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|Trustees'<br>annual<br>report|
|---|
|Independent<br>examiner's<br>report to the trustees|
|Statement offinancial activities|
|Balance sheet|
|Notes to the financial statements|





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|The trustees|||||
|---|---|---|---|---|
|The trustees|who served during the year and at the date ofapproval|||were as follows:|
|||BSommerlad<br>(Chairman)|||
|||RAllan|||
|||EAnderson|||
|||J Baldwin (Resigned 19/07/2023)|||
|||M Dwyer|||
|||M Fell|||
|||TGoodacre|||
|||M Gwyther<br>(Appointed<br>22/OS/2022)|||
|||N Hay|||
|||YKahn-Pascual|||
|||K Knowles|||
|||T Morris|||
|||M Pinkstone|||
|||BRichard|||
|||D Sainsbury|||
|||R Slator|||
|||R Walker (Resigned<br>14/OS/2023)|||
|Executive Officer||M Baldwin|||
|Independent|examiner|LThurston<br>FCCA|||
|||Lovewell Blake LLP|||
|||Chartered<br>accountants|||
|||First Floor Suite|||
|||2 Hillside Business Park|||
|||Bury St Edmunds|||
|||IP32 7EA|||
|Bankers||Bardays Bank PLC|||
|||North Herts and Welwyn|Group||
|||Hitchin|||





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CLEFT
Trustees, annual reportfew*
Year ended 30 Juno 2023
3UPPOrt *tiich wnjld teal to wa*ty researth in deft bp ￿ pal*. This sit4ed area w&1 ￿nue to
be exFlor&J In ts corytsng year.
of ¢Séft data, namèty The Cleft CoilecaNo and CRANE IrAèase stt a￿￿nd*% bèlow). trj oppcfflunrties
each year for a Trsearo*er to use the d*a atreaty coEteded. Exaclly Ihi$ IKW mLth it
nrright cost would need d•veloprwJ.
CLEFT Away Lkny DIsCu￿•(¥b and for 21r23rL4
At the CLEFT Awayday tn May 2023, th• Rose*1 StowiyJ lY4)o￿a that over th• folkn*?ng
frrmn Jldy 1st. 2023. wth a ¢ktsry (J* of 3th. 2023. A￿l￿10n5 rrray be m•Je fundiThJ of
irldividual FYoieca5 UP to £50.¢JOO.
. CRANE (Tho Qeft Registy and Audit Netsth} wa5 esta￿.5￿ in 2(NXI a5 a rotional deft audit database.
partiripate in the study <>¥*r a kw pwKJd Lrf trrne. ar? ￿ ¥ep4fats cohorts: a Birth Coh(¥t aTrJ
a &yèar-(rfd Cohort and can a150 be re¢y¥knl arf•.The aim ￿the St￿ is to
12-

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|Members ofthe Research|Steering Committee:|||||
|---|---|---|---|---|---|
|Name|Position|||||
|Rona Slator|Chair ofthe Research Steering Committee|||||
|Emity Anderson|Clinical Geneticist, Vice-Chair ofthe Research Steering Committee|||||
|Norman<br>Hay|Consultant<br>Orthodontist,<br>Great Ormond Street Hospital|||||
|Paul Morris|Consultant<br>Plastic Surgeon, Great Ormond Street Hospital|||||
|Dr Malcolm Birch|Director ofClinical Physics at Barts and the London|||NHS|Trust|
|Prof Phil Stanier|Professor ofCraniofacial<br>Biology and|Genetics,|University||College London|
|Raouf Chorbachi|Audiological<br>Physician, Great Ormond|Street Hospital||||
|Fiona Gilchrist|Senior<br>I ecturer 8 Hon. Consultant<br>in|Paed. Dentistry||||
|Stephanie<br>van Eeden|Lead Specialist Speech and Language<br>Therapist|||||
|JoShearer|Clinical Psychologist|||||
|Yvonne Wren|Chief Investigator<br>ofthe Cleft Collective|||||
|Helen Robson|Lead Nurse Cleft Lip and Palate|||||
|Sophie Butterworth|Plastic Surgical Trainee|||||
|Ambika Chadha|Oral and maxillo-facial<br>surgeon|||||
|Prof Martyn Colboume|Professor ofAcademic Orthodontics,|King's College||I ondon||
|Gillian McCarthy|External Engagement<br>Oflicer, CLAPA|||||
|Resigned from Research Steering Committee||||||
|Name|Position|||||
|Cherry Le Roy|CLAPA Representative<br>(Resigned October 2022)|||||
|JoShearer|Clinical Psychologist<br>(Resigned January 2023)|||||
|Nonwotlng<br>Members ofResearch Steering Committee||||||
|Name|Position|||||
|Mark Dwyer|CLEFTTrustee|||||
|Brian Somrnerlad|Consultant<br>Plastic Surgeon and Chair|ofthe International|||Committee|
||and ofCLEFT|||||





