##
##
##
||||Page||
|---|---|---|---|---|
|Charity information|||||
|Trustees'
Annual
Report|||||
|Statement ofdirectors'||responsibilities||16|
|Independent
Examiner's||Report||18|
|Funds Statements:-|||||
|Statement
of Financial|Activities|||20|
|Movements
in funds||||21|
|Revenue
Funds||||21|
|Income and Expenditure||account||22|
|Balance sheet||||23|
|Notes to the accounts||||24|
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
|||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total Funds|Total Funds|
|||Funds|Funds|||
|||2021|2021|2021|2020|
|||||F||
|Income &Endowments|from:|||||
|Donations
8 Legacies||116,050|161,661|277,711|225,964|
|Charitable
activities||15,856||15,856|6,745|
|Total income||131,906|161,661|293,567|232,709|
|Expenditure
on:||||||
|Charitable
activities||101,900|165,591|267,491|190,820|
|Total expenditure||101,900|165,591|267,491|190,820|
|Net income for the year||30,006|(3,930)|26,076|41,889|
|Transfers
between funds||(9,713)|9,713|||
|Net income after transfers||20,293|5,783|26,076|41,889|
|Net movement
in funds||20,293|5,783|26,076|41,889|
|Reconciliation
offunds:-||||||
|Total funds brought
forward||202,606||202,606|160,717|
|Total funds carried forward||222,899|5,783|228,682|202,606|
##
|International
Gaucher|International
Gaucher|Alliance|Alliance|Alliance|Limited - Resources applied|Limited - Resources applied|Limited - Resources applied|in the year ended 31|December|
|---|---|---|---|---|---|---|---|---|---|
|2021 towards
fixed assets for|||||Charity use:-|||||
|||||||||2021|2020|
|Funds generated
in the year||as||detailed|in the SOFA|||26,076|41,889|
|Resources applied
on functional||||fixed assets|||||(2,503)|
|Resources applied
on Intangible||||assets||||(2,184)|(19,056)|
|Other applications
offunds||||||||||
|Net resources
available||to||fund charitable
activities||||23,892|20,330|
|The notes attached
on|pages 24||||to 34|form an integral|part ofthese accounts.|||
|Movements
in revenue|||and capital|||funds for the year ended||31 December 2021||
|Revenue accumulated|funds|||||||||
||||||Unrestricted||Restricted|Total|Last year|
|||||||Funds|Funds|Funds|Total Funds|
|||||||2021|2021|2021|2020|
|||||||F|F|F||
|Accumulated
funds brought||forward||||202,606||202,606|160,717|
|Recognised
gains and losses|||before|||30,006|(3,930)|26,076|41,889|
|transfers||||||||||
|||||||232,612|(3,930)|228,682|202,606|
|(From)/To unrestricted
revenue||||funds||(9,713)|9,713|||
|Closing revenue funds||||||222,899|5,783|228,682|202,606|
|Summary
of funds|||||Unrestricted||Restricted|Total|Last Year|
|||||||and|Funds|Funds|Total Funds|
||||||Designated
funds|||||
|||||||2021|2021|2021|2020|
|Revenue
accumulated
funds||||||222,899|5,783|228,682|202,606|
##
##
|Companies
Act 200|6||||||||
|---|---|---|---|---|---|---|---|---|
||||||||2021|2020|
|||||||||F|
|Income|||||||||
|Income from operations|||||||293,567|232,709|
|Gross income
in the year||including||exceptional||items|293,567|232,709|
|Expenditure|||||||||
|Charitable
expenditure,|excluding||depreciation||and amortisation||225,320|148,593|
|Depreciation
and amortisation|||||||4,846|1,452|
|Governance
costs|||||||37,325|40,775|
|Total expenditure
in|the year||||||267,491|190,820|
|Net income before tax|in|the financial year|||||26,076|41,889|
|Tax on surplus
on ordinary||activities|||||||
|Net income after tax in|the financial|||year|||26,076|41,889|
|Retained surplus for|the financial year||||||26,076|41,889|
##
||||Notes||2021||2020|
|---|---|---|---|---|---|---|---|
|Fixed assets||||||||
|Intangible
assets|||11||18,408||19,056|
|Tangible assets|||12||3,789||4,637|
|Investments
held as|fixed assets||13||100||100|
|Total fixed assets|||||22,297||23,793|
