RF.GISTF.iir.D C.IIAIII'I'Y NUMBER,. 1191 179 Uniudited F. for the Yenr Lndc I,ori'iL% Kirk & Mcvcan Dumfric¥ Enlcrprise l?a¢k Diimlri¢8 DUMFRII.:8S1.IIRb. l)Gl 3SJ Coiitcnt& oftlje FlttnrttSlll St4Itement for tlJL. Ye411' Trdndcd 315t Jul 202 Prtg Report of tlit Trusttes Indtpondent Eximlner's Roport Statem¢Dt of Fln•nelThl A¢tlvltles Illllanco Shtet Notcs tD the binThnciAI StHtcm¢nts D¢ttsil¢il StntVm¢llt of Trlnin¢lAI Attlvltles ACV. ST￿￿A 31st.lul 2023 Th¢ Irusi¢e5 presrni thLir r¢ppri with th¢ financiol ￿l0111n¢nlS of tlie cliorlty for tht yttar cnd¢d 315t July 2023. Tli¢ 1111%t¢¢s liav¢ adopted Ihc provision% of Accountlll8 oiid Reportiiis by Cliai'ilics.. SialcmLnl tsf R¢Loininenraclice applicEblc lo charilic. PI'CPaTing Ihcir aLcounls in ucLordancc willi Ilic l inuncial R¢porling 51giidord Rpplicahlc in Ilic UK and R¢public Jf Irelnnd Il'.RS 1021 l¢lTectiv¢ l Januury 2019). ()H.Ib.C'l'IVl:S AND AC'rivi'riF.S 01)jectives 9nd nim& Tht obl￿[1Ve￿ oltliL CIO Ihc rtlicfofsicknc55 &nd Ili¥ pr¢5LIWUlion of hedtli, iii paiticular bul iiol cxclu&iv¢ly by,. Ib) thc promotion llnd supt>ort of rcscorch into Ihc causc. Ircattn¢ni ond possible pKvontioii of Spffinlll Mus¢ular Atrophy *]nd Ihe publiittlion llnd di55Lminulion oFihtJt r¢bUrtrLh for Ihe publii beri¢fii'. and (¢1 tli¥ 4dvan¢¥mciii ol'ili¢ iducaiioii ol'ili¢ general public iii spinal Museular Atrophy. Publlc bonÉfit Lauijcli ufwcbsil¢ and don&lion rn¢chtJnism Vllriou5 cvcnts ond activitiu tg raisc fund4.c.g. ¢harity walK cDJTce mornings. piliitlng oiiciion Tl)c firsi llcllvily the cliarily i& supporlinB is cllTrical r¢b¢llr¢li wilh Irgards Ilic obj¢ciivc ofthc £harily ACIIILVLI MLN'f AND V]oRifoJiMANC ChAritrtbl¢ AttLViti0s Inlrodu¢liun'. 'f114 Acr, SMA fjourd of Ti'usi¥¢s 1.9 pl¢o%ed io pre5cni Iliis rcport, highlighiing our organi5ulion's activilics and r1nancinl pcrfoi'inuiiec during ilic ycoi. ¥iidiiig 3 1st july 2023. Th15 ￿pOrt aims lo provide 5takclioldcr$ wlth an ovcrvicw of our atCOlMplishmcnis, challei)gtS, tnd llntncial slttndiDg. Miysion &iid obje￿iVes,, Acn SMA Iri￿*1178 conimiiied to rui55ng iiioncy in ordrr to fund ¢linical re.sellr¢h iiiio thc Cnlianccd bcncfi of b¢spoke aiid re8ulai' pliy%loih¢ropy foi. thildrei) with SMA. wlio ttrc ulsu rccLiviii¥ Ili¢ ¢i.qei8e mndifying IrLdlmLnls, Tlir(iii&houi Profr¥bvr Liiiircnl S¢rv1114. A MDnocinlric, l)rosp¢¥liV¢ oiid I￿lIgil￿din￿l &iudy invc51igaling th¥ f¢asibilily. IC¢¢Pldbllily, safcty ￿)d ¥triLAi}' of ail optimis¢d Ithibililotithn program for Ireattd prlticnis wilh SMA LOlllPUTed 10 ilic curreni rcliabiliialion program iii ljilltcd Kin8doin. hecompllsl)ii)eiiis'. Durliig tli¢ r¢portirt8 p¢riod, ACE SMA hH5 bc¢n woi'kiDg hard wilh Profcs50r Laureni S¢rvai5 at Oxford 1.2024. Cliiill¢ii¥4s aiid Mitigatioiis.. Wliile ¢¢l¥l?rfjiin8 oul. succLsscs. wc al.so faLed iliull¥ng¢$ fuch %horingc of p¢151>nn¢l. W¢ iniplcniciJt¢d.%iratcgic mcasurc% ts) uddrc5% ilic%c challc¥Jgc¥, iiirluding putlints logcilicr commiltccs foi fuiurL' cvknnis alid lookiiig I ¢olloboirtle wiui olhwr bhAriii¢s workin8 ioivards (hi ￿me ￿0a1. Financial Ov¢TViCW,' Qiir finunciil p0511ion rctniiin3 8liong. lThe prudortl illunag¢m¢nt ofi¢sour¢¢s, couplcd with lh¢ g¢nerosity of our donors thiid partii¢rs. hgs ¢nabl¢d UiTr 10 muinlain fiiithi¢lal.qiablliLy. Grants wid Coiilributioii%'. Wc &Nprc55 our 5inccrc grotiiiid¢ l¥ our dotior%. sUI?portcr5. and partn¢r¥ fur their Conii'lbuiioiis. Their univ#vL'rinK suppDrt h&5 b¥Ln irtstrumLnliil in fiindin8 Ihc pioi)ccriiig study witli Prof¢￿bOr Laiir¢iil S¢I'V￿71$. lJr()grain Ilighlighi8.' our progran15 conlinuc to Tnak¢ u po.8iliv¥ impacL paiticularly In lh¢ world of Spinal Muwular Atrophy. Through ihc ACC SMA proj¢rl, Ivr will b¢ uble lo provL IIIAI b¢*poke wcekly pljysiothcrapy is hugely b¢ncficial Lo childrcii and *idults' wlio sun¢r from Spinul Muscular AimpI)y. rulurc Outlook.. Looking uh¥&d, ACC SMA poi>Ld for ¢onilJiucd BlY)￿h and impacl. We llrL ioixi71iiied to contlllUlll8 lo ¥upporl Ilit work of Profe.18or S¢rvais aiid liis i¢atn ai OxfDI'd Llnivcisily. I'IIL Bourd ib ¢oiifidLiiI in the oigani&ulion's nhiliiy In iiavigolc futurc clillllcngE5 and achievc sustainLd succc55, Appr¢¢laiion'. I'lic Bourd cxprcss¢s appir¢laiioii to r)Lir dLdicalcd trusl¢LS, vojui)114rs. iiiid suppoiicr5 who h&vL Lonirib111¢d lo niir %uccc.Es. liicludcd in this 15 an &ni?ual Crickcl Inaich, a voluni¢¢r who h&s coiiiplctcd an iron tnun rhull¢nge a5 w¢ll 0% anodicr who lomplrfiil Ihe Moiig4)l Derby. Conclusion.. In conclusion. thc Board of Tru51¢c& remminy ¥oiiimi¢t¢d io advuncin8 thc Thi555on of ACC SMA. Wc look fovword lo unoih¢i y¢ur of p03iliv¢ Rruwlh. impnci, ond colluboi'thilon. Pagc I orto ru5t¢¢ IIINANCIAI. RbVIEW I'hc Chority IlllSC5 fuHd5 tu tnrrl it5 Eonslitiilionol obje¢ti¥e8 oiid the pvt%trvatloi) of hcalth. During ili¢ p¢riod of this rcprjrt Ihc Charily ￿¢n￿ruled