# THE NATIONAL WIEDEMANN-STEINER SYNDROME WARRIORS (NWSSW)

## Details

- **Country:** England & Wales
- **Charity number:** 1191194
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 8, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1191194


## Contact

- **Address:** 37 Palesides Avenue, OSSETT, West Yorkshire
- **Postcode:** WF5 9NL
- **Phone:** 07557052670
- **Email:** alisonsmith0971@gmail.com



## Activities

**Objects:** TO RELIEVE THE NEEDS OF PEOPLE WITH WIEDEMANN-STEINER SYNDROME, THEIR PARENTS AND CARERS IN ANY PART OF THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, ADVICE, TRAINING AND RECREATIONAL ACTIVITIES, WITH A VIEW TO CREATING AND DEVELOPING CONDITIONS WHICH WILL ENABLE PEOPLE WITH WIEDEMANN-STEINER SYNDROME TO ATTAIN THEIR FULL POTENTIAL

**Activities:** We host an annual event to bring WSS warriors and their families closer together,




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Sept. 30, 2025 | £502 | £972 | — | — |
| Sept. 30, 2024 | £5488 | £6667 | — | — |
| Sept. 30, 2023 | £8665 | £5880 | — | — |
| Sept. 7, 2022 | £17732 | £3210 | — | — |
| Sept. 7, 2021 | £5043 | £776 | — | — |



## Trustees

- **Alison Jane Smith** (Chair) — appointed Sept. 8, 2020
- Dawn Lisa Howard — appointed Aug. 6, 2021
- Joanne Elizabeth Armitage — appointed Sept. 8, 2020
- Kim Purnell — appointed Dec. 1, 2023