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REGISTERED CHARITY NUMBER: 1191420
Report of the Trustees and
Unaudited Financial Statements For The Year Ended 31 March 2025
for
THE AORTIC DISSECTION CHARITABLE TRUST
Leavitt Walmsley Associates Limited Chartered Certified Accountants
8 Eastway Sale Cheshire M33 4DX
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THE AORTIC DISSECTION CHARITABLE TRUST
Contents of the Financial Statements For The Year Ended 31 March 2025
| Page | |||
|---|---|---|---|
| Report of the Trustees | 1 | to | 4 |
| Independent Examiner's Report | 5 | ||
| Statement of Financial Activities | 6 | ||
| Balance Sheet | 7 | ||
| Notes to the Financial Statements | 8 | to | 12 |
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THE AORTIC DISSECTION CHARITABLE TRUST
Report of the Trustees For The Year Ended 31 March 2025
The trustees present their report with the financial statements of the charity for the year ended 31 March 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
OBJECTIVES AND ACTIVITIES
Objectives
Our mission is to save lives by improving the diagnosis of aortic dissection and bringing consistency to treatment across the patient pathway. We achieve this by:
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Increasing access to education for medical professionals and patients in the UK and Ireland
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Working with those responsible for healthcare policy in the UK and Ireland to ensure consistency in the diagnosis of acute aortic dissection, specialised follow-up for survivors and access to clinical genetics for relatives
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Promoting funding for medical research into the detection, prevention, treatment and cure of aortic dissection
We strive to be one of the most efficient charities in the UK and Ireland. Our trustees and team are committed individuals who generously volunteer their time and expertise. Many cover their own expenses to support our mission. We are registered with the Fundraising Regulator and remain honest, respectful and accountable to our supporters.
Public benefit
The charity has dual registration in England and Wales and in Scotland. We confirm that the trustees have had regard to the Charity Commission's guidance on public benefit when exercising any powers or duties to which the guidance is relevant and have taken it into account when making decisions to which it is relevant.
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THE AORTIC DISSECTION CHARITABLE TRUST
Report of the Trustees For The Year Ended 31 March 2025
ACHIEVEMENTS AND PERFORMANCE Achievements
This year has seen significant progress in our work, supported by patients, families, the medical community and the public. We are grateful for our growing partnerships and the continued support of our dedicated volunteers. They help us to identify gaps in information and care and work with us to find solutions. We were honoured to welcome Dr John A Elefteriades, Professor of Cardiothoracic Surgery at Yale University, as Patron of the charity. We also thank our ambassadors, Bob Harris and Steve Perryman, whose influence helps raise awareness of aortic dissection among new audiences.
Patient guidance and support
We continue to expand our support for patients and families through a range of expert-led resources. This year, we delivered a webinar in partnership with The British Insurance Brokers' Association, offering tailored insurance guidance for survivors and families with a genetic risk of aortic dissection. A support guide is now available on our website.
We also hosted a patient webinar on managing blood pressure, delivered in partnership with Barts Health NHS Trust. This session provided practical advice for long-term care and is now available as a support guide on our website.
In collaboration with Liverpool Heart and Chest Hospital, we organised a dedicated patient day to explore the psychological impact of aortic dissection. The event offered valuable coping strategies through expert insights and shared patient experiences. A support guide is available on our website.
This year, we held the first UK Aortic Nurses Symposium, which highlighted the crucial role of specialist aortic nurses in patient care. We also introduced the Aortic Practitioners' Community of Practice, created to address a growing need in the care of patients with aortic disease. This new initiative brings together healthcare professionals committed to improving outcomes through shared knowledge and collaboration.
Education events
Throughout the year, we delivered and supported a range of education events aimed at improving clinical knowledge and practice in aortic dissection care. At the Society for Cardiothoracic Surgery Annual General Meeting, we hosted a dedicated Lunchbox Session on aortic dissection in partnership with Terumo Aortic. We also co-hosted the Advanced Perfusion Strategic in Complex Aortic Care event with Barts Health NHS Trust, bringing together clinical teams to share best practice.