|Current assets||||||||
|Debtors|||15|22,864||2,002||
|Cash at bank and
in||hand||220,505||180,196||
|Total current assets||||243,369||182,198||
|Creditors: amounts||falling due within||||||
|one year|||16|(36,984)||(3,385)||
|Net current assets|||||206,385||178,813|
|The total net assets||ofthe charity|||228,682||202,606|
|The total net assets||ofthe charity are|funded|by the funds ofthe|charity, as follows:-|||
|Restricted funds||||||||
|Restricted
Revenue|Funds||19|5,783||||
||||||5,783|||
|Unrestricted
Funds||||||||
|Unrestricted
Revenue||Funds|19|222,899||202,606||
||||||222,899||202,606|
|Total charity funds|||||228,682||202,606|
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
##
|||||||2021|2020|
|---|---|---|---|---|---|---|---|
|||||||f|F|
|The net|surplus|before|tax in|the financial|year is stated after charging:-|||
|Amortisation
and||depreciation||ofowned fixed assets||4,846|1,452|
|Trustees'|remuneration|||||34,325|40,775|
|Pension|costs|||||1,617|1,786|
|Independent
Examiner's|||Fee|||3,000||
##
##
|es to the Accounts for the year ended 31 December
Donated goods, services and facilities|es to the Accounts for the year ended 31 December
Donated goods, services and facilities|2021||
|---|---|---|---|
|Current year||Current year|Prior Year|
|||Unrestricted|Total Funds|
|||Funds||
|||2021|2020|
|Includedin|Legacies and Donations:-|||
|Donated goods and services||34,325|40,775|
|||34,325|40,775|
|Prior Year||Prior Year|Prior Year|
|||Unrestricted|Total Funds|
|||Funds||
|||2020|2020|
|Included in|Legacies and Donations:-|||
|Donated goods and services||40,775|40,775|
|||40,775|40,775|
##
|Staff costs|and e|moluments||||||||
|---|---|---|---|---|---|---|---|---|---|
|Salary costs||||||||2021|2020|
|||||||||f||
|Gross Salaries excluding
trustees
and key|||management
personnel|||||39,081|31,235|
|Employer's
National||Insurance
for all staff||||||8,889|8,547|
|Employer's
operating||costs ofdefined
contribution||||pension schemes||1,617|1,786|
|Salaries and|benefits|paid to key management||personnel||||60,703|55,821|
|Directors' and|volunteers'
fees for services||donated|||to the charity as detailed|in note 9|34,325|40,775|
|Total salaries, wages and related costs||||||||144,615|138,164|
|||||||||2021|2020|
|||||||||Number|Number|
|The average|number|of full time staff employed||in||the year was|||1|
|The average|number|of part time staff employed|||in|the year was|||2|
|The average|number|of all staff employed|in the||year was||||3|
##
##
|Staff costs and emol
(continued)|uments|||||||
|---|---|---|---|---|---|---|---|
|||||||2021|2020|
|||||||Number|Number|
|The estimated
number|ofall staff employed|as above||||||
|The number
ofemployees
whose emoluments||including
taxable benefits but|||excluding|||
|employer's
pension
contributions
fall into the following
bands||||were:-||||
|||||||2021|2020|
|f60,001 to 670,000||||||||
|The cost to the chairty|ofsenior management||personnel|remuneration|included|the following:||
|Gross wages and Employer's
National
Insurance|||contributions|||66,255|62,559|
|Contributions
for the provision
of money purchase|||pension|||1,319|1,314|
|||||||No|No|
|Numbers ofsuch staff|to whom benefits are|accruing:-||||||
|Under money purchase|pension schemes|||||||
##
|9|Remuneration|and payments|and payments|to volunteers|and to Trustees and persons connected|with them||
|---|---|---|---|---|---|---|---|
|||||||2021|2020|
||||||||F|
||Remuneration|payable|to trustees orconnected||persons|||
||Directors' and volunteers'||fees for|services donated|to the charity|34,325|40,775|
||Total remuneration|||||34,325|40,775|
##
||Current Year|Current Year|||Received|Deferred||
