Charitable incorporated organisation registration number: CE023524 Charitable incoporated organisation registration number: 1191402
## Lobular Breast Cancer UK
(A charitable incorporated organisation)
Annual Report and Financial Statements
for the period from 22 September 2020 to 31 December 2021
## Lobular Breast Cancer UK
## Contents
|Reference and Administrative Details|1|
|---|---|
|Chair's Statement|2|
|Trustees' Report|3 to 8|
|Statement of Trustees' Responsibilities|9|
|Accountants' Report|10|
|Statement of Financial Activities|11|
|Balance Sheet|12|
|Notes to the Financial Statements|13 to 17|
## Lobular Breast Cancer UK
Reference and Administrative Details Trustees Claire L Turner, Chair Elaine Nangle Emma Amos Dannielle Buck Dr Helen L Coulthard Registered and Principal Office 83 Ducie Street Manchester M1 2JQ The charitable incoporated organisation is incorporated in England and Wales. Charitable incorporated CE023524 organisation registration Number Charitable incoporated organisation1191402 Registration Number Bankers The Co-operative Bank PO Box 250 Def House Southway Skelmersdale WN8 6WT Accountants Beever and Struthers St George's House 215-219 Chester Road Manchester M15 4JE
Page 1
## Lobular Breast Cancer UK
## Chair's Statement
## "Never doubt that a small group of thoughtful committed individuals can change the world."
## Margaret Mead
Having a breast cancer diagnosis is a traumatic experience. Being given a diagnosis and then being told it’s a disease that you’ve never even heard of, only compounds the fear and sense of isolation. This is the experience of most people on being told that they have lobular breast cancer: the second most prevalent subtype of this disease.
Despite making up around 15% of all breast cancers, there are no targeted treatments for lobular despite research demonstrating that it behaves and responds to treatments in a unique way.
Covid-19 has also had a devastating effect on cancer treatment since 2020 with increased waiting times, delays in diagnosis and treatments being postponed or stopping completely.
Whilst I would never advise anyone to set up a charity in the middle of a global pandemic, it highlighted the importance of patient focused organisations in driving forward our needs and ensuring that we are at the heart of new knowledge, innovations and clinical change.
I am really proud of what we have achieved in our first year as a small group of volunteers. We are already seeing impacts from the work we have begun.
I want to personally thank our Founder Members & first Trustees Emma Amos, Danni Buck, Helen Coulthard, Darlaine Honey, Lorna McHattie, Kirstin Spencer and Ruth Warden for their vision, energy and commitment in launching our Charity. We are all living with a lobular breast cancer diagnosis.
Our Board joins me in thanking our first Patron Josie Lloyd, who has had her own lobular diagnosis; our Scientific and Medical Advisory Group; our families, friends, supporters, funders and partners especially our international partners Lobular Breast Cancer Alliance, Lobular Ireland and the European Lobular Breast Cancer Consortium.
We look forward to 2022 with renewed vigour and a commitment to unlocking the primary challenges presented by this distinct disease that is lobular breast cancer.
With warm wishes
Claire Turner
Chair
Page 2
## Lobular Breast Cancer UK
## Trustees' Report
The trustees, who are directors for the purposes of company law, present the annual report together with the financial statements of the charitable company for the period ended 31 December 2021.
## Trustees
Claire L Turner, Chair (appointed 22 September 2020)
Elaine Nangle (appointed 1 January 2022)
Emma Amos (appointed 15 August 2021) Dannielle Buck (appointed 22 September 2020)
Dr Helen L Coulthard (appointed 22 September 2020)
Lorna McHattie (appointed 22 September 2020 and resigned 31 December 2021)
## Objectives and activities
## Objects and aims
The object of the CIO is to preserve and protect the health and wellbeing of people in the UK through the provision of education, training, support with trials and research, lobbying and advocacy around lobular breast cancer.
## Review of Activities
We lead with our purpose “Working together, we can all live well” and our primary value “The patient is always first”
Launching a new charity in the middle of a global pandemic was no mean feat but it demonstrated our resilience, professionalism and commitment to making changes in the lives of everyone with a lobular breast cancer diagnosis.
The restrictions of the pandemic prevented us from providing activity in a face-to-face capacity, and actually accentuated the isolation that many people feel from a lobular breast cancer diagnosis.
