RLGISTLRED CIIARI'fY NUMBEK: 1191179
)ort oftlle I'ru$tees gnd
Unm
Ited Finkntifjl StAttm
fDrt
1st Jul 2024
Farries Kirk & Mcvcan
Diiiiifriib LnlLrpris¢ Park
DUMI',Rifssi.IlRE
DGI 3S,I

R¢port oftho Trust¢4s
Ind¢p¢ntl4n¢ F.x*minEr'# Report
Stattmtnt of b"IhLJJ¢l#l Aetlvltlts
IIHlnnce Shcct
Not¢$ to th¢ FIn￿ntIn1 StRtom¢nt$
D¢tDIIEd Skntement of Fill￿￿(1￿1 Activiti¢

ACF SMA
rt of tho'l'rust
ror tht YeAI' Li Jlst Jul 2024
Thc li'ustccs prosci)t ilieir r¢puri wlth Ilic financial sialcincniy of Ihe charlty for the yellr eiidcd J 1st July 2024. Tlie tYust¢¢s li&v¢ Adopted
Ihe provisions of Accounling and Reporting by Chariti¢s', SIui¥m¢nl uf RL¢oinmLndLd Prllclicc applicablL lu cbarilics prcpariiig Ilicir
accouiiis in ttc¢ordaiice willi Ihr financial Ilcporiing Stund4rd opplical)Ic in Ilic UK and Republic ol. lielund 11.'RS 1021 l¥tt¢¢liv¥ I
Janiillry 20191.
OBJb.CTIVli S AND ACTIVII'ILS
ObJe¢tlvc$ *od Jlm5
Thc objcciivc% of ilie L'IO or¢ IhL rLliLfof&ickiic55 and th¢ PiLservaiion of he￿th. iii pdrticular but not ¢x¢lusiv¢ly by,,
la} lh¢ rclicfand Ircatmcni of p¢opl¥ iviili Spintil MLiiculur Airophy.,
Ibl IliL prvittoliTrn and support Of re%¢&i'¢l) into Ilie causL, IrL'lllmcnl nnd possibl¢ pr¢v¢nllon of Splnal Mus¢ulllr Airophy and thc
Publ1¢ bin¢tit
Lauiicli ol'ivch%it¥' Iiiid (JLinulion mcchani5n)
Rcgulttr sOCi41 mcdi) eiigllgcmeiii
Various ¥vents ￿11￿ aciivitics to rai5c fund.$, .e.8. charlty walk, ¢otrce niornings. puintittg aiiclion
Tho fir%1 acliviiy Ilie ¢liiirily IS supporting 15 clinical rLscarch willi I'e8llrd$ Ilie obj¢ciiv¢ ofih¢ ¢liariiy
ACIIIEVEMEN'Y AND PERTrORMANCE
Iiitro(IIiciioii'. I'h¢ ACE SMA EloaTd of 'l'i'ust¢¢s is pl¢usid 10 pr¢s¢nl Iliis reporl, high11￿111n8 our orwdnibulion's activi11￿ and financial
pci'forinw)t¢ durin¥ lh¥ fisciil y¢ar cndiiig 31st Ymly 2024. '1'hi$ repon gims io i)rovid¢ 51uk¢liold¢rg willi ali ov¢rvi¢w of our
Mffissioii w)d Objecliv&s.' ACE SMA rctnains cofflinittcd to roisiiig mnney in ord¢r ID fuiid cliiiicAI re.8enrch iiito tlie cnli4n¢¢d ben¢f)Is or
bc5poki aiid rc8ulai' pliysiotli¢rdPy for cliildrLn ivilh SMA, who ar¢ also Ircclving tlitt disctise mod5fying trcaiimciits. Throtsghojt th¢ y¢Lr.