il surplus or £26,667 12022 1137,3891 fiY)In iih aclivilics and al ihl ¢nil of Ili¥ pei'iod Ilie Charity had ioial r¢s¢rvo8 of£175,18312022. £148.5161, all of wl)ich 1% unr&itrictEd, Rextryos pollcy ACE SMA h4s 4 poli¢y ofk¢¢piiig su￿1¢iCi}I rcservcs to support ils ongoing a¢livity for al ILa51 oThc ycar. S'I'RUCI'UIIE, GOVLRNANCE AND MANAGEMENT Govei'niThE document Th¢ ¢liorily is ¢oiilrolled by gov¢rning docurncnl, a dgcd of tTusI ¢onstiluios Ali uiilii¢Drportttcd chwily. R¢crultment Èppolntillent of new trustoes '] rustccs havc bccn rcci'uilcd by Ilir foiindcts ofili¢ ¢harity.'fh¢re li oil winual rcvicw PTO¥¢S$ in lili¢ witli tli¢ ¢ontstiiuiS0n. REFLRENcf. AND ADMINISTRA TIV￿ D14TAILS Iltgtstered Clinrity number Prlnclpnl nddro55 Gl¥bL Coiing¥ Suiiaii Mandcville SJlixbury SI)3 SNA Trustees M 14oivcs Chaii'man Mrs C A r, riai)k Mtr.g A l-l WlILatley.l.lubbtsrd Mi'& S kl()IVLS MsRRLrV¢ l L L Wllliaiits Indepcnd¢nt ￿,ximinQr Dllvid Milclicll. 13A, CA l arric% Kirk & McVL￿I Dumlric5 fnlLrpi'isi Park Duml'rie% DUMI.'RIESS141RL DGI 351 Approv¥d b>, or(J¢r ofihe board ofiru3tees on 5111 8cptcJnbcr 2024 911d 518ned oli Its bchtdf by.. M I lowc$.'I rustEc Pag¢ 2 dtitt Lxnmlntr's 11 ACTr: steos of Ind¢p¢ndent exAmlNcr's repgrt to thE tru$tVP5 ofACTr: SMA I rcport 10 ilJc chariiy trDstL'L5 on njy Lxaininuiion ofilic occoun15 of ACE SMA Iihe Tru%tl for Ihc ycar ¢nd¢d 31%1 July 2023. R¢5pon$ibSll¢lo.4 rsnd b*$ls of report A.4 Ili¢ ¢h•'ily Irustccs ofihc TrusL you Iirc responsibl¢ for ilie pi'cpaTalion ofihL Ac¢ounls in occordgncc wilh lh¥ r¢quiremcnls of Ihc I report in resped of my ex￿mInatIon of ihc Trusi's a¢¢ouni¥ carricd oul undcr S¢¢iion 145 of Ihc Act and in £arrying out niy ¢%￿nillaI10ll I liave folluwed all appli¢abl¢ r)ircciioii.E 8ivcn by lh¢ Charily Comirissinn undcr S¢¢lion 14515llbl of ihc Act. Indoptndent ¢NIMln¢Y's stAtomtnt I hJve coillplctL4 Iny cxamination. l Lunfirin Ilini iio Inalcrial mallcr¥ huve ¢om¢ lo iiiy utt¢Thlion Sn Connection willi th¢ cxaminaiion 8iving nir caus¢ 10 b¢li¥v¢ Ihai in ony Inaicrial rc5pcGI'. accoui)tin8 ircords wcr¢ noi kcpi in ro%pect ofthc Trubl as r¢quir¢d by Section 130 of th¢ ACL or lh¢ i¢couiiis dv IiD( oecovd witli il)o%c rccords,- or Ihc occounts do noi coniply ivith thc bppliLiibl¢ rcquiveiiienis concCrnin￿ lh¢ forin aiid contcnt of a¢¢ount8 wi oul in Ihc Chariiics (Accounls and Reporls) Regulaiion% 2008 othrr Ihiin iiny r¢quirciiiciii Ihat