We worked to ensure the patient voice continues to inform medical education. This included collaboration with the North East Ambulance Service NHS, and contributions to training events for healthcare professionals across the UK. In Scotland, we held the Aortic Dissection Symposium at the Royal College of Physicians and Surgeons. In the East Midlands, we delivered a regional study day with the Society for Cardiothoracic Surgery. We also partnered with NHS Resolution to deliver the Lessons Learned and Implementation event.
Our international partnerships continue to grow. We co-hosted the London Marfan International Patient Symposium with the Marfan Foundation, Marfan Trust and Annabelle's Challenge. We also supported the ongoing rollout of the Aortic Dissection Toolkit.
We shared insights and promoted awareness at key national and international conferences, including the Primary Care Cardiovascular Society Spring Conference, the Welsh Cardiothoracic Society Annual Meeting, the London Aortic Dissection Symposium, and the Bologna Heart Surgery Symposium. We also contributed to the AICC Annual Conference and the European Association for Cardiothoracic Surgery, highlighting the vital importance of patient involvement in driving improvements in care.
Research
This year marked important progress in our commitment to advancing aortic dissection research. We welcomed Dr Jill Madine as the new Chair of our Research Advisory Group, taking over from Professor Colin Bicknell. We are grateful to Professor Bicknell for his leadership and continued support.
We co-hosted two major academic events in partnership with the University of Liverpool: Multidisciplinary Approaches to Navigating BAV Aortopathy and Aorta: Structure to Rupture. These events brought together experts to explore the latest developments in aortic disease research and clinical practice.
We helped disseminate findings from key studies, including the DAShED study (Diagnosis of Acute Aortic Syndrome in the Emergency Department), the ASES Study (Enhancing Diagnosis of Acute Aortic Syndrome), and the Collaborative Acute Aortic Syndrome Project. We shared this research through clinical events and accessible webinars for patients and families.
Our collaboration with the University of Liverpool on My Aorta My Future inspired the next generation fo scientists. This event gave students a hands-on introduction on biomedical research and showcased pioneering work in aortic disease.
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THE AORTIC DISSECTION CHARITABLE TRUST
Report of the Trustees For The Year Ended 31 March 2025
We continued to grow our Patient and Public Involvement (PPI) panel, ensuring patients, families, and the public have a strong voice in shaping research. With support from the Association of Medical Research Charities (AMRC), we developed resources to help people understand how to get involved and contribute meaningfully.
This year we announced £65,000 in research grants through our 2024 awards. The Research Advisory Group ranked the proposals, and the trustees agreed to fund three high-quality projects:
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Sex-Specific Outcomes and Quality of Life Post-Aortic dissection - King's College, London
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AI-Driven Digital Pathology for Aortic Dissection - University of Liverpool
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Diagnostic Blood Test for Acute Aortic Dissection - University of Cambridge
These grants enabled research that might otherwise go unfunded. In the short term, this has increased interest in studying aortic dissection. In the medium term, these projects will generate new knowledge and improve outcomes for patients. Patient and public input into each of these studies is central to their development and success.
Influencing policy
We continue to ensure that the voices of patients and families are represented at the highest levels of healthcare policy. This year, we took part in the Department of Health and Social Care Cardiovascular Disease Symposium, representing the needs and experiences of those affected by aortic dissection.
We also met with The Rt Hon Victoria Atkins MP, Secretary of State for Health and Social Care. During this meeting, we renewed the commitment to both the acute and elective aortic dissection toolkits, emphasising the need for their continued rollout and implementation across the NHS.
Fundraising activities
The charity's principal funding comes from donations, primarily through online giving. These contributions come from patients, their families and the public. We are extremely grateful for this support and to all those who fundraise on our behalf.
This year saw a wide range of fundraising activities, from large-scale events to community-led initiatives. Highlights included the Aortic Dissection Charity Ball and a performance of 'Tick, Tick ... Boom!' by Flash Theatre Productions. Our supporters also took on physical challenges, including Martin and Fiona Hilton's 630-mile walking challenge and Michael Lambert's solo kayak journey around the UK.
