CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELANocrric NAEVUS STATEMENT OF ACCOUNTS FOR THE YEAR ENDED 31ST MARCH 202 CARING MAThERS NOW UK CHARI￿ FOR THOSE AFFECTED BY CONGENITAL MELANocYfic NAEVUS Index Pago No. Trustees. Annual Rep￿1 Irmjependenl Examinèrfs Rewrt ststemert of Firrancial ActiVi￿S 8-11 REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2025 CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELANocYric NAEVUS The trustees for the year were: Trustees appointed on registration of the charity on W t)ecember 2020 Val Unsworth (Chair} lan Chance (Treasurer) Ruth Gold Trustees appolnted thereafter: Emma Robin5- Appointed 18 September 2021 Tracy Traverse-Burley- Appointed 18th September 2021 Kuhan Valleekanthan- Appointed 3 March 2022 Val Un5WOrth stepped down as charity chair on 161h November 2024 and was appointed as a board member by the remainln8 board of trustees. Tracy Traver5e-Burley was appolnted as chalr of tru5tee5 by the full board on 16 November 2024. Trustees are appointed by the board of trustees. Objectives and Artlvltles The objects of the CIO are: The relief of slckness and distress and the protection and preservation of the health of persons affected by CMN and their families and carers. in particular. but not restricted to: lal The advancement of the education of the medical profession and the general public into CMN and its Implications for the family* and Ibl The promotion of research into the causes. effects, treatments and management of CMN and to di55eminate the useful results the￿of. The charity activities to achieve this are: Grant applications and fundraising events Strong support Strategy forCMN members Training of our regional support contarts Host national. regional and age-specific support events across the UK Host online support events and community groups Production and distribution of CMN publlcations= Inspire Magazlne. support literature, medical booklet Productlon and distribution of CMN merchandise Raising the CMN profile through media & website Exhlbiting at international conferences to raise awareness of the condltion and the charity In setting objectives and plannlng activities, the trustees have given due consideration to the Charity Commission's general guidance on public benefit and in particular, to its supplementary public benefit guidance on the relief of those in need. by reason of ill-health or other disadvanta8e (physical di5figurementl. The charty's day-to-day operations are managed by a Chief ExecutNe, who is supported by 4 members of staff,. Head of Support. Head of Finance, Comms and Engagement Coordinator and Support Coordinator. The charity has a core group of volunteers who assist the stsff in delivering our support, fundraising and communications strategy. Achievements and PerfOrn￿nce Undertook a larger piece of work to restructure staff role5. Setting clear boundaries for each role which complement the newly recruited volunteerin8 roles. Recruited volunteers for key roles to support wider operational tasks within the charity. includin& merchandise. bulk mail-outs. graphic design, social media engagement and conference exhibitors. Continued to strengthen our brand awareness by enhancin8 our social media footprint. improving website content and producing new support materials and fundraising campaigns. Developed our Support Pathway ensuring tailored support is provided to all members. with speciflc focus on developing a Self-Advocacy Pack and Adult Support Guide. as well as updating the CMN medical booklet. Continued to host online communities for families affected by CMN. including a gaming community tailored to attract 'dads and lads,. a monthly baby & toddler group. new members meeting and our annual online research presentation. Hosted 8 regional support events across the UK, providing children. teenagers and adults with team- building activities to build friendships, share