|---|---|---|---|---|---|---|---|
||||||deferred|at year|end|
||||||in year|||
||Pfizer work|programme|||2,136|2,136||
||International|Working|Group on|Gaucher Disease|9,143|9,143||
||Total||||11,279|11,279||
|10|Deferred income -Restricted|||funds (continued)||||
||||||2021||2020|
||||||F|||
||These deferrals are included|||in creditors|11,279|||
##
||||
|---|---|---|
|Intangible
Fixed Assets|2021|2020|
|Goodwill:|||
|Cost|||
|At 1 January 2021|19,056||
|Additions|2,184|19,056|
|At 31 December 2021|21,240|19,056|
|Amortisation|||
|Provided
during the year|2,832||
|At 31 December 2021|2,832||
|Net book value|18,408|19,056|
##
##
||Current Year|Plant 8
Machinery||
|---|---|---|---|
||Cost|||
||At 1 January 2021|8,250||
||Additions|1,166||
||At 31 December 2021|9,416||
||Depreciation|||
||At 1 January 2021|3,613||
||Charge for the year|2,014||
||At 31 December 2021|5,627||
||Net book value|||
||At 31 December 2021|3,789||
||At 31 December 2020|4,637||
|13|Investments
held as fixed assets|||
||||Investments|
||||In|
||||subsidiaries|
||Carrying values ofinvestments|||
||At 1 January 2021||100|
||At 31 December 2021||100|
||Analysis
between fair value and historical cost|||
||Investments
as above held at historical cost,
less any write down||100|
##
##
|statements|ofthe|subsidiary is:-|||
|---|---|---|---|---|
||||2021|2020|
||||F|F|
|Assets and Funds|||||
|Aggregate|amounts|of liabilities|(6,988)|(2,902)|
|Aggregate|amount|offunds|(6,988)|(2,902)|
|Profit and|Loss||||
|Turnover|||509,511||
|Expenses|||(513,597)|(3,002)|
|Net loss for the year after tax|||(4,086)|(3,002)|
##
|15|Debtors|||||||
|---|---|---|---|---|---|---|---|
|||||||2021|2020|
||Amounts
owed by group||undertakings|and undertakings|in which the charity has a|||
||participating|interest||||22,864|2,002|
|16|Creditors:|amounts|falling due|within one year||2021|2020|
||Accruals|||||22,812|568|
||Deferred
Income - Restricted funds|||||11,279||
||PAYE, NIC|VAT and other taxes||||2,519|2,420|
||Other creditors|||||374|397|
|||||||36,984|3,385|
##
##
|||||||2021|2020|2020|
|---|---|---|---|---|---|---|---|---|
|||||||F||F|
|Administration
fees||||||1,104||497|
|During the year the company||has recharged|costs||to the Gauchers Association|Limited and to its subsidiary|International||
|Gardian
Limited as follows:|||||||||
|The Gauchers Association|Limited Consultancy|||fees|||4,416||
|The Gauchers Association|Limited Administration||||fees|||197|
|International
Gardian
Limited||Administration|fees||||2,|102|
##
|At 31 December 2021|At 31 December 2021|Unrestricted|Restricted|Total|
|---|---|---|---|---|
|||funds|funds|Funds|
|||6||F|
|Intangible Assets||18,408||18,408|
|Tangible|Fixed Assets|3,789||3,789|
|Investments
held as fixed assets||100||100|
|Current|Assets|226,307|17,062|243,369|
|Current|Liabilities|(25,705)|(11,279)|(36,984)|
|||222,899|5,783|228,682|
|At 1 January 2021||Unrestricted|Restricted|Total|
|||funds|funds|Funds|
|||6||F|
|Intangible Assets||19,056||19,056|
|Tangible|Fixed Assets|4,637||4,637|
|Investments
held as fixed assets||100||100|
|Current|Assets|182,198||182,198|
|Current|Liabilities|(3,385)||(3,385)|
|||202,606||202,606|
##
|Change
in total f|u|nds ove|r the|year as show|n
in Note 18,analys|ed
by individu|ed
by individu|al
funds|al
funds|||
|---|---|---|---|---|---|---|---|---|---|---|---|
||||||Funds brought|Movement
in||Transfers||Funds carried||
||||||forward from|funds|in 2021|between|funds|forward|to|
||||||2020|||in 2021||2022||
|||||||See Note 20||See Note|21|||
||||||||f|f||||
|Unrestricted
and designated|||funds:-|||||||||
|Unrestricted
Revenue||Funds|||202,606||30,006|(9,713)||222,899||
|Total unrestricted|and designated|||funds|202,606||30,006|(9,713)||222,899||