w¢ hiiv¢ workcd diligcnLly 10 aclii¢vi our obji4liVk& IiiLVi fulfillLd oui. cummilinrnt to rai5c rtindy fui. Ihc rcscarch projcci iviili
Professor l.aurLiII Serviis. A Monoccntri4 Prospcciivc oiid l.ongiiudiiial .8iudy invesiigaliiig Ili¢ teasibiliiy. w¢epillbiliiy. saf¢iy and
cifiL&ncy of an opiiinii¢d r¥httbillllllion prugram IOT Ircalcd paticnly wlth SMA conipared ia the currttJ)t rehAbilltaiSon progrnm In Urtiied
Kingdom,
Accol￿pI1$h]lltI7I$'. Diiring ihe reporiing perlod. ACI," SMA lias b¢¢r) working hard witli Profos%or lJaurcnl SLrvul% ui Oxford Ilniv¥r5ily
C17allcn8CS &iiid Mitl8diiuii%'. WliilL LLlcbi'aiin8 OUI. SUCCCSS¢5. wc also fa¢Ld clialleiigey %ucli &% .¥horta8¢ of pct)oiinel. We lJiipl¢sn¢i>lLd
oilier chariii¢s workiiig lowRrds th¢ goal.
I'.inanci81 O¥¥rvi¥w,' OUT finuncial p051tion r¢inoiii$ birgiiB, 'I'h¢ pnid¥iii munag¢rnLni of r¢souT¢e$, goiipl¢d wilh Ihc %encrosily of our
doiiois aiid pai'tll¥rs. Iiu5 ¢nttbl¢d u$ to tn4iiJthin fin4Dclul 5thbilily.
Grunls Cuntiibiitioii%.' We cxpir81 our .8in¢¢re gi'aiiivd¥ 10 oiir donors. SLipporlirs, and partners for Ih¢ir ¢onlribulion5. ThLir
iJivav¢riiig *uppoi'l lias b¥¢n iD51rurncntul iii funding th¢ pionccriiig study iviili lJrolc%sor Lauirnl 8ervui5.
ProgrDm14ighligh15.' Oiir pix)gfani.% coriinu¢ 10 Iii&k¥ o posillve IrnPII¢I. ptirli¢111*rly in Ihc i￿r1d ofspinal Mu5culiir Atrophy. Throu8h Ihc
ACF SMA projLLI. Iv¢ will bc ablc to provc that hc5pokc ivcckly pliy.8iolhcrnpy 1.4 1)LigLly benLfici&l to children aiid udulis ivho sun¢r
ri)Jin Spiiial Mu¥culai' Alropliy.
riiiiire Outlook.- Looking aliead, ACI.. 8MA i.fj POi8¢d for cuniii)Li¢d growth iin¢J inipiici. Wk llr¢ ¢otnmiti¢d Iv £onliniiin¥ lu support IhL
voi'k. ol. Prof4ssor sirv￿ls ttnd his le￿n axfol￿ Iliiivtrslty. Tlie 1$ ¢onfidcnl iii Ihe orgon15aliort's tsbility 10 niiviwile fuiur¢
Lhllllen8es and achi¢v¢ bilslllincd succc55.
Appre¢iniion-, Mie Bollrd ¢xpress¢$ rLppr¢¢lalion ID our dedicoltd tru51ees. volunleLrs, Ind biipporlers who liuve coniribui¢d Io trilT
success.
CoTrLIu5ion.' In cottclusion, Ihe Board of 'l'ru%i¢c% remains ¢ommitlcd lo I￿V&n¢lA8 Ih¢ misyion olACE SMA. W¢ look forward lo anothcr
yeai. ot positive g¥owtli, impuLI. Jnd Collaboration.
P￿8¥ I

