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2022-04-05-accounts

Cure Myotonic Dystrophy UK Charity (CDM) (CIO) REPORT OF THE TRUSTEES: 6th April 2021 to 5 th April 2022

The Trustees present their report together with the financial statements of the Charity for the year ended 5[th] April 2022.

Reference and Administrative Details:

Charity Number: 1191217

Registered Address: c/o Riverside View, Station Rd, Whitton, North Lincs, DN15 9LR

Directors and Trustees: The currently registered Trustees are Emma-Jayne Ashley, Peter Ashley (Chair), Karl Kibble, Stephen Uncles and Dr Alison Kay. All are first trustees.

There must be at least three (3) charity trustees. If the number falls below this minimum, the remaining trustee or trustees may act only to call a meeting of the charity trustees or appoint a new charity trustee. Apart from the first charity trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity trustees.

Objectives, Activities, Achievements and Performance:

The objectives of the charitable company are:

To preserve and protect good health among, and relieve the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by:

(a) providing information, help and support to such people and their families and carers;

(b) making financial donations to support organisations and individuals carrying out research into Myotonic Dystrophy, the useful results of which will be published for public benefit; and

(c) raising awareness of Myotonic Dystrophy within the general public, medical and scientific communities.

Raising funds is always high on our priority list. Due to Covid-19, many events and fundraising activities had to be cancelled this year. Financial income has come from donations and fundraising, from the community and donations from Cure DM Ventures CIC. The Board of Trustees have regular updates/meetings and an annual AGM, which are the main source of future Charity planning.

Services were maintained in the following areas:

Due to the ongoing Covid-19 Pandemic, most consultations, conferences, and discussions between all stakeholders were held virtually and/or via email. We hope that in person meetings can begin very soon. In the period April 2021-2022: -

Research

Presented Cure DM Posters at scientific conferences (EAP and MRC), raising the profile of congenital and childhood onset DM in the UK.

Awareness:

Support:

Fundraising:

News and information:

The charity facilitates a private social media group, and a public charity page on Facebook. These are platforms for sharing articles, peer support, sharing experiences and ideas. Information is shared on research progress and other matters impacting on families of disabled children and adults. There is also a website and a Twitter account – used to keep families up to date with news and events.

Stakeholders:

Events:

The charity endeavours to facilitate social events where families can enjoy a relaxed atmosphere whilst sharing their experiences and ideas. Events this year were cancelled due to the Covid-19 pandemic.

Review of Public Beneft:

In setting out our objectives and planning our activities, the Trustees have given careful consideration to the Charity Commission’s general guidance on public benefit, and cancelled face to face events until it is safe.

Future Plans:

We continually strive to expand our services to meet growing demand, in a planned and financially prudent way, ensuring all projects stand on a sound financial footing and that the charity moves forward and grows, but does so responsibly.

The restrictions necessitated by the Covid-19 pandemic and the vulnerability of our community/families caused us to delay planned social/peer support activities (days out, holidays etc.), normally at the core of our work, which has reduced our expenditure.

Income/Expenditure:

The excess of income over expenditure in the year amounted to £19,632 (this is our first full-year accounting period.

Investment powers and policy:

The CIO has power to do anything which is calculated to further its Objects or is conducive or incidental to doing so , as laid out in the Constitution.

Reserves policy:

The state of the economy and resulting downturn in donations received means sufficient reserves may need be held. There is no policy in place dictating reserve amounts. The Trustees carefully monitor this area to ensure adequate funding is available for the continuation of services and financial obligations.

Structure, Governance and Management Governing Document:

Cure Myotonic Dystrophy UK Charity (CDM) is a registered charity (charity number 1191217), which achieved registered charity status on 9 September 2020.

The CIO is governed by Constitution of Charitable Incorporated Organisation (Foundation Structure).

The CIO is registered with the Fundraising Regulator.

Appointment of Trustees:

Trustees are appointed by the Trustees at the Annual General Meeting in accordance with the Charity’s Constitution. No external bodies have the right to appoint Trustees.

Trustee induction and training:

New Trustees are introduced to the operations of the organisation and are given information on the responsibilities of being a Trustee as well as copies of the Constitution. Training is provided to Trustee’s as required.

The board of Trustees meet regularly and administer the CIO. The charity has no employees. The Trustees are responsible for all decisions.

Trustees’ responsibilities require preparation of financial statements that give a true and fair view of the state of affairs of the CIO, at the end of the financial year, and of its surplus or deficit for the financial year.

