York Down Syndrome Support Group
Charity Registration No: 1193370
Trustees Annual Report
For the year ended 31 December 2021
The trustees present their report along with consolidated financial statements of the charity for the year ended 31 December 2021.
The Objective of YDSSG
We are a parent led support group based in York in the UK. Our overall aim is to create and develop the conditions which will enable our children with Down syndrome to attain their full potential. We aim to support all those involved in the lives of our children including family members and professionals in York and the surrounding area.
What we aim to do:
-
offer personal support to new parents or parents with an antenatal diagnosis in whatever form they prefer
-
host regular social events where children can come together to chat, play and learn new skills
-
host regular social events for the whole family
-
lend useful resources to families and professionals
-
provide training for parents and professionals
-
provide weekly speech and language groups
-
promote the awareness of Down syndrome and encourage the inclusion of all within society
-
support high quality research about any aspect of living with Down Syndrome
In setting our programmes of activity, the trustees always ensure that the activities we undertake are in line with our charitable objects and aims.
How we work:
The Charity delivers its charitable aims with three focus areas:
-
Education
-
Social Events
-
Fundraising
All funds raised support with educational resources and subsidised social events.
Monthly committee meetings include performance reviews and ongoing activity planning.
Achievements and Performance
The Trustees and Committee have successfully re-introduced more face-to-face educational and social activities since the lift of COVID-19 Restrictions, including:
Educational Activities
2021 Chatterbox educational sessions were held via Zoom but have since resumed face-to-face every other week for the children attending Chatterbox. Chatterbox are our Speech and Language group sessions which are planned and delivered by a dedicated team of professional speech and language therapists and co-workers who are ‘symbol’ trained.
New for 2022: The weeks when they are not meeting up, our professional Speech and Language Therapist visits children individually in their education setting to review their progress and set new targets for the children to work towards.
A training programme for the new academic year has also been sent out to all primary, secondary and special school settings with Early Years settings informed through FIS. Training will run via Zoom to make it easier for settings to attend and will all be free to access. There are 6 sessions across the year.
We continue to loan educational resources to settings as requested.
Social Events
A Social Sub-Committee is now in place to ensure a regular calendar of social events is available to the families we support. We have held a series of social events during 2022 including:
-
Swimming sessions for younger children at a local pool
-
Alpaca walking for all age groups
-
Story Craft sessions for younger children
-
York Model Engineers trip for families
-
Opportunities to join in with events hosted by “Phab” – a national charity with whom we are affiliated. This year two of our families were given the opportunity to go flying
-
Opportunities to join with the local “Wet Wheels” CIC and in association with Alan Bott Charity to take rides on a power boat
New Parents
We have welcomed a number of new families to the group both those moving into the area and those who were resident in the City at time of birth.
York District Hospital have a regular supply of new-parent information packs on their maternity wards and on their ante-natal and children’s wards.
Information gathering and dissemination
A key part of the group’s activities involves sharing information that might be relevant to our families about national policy developments, local consultations and activities that are organised by other voluntary groups and other relevant bodies. Information about the Down Syndrome Act, legislation relating to health and social care, benefits rules, parent carer forum activity, as well as
more general information relating to support for families is shared via a closed Facebook group and an email list.
Our group has a large resource library which, in addition to educational material contains large print children’s fiction and books for parents about the experience of raising children and young people who have Down Syndrome. These books are free for members of the group, and those who support them, to borrow by request
Financial Review
Financial position at the end of the period: £5,854.71 at Bank
Reserves
We aim to hold 12 months’ costs in reserve at all times (c£6000)
- Reserves held at the end of the period: £5,854.71
Principal sources of funding
Our principal sources of funding are grants and local fundraising initiatives supported by the charity committee and our family members. We also have online fundraising options such as Easyfundraising and AmazonSmile, enabling any supporters of the charity to donate as they shop online.
Structure, Governance and Management
The charity is constituted as a Charitable Incorporated Organisation (CIO) whose only voting members are its charity trustees.
Trustees are interviewed and selected by the Committee, subject to enhanced DBS checks.