experiences and seek advice and support in a safe and relaxed setting. The events prowde parents with opportunities to share experiences and recetve expert advice from our support contsct team. The support contart team has continued to offer regional support to members across the UK. We have 24 support contacts based around the UK. Hosted our annual training and information day forourvolunteer team. The training day provided an opportunity for our support contacts to leam more akxjut the CMN research. to hear about charity developments. to partitipate in support training delivered by a professional counsellor, and to share their experien￿5 of providing support to members. Designed and produced our annual sUPPOrt magazine entitled INSPIRE. The magazine Is sent to all charty members and includes support advice. fundraising stories. charity news and research updates. Provided funding to advance the dedicated CMN ￿searCh at Great Om)ond Street Hospital, which has made huge headway into understanding the causes of CMN, and now working towards a ture. Continued to provide parents of a new-bom baby affected by CMN the opportunity to book an initial hour-long support consultation wtth the charitvs Support Pathway Practitioner. The consultation gives parents an invaluable opportunity to receive immediate advice, sUPPOrt and reassurance. Parents can book a support consultation by either emailing the charity or by calling our dedicated Support Helpline. Attended 3 medical conferences to raise awareness of CMN amongst Dem)atologists. Nurses and Midwives. Developed our fundraising strategy by developing regional fundraising webpages. Increased and maintained merchandise range to a55iSt with building brand awareness and to raise additional funds. Participated in the Rare Diseases Day Feb 2025 to raise the profile of CMN. Produced new Policies and Procedures, as well as reviewin8 current policie5 and procedures. Flnan¢ial Review The Charity spends its funds very carefully and always in accordance with relevant charity rules and legislation to support its 3 clear charitable aims- to support those affected by CMN, to fund CMN research, and to raise awareness at#)ut CMN. Support- We have prowded finan￿5 for supporting those affected by CMN. This included funding in-person and online support events along wlth printed support material. Awareness - We have funded awareness campaigns to raise the profile of CMN on a global scale. as well as attending national medical conferences to educate doctors, nurses and midwives about CMN. Research-Through grants recerved and research donations, we have been able to fund the pioneering research undertaken by Professor Kinsler and her team. In the current year, grants were made to University College London to the value of £138,03812024 £170.750}- The charity doe5 not investfunds outside of the nomial banking facilities. Thetrustees review financial requirements and in doing so, areas of activity. funding sources, future need5, Opportunities. contingencies, and risks are all du￿ considered. Resekyes Pollcy The level of reserves is reviewed annual against the charity expenditure. The cash reserve policy is to remain at £75,LKIO. These funds are invested in 3 month and 9 month fixed term accounts. Tru5tees' Responsibilities Statement The trustees are responsible for preparing the Trustees, Annual Report and the finanoal statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Prartice). The law applicable to chorities in England & Waks requires the trustee5 to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of the charity for that period. In preparing these financial statements. the trustees are required to: select suitable accounting policies and then appty them consistently: observe the methods and principles in the Charities SORP 2019 IFRS 1021- make judgements and estimates that are reasonable and prudent; state whether applicable accountin8 