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2023-04-05-accounts

Trustees' Annual Report Trustees' Annual Report Trustees' Annual Report Trustees' Annual Report Trustees' Annual Report for theperiod for theperiod for theperiod
From Period start date To Period end date
06 04 2022
05		 04 2023

Section A Reference and administration details

Charity name The Ricky Casey Trust Other names charity is known by Registered charity number (if any) 1191716 Charity's principal address FIRST FLOOR SWAN BUILDINGS 20 SWAN STREET MANCHESTER Postcode M4 5JW

The Ricky Casey Trust

Names of the charity trustees who manage the charity

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20		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Nicola Casey Founder & CEO
Andrew Casey Treasurer
Grace Widdall Secretary
Tom Waddell Trustee
Andrew Stevenson Trustee
Lee McAllister Trustee

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

TRUST DEED Type of governing document (eg. trust deed, constitution) TRUST How the charity is constituted (eg. trust, association, company)

All appointed by Nicola Casey, Founder and CEO. Trustee selection methods

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

The objects of the charity (‘the objects’) are:

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same for sufferers of such medical conditions residing permanently or temporarily in the United Kingdom through the provision of financial assistance, support, and practical advice as the trustees see fit from time to time.

The Ricky Casey Trust was newly formed in 2020. We are the only charity in the UK to represent rare renal cancers with a particular focus on RMC (Renal Medullary Carcinoma), this type of cancer has links to the sickle cell trait.

Below is a summary of our main charitable activities during the specified reporting period:

Changes to Charity Personnel:

We are pleased to welcome the addition of a new patron - Jamie JonesBuchanan MBE. Jamie is a former professional player with Leeds Rhinos Rugby club. He is currently the club’s first Director of Culture, Diversity, and Inclusivity, and we feel that he is a great asset to the Trust. As Jamie also carries the Haemoglobin C trait, he feels that the charity is sending out a really important message and he is driven to become part of the voice for change and patient support.

Education / Networking Activities

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As part of our collaboration with the Chris CJ Johnson Foundation (see fundraising activities below), Nicola Casey has introduced a UK patient with RMC to the wider support network. This is the home for virtual peerto-peer support groups for RMC, and has guest speakers to provide answers, advocacy, education, support, and navigation to empower people living with RMC. The patient has found this to be a great source of help to speak with other RMC sufferers.

We have strengthened our connections with Dr Pavlos Msaouel at MD Anderson, Texas. Dr Msaouel is a Physician-Scientist and Oncologist and is dedicated to research surrounding RMC. A video meeting was arranged between him and the trustees to discuss the research and treatments in the USA, and he has offered to continue to share his knowledge and experience in RMC with physicians in the UK.

Nicola Casey and trustee Tom Waddell have raised awareness through T.V interviews with Granada Reports. The patient that is being supported was also involved in the interview wanting to share his story and experience living with RMC and wanting to thank the trust for their support. Nicola Casey offers and continues to give personal support when needed.

More awareness has been raised through the local newspapers.

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A meeting took place with Nicola Casey and trustee Grace Widdall with the Centre Head at the local Maggies’s Centre to discuss our information leaflets being displayed. This was agreed.

Nicola Casey and trustee Tom Waddell were invited to a local business (Leads2Trade) to introduce the charity and its work to the employees. A video was shown which was followed by a Q&A session. This business has since been supporting the charity through a range of fundraising activities.

Nicola Casey and trustee Grace Widdall were invited to a local primary school in Oldham. The school had taken an interest in the charity and the children wanted to meet with us. The school delivered an educational talk regarding the charity.

As part of Kidney Cancer Awareness month in March 2023, and in collaboration with our annual ‘Keepin’ it Renal’ event, we contacted Oldham Metropolitan Borough Council (OMBC) and a local lighting events company to discuss lighting some of the well-known buildings in Oldham, orange. This was made possible and sponsored by the lighting company.

Nicola Casey has also made some new connections with OMBC, one being Councillor Amanda Chadderton who is the leader of Oldham Council. From these connections Nicola was invited to take part in a video interview with Councillor Amanda Chadderton for World Cancer Day in raising awareness of rare cancers and early diagnosis. A discussion took place about how the local council could help raise the charity’s profile going forward and to make some connections within the health sector.

Fundraising Activities:

The Virtual Walk that was developed in collaboration with the Chris CJ Johnson Foundation in Houston Texas continues to be our annual ‘Keepin it Renal’ event. Our 2023 virtual walk began on 6[th] March which is Ricky Casey’s birthday and ran throughout the month of March which is also kidney cancer awareness month. People set themselves their own challenges throughout the month and the final day ended this year with a beer walk. This was a great success and raised much needed funds. A new t-shirt was designed and printed for this event with a QR code printed on the t-shirt thereby adding another way to collect donations. We also received sponsorship from local businesses and advertised them on our t-shirts.

Our 2023 Annual Charity Ball was held on Saturday 11[th] March at a larger venue than previous years. This was again a great success with full capacity of 220 attendees. We secured and received 3 sponsorships for the event from Taurus Security for the second year along with C&C Healthcare and Beautiful Productions. The evening was hosted for the second year by professional MC Alan Keegan (the voice of Old Trafford and EA Sports FIFA). Various fundraising activities were conducted during the evening including a raffle and charity auction. This annual event forms one of our key recurrent fundraising opportunities as a charity.

