The Essenelle Foundation Annual Report
2021 - 2022
The Essenelle Foundation (TEF) is a Mental Health Charity focused on empowering and supporting the Sickle Cell community.
TEF is made up of 3 pillars:
- Provide people who have Sickle Cell Disease (SCD) and their families access to traditional therapies, counselling and emotional well-being courses.
- We will work with schools, councils and hospitals to educate on the policies that will encourage better practices and support for the community.
- Run events and campaigns to educate and raise money so we can help everyone impacted by SCD get the help they need.
## A note from Our Founder
The last year has been nothing short of an incredible journey. Since our launch, we have connected and built longstanding relationships with different community members and come to understand the things that they feel impact them the most.
We have held weekly and monthly workshops that address all forms of emotional well-being and growth. We have developed educational standards and policies that will demand consistent care for all children in hospitals suffering from crisis.
It is a pleasure working on developing new methods that support patients and those who care for and support patient journeys.
We are even more motivated and excited for the journey up ahead. With more workshops and providing access to therapy for more community members, we are sure to make more members of the community more confident in managing their mental health and emotional well-being.
## **Our Trustees:**
## Candy Boakye Zhane Walcott Layla Lawson Fadumo Khamis
## O U R M I S S I O N
## O U R P U R P O S E
To help remove the emotional and physcological limitations that impact those who have Sickle Cell and their families.
To create access to wellbeing programmes, therapies and virtual events that will aid in the overall living experience of the community. To build bridges in education and research so that less people will have to suffer in situations that could be avoided with training and education.
To support the Sickle Cell community and start more conversations around the impact SCD has on mental health and emotional well-being.
To provide resources and tools that will allow all those who need help and guidance to understand and navigate their emotional journey.
## We aim to:
a) Provide practical advice about the treatment and care of Sickle Cell and thalassaemia. Support, health education and grants to access counselling and talking therapies to sufferers and their families/carers;
b) Advance education in, and raising awareness of, Sickle Cell and thalassaemia among the general public, educational establishments, corporate institutions, workplaces and local authorities with the aim of improving the experiences and health outcomes of those living with the disease.
_"I've been watching my daughter's mental health deteriorate. Hopefully this can help."_
## Our 2021-2022 Goals
## 1
This was our first year of operation and so we had to make sure we were focused on learning and developing, just as much as we were focused on creating resources that allowed us to deliver against our mission.
## **Therapies**
Giving those impacted by SCD access to trained therapists is one of our key pillars. We wanted to make sure that the service was tailored to suit all the needs of the community.
This meant working with key figures in the SCD world to make sure that all therapist underwent training by clinical and medical teams to understand the condition and how it impacts the patients and families before they are assigned any patients.
## 2
3
## **Workshops and Education**
## **Events and fundraising**
We run well-being workshops for all those of whom SCD impacts. This means both patients and their support systems. We also run long-standing workshops and educational courses aimed at schools and hospitals to improve the understanding of SCD and the quality of care patients, and families receive. Where possible, we aid in implementing new policies and accountability programmes in these establishments.
Events allow us to bring together large numbers of beneficiaries to the same place. It encourages networking and strengthens the community it also allows us to invite different companies to learn and develop new systems that encourage better support for the SCD community.
We are always looking at different way to engage with the wider country and educate and encourage donations that go towards our mission.
## Our Strategy
We know that the community want to be heard and feel valued. They are the experts on the condition and help should be given in the way it is needed. The parents and patients being included in the way the service is delivered allows for a bridge to be built between the service provider and the service user.
It also gives agency and ownership back to the community.
When we planned our focus for the year, we knew some things were important and would be defining:
- Mental health is the core component of our projects Considering patients of all ages Not excluding caregivers
- Taking the time to educate ourselves on what the community needs
- Having conversations with hospitals/schools and workplaces to ensure education and good practices exist.
|P R O J E C T S|D E T A I L S|O U T C O M E|
|---|---|---|
||Tackling topics|This event was very|
|Self Help Master
Class|of anxiety, panic,
depression and
continued trauma|popular with over 150
attendees and 89
people downloading|
||cycles.|resources after|
||Young people ages|Young people found|
|Young peoples
Music Therapy|7-13 picked an
instrument of their
choice and got|that they were able to
manage going into
crisis and had an outlet|
||weekly 1-2-1 lessons|during and after crisis|
||A series of courses|We had long|
|Wellness
Courses|focused on emotional
wellbeing. including
Yoga, baking, art|standing regular
workshops that had
heavy attendance|
||therapy and life||
||coaching||
## Projects cont.
## P R O J E C T S
## D E T A I L S
## O U T C O M E
10 steps of ensuring a consistent service in paediatric A&E
10 step promise Education Workshops
Educational workshops in Education schools and Workshops hospitals across london Access to 12 weeks of therapy Therapy to all those who are impacted by SCD
We managed to make North Middlesex Hospital implement this policy and carry out training
We managed to work with 46 schools and 9 hospitals/ care centres
180 people were able to receive therapy
s
## **O U R I M P A C T**
964 81% 74%
of service users went People participated in on to try multiple workshops across the year services 180 63%
of patients scored lower on their HADS scale after their 12 weeks of therapy
People received 12 weeks of free therapy
Workshop users said they felt better better equipped to manage their anxiety
100%
of young people who participated in music therapy felt like having a creative outlet helped manage panic and anxiety
## **The Next 12 months:**
## **Continued Projects:**
- Workshops and wellness courses that benefit the community.