stsndards have been followed. subject to any material departures disclosed and explained in the financial statements- prepare the financial statements on the going concem basis unless it is inappropriate to presume that the charity will continue in operation. The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial posttion of the charity and enable them to ensure that the financial statements complyvlith the CharitiesAct 2011, the Charities (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hentr for takin8 reasonable steps for the prevention and detection of fraud and other irregularities. Bank Account5 The Charity's bankers are- Charities Aid Foundation Flagstone The Independent Examiner is K F Green, trading asTacconi Green & Co. Approved by the trustees and signed on their behalf by: lan Chance (Trustee l Treasurer) Dated: INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELAN0c￿1c NAEVUS I report to the chartty trustees on my examination of the accounts of th8 charity for thg ygar ended 31st March 2025 which are sel out on pages 6 to 10. Responslbllltles and basls of report As Ihe charily's trustees you are restK>nsSble for the preparallon of the accounts In accord8nce wrth the requirements of the ChaTllles Act 2011 Ilhe Acl'l. I rèport in respect of my examination of the charSVs a¢¢ounls carritrd out under section 145 of the Act and in carrying out my ex8rnination I have followed 811 the applicable Directions given by the Charity commis￿on under section 1451SXb) of th8 Act. Independent examlnerf$ statemont Since the charitys gTOSS Income exeeeded £250.[￿j0 your examlner musl be a member of a body1Ssled in section 145 of the Act. I confirm that l am quallfled to undertake the examination because l am member of th8 Association of Accounting Technicians. whlch Is one of the Ilsl&d bodSes. I have completed my examination. l eonfirm th81 no material matters have come to my attention in connection with tha gxaminalion giving ma causè to bÈli¢v$ that in 8ny rnalerial respect.. a￿OUntIng records were not kept In respect of the charity as required by section 130 of the Act- or 2. the accounts do not &C￿rd with those records.. or 3. the accounts do not Comply ￿th the appllcable requliernenls conceming the form and content of the accounts sel oui in th$ Charities {Accounts and Reports) Regujallons 2008 other than any requirement that the accounts give 8 Irua and f8ir vieW which is not a matter considered 8S Part of an independent exarninalion. I have no concerns and have ec*me across no other m8tters in connection with thè examination to which attention should be drawn In this report in Qfde¥ lo enable a proper understandlng of the accounts lo be reached. K F Green IFMAATI 328 East street Sl. Ives Cambs PE27 5PD Dated.. CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELANocYfic NAEVUS TATEMENT F FINANCIAL ACTIVITIES FOR THEYEAR ENDED 31ST MARCH 202 Unr8strlct•d Restrlctod Fund• Funds Totsl 2024 INCOME Donatlons Grants FundTaislng events Caring Matters Now events Other incom8 Interest recdved 13.031 13,037 229,397 105,212 29,508 18,212 18,392 17,009 160,000 21.125 29,075 16.147 21,389 229,397 46,356 250 58,856 29,258 18,212 18,392 TOTAL INCOME 137,750 276.009 413,759 264.744 EXPENDITURE Support costs Awareness eosl$ Research costs Fundraising costs Govemance costs 30,748 18,463 7,156 27,231 34,400 50,955 12,107 149.937 81,704 30.570 157.094 27,231 43,935 74,446 21,6S6 180.582 23,408 46.833 9.535 TOTAL EXPENDITURE 117,999 222,534 340,$33 346.926 SurpluslLoss for the year 19.751 53,475 73,226 181182) Transfor b•tw88n funds A¢¢urnulaled Fund brought foTW8rd 267,363 149,823 417,185 499,367 Accumulatsd Fund carrled forward 287.114 203.298 490.411 417.185 ING MATTERS NOW UK E AFFECTED BY CONGENITAL MELAN CHARITY F THO ICNA BALANCE SHEET AS AT 31ST MARCH 2025 Unrestricted Restricted Fund8 Funds Totsl 2024 Note Flxed Assets Tangible ass$ts 2,572 1572 3A29 2.572 