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||||||||Period from|
|---|---|---|---|---|---|---|---|
||||||||25 May 21 to|
|||||Year|to 30Jun 23||30Jun 22|
|||||Unrestricted|Restricted|||
||||Note|funds<br>f|funds|Total funds<br>f|Total funds|
|income and endowments||||||||
|Donations<br>and legacies<br>Other trading<br>activities||||81,242<br>1,253|150,000<br>115,260|231,242<br>116,513|410,892|
|Investment<br>income||||1,148||1,148||
|Other income||||175||1?5|2,917|
|Total income||||83,818|265,260|349,078|413,809|
|Expenditure||||||||
|Raising funds||||||||
|Costs of raising donations||and||||||
|legacies<br>Charitable<br>activities|||8<br>9|25,758<br>115,495|26,284|25,758<br>141,779|30,957<br>61,495|
|Total expenditure||||141,253|26,284|167,537|92,452|
|Net income and net movement||in funds||(57,435)|238,976|181,541|321,357|
|Reconciliation<br>offunds||||||||
|Total funds brought|fonivard|||305,257|16,100|321,357||
|Total funds carried|forward|||247,822|255,076|502,898|321,357|





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|CLEFT<br>Balance sheet<br>30June 2023|||||||
|---|---|---|---|---|---|---|
||||2023||||
|Fixed assets|||||||
|Tangible fixed assets||13||1,161|||
|Current assets|||||||
|Debtors||14|1,198||4,186||
|Gash at bank and in|hand||503,780||318,731||
||||||322,917||
|Cnrdttorsi<br>Amounts|falling due within||||||
|olla year|||(3,241)||(1,560)||
|Net curnrnt assets||||501,737||321,357|
|Total assets less current liabilities||||502,898||321,357|
|Net assets||||502,898||321,357|
|Funds ofthe charity|||||||
|Restricted funds||||255,076||16,100|
|Unrestricted<br>funds||||247,822||305,257|
|Total charity funds||16||502,898||321,357|





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|Donations|and|legacies (conririued)||||
|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total Funds|
||||Funds|Funds|2022|
||||f|f.||
|Donations||||||
|Donations|||165,037||165,037|
|Donation|upon|incorporation|229,755|16,100|245,855|
||||394,792|16,100|410,892|



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|||Unrestricted|Restricted|Total Funds|
|---|---|---|---|---|
|||Funds|Funds|2023|
||||f.|f.|
|Fundraising|events|1,253|115,260|116,513|
|||Unrestricted|Restricted|Total Funds|
|||Funds<br>K|Funds<br>f|2022<br>f|
|Fundraising|events||||