|Restricted funds:-||||||||||||
|Eurordis
Funding|||||||1,619|(1,619)||||
|Gene Therapy|||||||60||||60|
|Sanofi work programme|||||||(10,693)|10,693||||
|Access to Medicines||Africa|||||(24)||24|||
|Pfizer work programme|||||||5,723|||5,723||
|IWGDD|||||||(615)||615|||
|Total restricted funds|||||||(3,930)||9,713|5,783||
|Total charity funds|||||202,606||26,076|||228,682||
|||||Income|Expenditure|Movement|
|---|---|---|---|---|---|---|
|||||||in funds|
|||||2021|2021|2021|
|||||||F|
|Unrestricted|and designated||funds:-||||
|Unrestricted|Revenue|Funds||131,906|(101,900)|30,006|
|Restricted funds:-|||||||
|Eurordis
Funding||||1,619||1,619|
|Gene Therapy||||5,000|(4,940)|60|
|Sanofi work|programme|||56,537|(67,230)|(10,693)|
|Access to Medicines||Africa||71,955|(71,979)|(24)|
|Pfizer work|programme|||23,502|(17,779)|5,723|
|IWGDD||||3,048|(3,663)|(615)|
|||||293,567|(267,491)|26,076|
##
##
##
|Details oftransfers
betwe|Details oftransfers
betwe|e|n
funds|n
funds|||||
|---|---|---|---|---|---|---|---|---|
|The transfers
shown in note|||19above are:-|||||2021|
|To/(from)
grants and|Unrestricted
Revenue
fixed asset funds'.||Funds|in accordance|with the accounting|policy 'Accounting|for capital|(9,713)|
|To/(from)|Restricted Revenue|Funds||||||9,713|
##
##
##
##
##
|24|Donations,||Grants and Legacies|Grants and Legacies|Grants and Legacies|Grants and Legacies|Grants and Legacies|Grants and Legacies|||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
||||||||||Current year|Current year|Current year|Prior Year|
||||||||||Unrestricted|Restricted|Total Funds|Total Funds|
||||||||||Funds|Funds|||
||||||||||2021|2021|2021|2020|
||||||||||F|E|F|f|
||Revenue grants and||||donations|||from non|||||
||public bodies||||||||||||
||Gift Aid Donations|||from||subsidiaries|||2,612|1,619|4,231|4,259|
||International
Disease|Working|||Group on Gaucher|||||3,048|3,048||
||Orphayme||||||||8,000||8,000|8,000|
||Avrobio||||||||21,125||21,125|11,820|
||Prevail||||||||9,988||9,988|4,988|
||Frecline||||||||||||
|||||||||||5,000|5,000||
||Sanofi|||||||||56,537|56,537|12,629|
||Takeda||||||||40,000|71,955|111,955|47,000|
||Pfizer|||||||||23,502|23,502|75,000|
||GAIN|||||||||||4,993|
||Centogene|||||||||||6,500|
||SCD|||||||||||10,000|
||Total private||sector||revenue||grants||81,725|161,661|243,386|185,189|
||||||||||Current year|Current year|Current year|Prior Year|
||||||||||Unrestricted|Restricted|Total Funds|Total Funds|
||||||||||Funds|Funds|||
||||||||||2021|2021|2021|2020|
||Donated goods and||||services||||||||
||Directors' and
services||volunteers'|||donation||of|34,325||34,325|40,775|
||Total donated||goods and services||||||34,325||34,325|40,775|
||Total Donations,||||Grants||and Legacies||||||
||Total Donations,
Legacies|||Grants and|||||116,050|161,661|277,711|225,964|
##
##
|Current year|||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total Funds|Total funds|
||||Funds|Funds|||
||||2021|2021|2021|2020|
|Primary purpose|and|ancillary trading|||||
|Consultancy
fees|receivable||15,856||15,856|6,745|
|Total Primary purpose
trading||and ancillary|15,856||15,856|6,745|
##
||||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|---|
|Current year|||Unrestricted
Funds|Restricted
Funds|Total Funds|Total Funds|
||||2021|2021|2021|2020|
|Total income from charitable||trading|15,856||15,856|6,745|
|Total from charitable|activities||15,856||15,856|6,745|
##
|||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total Funds|Total Funds|
|Current
Year||Funds|Funds|||
|||2021|2021|2021|2020|
|Gross wages and salaries
activities|- charitable|40,836|58,948|99,784|87,056|
|Employers'
Nl - Charitable|activities|3,669|5,220|8,889|8,547|