We had to rethink the initial plans for our first year identifying what we could do digitally and remotely that enabled us to drive forward our aims and provide public benefit.
In October 2021, published author Josie Lloyd joined us as our first Patron, bringing her own lived experience of a lobular diagnosis to the charity.
## Stakeholder Consultation
We held a series of online consultation workshops with people who have had a lobular breast cancer diagnosis. This was to ensure that our plans were in line with the needs of a broad range of people and not simply the initial founder members.
This consultation has been fed into our plans for the charity.
Page 3
## Lobular Breast Cancer UK
## Trustees' Report
## Objectives, strategies and activities
Page 4
## Lobular Breast Cancer UK
## Trustees' Report
In October 2021, working with De Montfort University, we launched a Delphi study Setting Priorities for lobular breast cancer research: a patient-led consensus study led by Dr Helen Coulthard and Dr Lorna McHattie to help lead out work in the UK. The study will be published in 2022.
With imaging being a huge issue for lobular patients, De Montfort University MA student Victoria Rake, began a study to understand the experience of having a cancer that has been missed on mammogram: Missed Cancers: Lobular Breast Cancer that has been missed on screening. The findings will be published in 2022.
We lead with our purpose “Working together, we can all live well” and our primary value “The patient is always first”
Launching a new charity in the middle of a global pandemic was no mean feat but it demonstrated our resilience, professionalism and commitment to making changes in the lives of everyone with a lobular breast cancer diagnosis.
The restrictions of the pandemic prevented us from providing activity in a face-to-face capacity, and actually accentuated the isolation that many people feel from a lobular breast cancer diagnosis.
We had to rethink the initial plans for our first year identifying what we could do digitally and remotely that enabled us to drive forward our aims and provide public benefit.
In October 2021, published author Josie Lloyd joined us as our first Patron, bringing her own lived experience of a lobular diagnosis to the charity.
## Fundraising disclosures
We began planning the delivery of our first pilot fundraising event Walking our Mammaries, a mountain challenge tackling peaks named after breasts. The challenge will take place in May 2022 in Scotland. In October 2021, 8 women took part in the first training weekend for the challenge in the Peak District.
We have received donations and in-kind support from companies Boom Solutions, Eden Search, Joy of Adventure, Large Outdoors and individual donations from family and friend supporters in helping us to fund the first year of our charity.
## Public benefit
The trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.
## Financial review
As a volunteer run charity we currently have no overheads.
Our annual budgets are approved and monitored by the Board at each quarterly meeting. Any variances from the proposed budget are highlighted and discussed at the meetings.
In the opinions of the Trustees, the Charitable Company’s assets are sufficient to fulfil the obligations of the Charity.
Page 5
## Lobular Breast Cancer UK
## Trustees' Report
## Policy on reserves
For the first year, the Board has agreed to have zero reserves due to there being very limited fixed operational costs within LBCUK (especially no staff costs) and no picture of the actual overheads and income streams that we will be accessing as a new charity.
In the long term, the trustees propose to maintain the charity’s reserves at a level which is at least equivalent to three/six months’ operational expenditure. This figure will be set after production of our first charity accounts..
## Plans for future periods
## Aims and key objectives for future periods
Our future plans focus on building activity to achieve the four key aims of our charity:
AIM 1: INFORMATION & EDUCATION: we advance education and understanding of lobular breast cancer by providing information for the public, clinicians, health professionals, researchers, relevant charities and the media.
AIM 2: POLICY & TREATMENT GUIDELINES: we will work with partners to develop appropriate policy and treatment guidelines across the UK, recognising the different health systems across the four countries.
AIM 3: RESEARCH: we will work with patients, clinicians and health professionals to ensure that research and trials conducted for lobular breast cancer meet the needs of patients, and we will raise funds for research projects.
AIM 4: SUPPORT: we provide routes to appropriate support and connection for patients, reducing the isolation and fear of a lobular breast cancer diagnosis.
A key focus for 2022 is to start providing activity that brings together people who have had a lobular diagnosis helping to reduce their isolation and provide information in a safe and supportive environment.
We want to build stronger collaborative relationships across the UK and internationally with other lobular specific and breast cancer charities. In June 2022, we will be attending the annual International ILC Symposium to build knowledge about LBCUK, strengthen existing and build new relationships, and to be at the forefront of research into this distinct disease.