- Increase the level of education workshops delivered to schools/ hospitals and workplaces. Therapies programme. Family days in an initiative.
## **New Projects:**
- Create more projects to target teenagers, especially those going through the transition phase, who are very vulnerable.
- Research project. Family days in an initiative.
## **Our Objective:**
- Increase the number of beneficiaries Increase the number of regular volunteers
- Increase public engagement and awareness
- Increase event attendees
"I feel like people are starting to believe how hard it is. It's been a while since I felt heard."
"Watching my child struggle is the hardest thing. This has helped us both find ways to cope."
"I don't feel so alone anymore. Men don't really talk I guess. The best part was realised I wasn't the only one struggling."
'" No one thinks about the mental health side of things, no one thinks about the parents or families."
## Financial Review
## **O U R F O C U S**
The charity ensures that all funds are responsibly used, and policies are in place to monitor the charity’s assets continually. The charity ensures that we can meet unexpected expenses and take advantage of change and opportunities for development when they arise. This is achieved by setting aside income when the charity can afford it, as a reserve earmarked for specific future purposes rather than used immediately for the charity’s aims.
The trustees regularly assess the appropriate reserve level to avoid putting the charity’s future development or activities at risk.
This means the trustees:
• Consider whether the charity needs to keep reserves – the trustees’ primary consideration is the well-being of the beneficiaries and their needs.
• Have a reserves policy which explains the levels of reserves to be kept and how they can be used
• Review their reserves policy regularly to take account of changing financial circumstances and new operating and financial conditions
• Comply with the annual reporting requirements to set up.
• Identity which of the charity’s funds have restrictions on their use, i.e. reserve funds that are freely available to spend are distinguished from funds that may have restrictions on their use set by their donors
• Plan for future development and sustainability when looking at levels of reserves, i.e. designating funds for use on future projects if appropriate as a way of setting aside and building up funds separated from the charity’s general reserves
## Acknowledgements
Thank you to all those who have helped us launch and raise money in this first year.
Thank you to all our supporters and grant suppliers.
We thank you for your continued support in our programs.
The Essnelle Foundation 59 Pruden Close Southgate, London N14 6DX 107597134287
www.theessenellefoundation.co.uk layla@theessenellefoundation.co.uk
**The Essenelle Foundation**
**No (if any)**
## **Receipts and payments accounts**
4/7/2021 3/31/2022 **To**
**For the period from**
## **Section A Receipts and payments**
**Unrestricted Restricted Endowment funds funds funds**
## **Total funds**
**to the nearest £**
**to the nearest £**
**to the nearest £ to the nearest £**
## **A1 Receipts**
**----- Start of picture text -----**
816 7,000 - 7,816
139 9,300 - 9,439
58 - - 58
414 - - 414
500 - - 500
5,000 - - 5,000
- - - -
- - - -
6,927 16,300 - 23,227
Sub total (Gross income for AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - -
Sub total - - - -
Total receipts 6,927 16,300 - 23,227
A3 Payments
720 1,500 - 2,220
20 1,000 - 1,020
65 200 - 265
34 150 - 184
400 1,250 - 1,650
15 5,900 - 5,915
3,000 - 3,000
2,500 - 2,500
800 - 800
Sub total [ 1,254 ] 16,300 - 17,554
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - -
Total payments 1,254 16,300 - 17,554
Net of receipts/(payments) 5,674 - -
A5 Transfers between funds - - - -
A6 Cash funds last year end - - - -
Cash funds this year end 5,674 - - -
**----- End of picture text -----**
## **Section B Statement of assets and liabilities at the end of the period**
||||**Unrestricted**||**Restricted**|
|---|---|---|---|---|---|
|**Categories**|**Details**||**funds**||**funds**|
|**B1 Cash funds**|Donations|
**_Total cash funds_**|**to nearest £**
**5,674**
**-**
**-**
**5,674**|
|**to nearest £**
**-**
**-**
**-**
**-**|
||(agree|balances with receipts and payments
account(s))|OK|OK||
||||**Unrestricted**||**Restricted**|
||||**funds**||**funds**|
|**B2 Other monetary assets**|**Details**||**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|
|**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|
|**B3 Investment assets**|**Details**||**Fund to which**
**asset belongs**|**Cost (optional)**
**-**
**-**
**-**
**-**
**-**||
|**B4 Assets retained for the**|**Details**||**Fund to which**
**asset belongs**|**Cost (optional)**
**-**||
|**charity’s own use**||||
|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|
|**B5 Liabilities**|**Details**||**Fund to which**
**liability relates**|
|**-**
**-**
**-**
**-**
**-**
**Amount due**
**(optional)**|
|Signed by one or two trustees on
behalf of all the trustees||Signature|Print|Name||
**----- Start of picture text -----**
CC16a
**----- End of picture text -----**
## **Last year**
**to the nearest £**
**-**
**-**
**-**
**-**
## **Endowment funds**
**to nearest £ - - - -**
OK
**Endowment funds to nearest £ - - - - - - Current value (optional) - - - - - Current value (optional)**
**When due (optional)**
Date of approval