Charity Name: York Down Syndrome Support Group Registered Charity Number: 1193370
| Names of the charity trustees who manage the charity | Names of the charity trustees who manage the charity | Names of the charity trustees who manage the charity | Names of the charity trustees who manage the charity | |
|---|---|---|---|---|
| Trustee Name | Role | Dates Acted | Name of person or body entitled to appoint trustees |
|
| 1 | Charlotte Murray | Chair | October 2020 – date | YDSSG Committee |
| 2 | Richard Hodgkinson | Treasurer | October 2020 – date | |
| 3 | Laura Swales | Education Lead | October 2020 – date | |
| 4 | Liz Allen | Research Lead | October 2020 – date | |
| 5 | Theresa Ollerenshaw | New Parent Lead | October 2020 – date | |
| 6 | Sara Pay | Secretary | October 2020–date | |
| 7 | Adela Felicia Parzanese Guerrero |
Parent | October 2020 – date | |
| 8 | Barbara Lorraine Kerr | Professional | October 2020 – date |
York Down Syndrome Support Group YDSSG 2021 Profit & Loss Statement
| Income Bank Current a/c Petty Cash a/c Total Gross Profit |
£ 5756.47 0 |
|---|---|
| 5756.47 5756.47 |
|
| Expenditure Bank Current a/c Petty Cash a/c Total Net Profit |
8739.34 0 |
| 8739.34 -2982.87 |
| Balance Sheet Bank Current a/c Petty Cash a/c Assets and Liabilities |
£ £ 5800.71 Carried Forward 8837.58 54 5854.71 Balance 5854.71 |
£ £ 5800.71 Carried Forward 8837.58 54 5854.71 Balance 5854.71 |
|---|---|---|
| Balance 5854.71 |
31/12/2021
2021 Accounts
York Down Syndrome Support Group
| Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Expenditure | Expenditure | Expenditure | Expenditure | Expenditure |
|---|---|---|---|---|---|---|---|---|---|
| Date | Description | Bank Current a/c | PettyCash a/c | Total | Date | Description | Bank Current a/c | PettyCash a/c | Total |
| 01/01/2021 | OpeningBalance | 8,783.58 £ |
54.00 £ |
8,837.58 £ |
|||||
| 04/01/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 05/01/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44203 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 12/01/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 18/01/2021 | Chatterbox - Subs | 20.00 £ |
20.00 £ |
||||||
| 44218 | Resource Library- | 210.36 £ |
210.36 £ |
||||||
| 27/01/2021 | Donations/Fundraising- LocalGiving | 1,027.94 £ |
1,027.94 £ |
||||||
| 29/01/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 01/02/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 05/02/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44235 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 10/02/2021 | Donations/Fundraising- LocalGiving | 9.48 £ |
9.48 £ |
||||||
| 44238 | New Parent Packs - | 92.00 £ |
92.00 £ |
||||||
| 44238 | Maths Mum - | 80.00 £ |
80.00 £ |
||||||
| 44238 | Makaton - | 50.00 £ |
50.00 £ |
||||||
| 44238 | Football - Facilities - York Council | 47.50 £ |
47.50 £ |
||||||
| 12/02/2021 | Donations/Fundraising- LocalGiving | 10.00 £ |
10.00 £ |
||||||
| 44242 | Software/Platforms - WIX | 106.40 £ |
106.40 £ |
||||||
| 15/02/2021 | Donations/Fundraising- LocalGiving | 10.00 £ |
10.00 £ |
||||||
| 17/02/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 26/02/2021 | Donations/Fundraising- LocalGiving | 53.63 £ |
53.63 £ |
||||||
| 01/03/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 44257 | Software/Platforms - WIX | 136.80 £ |
136.80 £ |
||||||
| 03/03/2021 | Donations/Fundraising- LocalGiving | 16.51 £ |