## Structure, governance and management
## Nature of governing document
The Charity is a Charitable Incorporated Organisation and is governed by its Foundation CIO Constitution. It is registered as a CIO with the Charity Commission for England & Wales.
Page 6
## Lobular Breast Cancer UK
## Trustees' Report
## Recruitment and appointment of trustees
The Trustees are collectively known as the Board.
Trustees are appointed by invitation from the existing Trustees and through an open recruitment process, following a majority vote of the Trustees of the Charity.
Invited potential Trustees are requested to either provide a CV and covering letter for consideration by the Board or to complete a formal application process for open recruitment. All Trustees are interviewed by a panel of three Trustees and a recommendation is made to the Board if they are determined to be suitable to be invited as a Trustee.
## Induction and training of trustees
New Trustees are provided with a copy of the Charity Commission’s leaflet for new Trustees, 'The Essential Trustee: what you need to know, what you need to do' (CC3), copy of our Constitution, a copy of the Charity Governance Code, recent Board minutes and Annual Report and Accounts. They also receive a briefing with the current Chair.
## Organisational structure
The Charity is governed by the Board and managed by the charity’s Trustees and four voluntary Founder Members. The Trustees who have acted during the year are listed above.
Trustees meet together approximately 4 - 5 times a year to discuss and agree on all matters of charity governance, policy and strategy. Further ad hoc meetings are organised as required to address specific issues. Trustees develop strategies to increase charity awareness, widen reach across our stakeholders and build the sustainability of this new and growing organisation.
These meetings also include budget reports and cash flow. Any changes in strategy are discussed, amended and when agreed, adopted as written charity policy by Trustees.
Where risks are identified, steps are taken to mitigate these risks, including reference to how the charity has met its charitable aims in the advancement of education, training, support, research and advocacy. Any actions taken are then reported on and reviewed at subsequent meetings.
The implementation of policies and strategies is delivered operationally by the five Trustees and the four volunteer Founder Members. To ensure that all of our activities are evidence based and reflect the latest scientific knowledge about lobular breast cancer, we have a Scientific and Medical Advisory Group involving five respected clinicians and researchers in the field of lobular breast cancer.
We have no premises and are based across the UK.
All Trustees and relevant volunteers are DBS checked and participate in relevant training programmes.
Page 7
## Lobular Breast Cancer UK
## Trustees' Report
## Major risks and management of those risks
## Review of Risks
The Trustees have considered the major risks facing the charity and have put in place appropriate policies and procedures to mitigate them.
COVID 19 remains an on-going concern, especially when working with people who may be vulnerable, and we continue to follow government guidelines in this area.
The annual report was approved by the trustees of the charitable incoporated organisation on 31 October 2022 and signed on its behalf by:
......................................... Claire L Turner
Trustee
Page 8
## Lobular Breast Cancer UK
## Statement of Trustees' Responsibilities
Under charity law, the charity trustees are responsible for preparing the trustee's annual report and financial statements for each financial year in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), including FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland".
The law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the income and expenditure of the charity for that period. In preparing these financial statements, the trustees are required to:
- select suitable accounting policies and apply them consistently;
- observe the methods and principles in the Charities SORP;
- make judgements and estimates that are reasonable and prudent;
- state whether FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" has been followed, subject to any material departures disclosed and explained in the financial statements; and
- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping accounting records that are sufficient to show and explain the charity's transactions and disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charities (Accounts and Reports) Regulations 2008 and the provisions of the CIO constitution. It is also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
Approved by the trustees of the charitable incoporated organisation on 31 October 2022 and signed on its behalf by:
......................................... Claire L Turner Trustee
Page 9
## Chartered Accountants' Report to the Trustees on the Preparation of the Unaudited Statutory Accounts of Lobular Breast Cancer UK for the Period Ended 31 December 2021
In order to assist you to fulfil your duties under the Companies Act 2006, we have prepared for your approval the accounts of Lobular Breast Cancer UK for the period ended 31 December 2021 as set out on pages 11 to 17 from the company's accounting records and from information and explanations you have given us.
As a practising member firm of the Institute of Chartered Accountants in England and Wales (ICAEW), we are subject to its ethical and other professional requirements which are detailed at http://www.icaew.com/en/members/regulations-standards-and-guidance/ ].
