,873
5,692
29,913
237
3,414
3,651
26,261
26,262

The notes on pages 10 to 12 form part of these financial statements.

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ALBINISM FELLOWSHIP

STATEMENT OF FINANCIAL POSITION as at 1 April 2022

Note
Current Assets
Cash at bank and in hand
Total net assets
The funds of the charity
Unrestricted funds: General fund
7
Restricted funds -Baby Boxes
6
Restricted funds-Family Activities
6
Total funds		 2022
£
26,262
26,262
22,715
524
3,023
26,262

The financial statements were approved on 14th September 2022 and signed on its behalf by:

Joanne Bennett Karina Lear Treasurer Chair

The notes on pages 10 to 12 form part of these financial statements.

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ALBINISM FELLOWSHIP Notes to the receipts and payments account for period to 1 April 2022

1. Accounting Policies

1.1 Charity information

Albinism Fellowship is Charity Incorporated Organisation (CIO) incorporated on 1 October 2021 . The Charity is registered in England & Wales and has taken over the activities of the The Albino Fellowship, known as Albinism Fellowship ,registered in Scotland

1.2 The accounts are prepared on a receipts and payments basis.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the accounts.

1.4 Resources expended

The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources.

Cost of generating funds are costs incurred in attracting voluntary income, and those incurred in trading activities that raise funds.

Support costs are those costs incurred directly in support of expenditure on the objects of the charity.

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ALBINISM FELLOWSHIP

Notes to the receipts and payments account for period to 1 April 2022

2 Charitable activities expenditure

Charitable activities expenditure
Regional and national events expenses
Web design and update
Costs of baby information boxes
Sub Total
Share of support costs (note 6)
Share of governance costs (note 8)		 Unrestricted
funds

£
156
2,570
-
2,726
604
-
3,330		 Restricted
funds
£
-
-
84		 Total
2022
£
156
2,570
84
84 2,810
-
-
84		 604
-
3,414

3 Staff costs

There were no employees during the period.

4 Trustees

None of the trustees (nor any persons connected with them) received any remuneration or benefits from the charity during the period. No trustees were reimbursed expenses incurred on behalf of the charity.

5 Support costs

Insurance
Stationery & office costs
Computer costs
Analysed between
Charitable activities		 Support
costs

£
320
284

604
604		 Governance
costs
£
-
-
-
-		 2022
£
320
284
604
604

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ALBINISM FELLOWSHIP Notes to the receipts and payments account for period to 1 April 2022

6 Restricted funds

The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes

Grant to Support
family activities
Grant baby
information
boxes
Total		 Transferred
from Old
Charity
Albino
Fellowship
Incoming
resources
Resources
expended
At
1 April
2022
£
£
£
£
3,023
-
-
3,023
608
-
84
524
3,631
-
84
3,547

7 Analysis of net assets between funds at 1 April 2022

General Reserves
Bank balances
Restricted Funds
Bank Balances		 2022
£
22,715
2022
£
3,547

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