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|||Unrestricted|Total|Funds|Unrestricted|Total|Funds|
|---|---|---|---|---|---|---|---|
|||Funds||2023<br>f.|Funds<br>f||2022|
|interest|income|1,148||1,148||||



|Other incom|e|||||||
|---|---|---|---|---|---|---|---|
|||||Unrestricted|Total Funds|Unrestricted|Total Funds|
|||||Funds|2023|Funds|2022|
||||||K||f|
|Royalties received||||||2,917|2,917|
|Compensation||received||175|175|||
|||||175|175|2,917|2,917|
|Costs ofraising donations|||and legacies|||||
|||||Unrestricted|TotalFunds|Unrestricted|Total Funds|
|||||Funds<br>f|2023<br>f|Funds<br>f|2022<br>f|
|Event costs||||14,078|14,078|30,957|30,957|
|Fundraising|costs|||11,680|11,680|||
|||||25,758|25,758|30,957|30,957|



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|9.|Expenditure<br>on charitable|activities||||
|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total Funds|
||||Funds|Funds|2023|
||||E||E|
||Research grants<br>Overseas projects<br>Support costs||27,949<br>16,644<br>70,902|26,284|27,949<br>42,928<br>70,902|
||||115,495|26,284|141,779|
||||Unrestricted|Restricted|Total Funds|
||||Funds|Funds|2022|
||||E|E|E|
||Research grants<br>Overseas projects<br>Support costs||752<br>15,975<br>44,768||752<br>15,975<br>44,768|
||||61,495||61,495|
||Analysis ofsupport costs|||||
|||||2023|2022|
|||||E||
||Salaries<br>Pension costs<br>Bankcharges<br>Just giving charges<br>National<br>travel|||38,834<br>535<br>298<br>404|20,640<br>764<br>146<br>144|
||international<br>travel<br>Membership<br>fees<br>IT and website fees<br>Printing,<br>postage and stationery<br>Advertising<br>and promotions<br>Consultancy<br>and specialist staff support<br>Depreciation<br>Insurance|||6,252<br>614<br>9,535<br>2,341<br>692<br>5,671<br>51<br>1,659|50<br>7,452<br>1,564<br>3,907<br>7,381|
||Independent<br>examination<br>fees<br>Legal and professional<br>fees|||2,100<br>1,916|1,560<br>1,160|
|||||70,902|44,768|
|10.|Net income|||||
||Net income is stated after|charging/(crediting):||2023|2022|
|||||f|E|
||Depreciation<br>oftangible fixed assets<br>Fees payable for the audit ofthe financial statements|||51<br>2,100|1,560|





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|||2023|2022|
|---|---|---|---|
|||K|F|
|Wages <br>Pension|and salaries<br> costs|38,834<br>535|20,640<br>764|
|||39,369|21,404|



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|13.|Two trustees<br>received<br>reimbursed<br>expenditure<br>to<br>year.<br>Tangible fixed assets|talling<br>E2,476 (2022: one trustee f14|9) during<br>the|
|---|---|---|---|
||||Equipment|
||||E|
||Cost|||
||At 1 July 2022<br>Additions||1,212|
||At 30June 2023||1,212|
||Depreciation|||
||At 1 July 2022|||
||Charge for the year|||
||At 30June 2023||51|
||Carrying<br>amount<br>At 30June 2023||1,161|
||At 30June 2022|||
|14.|Debtors|||
|||2023|2022|
||Other debtors|1,198|4,186|





