2024-09-30-accounts

Trustees’ Annual Report for the period

From 1.10.23 Period start date To 30.9.24 Period end date

Charity name:The National Wiedemann Steiner Syndrome Warriors

Charity registration number:1191194

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	To support awareness of Wiedemann Steiner Syndrome, helping families. To purchase the required equipment when needed. To hold yearly and regional events.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Supported fund raising support. To provide equipment when needed. To provide support and guidance when required. To support young people with WSS into paid employment. To support community projects in raising awareness and educational settings
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard ot the charity commision’s guidance on public benefit when planning all events and what is the best way to spend funds.

Additional information (optional)

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SORP reference N/A Para 1.38 Policy on grant making N/A Para 1.38 Policy on social investment including program related investment

Contribution made by volunteers	Para 1.38	NWSSW could not run without the dedication of our admin team, trustees, parents, carers and young people.
Other		N/A

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	1.10.23 - 30.9.24 We have had a some fundraising events this year but things have slowed own due to the cost of living crisis. We have held our annual conference and supplied some families with equipment to support their child’s and young persons needs.

Additional information (optional)

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Achievements against objectives set	Para 1.41	Whilst no formal objectives are set for any given period ,the Trustees are always striving to increase the amounts that are raised
Performance of fundraising activities against objectives set	Para 1.41	N/A
Investment performance against objectives	Para 1.41	N/A

NIA Other

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	At the end of the financial year the charity had £20352.94 in the bank account.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	N/A
Amount of reserves held	Para 1.22	N/A
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional)

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The charity’s principal sources of funds (including any fundraising)	Para 1.47	The main source of funding comes from families and members of the public.
Investment policy and objectives including any social investment policy adopted	Para 1.46	N/A
A description of the principal risks facing the charity	Para 1.46	N/A
Other		N/A

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Uncorporated association
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Trustees are appointed or reappointed annually at the Annual General Meeting held in October

Additional information (optional)

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Policies and procedures adopted for the induction and training of trustees	Para 1.51	Safeguarding
The charity’s organisational structure and any wider network with which the charity works	Para 1.51	N/A
Relationship with any related parties	Para 1.51	N/A
Other		The success of our charity is down to the hard work of all our families

Reference and Administrative details

Charity name	The National Wiedemann Steiner Syndrome Warriors
Other name the charity uses
Registered charity number	1191194

	Charity’s principal address 37 Palesides Avenue Ossett West Yorkshire WF5 9NL

Names of the charity trustees who manage the charity

	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (if any)
1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Alison Jane Smith	Chair	2023-2024
	Joanne Elizabeth Armitage	Trustee	2023-2024
	Dawn Lisa Howard	Trustee	2023-2024

Corporate trustees – names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity	N/A
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects	N/A
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets	N/A

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of Name Address adviser

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees Signature(s) A Smith Full name(s) Alison Smith Position (eg Chair Secretary, Chair, etc)

Date 01/07/2025

Ye8r: Date Description Account Payment (Debit) Deposit (Credit) Total 255.1 tMQihE Ltc21É 12LF) SCO. oiTh. 33-9 2fi63 sè 2LI 39Jp' LJÉÈ 5 Luifs , 1319 30 loa. (q