16.51 £ |
||||||
| 05/03/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44263 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 10/03/2021 | Donations/Fundraising- | 68.25 £ |
68.25 £ |
||||||
| 10/03/2021 | Donations/Fundraising- LocalGiving | 63.67 £ |
63.67 £ |
||||||
| 18/03/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 23/03/2021 | Donations/Fundraising- | 500.00 £ |
500.00 £ |
||||||
| 44284 | Resource Library- | 117.46 £ |
117.46 £ |
||||||
| 44284 | Resource Library- | 255.49 £ |
255.49 £ |
||||||
| 44284 | Resource Library- | 97.11 £ |
97.11 £ |
||||||
| 44285 | Resource Library- | 411.11 £ |
411.11 £ |
||||||
| 44285 | Chatterbox - Kath Pringle | 195.00 £ |
195.00 £ |
||||||
| 44285 | Chatterbox - Kath Pringle | 1,260.00 £ |
1,260.00 £ |
||||||
| 31/03/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 01/04/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 06/04/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44292 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 14/04/2021 | Donations/Fundraising- LocalGiving | 86.45 £ |
86.45 £ |
||||||
| 16/04/2021 | Donations/Fundraising- | 100.72 £ |
100.72 £ |
||||||
| 19/04/2021 | Physiotherapy- | 60.00 £ |
60.00 £ |
||||||
| 20/04/2021 | Football - Subs | 48.00 £ |
48.00 £ |
||||||
| 20/04/2021 | Football - Subs | 48.00 £ |
48.00 £ |
||||||
| 21/04/2021 | Donations/Fundraising- LocalGiving | 197.04 £ |
197.04 £ |
||||||
| 23/04/2021 | Football - Subs | 12.60 £ |
12.60 £ |
||||||
| 26/04/2021 | Football - Subs | 48.00 £ |
48.00 £ |
||||||
| 27/04/2021 | Football - Subs | 48.00 £ |
48.00 £ |
||||||
| 27/04/2021 | Football - Subs | 36.00 £ |
36.00 £ |
||||||
| 28/04/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 04/05/2021 | Donations/Fundraising- | 15.00 £ |
15.00 £ |
||||||
| 04/05/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 05/05/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 06/05/2021 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 07/05/2021 | Maths Mum - | 120.00 £ |
120.00 £ |
||||||
| 07/05/2021 | Football - Facilities - York Council | 102.00 £ |
102.00 £ |
||||||
| 13/05/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 17/05/2021 | Football - Subs | 32.00 £ |
32.00 £ |
||||||
| 17/05/2021 | Football - Subs | 36.00 £ |
36.00 £ |
||||||
| 17/05/2021 | Football - Subs | 24.00 £ |
24.00 £ |
||||||
| 18/05/2021 | Football - Facilities - York Council | 102.00 £ |
102.00 £ |
||||||
| 19/05/2021 | Other - | 30.00 £ |
30.00 £ |
||||||
| 19/05/2021 | Donations/Fundraising- LocalGiving | 152.05 £ |
152.05 £ |
||||||
| 24/05/2021 | Football - Subs | 32.00 £ |
32.00 £ |
||||||
| 24/05/2021 | Other - | 5.00 £ |
5.00 £ |
||||||
| 26/05/2021 | Donations/Fundraising- LocalGiving | 4.73 £ |
4.73 £ |
2021 Accounts
York Down Syndrome Support Group
| Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Expenditure | Expenditure | Expenditure | Expenditure | Expenditure |
|---|---|---|---|---|---|---|---|---|---|
| Date | Description | Bank Current a/c | PettyCash a/c | Total | Date | Description | Bank Current a/c | PettyCash a/c | Total |
| 01/06/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 03/06/2021 | Donations/Fundraising- LocalGiving | 19.14 £ |
19.14 £ |
||||||
| 07/06/2021 | Football - Subs | 32.00 £ |
32.00 £ |
||||||
| 07/06/2021 | Physiotherapy- | 120.00 £ |
120.00 £ |
||||||
