Trustees' Annual Report for the period
Period start date Period end date Day Month Year Day Month Year From 28 09 2021 To 31 03 2022
Section A Reference and administration details
Charity name BRCA+ Chat
Other names charity is known by Registered charity number (if any) 1195944
Charity's principal address 49 Station Road
Polegate East Sussex Postcode BN26 6EA
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Christen Williams | Chair | |||
| Janine Duncan | 15 January2021 to date | |||
| Alex Williams | ||||
| Kate Biles | ||||
| Eleanor Howie | ||||
| Lisa Bancroft | ||||
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
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Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts
Type of governing document
Constitution adopted 28 September 2021
- (eg. trust deed, constitution)
CIO Foundation (Registered 28 September 2021) How the charity is constituted
- (eg. trust, association, company)
Trustees are appointed or reappointed by resolution passed at a properly Trustee selection methods convened meeting of the charity trustees (eg. appointed by, elected by)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
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policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
Section C Objectives and activities
The objects of the charity are:
Summary of the objects of the charity set out in its governing document
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Providing emotional, mental and practical support for those affected by BRCA and other gene mutations within the United Kingdom
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Providing education in the United Kingdom on arising out of or pertaining to BRCA and other gene mutations
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Creating awareness and campaigning around issues arising out of
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or pertaining to BRCA and other gene mutations including, but not limited to, better access to genetic testing within the United Kingdom
In planning our objectives for the period between 28 September 2021 and 31 March 2022 we kept in mind the Charity Commission’s guidance on public benefit at our Trustee meetings.
The main activities were as follows:
- Providing emotional, mental and practical support for those affected by a BRCA gene mutation within the United Kingdom
We have been developing a supportive community network of individuals affected by a BRCA (or similar) gene mutation to facilitate peer support and the sharing of lived experiences. This is supported by relevant resources on our website and social media channels. Summary of the main activities undertaken for the • Providing education in the United Kingdom on living with public benefit in relation to BRCA gene mutations these objects (include within this section the statutory Our focus has been on establishing a series of educational livestreamed declaration that trustees have sessions to educate the general public and those affected by a BRCA had regard to the guidance (and similar gene mutations) on issues directly relevant to them and their issued by the Charity experiences. We utilise our website and social media presence to further Commission on public disseminate this information. benefit)
Most of our work in this area in the relevant period has drawn directly on previvors to highlight the reality of gene mutations for those living with them.
These activities benefit those affected by BRCA (and similar) gene mutations by providing education and emotional support on issues relevant to this group. We support anyone over the age of 16 with a BRCA or other similar gene mutation, those undergoing or considering genetic testing and their family and friends. We also welcome anyone who works with this groups, i.e. medical professionals, counsellors and volunteers.
Additional details of objectives and activities (Optional information)
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N/A
You may choose to include further statements, where relevant, about:
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policy on grantmaking;
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policy programme related investment;
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contribution made by volunteers.
Section D Achievements and performance
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Section D Achievements and erformance p
Peer support
Summary of the main achievements of the charity We have created a community of “BRCA buds” who share their lived during the year experiences. Feedback has been positive: “I had an amazing family who were so supportive but I really wanted to talk to people in a similar situation as myself. I saw the BRCA+ Chat [Instagram] story about finding a BRCA bud […]. We talked about our families, our boobs, the operations and then just talked about life! […] It’s been so fantastic to meet some amazing people in a great community all through different stages in the BRCA journey.”
Live streamed educational sessions
In March 2022 we held out first live streamed educational session which addressed nipple sparing vs nipple losing mastectomies as this is an important choice that many of our beneficiaries will face.
This session was well attended and received positive feedback including the following:
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“this has been super lovely and […] thank you for sharing all of this! Definitely will be attending the next one, pleasure make sure there are more.”