This report is made solely to the Board of Directors of Lobular Breast Cancer UK, as a body, in accordance with the terms of our engagement letter. Our work has been undertaken solely to prepare for your approval the accounts of Lobular Breast Cancer UK and state those matters that we have agreed to state to the Board of Directors of Lobular Breast Cancer UK, as a body, in this report in accordance with ICAEW Technical Release 07/16 AAF. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than Lobular Breast Cancer UK and its Board of Directors as a body for our work or for this report.
It is your duty to ensure that Lobular Breast Cancer UK has kept adequate accounting records and to prepare statutory accounts that give a true and fair view of the assets, liabilities, financial position and results of Lobular Breast Cancer UK. You consider that Lobular Breast Cancer UK is exempt from the statutory audit requirement for the period.
We have not been instructed to carry out an audit or a review of the accounts of Lobular Breast Cancer UK. For this reason, we have not verified the accuracy or completeness of the accounting records or information and explanations you have given to us and we do not, therefore, express any opinion on the statutory accounts.
......................................
Beever and Struthers St George's House 215-219 Chester Road Manchester M15 4JE
31 October 2022
Page 10
## Lobular Breast Cancer UK
## Statement of Financial Activities for the Period from 22 September 2020 to 31 December 2021
(Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)
|||Unrestricted||Total|
|---|---|---|---|---|
|||funds||2021|
||Note|£||£|
|Income and Endowments from:|||||
|Donations and legacies|3|2,576||2,576|
|Other trading activities|4|2,422||2,422|
|Total income||4,998||4,998|
|Expenditure on:|||||
|Raising funds|5|(1,404)||(1,404)|
|Charitable activities|6|(1,246)||(1,246)|
|Total expenditure||(2,650)||(2,650)|
|Net income||2,348||2,348|
|Net movement in funds||2,348||2,348|
|Reconciliation of funds|||||
|Total funds carried forward|10|2,348||2,348|
All of the charitable incoporated organisation's activities derive from continuing operations during the above period.
The notes on pages 13 to 17 form an integral part of these financial statements. Page 11
## Lobular Breast Cancer UK
## (Registration number: CE023524) Balance Sheet as at 31 December 2021
|||2021|
|---|---|---|
||Note|£|
|Current assets|||
|Cash at bank and in hand|9|2,348|
|Funds of the charitable incoporated organisation:|||
|Unrestricted income funds|||
|Unrestricted funds||2,348|
|Total funds|10|2,348|
The financial statements on pages 11 to 17 were approved by the trustees, and authorised for issue on 31 October 2022 and signed on their behalf by:
......................................... Claire L Turner Trustee
The notes on pages 13 to 17 form an integral part of these financial statements. Page 12
## Lobular Breast Cancer UK
## Notes to the Financial Statements for the Period from 22 September 2020 to 31 December 2021
## 1 Charitable incoporated organisation status
The charitable incoporated organisation is limited by guarantee, incorporated in England and Wales. The address of its registered office is: 83 Ducie Street Manchester M1 2JQ
## 2 Accounting policies
## Summary of significant accounting policies and key accounting estimates
The principal accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all the years presented, unless otherwise stated.
## Statement of compliance
The financial statements have been prepared in compliance with United Kingdom Accounting Standards, including Financial Reporting Standard 102, ''The Financial Reporting Standard applicable in the United Kingdom and the Republic of Ireland'' (''FRS 102'') the Charities Act 2011, and Charities (Accounts and Reports) Regulations 2008, as well as the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” 2019.
## Basis of preparation
Lobular Breast Cancer UK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.
## Going concern
The trustees consider that there are no material uncertainties about the charitable incoporated organisation's ability to continue as a going concern nor any significant areas of uncertainty that affect the carrying value of assets held by the charitable incoporated organisation.
## Exemption from preparing a cash flow statement
The charitable incoporated organisation opted to early adopt Bulletin 1 published on 2 February 2016 and have therefore not included a cash flow statement in these financial statements.
## Income and endowments
All income is recognised once the charitable incoporated organisation has entitlement to the income, it is probable that the income will be received and the amount of the income receivable can be measured reliably.