In doing so the Trustees are required to:

The Trustees are responsible for maintaining accounting records which disclose with reasonable accuracy at any time the financial position of the CIO. The Trustees are also responsible for safeguarding the assets of the Charity, taking reasonable steps for the prevention and detection of fraud and other irregularities.

Signed by two trustees on behalf of all trustees:

Trustee 1: Name and date:

Trustee 2: Name and date:

Cure Myotonic Dystrophy Charity (CDM) Cure Myotonic Dystrophy Charity (CDM) Cure Myotonic Dystrophy Charity (CDM) No (if any)
Receipts andpayments accounts CC16a
For the period
from		 06/04/2021 To 05/04/2022

Section A Receipts and payments

A1 Receipts Unrestricted
funds
to the nearest
£
28,964
2,787
5,386
-
-
-
-
-
37,137
-
-
-
37,137
1,896
2,066
684
6,102
277
4,724
1,756		 Unrestricted
funds
to the nearest
£
28,964
2,787
5,386
-
-
-
-
-
37,137
-
-
-
37,137
1,896
2,066
684
6,102
277
4,724
1,756		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Endowment
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Endowment
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Total funds
to the nearest £
28,964
2,787
5,386
-
-
-
-
-
37,137
-
-
-
37,137
1,896
2,066
684
6,102
277
4,724
1,756
-
17,505
-
-
-
17,505
19,632		 Total funds
to the nearest £
28,964
2,787
5,386
-
-
-
-
-
37,137
-
-
-
37,137
1,896
2,066
684
6,102
277
4,724
1,756
-
17,505
-
-
-
17,505
19,632		 Last year
to the nearest £
Donations 28,964 -
Giftt Aid 2,787 -
CommunityEvent refunds 5,386 -
- -
- -
- -
- -
- -
Sub total(Gross income for
AR)		 37,137 -
A2 Asset and investment sales,
(see table).
-
- -
Sub total - -
Total receipts
A3 Payments
-
CommunityEvents 1,896 - - -
Administration costs 2,066 - - -
Paypal fees 684 - - -
Research Grants 6,102 - - -
Conferences 277 - - -
Event Cancellation Refunds 4,724 - - -
Advertising& Promotioin 1,756 - - -
- - -
- - - - -
**Sub total ** 17,505 - - 17,505 -
A4 Asset and investment
purchases, (see table)
-
-
**Sub total ** - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
-
19,632 19,632 -
- - -
16,751 16,751 -
36,383 36,383 -

CCXX R1 accounts (SS)

29/06/2022

1

Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B5 Liabilities
B3 Investment assets
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B1 Cash funds		 Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Bank Account
Paypal Account
Details
Details
Details
Signature		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
35,577
-
806
-
-
-
36,383
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval

CCXX R2 accounts (SS)

29/06/2022

2

(HARITY COMMISSION FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to the trustees1 members of Cure Myotonic t>ystrophy Charrty (CDM) On accounts for the year ended 5° April 2022 Charlty no (If any) 1191217 Set out on pag•s land2 I report to th8 trustees on my examination of the accounts of the above charity ('the Trust") for the year ended 0510412022. Re8pon8lbllltlo• and ba8is of report As the charily's trustees, you are responsible for the preparation of the accounts in accordance wrth the requirements of the Charities Act 2011 (' Ine Act ). I report in reswct of my examination of the Trust's accounls carried out under section 145 of the 2011 Act and in carrying Out my examination, I have followed all the applicable Directions given by the Charity Commission und8r section 14515)(b) of Act. Indepondont I have completed my examination. I confim that no material matter8 have •xamln•rf8 Statement come to my attention in connection with th8 examination {other than that disclosed below") which give8 me rAuse to believe that in, any material respect.. the accounting records were not kept in accordance with section 130 of the Charities Act,. or the accounts did not accord with the accounting records,. or the accounts did not coM￿Y with the applicable requirements concerning the fomi arKI content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any ￿qUirernent that the accounts give a Irue and fairf view vthich is not a matter considered as part of an independent examinalion. I have no concerns and have eome acro88 no oth6r m•tt•r• rn conne¢tion with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. ' Please delete the in the breckets rfthey do not apply. 2910612022 Slgn•d: Date.. Name: DAVID GLOSSOP Relevant profe8slonal quallficatlon{8l or body lif any): FMAAT Address: 53 I￿￿1n Road, Blyton IER Oct 2018

Gainsborough, Lincolnshire DN213LS Section B Disclosure Only complete if the examiner needs to highlight material matters of concern (see CC32, Independeni examinatson of chanty accounts. directions and guidance for examiners). Glve here brl•f detalls of any items that the examlner wishes to dlsclo8e. IER Oct 2018