## **Trustees’ Annual Report for the period**
**From** 12 January 2021 **Period start date To** 31 March 2022 **Period end date**
**Charity name:** ThymicUK
**Charity registration number:** 1193092
## **Objectives and Activities**
**----- Start of picture text -----**
SORP reference
Summary of the Para 1.17 ThymicUK provides a support network for
purposes of the charity patients with thymic cancers in the United
as set out in its Kingdom and advocates on their behalf.
governing document
The purposes of ThymicUK are to support
people affected by thymic cancers, and to
improve the quality of life and access to
available treatments for patients with
thymic cancers in the UK. We endeavour
to do this by:
a) identifying patients with thymic
cancers and offering support throughout
their journey.
b) providing information resources for
patients, carers, and medical
professionals such as listing available
treatments, clinical trials, and the location
of thymic cancer specialists in the UK.
c) raising awareness of thymic cancers
among the general public, and medical
professionals.
d) promoting research into the causes,
detection, diagnosis, treatment, and
management of thymic cancers.
e) liaising with relevant organisations
such as the British Thoracic Oncology
Group (BTOG), the International Thymic
Malignancy Interest |Group (ITMIG), and
the pharmaceutical industry for the
advancement of knowledge and
treatment of thymic cancers.
f) liaising with and influencing key health
decision makers such as NICE and the
NHS in the UK.
g) facilitating fundraising to promote the
above objectives.
Summary of the main Para 1.17 and Between 1 April 2021 and 31 March 2022,
activities in relation to 1.19 ThymicUK has provided information and
those purposes for the support to patients, carers, and medical
public benefit, in professionals. We have further developed
our dedicated website
particular, the activities,
(www.thymicuk.org), and continued to
projects or services
provide a mailing list, and a closed group
**----- End of picture text -----**
**----- Start of picture text -----**
identified in the on the social medica platform Facebook.
accounts. We have seen a substantial growth in
traffic on the website, in the number of
subscribers to the mailing list, and in
people joining our support group. All the
above indicate that more people affected
by thymic cancers in the UK are becoming
aware of our existence and are reaching
out for support.
We organised two virtual meetings for the
support group; a social meeting on
14.06.2021, and a session with expert
speakers on ’responding to cancer, tips
for managing anxiety, depression, stress
and more’ on 30.11.2021.
We liaised with BTOG and ITMIG, amongst
others in preparation to co-organise the
first international Thymic Malignancy
Awareness Month to be held in May 2022.
As patient advocates, we attended the
BTOG virtual conference (22-23.04.2021)
and the ITMIG virtual conference (16-
17.10.2021).
We produced ThymicUK awareness
badges and ribbons and started to sell
these on our website and at fundraising
events. We also produced contact cards
and distributed them to hospitals.
Statement confirming Para 1.18 We confirm that all trustees have had
whether the trustees regard to the guidance issued by the
Charity Commission on public benefit.
have had regard to the
guidance issued by the
Charity Commission on
public benefit
**----- End of picture text -----**
## **Additional information (optional)**
You may choose to include further statements where relevant about: SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other
## **Achievements and Performance**
**----- Start of picture text -----**
SORP reference
ThymicUK has been effective in reaching
and supporting more of those affected by
thymic cancers in the UK. This includes
patients, carers and medical
Summary of the main
Para 1.20 professionals.
achievements of the
charity, identifying the -
We have further developed our
difference the charity’s dedicated website
work has made to the
(www.thymicuk.org), and
circumstances of its continued to provide a mailing list,
beneficiaries and any and a closed group on the social
wider benefits to society medica platform Facebook. We
as a whole. have seen a substantial growth in
traffic on the website, in the
number of subscribers to the
mailing list, and in people joining
our support group. All the above
indicate that more people affected
by thymic cancers in the UK are
becoming aware of our existence
and are reaching out for support.
-
We organised two virtual meetings
for the support group; a social
meeting on 14.06.2021, and a
session with expert speakers on
’responding to cancer, tips for
managing anxiety, depression,
stress and more’ on 30.11.2021.
We have been effective in liaising with
relevant professional bodies, including the
International Thymic Malignancy Interest
Group (ITMIG), and the British Thoracic
Oncology Group (BTOG).
-
With the latter, we were
instrumental in the creation of a
Special Interest Group (SIG)
dedicated to Thymic Malignancies.
The ThymicUK chair is a member
of the group.
-
We liaised with both professional
bodies to co-organise the first
international Thymic Malignancy
Awareness Month to be held in
May 2022.
