TRUSTEE ANNUAL REPORT
01/04/2022 - 31/3/2023
ADMINISTRATIVE DETAILS
Trustees Sue Morgan Chair of Trustees Steven Walder Treasurer Elizabeth Hirst Head of Safeguarding David Shaw Secretary
REGISTERED CHARITY NUMBER
1192034
REGISTERED ADDRESS
Mind Over Cancer PO Box 290 ROYSTON SG8 1FP
ACCOUNTANT
Adrian Winter FCCA (Partner) Taylor & Co Chartered Certified Accountants The Sycamores 43 Kneesworth Street Royston Herts SG8 5AB
BANKERS
CAF BANK 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ
STRUCTURE, GOVERNANCE AND MANAGAMENT
Mind Over Cancer is a Charitable Incorporated organisation where the only voting members are its charity trustees. It is governed by a foundation model constitution.
Registered charity 1192034
APPOINTMENT OF CHARITY TRUSTEES
Apart from the first charity trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity trustees.
In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed.
A MESSAGE FROM OUR CHAIR OF TRUSTEES
This has been another year of uncertainty in the charity world. The pandemic has been declared over, but the economy is now in crisis and the cost of living has increased, and grants have many more applicants. For us, this means that finding funding is a daily challenge. Yet, despite all of this, this small charity has provided support to over 50 individuals and changed lives in the process. I am very proud of the determined way in which the founder and the trustees have been able to rise to the challenges and continue to grow.
This year we were joined by a fundraiser, who has helped with writing grant applications, which has yielded results. We have also been joined by three dynamic Patrons, who will help us to raise our profile, and in doing so bring in extra funding.
Young people who have, or have had cancer, and their families, often struggle to come to terms with what has happened; this can be years later. They need and require support to move forward. We know this, and we know what can help them – and this is what we provide.
This coming year, we aim to explore other avenues for working with the NHS providers so that we can spread the service wider. We know these are small steps, but we are committed to doing this.
OBJECTIVES AND ACTIVITIES
To promote and protect the mental health of those who have been diagnosed with cancer aged up to 29, and their families/support network, by providing or assisting in the provision of a counselling service and mental health support programme. A service that can be accessed at any time of their life.
The service is available to all families living with a childhood or young adult cancer diagnosis from 0 - 29 years. We know that living with cancer as a child or young adult has an impact on both the patient and their support network both during treatment and for some, many years later. The impact of late effects from treatment along with everything that they have witnessed and experienced, is something that can have a lasting effect on the patients and those around them. This service not only offers support during treatment but more importantly later in their lives when many issues may emerge and impact on people’s day to day living and general mental health. A cancer diagnosis and experience stay with the patient and the support network long after treatment has finished, which is why it’s important to support everyone at the time that they need it.
The service brings together groups of people who share the same experiences, mums sharing with mums, dads with dads, patients at different stages of life. They are given a safe and trusted space to talk, listen and process. We create a virtual place for people to talk and support each without the worry of postcodes and travel.
Talking therapy can have a massively positive impact on people’s mental health and wellbeing. Counselling allows people to recover from episodes of poor mental health and we hope in many cases avoiding getting to crisis point and thus saving lives. We encourage people to re-join their community, feel a sense of control and happiness without judgment about what they’ve been through.
We are the only cancer charity to offer this lifelong support to this specific group of people.
Registered charity 1192034
OUR ACHIEVEMENTS
Service delivery
We are very proud to say that we have been able to provide support to 52 users over the past year (Figure 1), the majority are young people, but we are encouraged to see other family members taking up the offer. We hope that this will increase year on year. This has been against a background of reduced income, meaning that we needed to pause recruitment, other than urgent cases, until further funds came in.
We have been able to demonstrate that there is a need for this service, so we hope that we are now able to attract more funding.