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“this has been so helpful”
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“Thank you that was so helpful, really appreciate it”
Social media and website resources
We have built an engaged social media following across our social media channels. This is one way in which we share educational resources. Our social media posts have addressed topics such as:
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Practical advice i.e. what to take to hospital on the day of surgery
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Emotional support i.e. self-care ideas for difficult days
We have created resources accessible via our website. This includes an educational blog and topics covered within the relevant period include:
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Becoming the mother of a BRCA mutant
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Yes, I had preventative surgeries. No, I was not prepared
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Dear Future Me
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Ovarian cancer – knowledge is power
An important resource that we have developed is our Mastectomy Gallery which features images of women who have had mastectomies and have had varies forms of reconstructive surgery or have not had reconstruction at all. Our beneficiaries report that this helps them to understand their options. We have received positive feedback: • “I showed my surgeon your whole gallery […] and he was so impressed by you guys doing this.
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Section D Achievements and erformance p
- “Your mastectomy gallery has been a huge help with making decisions on specifics with my surgery and has helped to prepare me for what I am about to go through.”
We have also created and launched an e-mail newsletter in March 2022. This is used to engage with our community and signpost subscribers to relevant resources.
Fundraising
In February 2022 we were supported by a fundraiser who ran a halfmarathon in order to raise funds for BRCA+ Chat. The final sum raised was £508.35.
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Section E Financial review
Cash at bank at 31.03.2022 was £6,878.35 in unrestricted funds.
Brief statement of the charity’s policy on reserves We currently hold funds to cover costs that may be payable on dissolution of the charity.
Details of any funds materially Not applicable. in deficit
Further financial review details (Optional information)
You may choose to include additional information, where relevant about:
Our main source of funds in the relevant period has been donations.
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the charity’s principal sources of funds (including any fundraising);
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how expenditure has supported the key objectives of the charity;
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investment policy and objectives including any ethical investment policy adopted.
Section F Other optional information
Future plans
The coming year will see a continued emphasis on developing the following:
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Community of “BRCA Buds” – events and facilitated peer support / sharing of lived experiences
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Education – creation and dissemination of relevant resources including via our newsletter, website and social channels
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Educational events with relevant expert speakers
Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Position (eg Secretary, Chair, etc)
Date
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Charity Name No (if any) BRCA+ Chat 1195944 Receipts and payments accounts CC16a For the period Period start date Period end date To from 28.09.2021 31.03.2022
Section A Receipts and payments
| A1 Receipts | Unrestricted funds to the nearest £ 6,878 - - - - - - - 6,878 - - - 6,878 - - - - - - - - - - - - - - 6,878 - - 6,878 |
Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Total funds to the nearest £ 6,878 - - - - - - - 6,878 - - - 6,878 - - - - - - - - - - - - - - 6,878 |
Total funds to the nearest £ 6,878 - - - - - - - 6,878 - - - 6,878 - - - - - - - - - - - - - - 6,878 |
Last year to the nearest £ |
|---|---|---|---|---|---|---|
| Donations | 6,878 | - | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| Sub total(Gross income for AR) |
6,878 | - | ||||
| A2 Asset and investment sales, (see table). |
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| - | ||||||
| - |
- | |||||
| ~~Sub total~~ | - | - | ||||
| Total receipts A3 Payments |
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| - | - | |||||
| **Sub total ** | - | - | ||||
| A4 Asset and investment purchases, (see table) |
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| - | ||||||
| - | ||||||
| **Sub total ** | - | - | ||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
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| - | ||||||
| 6,878 | - | - | 6,878 | - | ||
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| 6,878 | - | - | 6,878 | - |
CCXX R1 accounts (SS)
30/01/2023
1
| Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | |
|---|---|---|---|
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Total cash funds (agree balances with receipts and payments account(s)) Cash at bank Details Details Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ 6,878 - - - - - 6,878 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Eleanor Howie |
Endowment funds to nearest £ |
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
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| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
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| Current value (optional) |
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| - | |||
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| - | |||
| - | |||
| - | |||
| When due (optional) |
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| Date of approval |
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| Eleanor Howie | |||
CCXX R2 accounts (SS)
30/01/2023
2