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## Lobular Breast Cancer UK
## Notes to the Financial Statements for the Period from 22 September 2020 to 31 December 2021
## Donations and legacies
Donations are recognised when the charitable incoporated organisation has been notified in writing of both the amount and settlement date. In the event that a donation is subject to conditions that require a level of performance by the charitable incoporated organisation before the charitable incoporated organisation is entitled to the funds, the income is deferred and not recognised until either those conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charitable incoporated organisation and it is probable that these conditions will be fulfilled in the reporting period.
## Expenditure
All expenditure is recognised once there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with central staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use. Other support costs are allocated based on the spread of staff costs.
## Raising funds
These are costs incurred in attracting voluntary income, the management of investments and those incurred in trading activities that raise funds.
## Charitable activities
Charitable expenditure comprises those costs incurred by the charitable incoporated organisation in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.
## Support costs
Support costs include central functions and have been allocated to activity cost categories on a basis consistent with the use of resources, for example, allocating property costs by floor areas, or per capita, staff costs by the time spent and other costs by their usage.
## Taxation
The charitable incorporated organisation s a registered charity and is thus exempted from taxation of its income and gains falling within section 524 of the Income Tax Act 2007 to the extent that they are applied to its charitable objectives. No tax charge has arisen in the year.
## Cash and cash equivalents
Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value.
## Fund structure
Unrestricted income funds are general funds that are available for use at the trustees's discretion in furtherance of the objectives of the charitable incoporated organisation.
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## Lobular Breast Cancer UK
## Notes to the Financial Statements for the Period from 22 September 2020 to 31 December 2021
## Financial instruments
## Classification
Financial assets and financial liabilities are recognised when the charitable incorporated organisation becomes a party to the contractual provisions of the instrument.
Financial liabilities and equity instruments are classified according to the substance of the contractual arrangements entered into. An equity instrument is any contract that evidences a residual interest in the assets of the charitable incorporated organisation after deducting all of its liabilities.
## 3 Income from donations and legacies
||Unrestricted|||
|---|---|---|---|
||funds||Total|
||General||funds|
||£||£|
|Donations and legacies;||||
|Donations from individuals|2,349||2,349|
|Gift aid reclaimed|227||227|
|Total for period ended 31 December 2021|2,576||2,576|
## 4 Income from other trading activities
||Unrestricted|||
|---|---|---|---|
||funds||Total|
||General||funds|
||£||£|
|Events income;||||
|Other events income|2,155||2,155|
|Sponsorship income|267||267|
|Total for period ended 31 December 2021|2,422||2,422|
## 5 Expenditure on raising funds
## a) Costs of trading activities
|||Unrestricted|||
|---|---|---|---|---|
|||funds||Total|
|||General||funds|
||Note|£||£|
|Events and conferences||1,404||1,404|
|Total for period ended 31 December 2021||1,404||1,404|
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## Lobular Breast Cancer UK
## Notes to the Financial Statements for the Period from 22 September 2020 to 31 December 2021
## 6 Expenditure on charitable activities
Allocated support costs
||||Total|
|---|---|---|---|
||||costs|
||||£|
||Unrestricted|||
||funds||Total|
||General||funds|
|Note|£||£|
||1,246||1,246|
## 7 Trustees remuneration and expenses
No trustees, nor any persons connected with them, have received any remuneration from the charitable incoporated organisation during the year.
No trustees have received any reimbursed expenses or any other benefits from the charity during the year.
## 8 Taxation
The charitable incorporated organisation is a registered charity and is thus exempted from taxation of its income and gains falling within section 524 of the Income Tax Act 2007 to the extent that they are applied to its charitable objectives. No tax charge has arisen in the year.
## 9 Cash and cash equivalents
**----- Start of picture text -----**
2021
£
Cash at bank 2,348
10 Funds
Balance at 31
Incoming Resources December
resources expended 2021
£ £ £
Unrestricted funds
General 4,998 (2,650) 2,348
11 Analysis of net assets between funds
Unrestricted Total funds at
funds 31 December
General 2021
£ £
Current assets 2,348 2,348
**----- End of picture text -----**
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## Lobular Breast Cancer UK
## Notes to the Financial Statements for the Period from 22 September 2020 to 31 December 2021
## 12 Related party transactions
There were no related party transactions in the period.
Page 17