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Service Users
01/04/2022 - 31/03/2023
1, 2%
1, 2%
3, 6%
Young People
11, 21%
Parents/carers
36, 69% Siblings
Partners
Bereaved parent
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Figure 1.
We have provided 500 hours of support over the last year (Fig 2). The majority of this has been through 1:2:1 counselling. This is an online service where we refer the user to an established counselling service, which is separate from the charity. We gain feedback after the sessions have completed (they are offered 10) and the evaluation has been positive. If at any time the counsellor and the user feel that they don’t work well together, then we are open and honest and help them to find the best fit with another counsellor.
There is a drop-in service where anyone can book a session to speak to a qualified counsellor for a one-off session, this might be to off-load and discuss any possible triggers. There is a high number of young people who have completed 10 sessions of counselling who are accessing this service, as well as people who are yet ready to commit to regular counselling. We also offer online support groups which have been well attended and evaluated. These are largely attended by young people who have been off treatment for a long time. Indeed, this is a trend we are seeing across the whole service (Fig 3)
Registered charity 1192034
Figure 2
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A total of 500 hours of support given from
01/04/2022 - 31/03/2023
16, 3%
14, 3%
Support groups
Drop-in support
1:2:1 counselling
470, 94%
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Registered charity 1192034
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Access to the service - time of diagnosis
16
8 7
4 4 2 0 1 1 1 1 1
YOUNG PEOPLE PARENTS/CARERS SIBLINGS PARTNERS BEREAVED PARENT
On treatment Off tx 0 - 12mo Off tx 1-4 yrs Off tx 4yrs + Bereaved
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Figure 3
NHS relationships
We continue to have a strong relationship with the Paediatric, TYA and adult teams at Addenbrookes hospital and receive referrals from the multi-disciplinary team across the region. This is a model we have worked hard to develop and will become the template for other centres across the UK when we roll out the support.
We have Principal Treatment Centres across the NHS waiting to work with us, they are The Royal Marsden, Birmingham, and London hospitals. We require funding to do this robustly, and we are working to secure funding for these areas.
We continue to play an active role in the East of England Cancer alliance working group for TYA psychological support.
Engaging with other charities
We are very proud to be the charity mental health partner to the Ellen MacArthur Cancer Trust. We are excited to be working with them to achieve their Ambitions for the next 3 years with their mental health and wellbeing agenda.
We continue to work closely with national and local charities to deliver the support to individuals in need of our support, working with the needs of each area.
Working groups
We have become a member of the CYPC (Children’s & Young People’s Cancer Coalition).
FINANCIAL REVIEW
Grants - We have had successful grant applications from the following organisations, TNL community fund and St James Place Charitable Trust.
Community – We have seen an increase in our community fundraising and we start the next year engaging with more community groups.
Registered charity 1192034
Supporters
We continue to grow our community support through local events via families, schools, and colleges. This year we have been proud to announce our 3 patrons:
Remi Rough – a renowned artist from Peckham, South London. Remi has been creating powerful graffiti inspired abstract compositions and large-scale murals for over 35 years. His incredible talent has meant he has exhibited at galleries and cities across the world, including New York, Paris, Los Angeles, Tokyo, and Hong Kong, and most recently featured in the summer exhibition at The Royal Academy of Arts in London. Remi is also an accomplished music producer and rapper and one half of hip hop art duo TheDeadCanRap. Remi intends to use his artistic talent to help with the charity’s fundraising and spread awareness of its free mental health services which support current and former cancer patients.
Anna and Richard Park - Anna Park is the well-known owner/retailer of the Anna chain of shops in Norfolk, Suffolk, Essex, and London. She is resident in Burnham market where she opened her first store 30 years ago. She launched her own clothing brand, Primrose Park which has customers around the globe. Her headquarters are now in Primrose Hill, London.
Richard has been associated with radio, tv and music successfully for many years. He has run radio stations including Heart, Capital and LBC and was voted most important person in the music industry during his time on BBC show Fame Academy.