We have had more individuals this year wanting to get involved with the charity in taking on their own personal challenges and raising more funds and awareness in doing so:

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Trustee Lee McAlister and a friend set and completed approximately over a 200 mile walk over 9 days starting at Springhead Football club finishing on Wembley Way London. They had various people joining them at different legs to encourage and support. A support vehicle was donated for the full event for safety of the walkers. A new t-shirt was designed for this event and sponsorship with provision of footwear, clothing and accommodation was provided by Berghaus, Regatta, The Hilton Hotel Group and others. The event route was provided by Leeds Beckett University courtesy of our patron Kevin Sinfield who was at the start of the challenge to show support. The event was covered by the Daily Mirror, Daily Star newspapers and the local paper. We also had videos of support from one of our supported RMC patients, as well as sporting legends Kevin Sinfield, Barrie McDermott, Kyle Hogg, D’mani Mellor and Jack Grealish. The Charity was nominated for the North West Residential Property Awards gala dinner to be the events charity of the evening. The Charity had to produce a short video for the 900 guests who then donated very generously. This was attended by Nicola Casey and trustee Grace Widdall.

In December 2022 we continued with our virtual Christmas card.

Patient / Carer Support Activities:

We are pleased that our website is now clearly visible and working as we have had our second UK contact who has recently been diagnosed with RMC. We are now able to provide support and assist with our main objectives. The contact has already found the charity to be a great source of help.

Administrative Activities:

Nicola Casey and trustee Grace Widdall have attended video training sessions to create a new fundraising platform to help with the smooth running of events such as the ‘Keepin’ it Renal’ event and any future fundraising events. Summary:

As summarised above the charity has carried out a wide range of activities towards its purpose of public benefit. We can also confirm that The Ricky Casey Trust trustees have had regard to the guidance issued by the charity commission on public benefit.

Additional details of objectives and activities (Optional information)

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You may choose to include further statements, where relevant, about:

The

Section D Achievements and performance

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Section D Achievements and erformance p

Additional information on many of the above activities is contained within section C in relation to the ‘Summary of main activities undertaken for the public benefit ‘

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Section E Financial review

Our charity does not have a reserve policy at the moment.

Brief statement of the

charity’s policy on reserves

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date

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Ricky Casey Trust Ricky Casey Trust Ricky Casey Trust No (if any) No (if any) No (if any) CC16a
For the period
from		 Period start date
06/04/2022		 To Period end date
05/04/2023
Section A Receipts and payments
A1 Receipts Unrestricted
funds
to the nearest
£
87,336
125
3,072
24,919
18,165
89
5,165
147
-
139,019
-
-
-
139,019
75
10,710
300
2,050
250
108
-
-
-
13,493
-
-
-
13,493
125,526
-
-
125,526		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Endowment
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Total funds
to the nearest £
87,336
125
3,072
24,919
18,165
89
5,165
147
-
139,019
-
-
-
139,019
75
10,710
300
2,050
250
108
-
-
-
13,493
-
-
-
13,493

125,526		 Last year
to the nearest £
Openingbalance 87,336 65,547
Merchandise 125
HMRC Gift Aid 3,072 -
Fast Payments 24,919 17,387
Give As You live 18,165
Amazon Smile 89 80
PayPal 5,165 2,270
Interest 147
Virgin Money - 10,235
Sub total(Gross income for
AR)		 139,019 95,519
A2 Asset and investment sales,
(see table).
-
- -
Sub total - -
Total receipts
A3 Payments
95,519
CAF Bank charges(Account fees) 75 96
Fund raisingevent costs 10,710 5,214
Clean Pages(web site) 300 325
Merchandise 2,050 2,035
Virtuallythere(office) 250 -
Enthuse 108
Sunderies - 513
- -
- -
**Sub total ** 13,493 8,183
A4 Asset and investment
purchases, (see table)
-
-
**Sub total ** - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
8,183
125,526 - -
125,526		 87,336
- - - - -
- - - - -
125,526 - - 125,526 87,336

CCXX R1 accounts (SS)

09/07/2023

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Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B5 Liabilities
B3 Investment assets
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B1 Cash funds		 Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
Details
Details
Signature		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
Agreement Error
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
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-
Fund to which
asset belongs
Cost (optional)
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-
Fund to which
liability relates
Amount due
(optional)
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-
-
-
Print Name		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
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Current value
(optional)
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Current value
(optional)
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When due
(optional)
Date of
approval

CCXX R2 accounts (SS)

09/07/2023

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CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl members of THÉ )<k'y ChJ<.Y YR14'Y On accounts for the year ended Charity no (if any) Set out on pages I report to the trustees on my examination of the accounts of the above charity ("the Trust") for Ihe year ended Responsibllities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 ("Ihe Acl'l. I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and In carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 14515){b> of the Act, I have completed my examination, I confirm that no material matters have come to my attention (other than that disclosed below ') in connection with the examination which gives me cause lo believe that in, any material respect.. accounting records were not kept in accordance with section 130 of the Act or the accounts do not acGord with the accounting records Independent examiner's statement I have no concerns and have come across no other matters in connection with the examination lo which attention should be drawn in order to enable a proper underslanding of the accounts lo be reached. Please delete the words in lh8 brackets if they do nol apply. Slgned: Date: Name: DAI.A<fJ Relevant professional qualificationls} or body (if any). Address: pJwrnQ i <AATi c Y BL IER October 2018

Section B Disclosure Only complete if the examiner needs to highlight matters of concern {see CC32, Independent examination of charity accounts.. directions and guidance for examiners). Give here brief details of any items that the examiner wishes to disclose. IER October 2018