lauhi￿1 ai4ul} IQU
WIINANCIAL KK¥ILW
ph15t
Jlcb¢CoN¥t
Pl
DLI'.F-:
Duijia

endtnt TrdxAmrner's Re
ort to the Trustee% of
Acb. SMA
Indtpeiidtiit t¥AMln¢r's r#porl to th¢ tru5toes of ACE SMA
r¥pDrt lo thc chw'ily li'u%lco$ oil Iny eKalnlll4ltioii oftli¢ R¢¢ounis ofALf SMA l¢h¢ I'riisil loi tli¥ y¥#r ¥i?d¢d 31%1 July 2n24.
Rrspthnslbllitl¢s and bas15 of report
As Il)c chariiy Iru.%iccs ot. Ili¥ -11.1151 yoil nr¢ ￿SponSIbl¢ for IhL pr¥par4tioii of lh¢ lleCOLinlS in b¢eordancc wilh 111¢ r¢quir¢rneiilS of Ihc
Chthrilics Arl 2011 ('thc Act).
I rcpnil in r&%pcct of iny ¢x4ininAlioii vfth¥ Trusi'5 aLLounl& ctirriLd oul undcr Scclioii 145 ofih¢ ALI aiid in currying oul my cxllminaliun
huvc followcd llll applicable Dir¢¢tioiis giv¥n by lh¢ Chorily Commissivn und¢r S¢¥iiOn 14515llb) ufili¢ Arl,
IniSep¢ndont cxnmiTr¢r'5 Stlltement
I IIAve coinpl¢knlLQ my LxamiiiJlion. I confirin Ilial no matcrial niallers havc Lome lo my altenlion in conncclion wilh Ihc Lxamination
iVlll8 niL ¢ause ￿ bclityvc 11111t in aiiy mol¢riiil r¥.4p¥II-.
a¢¢oiinling rc¢ord& wcrc not kcpL in respect Df ilic'l-rusi r4uired by Seciion 130 of Ihc Act.. or
the Liccouiili do not accord with Ihos¥ r¢cords', or
Ili¢ a¥Lounis do iioi comply iyiih ilie applicable I'LyuirLinent% toiit¢rniii8 form and coiit¢nt of accounts s¢1 oul in ￿le c11￿.111e.q
mmller consid¥￿d fjs purl a(aD indcpcndcnt cxoiiiiiiation.
report in lo ¢nublc J propci. under￿tanding ol'il)c accDuiil% lo l)c I'caclicd.
David Mstchcll, IIA, CA
l.'urri¢s Kirk & McVLai)
DIIMI',IIILSSI-IIIIL
DGI 3SI
2nd June 2025
Pilg¢ 3

ACI,:.SMA
tnt
or tht Ycnr Lndcd
IA£
1s1.jul 2024
2024
Uiir¢strl¢*d
rund
2023
TalAI
runds
Noi¢y
INCOMEAND ENDOWMENI'S fiROM
5,680
4,977
8,496
23.804
574
InvLsimeiil Iiicom¢
Total
Id.991
29.355
XPII Nl)ITURF. ON
Raisin￿ fuiids
174
275
Charitabl¢ llctivitics
ACI-: SMA
152.798
2.413
152.972
2.688
NLT IWCOMEIIF.XPTr:IYDJ'I'URLI
26,067
RECONCILIAI'ION OV FUTr4DS
roitsl fund5 bruught forivard
175.183
148,516
'I'O'I'AI. FLINI)b CARRI&.J) FORWARD
37,202
175,183
Mie noies forin parl ofthese fiiiuii¢inl blatLInetsL%
Pugc 4

'r>i4
LKIIL)l-I'()It¥
Ism)
20:.
rth'ALAS¥1.:'1'I 1,i.'s% r.i.'RRF.hTI.I,
'r.T ￿$$LIs
'I'l)Tkl.FL%DS
oi