|Defined contribution
pension costs-
charitable
activities||656|961|1,617|1,786|
|Travel and Subsistence -
Activities|Charitable|988||988|23,100|
|Miscellaneous
Purchases||25||25|49|
|Total direct spending||46,174|65,129|111,303|120,538|
##
##
|||||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|---|---|
|||||Unrestricted|Restricted|Total Funds|Total Funds|
|Current|Year|||Funds|Funds|||
|||||2021|2021|2021|2020|
|||||F|E|F|f.|
|Grants|made to|organisations|||71,979|71,979||
|Total grantmaking||costs|||71,979|71,979||
|Breakdown
of Grants made to organisations||||||||
|||||Current year|Current year|Current year||
|Current|Year|||Unrestricted
Funds|Restricted
Funds|Total Funds||
|||||2021|2021|2021||
|Grant to|FYMCA Medical||Ltd||71,979|71,979||
||||||71,979|71,979||
##
|29|Support costs for charitable|Support costs for charitable|activities|||||||
|---|---|---|---|---|---|---|---|---|---|
|||||Current|year|Current|year|Current year|Prior Year|
|||||Unrestricted||Restricted||Total Funds|Total Funds|
||Current
Year|||Funds||Funds||||
|||||2021||2021||2021|2020|
|||||F|||||f|
||Employee costs not included||in direct costs|||||||
||Training
and welfare - staff||||114||85|199||
||Recruitment
expenses||||171||365|536||
||Entertaining||||79|||79|147|
||Premises Expenses|||||||||
||Rent payable
under operating||leases|2,617||1,943||4,560|4,560|
||Administrative
overheads|||||||||
||Telephone,
fax and internet||||731||343|1,074|1,466|
||Postage||||47||35|82|93|
||Stationery
and printing|||(1,799)|||269|(1,530)|2,800|
||Membership
subscriptions|||2,177||1,315||3,492|3,384|
||Equipment
expenses||||98||73|171|244|
||Software licences and expenses|||2,429||1,542||3,971|5,400|
||Liabilty and contents insurance||||1,190||883|2,073|1,683|
||Sundry expenses|||3,456||2,565||6,021|(2,375)|
||Admin recharge||||994||805|1,799|4,954|
||Professional fees paid to advisors other than the auditor||||or examiner|||||
||Accountancy
fees other than
examination
or audit fees||||||837|1,965|1,272|
||Consultancy
fees||||1,574|1,685||3,259|1,566|
||Other legal and professional||||389|13,445||13,834|2,326|
||Financial costs|||||||||
||Bank charges||||224||229|453|535|
||Depreciation
8 Amortisation|in|total for|2,782||2,064||4,846|1,452|
||Total support costs - Current||Year|18,401||28,483||46,884|29,507|
##
##
|||Current year|Current year|Current year|Prior Year|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total Funds|Total Funds|
|Current|Year|Funds|Funds|||
|||2021|2021|2021|2020|
|Independent
Examiner's fees||3,000||3,000||
|Trustees'|remuneration|34,325||34,325|40,775|
|Total Governance costs||37,325||37,325|40,775|
||All the expenditure|in|the prior year was unrestricted.|||||
|---|---|---|---|---|---|---|---|
|31|Total Charitable|expenditure||||||
|||||Current year|Current year|Current year|Prior Year|
|||||Unrestricted|Restricted|Total Funds|Total Funds|
||Current
Year|||Funds|Funds|||
|||||2021|2021|2021|2020|
|||||F|||f|
||Total direct spending|||46,174|65,129|111,303|120,538|
||Total grantmaking||costs||71,979|71,979||
||Total support costs|||18,401|28,483|46,884|29,507|
||Total Governance|costs||37,325||37,325|40,775|
||Total charitable
expenditure|||101,900|165,591|267,491|190,820|
||All the expenditure|in|the prior year was unrestricted.|||||
|All the|expenditure
in the prior year was unres|tricted.|||
|---|---|---|---|---|
|||Prior Year|Prior Year|Prior Year|
|||Unrestricted|Restricted|Total Funds|
|Prior|Year|Funds|Funds||
|||2020|2020|2020|
|Total|direct spending|120,538||120,538|
|Total|support costs|29,507||29,507|
|Total|Governance
costs|40,775||40,775|
|Total|charitable
expenditure|190,820||190,820|
##
##