Anna and Richard are delighted to have joined the team at Mind Over Cancer and are already determined fund raisers. They understand our mission clearly.
All three of our Patrons bring enthusiasm, passion, and support to Mind Over Cancer and are keen to explore ways of supporting the charity.
GIFT IN KIND RECEIVED
We continue to have our website hosted by Flock design/Angel Fernandez with no charge to the charity.
RISKS IDENTIFIED
All risks are recorded via the risk register and reviewed bi-monthly via the Trustees Meetings – Risk Agenda item.
The major risks are as identified below and currently mitigated to a safe, manageable level
Inability to generate sufficient income to deliver services – reviewed on a quarterly basis via Trustee meetings.
Operational Risks (Staffing) – Reviewed bi-monthly via Trustee meetings. Compliance with GDPR – GDPR policy in place to manage this – reviewed annually. Compliance with Safeguarding – Safeguarding policy in place – reviewed annually, and Trustee Safeguarding Lead identified – standing item on bi-monthly Board agenda.
POLICIES
Equality and Diversity and inclusion Safeguarding GDPR Management of risks – reviewed bi-monthly at trustee meeting. Conflict of interest – reviewed bi-monthly at trustee meeting.
Registered charity 1192034
ADDITIONAL INFORMATION ( staff/volunteers)
We continue to have one full time employed member of staff who oversees the running of the charity and leads on service delivery, and one part-time/self-employed fundraiser.
DECLARATION – chair and one other trustee
The trustees declare that they have approved the trustees' report above.
SIGNATURE 1
NAME – S. Morgan DATE – 17/07/2023
SIGNATURE 2
NAME – S. Walder
DATE – 17/07/2023
Registered charity 1192034
Appendix – Data collected re service users
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Referrals by diagnosis and
relationship to young person
BENIGN 1
TESTICULAR 1
EWINGS 1
OVARIAN 1
NEUROBLASTOMA 1 1 1 1
NHL 2 1
SPINAL 1
BRAIN 3 1 1
T-CELL 1
THYROID 2
HODGKIN'S LYMPHOMA 10 1
LEUKAEMIA 5 5 1 1
WILMS 3 1
Young person Mother Father Sibs Partners
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Registered charity 1192034
Main presenting issues for young people on treatment
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PANIC ATTACKS 1
EATING DISORDERS 1
BODY IMAGE 1
RESENTMENT RE FRIENDS 1
DEPRESSION 2
0 0.5 1 1.5 2 2.5
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Main presenting issues for young people
off treatment
PANIC ATTACK 1
FLASHBACKS 2
SELF HARM 2
FERTILITY ISSUES 2
EATING DISORDERS 2
INTRUSIVE THOUGHTS 3
LONELINESS 3
LOW SELF ESTEEM 3
GUILT RE: FAMILY 3
FATIGUE 3
DEPRESSION 3
FEAR OF RELAPSE 4
LATE EFFECTS 7
PTSD 4
SURVIVOR GUILT 4
WHO ARE THEY NOW? 11
ANXIETY 10
A NEED TO PROCESS … 16
0 5 10 15 20
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Registered charity 1192034
Main presenting issues for parents off treatment
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GRIEF 1
NEED TO PROCESS 2
ANXIETY 2
PTSD 2
NEEDING TOOLS TO SUPPORT FAMILY 3
STRUGGLING TO COPE 4
0 0.5 1 1.5 2 2.5 3 3.5 4 4.5
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Main presenting issues for parents
on treatment
FIGHTING THE SYSTEM' 2
FEELING OUT OF CONTROL 2
NEEDING A SAFE PLACE TO PROCESS 3
STRUGGLING TO COPE 4
0 1 2 3 4 5
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Main presenting issues for
partner
1 1
SAFE PLACE ANXIETY
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Registered charity 1192034
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Main presenting issues for
