Country

England & Wales

Charity number

1192701

Status

Registered

Registered

Dec. 8, 2020

Legal form

CIO

Address

Contact

Phone

07540240626

Email

[email protected]

Website

ahcuk.org

Activities

To preserve and protect the physical and mental health of families and individuals affected by Alternating Hemiplegia of Childhood (AHC) and associated conditions by:- (a) Providing support and creating and maintaining communication channels between those persons who act as family carers and supporters so as to disseminate knowledge, experience and thereby promote both the health and quality o

Objects: The Objects Of The CIO Are:to Preserve And Protect The Physical And Mental Health Of Families And Individuals Affected By Alternating Hemiplegia Of Childhood (ahc) And Associated Conditions By:-(a) Providing Support And Creating And Maintaining Communication Channels Between Those Persons Who Act As Family Carers And Supporters So As To Disseminate Knowledge, Experience And Thereby Promote Both The Health And Quality Of Life Of Ahc Patients And Their Families;(b) Raising Awareness And Education Of The Medical Profession And Other Relevant Professionals (including But Not Limited To Psychologists, Care Workers, School Teachers, Therapists And Suchlike), Together With The General Public, On The Nature Of Ahc (and Associated Conditions) And Its Implication For Families;(c) Acting As An Advocate With Public Servants And Organisations Within The UK (other Than Those Included In Object 2) So As To Become The Voice Of Ahc Families;(d) Promoting, Encouraging And Facilitating Research Into The Diagnosis, Effective Management And Therapies, And Potential Curative Procedures; And(e) Establishing And Maintaining Close Links With Counterpart Organisations, Researchers And Such Like That Are Based Outside The United Kingdom, And To Disseminate The Growing Body Of Knowledge Into This Rare Condition Amongst Interested Persons And Parties Within The UK

Classification

How

Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research

What

Education/training, The Advancement Of Health Or Saving Of Lives, Disability

Who

Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind

Areas of operation

Region

Throughout England And Wales

Finances

Trustees

Nearby

• Biggin Hill Evening Women's Institute 0.0 mi
• The Chartwell Cancer Trust 0.1 mi
• The Chartwell Children's Cancer Trust CIO 0.1 mi
• New Life Church, Biggin Hill 0.1 mi
• Bless The Children (UK) 0.2 mi

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