Community events were also a vital part of our fundraising. These included Uswim's New Year's Day Swim, Joanne Jackson's 80for80 Christmas Quiz, Lauren Denning's Disco and Bingo night and many others. Across the UK and Ireland, supporters organised coffee mornings, music events, cycling challenges and running events ranging from 5K to marathons.
Every fundraiser, no matter the size of the event, plays a vital role in helping us to achieve our mission. We thank everyone who contributed their energy and generosity this year.
FINANCIAL REVIEW
Financial position
During the year, total incoming funds amounted to £288k (2024: £121k). The increase was due to more resources being provided to marketing and fundraising activities. Total expenditure was £112k (2024: £55k) resulting in a surplus being achieved in the year amounting to £177k (2024: £66k). This net income will be used to fund further projects in the forthcoming financial year.
Cash at bank increased to £351k (2024: £176k) and the charity's net current assets as at 31 March 2025 were £351k (2024: £174k). The total unrestricted funds amounted to £351k (2024: £174k). No funds were restricted (2024: none).
Principal funding sources
The charity's principal funding sources come from donations (primarily online donations) from the general public.
Investment policy and objectives
The trustees adopt a risk averse investment policy, while seeking to obtain a good income return. Funds are placed on interest-yielding bank accounts to maximise returns as far as possible.
Reserves policy
It is the policy of The Aortic Dissection Charitable Trust to maintain sufficient reserves, both assets and cash, to generate sufficient income to fulfil its objectives. The trustees will review, on an annual basis, the level of reserves and, if appropriate, designate sufficient reserves to fund projects.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing document
The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.
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THE AORTIC DISSECTION CHARITABLE TRUST
Report of the Trustees For The Year Ended 31 March 2025
STRUCTURE, GOVERNANCE AND MANAGEMENT Charity constitution
The charity is an unincorporated association.
Recruitment and appointment of new trustees
Additional trustees are appointed by the current trustees at a meeting of the trustees. Training and development of trustees is provided whenever it is necessary, such as when there are changes in charity legislation or regulatory requirements.
Risk management
The trustees have assessed the major risks to which the charity is exposed and are satisfied that systems are in place to mitigate exposure to the major risks.
REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number
1191420
Principal address
Brough House Barn Brough Derbyshire S33 9HG
Trustees
C Fowler (Chair) P Latham G Cooper
Independent Examiner
Leavitt Walmsley Associates Limited Chartered Certified Accountants 8 Eastway Sale Cheshire M33 4DX
Bankers
Barclays Bank PLC Epworth Cash Plus for Charities
Approved by order of the board of trustees on 7 November 2025 and signed on its behalf by:
G Cooper - Trustee
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Independent Examiner's Report to the Trustees of The Aortic Dissection Charitable Trust
Independent examiner's report to the trustees of The Aortic Dissection Charitable Trust
I report to the charity trustees on my examination of the accounts of The Aortic Dissection Charitable Trust (the Trust) for the year ended 31 March 2025.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Independent examiner's statement
Since your charity's gross income exceeded £250,000 your examiner must be a member of a listed body. I can confirm that I am qualified to undertake the examination because I am a member of the Association of Chartered Certified Accountants, which is one of the listed bodies.