| 07/06/2021 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 07/06/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 16/06/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 21/06/2021 | Football - Subs | 16.00 £ |
16.00 £ |
||||||
| 30/06/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 01/07/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 05/07/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 06/07/2021 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 12/07/2021 | York Maze - York Maze | 30.00 £ |
30.00 £ |
||||||
| 12/07/2021 | York Maze - York Maze | 22.50 £ |
22.50 £ |
||||||
| 12/07/2021 | York Maze - York Maze | 22.50 £ |
22.50 £ |
||||||
| 12/07/2021 | York Maze - York Maze | 30.00 £ |
30.00 £ |
||||||
| 13/07/2021 | York Maze - York Maze | 30.00 £ |
30.00 £ |
||||||
| 13/07/2021 | York Maze - York Maze | 37.50 £ |
37.50 £ |
||||||
| 13/07/2021 | York Maze - York Maze | 30.00 £ |
30.00 £ |
||||||
| 13/07/2021 | York Maze - York Maze | 45.00 £ |
45.00 £ |
||||||
| 14/07/2021 | York Maze - York Maze | 22.50 £ |
22.50 £ |
||||||
| 16/07/2021 | Chatterbox - Facilities - Poppleton | 45.00 £ |
45.00 £ |
||||||
| 16/07/2021 | York Maze - York Maze | 22.50 £ |
22.50 £ |
||||||
| 16/07/2021 | Chatterbox - Facilities - St. Aelreds | 19.00 £ |
19.00 £ |
||||||
| 16/07/2021 | Chatterbox - Facilities - St. Aelreds | 19.00 £ |
19.00 £ |
||||||
| 16/07/2021 | Chatterbox - Facilities - Poppleton | 30.00 £ |
30.00 £ |
||||||
| 16/07/2021 | Chatterbox - Kath Pringle | 870.00 £ |
870.00 £ |
||||||
| 19/07/2021 | York Maze - York Maze | 292.50 £ |
292.50 £ |
||||||
| 22/07/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 28/07/2021 | Swimming- | 60.00 £ |
60.00 £ |
||||||
| 28/07/2021 | Alpaca Trip- | 100.00 £ |
100.00 £ |
||||||
| 02/08/2021 | Football - Subs | 24.00 £ |
24.00 £ |
||||||
| 02/08/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 03/08/2021 | Alpaca Trip- | 24.00 £ |
24.00 £ |
||||||
| 03/08/2021 | Football - Subs | 20.00 £ |
20.00 £ |
||||||
| 05/08/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 06/08/2021 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 13/08/2021 | Football - Facilities - York Council | 136.00 £ |
136.00 £ |
||||||
| 13/08/2021 | Makaton - | 50.00 £ |
50.00 £ |
||||||
| 13/08/2021 | Makaton - | 200.00 £ |
200.00 £ |
||||||
| 17/08/2021 | Other - | 7.34 £ |
7.34 £ |
||||||
| 18/08/2021 | Other - | 20.31 £ |
20.31 £ |
||||||
| 23/08/2021 | Football - Subs | 48.00 £ |
48.00 £ |
||||||
| 25/08/2021 | Donations/Fundraising- LocalGiving | 47.00 £ |
47.00 £ |
||||||
| 31/08/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 31/08/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 01/09/2021 | Football - Subs | 15.00 £ |
15.00 £ |
||||||
| 01/09/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 01/09/2021 | Swimming- | 60.00 £ |
60.00 £ |
||||||
| 06/09/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 09/09/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 7927 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 13/09/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 13/09/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 15/09/2021 | Football - Subs | 24.00 £ |
24.00 £ |
||||||
| 44459 | Chatterbox - Kath Pringle | 870.00 £ |
870.00 £ |
||||||
| 20/09/2021 | Alpaca Trip- | 12.00 £ |
12.00 £ |
||||||
| 20/09/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 20/09/2021 | Football - Subs | 54.00 £ |
