REGISTERED CHARITY NUMBER: 1192441
Report of the Trustees and
Unaudited Financial Statements
for the Year Ended 31st March 2025
for
HOPE FOR PAEDIATRIC EPILEPSY LONDON
HOPE FOR PAEDIATRIC EPILEPSY LONDON
Contents of the Financial Statements for the year ended 31st March 2025
| Page | |
|---|---|
| Report of the Trustees | 1 to 3 |
| Independent Examiner's Report | 4 |
| Statement of Financial Activities | 5 |
| Balance Sheet | 6 |
| Notes to the Financial Statements | 7 to 9 |
| Detailed Statement of Financial Activities | 10 |
HOPE FOR PAEDIATRIC EPILEPSY LONDON
Report of the Trustees for the year ended 31st March 2025
The trustees present their report with the financial statements of the charity for the year ended 31st March 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives and aims
The charity's key objective is to preserve and protect the physical and mental health of children and young people living with epilepsy and their parents and families, through the provision of support, education, recreational activities, and practical advice.
HOPE for Epilepsy was formed in November 2011 and began running Family Support Sessions in January 2012 after it was identified by a parent of a child with complex epilepsy that there were no support groups in the Greater London area for families affected by epilepsy. Having a child with epilepsy, as well as any other additional needs, can be extremely isolating and overwhelming, and can affect the whole family.
HOPE for Epilepsy provides a safe space for families to socialise, reduce isolation, build relationships, shareinformation, access support and guidance, and most importantly for children to have some fun!
With the support of our volunteers, children are encouraged to explore the various facilities we have available. These include a soft play room, craft tables, and an adapted playground with climbing frames, trikes, and various outdoor games. We provide an information table with lots of relevant literature for parents and carers to take home and read at their leisure.
HOPE for Epilepsy is run by parents and carers of children with epilepsy who have, over the years, gained a lot of knowledge and experience regarding the care of their child and the support that is available to families. Alongside parents, HOPE for Epilepsy has gained on its board of Trustees and Advisors a number of professionals from the fields of education, medicine, and academia who specialise in epilepsy.
HOPE for Epilepsy also donates anti-suffocation pillows and seizure alert monitors to children and young people under the age of 19 who suffer from nocturnal convulsive seizures. HOPE for Epilepsy also hosts a telephone adviceline and offers support over email too.
Public benefit
The Trustees take full account of the published Charity Commission general guidance on public benefit and are satisfied that the aims of the charity are carried out wholly in pursuit of its charitable aims for the public benefit.The charity's provision of support, advice and free specialist pillows are of measurable benefit to individuals.
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Report of the Trustees for the year ended 31st March 2025
ACHIEVEMENTS AND PERFORMANCE
Charitable activities
During 2024-2025, we continued to host our monthly Family Support Sessions in Oakleigh School in Whetstone, London. The Trustees would like to thank the school for their continued support. We were delighted to have Morrisons in Enfield support us by supplying refreshments for our support sessions, and we have had Therapy Dogs Nationwide regularly attend our sessions.
Over the course of the year, we have held several HOPE Family Support Sessions, which have been well attended. Various children's entertainers have been in attendance, including a live pantomime performance at our Christmas session. Some vital 'R and R' activities for parents and carers, including access to free massages and manicures.
HOPE for Epilepsy continues to provide helpful resources for parents, including question-and-answer sessions and informative talks given by epilepsy specialists associated with HOPE for Epilepsy.
In November, we celebrated our charity’s 13-year anniversary, and December saw the charity host its 9th annual Christmas Party, attended by two local Members of Parliament and a London Assembly member, as well as Santa Claus.
HOPE for Epilepsy continued to donate anti-suffocation pillows in record numbers, and seizure alert monitors. HOPE volunteers also continue to knit and crochet HOPE Teddy Bears for our younger beneficiaries. Lots of children attended Barrie Wells Events, and we continue to have a close relationship with this organisation.
The charity was a finalist in the Third Sector Awards in 2024 in the Small Charity of the Year category. HOPE for Epilepsy also established our first-ever Young Ambassador programme, with the help of 5 young people who are helping us create resources and support from a lived experience to help not just fellow young people but also their families.
Fundraising activities
The charity is very grateful for the support of its grantors, which this year included a major grant from Angelini Pharma, an employee-based scheme from Virgin Unite Local Legends, and a second grant from National Lottery Awards for All.
We would also like to thank and acknowledge Jenton International for their continued support.
Further funds were raised by the annual Summer and Christmas raffle, which continues to be well supported. We have been fortunate to have many individual fundraisers this financial year, doing a variety of fundraising, asking family and friends for donations, and organising school fundraising activities. This generous support makes a massive difference to HOPE for Epilepsy, and we would like their efforts to be acknowledged through our Trustee Report.
The charity is dependent on its donations, and the Trustees would like to thank all donors for their generosity.
FINANCIAL REVIEW
Going concern
The charity has secured funding and holds sufficient reserves to continue to operate for at least the next 12 months from the date of this report.
FUTURE PLANS
The charity continues to seek further funding opportunities which will enable it to further assist its users, either through the implementation of support services or the provision of free pillows.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing document
The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.
REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number
1192441
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Report of the Trustees for the year ended 31st March 2025
Principal address Oakleigh School Oakleigh Road North London N20 0DH
Trustees
Dr N Gurr Dr S Bennett A Cox A Ryan Dr A Wood L Miller A Holderness Dr C Steward L O'Brien S Hughes
Approved by order of the board of trustees on ..........16th November 2025..................... and signed on its behalf by:
........................................................................ Dr N Gurr - Chair of Trustees
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Independent Examiner's Report to the Trustees of Hope for Paediatric Epilepsy London
Independent examiner's report to the trustees of Hope for Paediatric Epilepsy London
I report to the charity trustees on my examination of the accounts of Hope for Paediatric Epilepsy London (the Trust) for the year ended 31st March 2025.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or
-
the accounts do not accord with those records; or
-
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Patrick duCasse ACA
The Institute of Chartered Accountants in England and Wales
16 November 2025 Date: .............................................
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Statement of Financial Activities for the year ended 31st March 2025
| 31.3.25 | 31.3.24 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | fund | funds | funds | ||
| Notes | £ | £ | £ | £ | |
| INCOME AND ENDOWMENTS FROM | |||||
| Donations and legacies | 10,093 | 51,100 | 61,193 | 72,777 | |
| Investment income | 2 | 756 | - | 756 | 487 |
| Total | 10,849 | 51,100 | 61,949 | 73,264 | |
| EXPENDITURE ON | |||||
| Charitable activities | |||||
| Charitable activities | 19,832 | 59,258 | 79,090 | 33,633 | |
| NET INCOME/(EXPENDITURE) | (8,983) | (8,158) | (17,141) | 39,631 | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 16,564 | 46,568 | 63,132 | 23,501 | |
| TOTAL FUNDS CARRIED FORWARD | 7,581 | 38,410 | 45,991 | 63,132 | |
The notes form part of these financial statements
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Balance Sheet 31st March 2025
| 31.3.25 | 31.3.24 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | fund | funds | funds | ||
| Notes | £ | £ | £ | £ | |
| CURRENT ASSETS | |||||
| Cash at bank | 7,581 | 38,410 | 45,991 | 63,132 | |
| NET CURRENT ASSETS | 7,581 | 38,410 | 45,991 | 63,132 | |
| TOTAL ASSETS LESS CURRENT LIABILITIES | 7,581 | 38,410 | 45,991 | 63,132 | |
| NET ASSETS | 7,581 | 38,410 | 45,991 | 63,132 | |
| FUNDS | 5 | ||||
| Unrestricted funds | 7,581 | 16,564 | |||
| Restricted funds | 38,410 | 46,568 | |||
| TOTAL FUNDS | 45,991 | 63,132 | |||
The financial statements were approved by the Board of Trustees and authorised for issue on ........16th November 2025...................... and were signed on its behalf by:
.............................................
Dr Nadine Gurr - Chair of Trustees
The notes form part of these financial statements
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Notes to the Financial Statements for the year ended 31st March 2025
1. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Taxation
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
2. INVESTMENT INCOME
| INVESTMENT INCOME | ||
|---|---|---|
| 31.3.25 | 31.3.24 | |
| £ | £ | |
| Deposit account interest | 756 | 487 |
3. TRUSTEES' REMUNERATION AND BENEFITS
Trustees are not remunerated.
continued...
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Notes to the Financial Statements - continued for the year ended 31st March 2025
3. TRUSTEES' REMUNERATION AND BENEFITS - continued
Trustees' expenses
£836 was reimbursed for directly incurred travel expenses to three trustees.
4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted Restricted fund fund £ £ INCOME AND ENDOWMENTS FROM Donations and legacies 12,630 60,147 Investment income 487 - Total 13,117 60,147 EXPENDITURE ON Charitable activities Charitable activities 20,054 13,579 NET INCOME/(EXPENDITURE) (6,937) 46,568 RECONCILIATION OF FUNDS Total funds brought forward 23,501 - TOTAL FUNDS CARRIED FORWARD 16,564 46,568 |
Total funds £ 72,777 487 73,264 33,633 39,631 23,501 63,132 |
|---|---|
5. MOVEMENT IN FUNDS
Unrestricted
Unrestricted funds are available to be spent for any purposes of the charity.
Restricted
The restricted fund holds the income remaining from grants received that have been expressly intended to cover expenditure on pillows or epilepsy alarms.
continued...
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
Notes to the Financial Statements - continued for the year ended 31st March 2025
6. RELATED PARTY DISCLOSURES
There were no related party transactions for the year ended 31st March 2025.
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HOPE FOR PAEDIATRIC EPILEPSY LONDON
| Detailed Statement of Financial Activities | |||
|---|---|---|---|
| for the year ended 31st March 2025 | |||
| 31.3.25 | 31.3.24 | ||
| £ | £ | ||
| INCOME AND ENDOWMENTS | |||
| Donations and legacies | |||
| Donations | 10,093 | 6,003 | |
| Grants | 51,100 | 66,774 | |
| Investment income | 61,193 | 72,777 | |
| Deposit account interest | 756 | 487 | |
| Total incoming resources | 61,949 | 73,264 | |
| EXPENDITURE | |||
| Charitable activities | |||
| Sundries | 201 | 261 | |
| Pillows | 24,830 | 21,886 | |
| Event costs | 17,490 | 7,870 | |
| Travel | 567 | 838 | |
| Office costs | 271 | 770 | |
| Alarms | 34,428 | 777 | |
| Support costs | 77,787 | 32,402 | |
| Management | |||
| Insurance | 162 | 156 | |
| Advertising | 1,141 | 566 | |
| Information technology | 1,303 | 722 | |
| Website costs | - | 509 | |
| Total resources expended | 79,090 | 33,633 | |
| Net (expenditure)/income | (17,141) | 39,631 | |
This page does not form part of the statutory financial statements
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