AC*. SMA
otos to
IAI Skntomo
for the Year bndtd 31st J￿1 2024
ACCOUN'J'IYI Ci I>OLICIFS
114$1$ of i?rrparina tlic fJnnnciAI stThtoJnents
'I'lic tinaiiciol .%t4l¢m¥n15 of Ihc charilys ivliich is a public bcncfit Lniity undcr l.'II% 102. have i)een prepllred in accoi'daiice willi
Ilii C.hariiicg SORP IF'II.% 1021 'AccounlinB uiid Rcporiing by ch￿rill¢s.. SilllemLnl of RccvmmendLd PruciicL •ppliciibl¥ lo
Ii¢lund {fRS ia21 Ictrcctivc l JaiiuAry 2Q19}'. l.'inun¢iol R¢porting Siandnrd 102 'fii¢ I"'i¥ian¢ial R¢porting SiandJrd ippli¢abl¢ iii
lh¢ UK oiid RepubliL of Irclwid, Jnd th¢ Chllrit1¢5 Att 2011. 'fhc fiiiancial .%iot¢t)Icnts hov¢ betii prttpttred Ui¢ Iiisloriclll
co%1 conveiition.
Jneom¢
Lxpenditurt
LxpLndiiure. li i5 probllblc Ihai a IransfcT Df ccoiiomic bciicfils will bc rcquircd in %ciilcincnt and Ihc uiiiount oftlic obligalinii cnji
bt me&%ured I'cliably. Expendllure 1$ lle¢ountcd for on ffj accruals bllsi5 h85 bccn clrtSsifiEd undu hcbdtng¥ Ih4t llggr¢8lllt ull
co&t rclated to ilic cal¥goiy. Wh¢N coslb ¢lliinoi b¢ di￿llY Lliribuied tD P&rtILular he*￿IngS IhLy hive b¢¢n &lloullied io Rclivili¢s
011 ￿ bosis ¢on¥i51cnl willi ilic u%c of re%Duircs.
Gr¥￿1% orreird subj¥c( to Londiiions whiLh havc nui beLll MLI al tlic ycur Lnd dlltc urL notcd L5 u Lommilmenl bul not uccrucd a
Thc ehai'ity 1$ cxeinpi Iroiii lax on lis Lhariillbl¥ U¢liVlli¢s.
Fund ¥tctountlng
Iliir¢sii'i¢ird lunds can bc uscd in accordancE Wlth ihc charilablc objcclives ai Ihe discrelien ofilie trustccs.
RL51rici¢d funds can only b¥ used lor particular rcstricled piirpL>ses ¥villiiii Ilie objecis of ili¢ charity. R¢$irieiions r¢fiSL whch
spL¢ilie(I by Ilic doiior or i¥lieii fuiid* are ral%ed foi. particulai, ILsirici¢d purpos¢s.
Fiiriher txplanolion ofiiiL n&lur¢ aiid purpo8¢ or¢￿¢h fund is inclvdld In th¥ noi¢s lo ili¢ fin1￿¢)￿1 sl&lem¢nts.
o'riiEII I'IiAJ)ING ACTIVITlb.S
2024
2023
rundr4isin¥ ¢vcnls
11.496
23.1104
INVF.STMENI' INCOME
2024
2023
574
Pagc 6
Continued...

L% t IliL' FIn￿n
lie Yexr Tr.1
21)24
TRUSTF.FS' REMUTr4EIiAI'ION AND Ilb.NLbl'l'S
Th¢[¢ w¢r¢ no truslco%' rcmunciuiioii or olli¢r b¢ii¢f11s lor Ilie y¢ur ¢iid¢d 31st Jiily 2024 iior lor ili¢ y¢or ondcd 31 sl july 2023.
Tru$tECS ¢xpcnses
Tlitr¢ ivcre no ¢rusices' expense9 p￿Id r(Jr the ycor Lnde(J 3161 July 2024 noi for lh¢ y¢or bnded 3 Isl July 2023.
COMPARATIVI.S FOR'I'IIL SI'ATLMFN'I. OTr. FINANCIAL ACI'IVITILS
Unre51ri¢l¢d
fui)d
INCOMF. AND ENDOWMEIYTS bROM
Don&tions llnd le8ati¢s
4,977
23,804
574
Inveslliieni income
Total
29.355
V.XPb.Nl)ITIJIIV. ON
Rai51ng fund
275
Charitable n¢tivitieB
ACC SMA
2,413
2.688
NET INCOME
26,667
RECONCII.IA TION OV ￿V￿lD5
148.516
TOTAL FUNDS CARRIED FORWARD
175,183
DEBTORS- AMOUN'fs FALLING DUTr. WI'I'IIJN ONb YTr;AR
2024
2023
VAT
573
Pase 7
¢Olilinu¢d...