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or 2. the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Steven John Collings FCCA
Leavitt Walmsley Associates Limited Chartered Certified Accountants 8 Eastway Sale Cheshire M33 4DX
7 November 2025
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THE AORTIC DISSECTION CHARITABLE TRUST
Statement of Financial Activities For The Year Ended 31 March 2025
| 31.3.25 Unrestricted fund Notes £ INCOME AND ENDOWMENTS FROM Donations and legacies 277,150 Investment income 3 11,124 Total 288,274 EXPENDITURE ON Charitable activities 4 Charitable activities 111,517 Other 183 Total 111,700 NET INCOME 176,574 RECONCILIATION OF FUNDS Total funds brought forward 174,071 TOTAL FUNDS CARRIED FORWARD 350,645 |
31.3.24 Total funds £ 118,537 2,438 |
|---|---|
| 120,975 | |
| 50,544 4,787 |
|
| 55,331 | |
| 65,644 108,427 |
|
| 174,071 |
The notes form part of these financial statements
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THE AORTIC DISSECTION CHARITABLE TRUST
Balance Sheet
31 March 2025
| 31.3.25 Unrestricted fund Notes £ CURRENT ASSETS Debtors 7 1,193 Cash at bank 351,342 352,535 CREDITORS Amounts falling due within one year 8 (1,890) NET CURRENT ASSETS 350,645 TOTAL ASSETS LESS CURRENT LIABILITIES 350,645 NET ASSETS 350,645 FUNDS 9 Unrestricted funds 350,645 TOTAL FUNDS 350,645 |
31.3.24 Total funds £ 326 175,895 176,221 (2,150) 174,071 174,071 174,071 174,071 174,071 |
|---|---|
The financial statements were approved by the Board of Trustees and authorised for issue on 7 November 2025 and were signed on its behalf by:
G Cooper - Trustee
The notes form part of these financial statements
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THE AORTIC DISSECTION CHARITABLE TRUST
Notes to the Financial Statements For The Year Ended 31 March 2025
1. STATUTORY INFORMATION
The Aortic Dissection Charitable Trust is a charity registered in England and Scotland. The principal address can be found on the Legal and Administrative page.
2. ACCOUNTING POLICIES
Basis of preparing the financial statements
The financial statements of the charity have been prepared in accordance with the charity's governing document, the Charities Act 2011 and 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)'. The charity is a Public Benefit Entity as defined by FRS 102.
The charity has taken advantage of the provisions in the SORP for charities applying FRS 102 Update Bulletin 1 not to prepare a statement of cash flows.
The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.
The accounts have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
Going concern
At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Hence, the trustees continue to adopt the going concern basis of accounting.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation, where material.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Grants payable are charged in the year when the offer is conveyed to the recipient.
Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure.
Taxation
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
Financial instruments
Financial Instruments are classified and accounted for according to the substance of the transaction as either a financial asset, liability or equity instrument. An equity instrument is any contract that evidences a residual interest in the assets of the company after all liabilities have been deducted.
The charity has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments.
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THE AORTIC DISSECTION CHARITABLE TRUST
Notes to the Financial Statements - continued
For The Year Ended 31 March 2025
2. ACCOUNTING POLICIES - continued
Financial instruments
Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.
Financial assets and financial liabilities are offset, with net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.
Basic financial assets
Basic financial assets, which include cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently measured at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
Impairment of financial assets
Financial assets, other than those held at fair value through income and expenditure, are assessed for indicators of impairment at each reporting date. Financial assets are impaired where there is objective evidence that, as a result of one or more events that occurred after the initial recognition of the financial asset, the estimated future cash flows have been affected.
If an asset is impaired, the impairment loss is the difference between the carrying amount and the present value of the estimated cash flows at the asset's original effective interest rate. The impairment loss is recognised in net income/(expenditure) for the year.
If there is a decrease in the impairment loss arising from an event occurring after the impairment was recognised, the impairment is reversed. The reversal is such that the carrying amount does not exceed what the carrying amount would have been had the impairment not previously been recognised. The impairment reversal is recognised in net income/(expenditure) for the year.
Derecognition of financial assets
Financial assets are derecognised only when the contractual rights to the cash flows from the asset expire or are settled, or when the charity transfers the financial asset and substantially all the risks and rewards of ownership to another entity, or if some significant risks and rewards of ownership are retained but control of the asset has transferred to another party that is able to sell the asset in its entirety to an unrelated third party.
Basic financial liabilities
Basic financial liabilities, including trade and other payables, are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future receipts discounted at a market rate of interest. Debt instruments are subsequently carried at amortised cost, using the effective interest method.
Debt instrument are subsequently carried at amortised cost, using the effective interest method.
Trade creditors and accruals are obligations to pay for goods and services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the charity's contractual obligations expire or are discharged or cancelled.
