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2024-03-31-accounts

REGISTERED CHARITY NUMBER: 1192441

Report of the Trustees and

Unaudited Financial Statements for the Year Ended 31st March 2024

for

HOPE FOR PAEDIATRIC EPILEPSY LONDON

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Contents of the Financial Statements for the year ended 31st March 2024

Page
Report of the Trustees 1 to 3
Independent Examiner's Report 4
Statement of Financial Activities 5
Balance Sheet 6
Notes to the Financial Statements 7 to 9
Detailed Statement of Financial Activities 10

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Report of the Trustees for the year ended 31st March 2024

The trustees present their report with the financial statements of the charity for the year ended 31st March 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

The charity's key objective is to preserve and protect the physical and mental health of children and young people living with epilepsy and their parents and families, through the provision of support, education, recreational activities and practical advice.

HOPE London started in January 2012 after it was identified by a parent of a child with complex epilepsy that there were no support groups in the Greater London area for families affected by epilepsy. Having a child with epilepsy as well as any other additional needs can be extremely isolating and overwhelming and can affect the whole family.

HOPE London provides a safe space for families to socialise, reduce isolation, build relationships, share information, access support and guidance and most importantly for children to have some fun!

With the support of our volunteers, children are encouraged to explore the various facilities we have available. These include a soft play room, bouncy castle, craft tables and adapted playground with climbing frames, trikes and various outdoor games.

HOPE London is run by parents and carers of children with epilepsy who have over the years gained a lot of knowledge and experience regarding the care of their child and the support that is available to families. We provide an information table with lots of relevant literature for parents and carers to take home and read at their leisure.

Hope for Epilepsy London also supplies pillows to young people with epilepsy living in the London area for free.

Public benefit

The Trustees take full account of the published Charity Commission general guidance on public benefit and are satisfied that the aims of the charity are carried out wholly in pursuit of its charitable aims for the public benefit.The charity's provision of support, advice and free specialist pillows are of measurable benefit to individuals.

ACHIEVEMENT AND PERFORMANCE

Charitable activities

In 2022 we continued to host our monthly support Hope sessions in Oakleigh School in Whetstone, London. The Trustees would like to thank the school for their continued support. We were delighted to have Warburton Bakers in Enfield support us by supplying refreshments for our support sessions, and we have had Therapy Dogs Nationwide regularly attend our sessions.

Over the course of the year we have held several Hope sessions which have been well attended. Various childrens' entertainments, such as bubble entertainers, graffiti artists and art therapies, have been provided, as well as some vital 'R and R' activities for parents and carers. Hope continues to provide helpful resources for parents, including face to face training.

In November we celebrated our charity’s 11 year anniversary and December saw the charity host its 8th annual Christmas Party. This was enjoyed by over 30 Hope families.

In addition, two fantastic day trips were organised for our Hope families to London Zoo and Legoland Windsor.

175 pillows were donated during the financial year, along with 10 Hope teddy bears. Lots of children attended Barrie Wells Events whilst a Hope family enjoyed a weekend break with the Landmark Trust.

The charity proudly became a member of UK Rare Epilepsies Together (UKRET), a NICE stakeholder and was nominated for a National Diversity Award.

Page 1

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Report of the Trustees for the year ended 31st March 2024

ACHIEVEMENT AND PERFORMANCE

Fundraising activities

The charity is very grateful for the support of its grantors, which this year included Skipton Building Society and The Worshipful Company of Grocers. In addition, the charity received £8,111 in donations, which included £2,500 from Fable, a Sheffield based epilepsy charity that was ceasing its operations.

Further funds were raised by the annual Christmas raffle, which continues to be well supported.

The charity is dependent on its donations and the Trustees would like to thank all donors for their generosity.

FINANCIAL REVIEW

Going concern

The charity has secured funding and holds sufficient reserves to continue to operate for at least the next 12 months from the date of this report.

FUTURE PLANS

The charity continues to seek further funding opportunities which will enable it to further assist its users, either through the implementation of support services or the provision of free pillows.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.

REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number

1192441

Principal address

Oakleigh School Oakleigh Road North London N20 0DH

Trustees

Dr N Gurr Dr S Bennett A Cox P du Casse (resigned 19.2.24) A Ryan Dr A Wood L Miller A Holderness Dr C Steward L O'Brien (appointed 21.6.23) S Hughes (appointed 15.12.23)

Independent Examiner

John Millidge ACA 60 Campion Close Croydon CR0 5SN

Page 2

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Report of the Trustees for the year ended 31st March 2024

Approved by order of the board of trustees on . ~~............................................~~ 9 January 2025 and signed on its behalf by:

........................................................................ Dr N Gurr - Trustee

Page 3

Independent Examiner's Report to the Trustees of Hope for Paediatric Epilepsy London

Independent examiner's report to the trustees of Hope for Paediatric Epilepsy London

I report to the charity trustees on my examination of the accounts of Hope for Paediatric Epilepsy London (the Trust) for the year ended 31st March 2024.

Responsibilities and basis of report

As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').

I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

John Millidge ACA 60 Campion Close Croydon CR0 5SN

Date: ............................................. 9 January 2025

Page 4

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Statement of Financial Activities for the year ended 31st March 2024

31.3.24 31.3.23
Unrestricted Restricted Total Total
fund funds funds funds
Notes £ £ £ £
INCOME AND ENDOWMENTS FROM
Donations and legacies 12,630 60,146 72,776 14,690
Investment income 2 487 - 487 112
Total 13,117 60,146 73,263 14,802
EXPENDITURE ON
Charitable activities
Charitable activities
20,054 13,579 33,633 12,791
NET INCOME/(EXPENDITURE) (6,937) 46,567 39,630 2,011
RECONCILIATION OF FUNDS
Total funds brought forward 23,501 - 23,501 21,490
TOTAL FUNDS CARRIED FORWARD 16,564 46,567 63,131 23,501

The notes form part of these financial statements

Page 5

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Balance Sheet 31st March 2024

31.3.24 31.3.23
Unrestricted Restricted Total Total
fund funds funds funds
Notes £ £ £ £
CURRENT ASSETS
Cash at bank 16,564 46,567 63,131 23,501
NET CURRENT ASSETS 16,564 46,567 63,131 23,501
TOTAL ASSETS LESS CURRENT LIABILITIES 16,564 46,567 63,131 23,501
NET ASSETS 16,564 46,567 63,131 23,501
FUNDS 5
Unrestricted funds 16,564 23,501
Restricted funds 46,567 -
TOTAL FUNDS 63,131 23,501

The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by: 9 January 2025

.............................................

N Gurr - Trustee

The notes form part of these financial statements

Page 6

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Notes to the Financial Statements for the year ended 31st March 2024

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Taxation

The charity is exempt from tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

2. INVESTMENT INCOME

INVESTMENT INCOME
31.3.24 31.3.23
£ £
Deposit account interest 487 112

3. TRUSTEES' REMUNERATION AND BENEFITS

Trustees are not remunerated.

continued...

Page 7

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Notes to the Financial Statements - continued for the year ended 31st March 2024

3. TRUSTEES' REMUNERATION AND BENEFITS - continued

Trustees' expenses

£836 was reimbursed for directly incurred travel expenses to three trustees.

4. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
Unrestricted
fund
£
INCOME AND ENDOWMENTS FROM
Donations and legacies 14,690
Investment income 112
Total 14,802
EXPENDITURE ON
Charitable activities
Charitable activities
12,791
NET INCOME 2,011
RECONCILIATION OF FUNDS
Total funds brought forward 21,490
TOTAL FUNDS CARRIED FORWARD 23,501

5. MOVEMENT IN FUNDS

Unrestricted

Unrestricted funds are available to be spent for any purposes of the charity.

Restricted

The restricted fund holds the income remaining from grants received that have been expressly intended to cover expenditure on pillows or epilepsy alarms.

continued...

Page 8

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Notes to the Financial Statements - continued for the year ended 31st March 2024

6. RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 31st March 2024.

Page 9

HOPE FOR PAEDIATRIC EPILEPSY LONDON

Detailed Statement of Financial Activities
for the year ended 31st March 2024
31.3.24 31.3.23
£ £
INCOME AND ENDOWMENTS
Donations and legacies
Donations 6,002 8,111
Grants 66,774 6,579
72,776 14,690
Investment income
Deposit account interest 487 112
Total incoming resources 73,263 14,802
EXPENDITURE
Charitable activities
Sundries 261 130
Pillows 21,886 2,659
Event costs 7,870 7,263
Room hire and meeting costs - 978
Travel 838 289
Office costs 770 429
Gifts and donations - 451
Alarms 777 -
32,402 12,199
Support costs
Management
Insurance 156 152
Advertising 566 282
722 434
Information technology
Website costs 509 158
Total resources expended 33,633 12,791
Net income 39,630 2,011

This page does not form part of the statutory financial statements

Page 10