ACLSMA
CREDITORS.. AMOUN'fs Tr'ALI,ING Dub. Wll'IIIIY ONI,- YEAR
2024
2023
OihcT CTcditors
960
480
MOVKMEN'f IN FUNDI>
Nci
movein¢iit
in fund8
Al
31.7.24
Ai 1.8.23
nresÈrl¢ted funds
GcneTal fuiid
175.183
<137.981}
37,202
TOI'AL FUNDS
175.183
37,202
Nrl movcmciit in fuiids. includLd iii 1114 abov¢ ore as follow$'.
InLomin8
rc.iources
RLsour¢¢s
Expeii(ted
MovernLnl
Uttr¢strlct¢d funds
14.991
1152.9721
TOTAL TrUNDS
14.991
1152.972)
1137,981)
Contparatlvos for niovcment funds
Nel
MOVLinent
in fund5
Al
31.7.23
Ai 1.8.22
VDrL'5lrlctrd
Gcncral flind
148,51
26,C)67
175,183
TO'fAL b UNDS
148,516
26.667
175.183
ConiptLraiivL ncL Inovimcnt iii fiinds. iiielud¢d in Ihe Hbov¢ are us follows.,
Incoming
.4011r¥¥s
Rcsoiirios
¢xp¥n¢JEd
Movcmcnt
UDrf5tri¢ted fund5
GLIiLr&l fund
29,3JS
12,6881
26,667
'I'O'I'AL b UNI)S
29.355
12.6¥81
26,667
Pa%L 8

ACF. SMA
ror the Y¢ilr Ended 315t Jvl 2024
MOVKM￿,NI. IN PUNDS- ¢ontiau¢d
A ¢iirr¢iii yemr 12 In(Fnilis atjd prior ycar 12 nionills combincd position 15 as follow&'.
Nei
Ai
31.7.24
At 1.8,22
Unr¢5tri¢ted fuTrdB
G¢n¢rAI fiind
148,516
37.202
TOI'AL bUTrIDS
148,516
37,202
A ¢uritnl y¥ur 12 znonth5 and prior ycar 12 months combincd nct movcmciil in fLind8, includcd in IhL &bov¥ Ar¢ as follow¥',
Incomlng
rcsourccs
Re50urccs
CXPLndLd
Mov¢mLnl
Unrestrlct¢d
tiejieriil fuiid
44,346
(155.6601
TOTAL TrUNDS
44.346
(155,660)
II&LA TLD J>ARTY DISCLOSURES
'1.1)¢￿ ivcr¢ no r¢lai¢d party IraTrsa¢iioTrs for ihL yiiir ¢nd¥d 31 si july 2024.
Pugc 9

r tIiL' YL.
2024
2023
INCOMK AND FNDOWMENTS
Doniltion5 and legacies
Doiialion8
S,680
4,977
Oihtj. trxdinH Activitle
8.496
23.804
Inv¢$tm¢D¢ lrtromo
Dcp051t acco￿￿( iiiiei'¢si
815
574
Tot#1 Incomlng r¢iouree8
14.991
29,355
ExfiNDI'fuR
Rii5ing dDnxtionJ nnd legA¢le
%undi'i¥5
Auctioii lot COS15
174
275
174
275
Insuranrc
Adverlising
292
(>6
281
122
144
216
Wcbsiic co$is
Giving.cgrn f¥c
Giv¢rEy
315
216
1,395
15Q,aQO
152.284
763
SupDort CDStJ
VlnthDco
Bank cliargcs
34
12
Cov¢rnRnco tosts
Accouniiiiicy fces
L¢Ktil Ic¢¥
480
48
480
,638
Totul r¥'sOu￿¢S expEndcd
152,972
2,688
N¢1 lexp¢ndl¢uroyincome
26.667
Thiy pug¢ docs not form part ofih¢ staiuiory fliian¢lal sitti¢m¢ttL%
Pa8e 10