1572 3.429 Currènt Assets Dabtors Cash at bank & in hand 17.612 270,262 17.612 473.559 3.601 413.153 203.298 Total Current Assets 287.B73 203.298 491,171 416.753 Less Current Llabllltlos cr￿lIOTS {3,3311 (3.331) 12,9971 Net Curront Assets 284.S42 203.298 487.839 413.756 Total Assets 287.114 203.298 490.411 417.185 Represented by Income Fund$ Unrethctgd *Jnds Reslrt¢led funds 287,114 287.114 203.298 267,362 149,823 203.298 TOTAL 287.114 203.298 4￿,411 417 185 These accounts were approvemirrfJ r850urc8s from tax redaims are n th8 SOFA at the sam• tim8 as the grft to whlch they rdate. ExpendltUTg Liabilrtios are recognised as exp￿ditUre as s￿n as there is a W or ionstruc*ve obligation cxjmmitbng the charity lo that expenditu￿, it is Probab￿ that a transfer of econornic b8nèfils will bè uired in 5*Uem8ni and thè arI￿ni tsfthe oblwJatM can be N￿sure¢ rdiabty. Expenditure ks aecountad for on an accnJaL8 basis anl has been da$$ff￿d under headings that aggwate all cost ted to category. Where cx)sts cannol be directy attributed to parD(JJlar head1r￿S they have Tangible fixed assets Tangible fixed assets arè w)rfialty at cost aThJ subw]uanUy measur*J at o)st or valuation. net of dewetiation. Depwal*)n is prov￿￿ at Ihe folo*YKJ anThJal fates in Ord￿ to vrtiteoff eath asset over its esilmated useful Irf*. Computèr w4uipment . 25% on reducing ba8nr* Fund accoun￿n9 Unreslrthd funds ¢an ￿ usad in accoTdanc8wilh th8 th¥$tab￿ obj.ths at Ihg d￿cre￿n ofthè trLtstees. Restricted fvnds I￿￿ onty be used for part￿ular restn.cted purpos&8 t•Athln the obje¢ts of the charity. Restrithns aris8 whèn $￿Ified by the th)Th)r ￿ Wh￿ funds are raised for particular restricted pvrpos8s. Taxation The chaity is exempt fr(Mn lax(m its ¢harilatAe a0*￿. CARING MA￿Rs NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELANocYnc NAEVUS TES TO THE ACCOUNTS FOR THE Y ENDED 31ST M 025 Notè TRUSTEES. REMUNERATION AND BENEFThS There V•we no trustee8' rgmuner8t1￿ orother beneffts forthe year end￿1 31st March 2025. nor for the prevwjus year ended 31st March 2024. Trustees. exp•nses 2024 T￿)8 of expenM8 relmbursed 2025 Travel Subsistonce Accommodation Other leasé G)ft for s¢rwn 300 tK)ar(I member 27 327 49 1268 TOTAL Number oftrutyt￿ r•imbursed for ¢xpen88s STAFF COSTS The average monlhly number ofern￿o￿ during lh8 yearw85 as f￿ltr￿.. 2025 2024 No ernplows received emoluments in excess of £60,CrfXI. FEES FOR INDEPENOETr￿ EXAMINATION OF ACCOUNTS 2025 2024 Independent examinerfs fees for reporting on the accounts CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELAN0c￿1c NAEVUS NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 31ST H 2025 Note GRAKrs Grants to Instltutlons Grants to Indlvlduals Pur ose for whiGh Research rants mad¢ 138,038 Total 138,038 Grants made to iMtitutions Names of Institutions Pu $9 Total amount of Universi e LorKJon Research Total grants to Institutions 138,038 TANGIBLE FIXED ASSETS Computer Equipment As at 1 st Awil 2024 Additions Diswsals 6.124 As at 31st March 2025 6.124 Dopr•ciation As at 1 st Apnl 2024 Charge for the year On disp05als 2,695 857 As at 31 sl Marth 2025 3.552 Net Book Value As at 31st March 2025 2.572 Net Book Value As al 31st March 2024 3.429 DEBTORS 2025 2024 Trade debtors Grant due from R Gold Gtft Aid 12,612 3.601 17.612 3,601 10 CARING MAThERS NOW UK CHARITY FOR THOSE AFFECTED BY CONGENITAL MELAN0c￿1c NAEVUS NOTES TO THE ACCOUNTS FOR THE YEAR E T MARCH 2025 Note CREDrroRS 2025 2024 PAYE creditor Other creditors Accruas 2,441 1.997 160 3,331 2.997 MOVEME￿ IN FUNDS Nel movement in funds At 1.4.24 Al 31.3.25 Unrestrictgd fvnds 267.363 19,751 287,114 Restri¢tgd funds 149.823 53,475 203,298 TOTAL FUNDS 417 185 73,226 Net movement in funds, inckjded in the atx)ve are as fdlows: Incoming resources RescNJrce5 expènded Gains & 105ses Movement in funds Unrestricted funds 137,750 1117.999) 19.751 Restrictad funds 276.009 1222.534) 53.475 TOTAL FUNDS 413 759 73,226 11