siblings
SAFE PLACE 2
ANXIETY 1
SELF HARM 1
PROCESS WHAT HAPPENED AND
2
IMPACT
0 0.5 1 1.5 2 2.5
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Registered charity 1192034
CHARITY COMMISSION FOR ENGLAND AND WALES MINO OVER CANCER 1192034 Receipts and pa ments accounts CC16a For the period from 0110412022 3110312023 To Section A Receipts and payments Unrestrlcted funds Rtstrleitd funds Endowmènt funds Total funds Last year to the nearest toth• ne•rn81£ to the ntE to tho n••r•st£ A1 R•co1 ts Donation8 Grnnis A&set Gran15 Interest Receiv1¢ 26,703 J7,225 84.112 10,000 62 62 Sub tot•l(Gross income for ARJ 10. 703 37.267 94.$7B A2 Ass•t and Inve8tment 8•le•. 18•• tabl•l. Sub total 10,$84 26.703 37,287 94,978 A3Pa ments 3.770 9,718 11.953 22,723 B,718 810 22,718 1,432 203 24 21? 128 Promotion Suptrryisjon Cornpute¢* Insuranca 172 172 28 JTB 72 1,$28 T818pho Po8t8oe 84nk Charqes Expense8 Accountancy Surbdrie5 e5 378 72 1,528 160 360 686 208 43,328 43.320 Sub total 16,058 82.281 78,339 25,845 A4 Asset and Investment urchases, see tabl• Com uter assets 570 Sub total 570 16,058 62,281 78,339 26.415 Net of recelpts/{payments) AS Transfers between funds A6 Cash funds last yèar tnd Cash funds this year end 5.474 35.578 41,052 68,563 22,092 16,618 46.471 10.893 68,$83 27.511 68,563 CCXX R1 attoun15 ISSI 2810612023
Section B Ststement of assets and liabilities at the end of the period Unrestricted funds to ne8r•$i£ Restricted lunds to nearest E Endowment funds to nearest £ Lategones Oet?Ils 81 Cash funds Cash al bk 16,618 10,893 Total cash funds 16.818 10.893 Unre8trlct•d funds to Irn$t É Re8tr1cted funds to nearet£ Endowmont funds to ngarest £ Detalls Ftynd 10 whlch 5s•t belon Curronl vilw? Delails lopVon•ll 83 Inv08tm•nt a88•t¥ Fund io whl¢h •8801 b•lon Currént valu• Details ¢t loptlonall B4 A$•ots r•tsln•d for the charlty's own Use Fund to whlch Amount due When due Details 85 Liabilitie8 Signed by one or tsvo 1rn5tee5 on beharf of all the trustee$ Signalu Print Name Date of roval CCXX R2 accounts ISSI 281CW2023
CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to tho trusteesl members of MIND OVER CANCER On accounts for the year ended 31 MARCH 2023 Charity no (if any) 1192034 Set out on pages 1AND2 I report lo the trustees on my examination of the accounls of the above charity {"the Trust") for the year ended 3110312023. Responsibilities and As the charty trustees of the Trust. you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 ("the Act.). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(51{b) of the Act. I have completed my examination. I confirm that no material matters have come to my attention lolher than that disclosed below ') in connection with the examination whicl", gives me cause to believe that in, any material respect.. accounting records Vre not kept in accordance with section 130 of the Act or the accounts do not accord with the accounting records Independent examiner'8 Statement I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order lo enable proper understanding of the accounts to be reached. Please delete the words in the brackets if they do not 8ppIy. Signed: ICL Date: 2810612023 Name: ADRIAN WINTER FCCA Relevant professional qualification{sl or body (if any): FCCA- ASSOCIATION OF CHARTERED CERTIFIED ACCOUNTANTS Address: THE SYCAMORES 43 KNEESWORTH STREET ROYSTON HERTS SG8 SAB IER October 2018
Section B Disclosure Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts- directions and guidance for examiners). Give here brief details of any items that the examiner wishes to dlsclosa. IER October 2018