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THE AORTIC DISSECTION CHARITABLE TRUST
Notes to the Financial Statements - continued For The Year Ended 31 March 2025
3. INVESTMENT INCOME
| INVESTMENT INCOME | ||||
|---|---|---|---|---|
| 31.3.25 | 31.3.24 | |||
| £ | £ | |||
| Deposit account interest | 11,124 | 2,438 | ||
| CHARITABLE ACTIVITIES COSTS | ||||
| Grant | ||||
| Direct | funding of | Support | ||
| Costs | activities | costs | Totals | |
| £ | £ | £ | £ | |
| Charitable activities | 74,934 | 25,930 | 10,653 | 111,517 |
4. CHARITABLE ACTIVITIES COSTS
5. TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 31 March 2025 nor for the year ended 31 March 2024.
Trustees' expenses
There were no trustees' expenses paid for the year ended 31 March 2025 nor for the year ended 31 March 2024.
6. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
| Unrestricted | |
|---|---|
| fund | |
| £ | |
| INCOME AND ENDOWMENTS FROM | |
| Donations and legacies | 118,537 |
| Investment income | 2,438 |
| Total | 120,975 |
| EXPENDITURE ON | |
| Charitable activities | |
| Charitable activities | 50,544 |
| Other | 4,787 |
| Total | 55,331 |
| NET INCOME | 65,644 |
| RECONCILIATION OF FUNDS | |
| Total funds brought forward | 108,427 |
| TOTAL FUNDS CARRIED FORWARD | 174,071 |
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THE AORTIC DISSECTION CHARITABLE TRUST
Notes to the Financial Statements - continued For The Year Ended 31 March 2025
| 7. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR Prepayments 8. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR Other creditors 9. MOVEMENT IN FUNDS At 1.4.24 £ Unrestricted funds General fund 174,071 TOTAL FUNDS 174,071 Net movement in funds, included in the above are as follows: Incoming resources £ Unrestricted funds General fund 288,274 TOTAL FUNDS 288,274 Comparatives for movement in funds At 1.4.23 £ Unrestricted funds General fund 108,427 TOTAL FUNDS 108,427 Comparative net movement in funds, included in the above are as follows: Incoming resources £ Unrestricted funds General fund 120,975 TOTAL FUNDS 120,975 |
31.3.25 31.3.24 £ £ 1,193 326 31.3.25 31.3.24 £ £ 1,890 2,150 Net movement At in funds 31.3.25 £ £ 176,574 350,645 176,574 350,645 Resources Movement expended in funds £ £ (111,700) 176,574 (111,700) 176,574 Net movement At in funds 31.3.24 £ £ 65,644 174,071 65,644 174,071 Resources Movement expended in funds £ £ (55,331) 65,644 (55,331) 65,644 |
31.3.24 £ 326 31.3.24 £ 2,150 At 31.3.25 £ 350,645 |
|---|---|---|
| 350,645 | ||
| 65,644 |
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THE AORTIC DISSECTION CHARITABLE TRUST
Notes to the Financial Statements - continued For The Year Ended 31 March 2025
9. MOVEMENT IN FUNDS - continued
A current year 12 months and prior year 12 months combined position is as follows:
| Unrestricted funds General fund TOTAL FUNDS |
At 1.4.23 £ 108,427 108,427 |
Net movement in funds £ 242,218 242,218 |
At 31.3.25 £ 350,645 |
|---|---|---|---|
| 350,645 |
A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 409,249 | (167,031) | 242,218 |
| TOTAL FUNDS | 409,249 | (167,031) | 242,218 |
10. RELATED PARTY DISCLOSURES
During the year, the charity paid an amount of £9,660 (2024: £nil) to Always Be Connecting, an entity in which the husband of Catherine Fowler (trustee) has an interest.
Always Be Connecting provides marketing, fundraising and project management support to the charity. All fees are charged at a 60% discount of the market rate, subject to an annual maximum amount of £20,000.
At the balance sheet date, no amounts were outstanding (2024: £nil) and no amounts have been waived or written off (2024: £nil).
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