54.00 £ |
||||||
| 22/09/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 23/09/2021 | Alpaca Trip- | 12.00 £ |
12.00 £ |
||||||
| 44463 | Alpaca Trip- | 20.00 £ |
20.00 £ |
||||||
| 24/09/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 44466 | Chatterbox - Kath Pringle | 201.00 £ |
201.00 £ |
||||||
| 27/09/2021 | Alpaca Trip- | 12.00 £ |
12.00 £ |
||||||
| 27/09/2021 | Alpaca Trip- | 24.00 £ |
24.00 £ |
||||||
| 27/09/2021 | Football - Subs | 24.00 £ |
24.00 £ |
||||||
| 29/09/2021 | Donations/Fundraising- LocalGiving | 9.40 £ |
9.40 £ |
||||||
| 44469 | Donations/Fundraising- LocalGiving | 96.00 £ |
96.00 £ |
2021 Accounts
York Down Syndrome Support Group
| Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Income,Assets and Liabilities | Expenditure | Expenditure | Expenditure | Expenditure | Expenditure |
|---|---|---|---|---|---|---|---|---|---|
| Date | Description | Bank Current a/c | PettyCash a/c | Total | Date | Description | Bank Current a/c | PettyCash a/c | Total |
| 30/09/2021 | Other - | 28.26 £ |
28.26 £ |
||||||
| 01/10/2021 | Alpaca Trip- | 12.00 £ |
12.00 £ |
||||||
| 01/10/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 05/10/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44476 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 44496 | Football - Facilities - York Council | 72.69 £ |
72.69 £ |
||||||
| 27/10/2021 | Donations/Fundraising- LocalGiving | 47.00 £ |
47.00 £ |
||||||
| 28/10/2021 | Football - Subs | 28.00 £ |
28.00 £ |
||||||
| 44501 | Other - | 171.93 £ |
171.93 £ |
||||||
| 01/11/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 01/11/2021 | Football - Subs | 16.00 £ |
16.00 £ |
||||||
| 03/11/2021 | Football - Subs | 28.00 £ |
28.00 £ |
||||||
| 05/11/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 44508 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 44508 | Football - Facilities - York Council | 72.69 £ |
72.69 £ |
||||||
| 44508 | Physiotherapy- | 153.44 £ |
153.44 £ |
||||||
| 44512 | Chatterbox - Kath Pringle | 233.50 £ |
233.50 £ |
||||||
| 44512 | Chatterbox - Kath Pringle | 740.16 £ |
740.16 £ |
||||||
| 17/11/2021 | Donations/Fundraising- LocalGiving | 37.60 £ |
37.60 £ |
||||||
| 44525 | Football - Facilities - York Council | 121.15 £ |
121.15 £ |
||||||
| 44525 | Makaton - | 221.70 £ |
221.70 £ |
||||||
| 01/12/2021 | Chatterbox - Subs | 15.00 £ |
15.00 £ |
||||||
| 02/12/2021 | Football - Subs | 50.00 £ |
50.00 £ |
||||||
| 02/12/2021 | Football - Subs | 100.00 £ |
100.00 £ |
||||||
| 44536 | Zoom Subscription - | 14.39 £ |
14.39 £ |
||||||
| 06/12/2021 | Football - Subs | 10.00 £ |
10.00 £ |
||||||
| 06/12/2021 | Chatterbox - Subs | 25.00 £ |
25.00 £ |
||||||
| 07/12/2021 | Football - Subs | 24.00 £ |
24.00 £ |
||||||
| 13/12/2021 | Other - | 10.38 £ |
10.38 £ |
||||||
| 13/12/2021 | Football - Subs | 60.00 £ |
60.00 £ |
||||||
| 16/12/2021 | Donations/Fundraising- | 511.87 £ |
511.87 £ |
||||||
| 29/12/2021 | Football - Subs | 44.00 £ |
44.00 £ |
||||||
| 29/12/2021 | Football - Subs | 52.00 £ |
52.00 £ |
||||||
| 30/12/2021 | Donations/Fundraising- LocalGiving | 56.40 £ |
56.40 £ |
||||||
| 44561 | Football - Facilities - York Council | 24.23 £ |
24.23 £ |
||||||
| 44561 | Physiotherapy- | 153.44 £ |
153.44 £ |
||||||
| 31/12/2021 | ClosingBalance | 5,800.71 £ |
54.00 £ |
5,854.71 £ |
8,739.34 £ |
- £ |
8,739.34 £ |
||