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|||||||2023|2022|
|---|---|---|---|---|---|---|---|
|Trade creditors||||||96||
|Accruals and deferred|income|||||2,100|1,560|
|Social security and other||taxes||||1,045||
|||||||3,241|1,560|
|Analysis ofcharitable|funds|||||||
|Year ended 30June 2023||||||||
||||||||At 30Jun|
||||At 1 Apr 2022<br>F|Income<br>F|Expenditure<br>f|Transfers|2023|
|Restricted Funds||||||||
|Palate Musde Anatomy<br>Thames)||(Nth|16,100||||16,100|
|Bangladesh - Private Donor<br>Project||||115,260|(12,165)||103,095|
|Kurdistan - Private Donor||||||||
|Project||||150,000|(14,119)||135,881|
||||16,100|265,260|(26,284)||255,076|
|Designated<br>funds||||||||
|Vomerine Flap Closure|||20,000||||20,000|
|The impact ofCOVID on<br>Speech|||20,575||(3,008)||17,567|
|Speech therapy for cleft||||||||
|speech characteristics<br>Alveolar Bone Graft|project||16,500<br>3,498||(16,500)||3,498|
|North Thames CLEFT|Q Data|||||||
|(Nth Thames)|||1,215||||1,215|
|Bangladesh<br>multi-disciplinary<br>deft centre|||28,000||(22,598)||5,402|
|Orticochea<br>Pharyngoplasty<br>(Nth Thames)|||27,186||||27,186|
|Eye Tracking to measure<br>success in surgery|||14,984||||14,984|
|Kurdistan<br>project<br>Mozambique<br>project||||935<br>816|(935)<br>(816)|||
|Nepal project||||1,988|(1,988)|||
|Development<br>ofAuto Scoring||||||||
|Tool||||49,882|(24,941)||24,941|
||||131,958|53,621|(70,786)||114,793|
|Unrestricted<br>funds||||||||
|General funds|||173,299|30,917|(70,467)||133,029|





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|s to the financial stateme<br> ended 30June 2023|s to the financial stateme<br> ended 30June 2023|s to the financial stateme<br> ended 30June 2023|nts<br>(continued)|||||
|---|---|---|---|---|---|---|---|
|Year ended 30June 2022||||||||
||||At 25 May||||At 30Jun|
||||2021|Income|Expenditure<br>f|Transfers<br>F|2022<br>E|
|Restricted Funds||||||||
|Palate Musde Anatomy||(Nth||||||
|Thames)||||16,100|||16,100|
|Designated<br>funds||||||||
|UCLP Speech Outcomes||||1,533||(1,533)||
|Vomerine Flap Closure||||22,000||(2,000)|20,000|
|Private Donor||||15,000||(15,000)||
|TBX22Mouse Model Project||||633||(633)||
|Investigation<br>ofabsent|uvula|||7,759||(7,759)||
|The impact ofCOVID on||||||||
|Speech||||20,575|||20,575|
|Speech therapy for cleft<br>speech characteristics<br>project||||16,500|||16,500|
|Alveolar Bone Graft||||3,498|||3,498|
|Submucous<br>deft palate|repair|||36,650||(36,650)||
|North Thames CLEFT|Q|Data||||||
|(Nth Thames)||||1,215|||1,215|
|Complex craniofacial defts in||||||||
|Bangladesh||||3,821||(3,821)||
|Bangladesh<br>multi-disciplinary||||||||
|deft centre||||28,000|||28,000|
|Orticochea Pharyngoplasty||||||||
|(Nth Thames)||||27,186|||27,186|
|Eye Tracking to measure<br>success in surgery||||14,984|||14,984|
|||||||(67,396)|131,958|
|Unrestricted<br>funds||||||||
|General funds||||198,355|(92,452)|67,396|173,299|
|Purpose ofRestricted|Funds|||||||





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|||General|Designated|Restricted|Total|
|---|---|---|---|---|---|
|||Funds|Funds|Funds|Funds|
|30June|2023|||||
|Tangible|fixed assets|1,162|||1,162|
|Current|assets|135,108|114,793|255,076|504,977|
|Current|liabilities|(3,241)|||(3,241)|
|Net Assets||133,029|114,793|255,076|502,898|
|||General|Designated|Restricted|Total|
|||Funds|Funds|Funds|Funds|
|30June|2022|||||
|Current|assets|174,859|131,958|16,100|322,917|
|Current|liabilities|(1,560)|||(1,560)|
|Net Assets||1?3,29S|131,958|16,100|321,357|



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|The total f|uture minimum<br>lease payments<br>under non-cancella|ble<br>operating leases are as foll|ows:|
|---|---|---|---|
|||2023|2022|
|Due within<br>sefvlclng|1 year: Website lease and|1,868|1,868|



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