- We attended the BTOG virtual
conference (22-23.04.2021) and
the ITMIG virtual conference (16-
**----- End of picture text -----**
17.10.2021) as patient advocates. To increase the awareness of thymic cancers, we produced ThymicUK awareness badges and ribbons, and started to sell these on our website and at fundraising events. We also produced contact cards and distributed them to hospitals.
## **Additional information (optional)**
You may choose to include further statements where relevant about:
**----- Start of picture text -----**
Achievements against Para 1.41
objectives set
Performance of
fundraising activities Para 1.41
against objectives set
Investment performance Para 1.41
against objectives
Other
**----- End of picture text -----**
## **Financial Review**
**----- Start of picture text -----**
Review of the charity’s Para 1.21 £3156
financial position at the
end of the period
Statement explaining Para 1.22 The ThymicUK policy to holding reserves
the policy for holding is that we currently only use funds as
reserves stating why needed to produce information and
awareness materials (such as leaflets,
they are held
posters badges and ribbons) and for
essential costs (e.g., our website domain).
No personal expenses are used as all
trustees volunteer their time.
All funds which are not immediately
needed for the above are to be held as
reserves, with the aim to initiate research
into the causes, detection, diagnosis,
treatment, and management of thymic
cancers.
Amount of reserves held Para 1.22 This is a varying amount as explained
above. It started from £0 at 12 [th] January
2021, and had reached £3156 at 31 [st]
March 2022.
Reasons for holding zero Para 1.22 N/A
reserves
Details of fund materially Para 1.24 N/A
in deficit
Explanation of any Para 1.23 N/A
uncertainties about the
charity continuing as a
going concern
**----- End of picture text -----**
## **Additional information (optional)**
You may choose to include further statements where relevant about:
**----- Start of picture text -----**
The charity’s principal
sources of funds Para 1.47
(including any
fundraising)
Investment policy and
objectives including any Para 1.46
social investment policy
adopted
A description of the Para 1.46
principal risks facing the
charity
Other
**----- End of picture text -----**
## **Structure, Governance and Management**
**----- Start of picture text -----**
Description of charity’s
trusts:
Type of governing Para 1.25 Constitution
document
(trust deed, royal
charter)
How is the charity Para 1.25 CIO
constituted?
(e.g unincorporated
association, CIO)
Trustee selection Para 1.25 All four trustees have been co-
methods including founders of the charity. The
details of any appointment of any new trustee
constitutional provisions would be agreed by all current
e.g. election to post or trustees.
name of any person or
body entitled to appoint
one or more trustees
**----- End of picture text -----**
## **Additional information (optional)**
You may choose to include further statements where relevant about:
**----- Start of picture text -----**
Policies and procedures
adopted for the induction Para 1.51
and training of trustees
The charity’s
organisational structure Para 1.51
and any wider network
with which the charity
works
Relationship with any Para 1.51
related parties
Other
**----- End of picture text -----**
## **Reference and Administrative details**
**----- Start of picture text -----**
Charity name ThymicUK
Other name the charity
uses
Registered charity 1193092
number
**----- End of picture text -----**
**----- Start of picture text -----**
Charity’s principal 69 Worcester Road
address London
E17 5QR
**----- End of picture text -----**
## **Names of the charity trustees who manage the charity**
**----- Start of picture text -----**
Name of person (or
Dates acted if not for body) entitled to
Trustee name Office (if any)
whole year appoint trustee (if
any)
Karen Ruddock Whole year
1
(chair)
2 Heidrun Bien Whole year
3 Oliver Neely Whole year
4 Marrika Colvin Whole year
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
**----- End of picture text -----**
Corporate trustees – names of the directors at the date the report was approved **Director name**
Name of trustees holding title to property belonging to the charity
**----- Start of picture text -----**
Trustee name Dates acted if not for
whole year
**----- End of picture text -----**
## **Funds held as custodian trustees on behalf of others**
Description of the assets N/A held in this capacity
Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements N/A for safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
**Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
|**Declarations**|**Declarations**||
|---|---|---|
|**The trustees declare that they have approved**||**the trustees’ report above.**|
|**Signed** **on behalf**|**of the charity’s trustees**||
|**Signature(s)**|||
|**Full name(s)**|Dr Heidrun Bien|Karen Ruddock|
|**Position (eg**
**Secretary, Chair, etc)**|Trustee - Secretary &
Treasurer|Chair & Trustee|
|**Date**|25.01.2023||