ili¢ u¢¢oiinls givc a Iru¢ Mnd rrtir vicw wlii¢li is noi a mnii¢r wiisiderod part oflln indcpcndeni exwnlnatlon. I liavc iio conccrns aiid h&vi ¢om¢ JLross no other ni&11tcr% in Lonn¢¥iion iviih tlic cxaminalion lo whieh attcnllDn should be dmwn I Illi& rcpDrl in oi'd¥r io ¥iioble a pi'opcr undcr51anding oftliL accouiits lo br rrochod. David Mitchell, BA. L'A l."arric5 Kii'k & Mcvet Dumfric DUMfRII-.SSI.IIRL l)Gl 3SI Sih S¢pi¢mber 2024 Pag¢ 3 ACF. SMA for tli¢ Year F. tl d 3 2023 2022 Total Unre.¥ii'icicd Notc5 INCOIME AND bNIIOWMENTS VROM Dunaiion& Jnd I¢¥&LiLs 4.977 33,197 l)er trading a¢iivitles 23,804 574 140,000 I'otthl 29,355 173,208 F.XPb4iYDITUIITr: ON 275 31,849 ClinritAblc Activitie¥ Acr SMA 2,413 3.970 'J'ot91 2.688 35,819 NET INCOME 26.667 137.389 Iuglii foiivurd 148.516 'ro'rAL VUNDS CAKRlbD b"()IIWARI) 175.183 118.516 Tlic nolcs fonn part ofih¢s¢ finnii¢ig1 siAl¢illen18 BAI nce.81)c 2023 UnrcsLri¢i¢d 2022 'roLal rund Nol¢s CUIIR Tr:N'I' ASSL'rs Dcbior. CJ511 ai bank 3.999 175.663 175,6f)3 155,034 CRCI Dll'OIiS A[[￿u￿15 flllling du¢ wi117in on¢ y¢ar 14801 16.518) NTr:'r CUlilikNT ASSLTS 175.183 148.51(1 TOTAI. ASSlhTS L*:%S LUIIXLN'I, LIALIILI'I'IES 148.516 NL'f ASSZTS 148.516 FUNDS 175,183 148.516 'roTAL FUND5 175,183 ic finanEiul si*t¢m¢nts were approved by the DO￿y1 ofTru¥l¢cs ￿nd auihortsed for issiic on 5111 S¥pl¢isibcr 2024 and w¢r¢ siAn¢d on 115 bLhuifby'. M Flow¢s- Tru.iiee ic noi¢s form part of Ihrsc finlliilial siaienien15 Pagc 5 ACV.SMA I'IAI 5lnttihtttts r Tr.iidtd 31st Jul 2023 ACCOUN'fiNG POI.IClb5 Bnsls ol pYepArliig tlit finAtitiAI stntements 'Ilic fiiiancial .siatcmci)l% of Ihc cliorily* ivhich 1$ ll publi¢ b¢iigfit cillily undcr fRS 102, ho¥¢ b¥¢n prtparcd ID accordanctt wilh th4 Lharili¢¥ SORP IfRS 1021'AcLoiintlTI8 ond R¢poi%ittg by CliaritlLS-. Sldl¢illbnl ofRccoMincndcd PracticL appliLiibl¢ nf Ircland 11,'f¢ndiiurc as soon a5 Ihcrc is & 1¢8lll or ¢r)n%iruciive ohligalion comiriiiing tlic chwlty to tha¢ expondilui￿, il is probablc Ihot a trunsfcrof¥¢onomic bciicfil$ wlll b¢ r¢quirrd in Sclllcmciil und Ilic dniounl oftli¢ ubligtllion ¢Jn bc Mtr￿urLd rL11￿b1Y. ExpeiiJilure ig accounted for on Rrcriials br¢SiS ond hos bccn cl¥bSilied UTid¢r licoding% 11iat Iggr¢gat¥ Fjll ¢osi r¢loied io Ilic caic8ory. Whcrc cosls ¢8nnoi be direclly Dltribiitcd to pllrti¢ulAr hcadis)g% thcy hav¢ b¢¢n allocatcd lo activitlC5 on a bo51¥ ¢on$i51¢ni willi the usc of re50urcc$. TThxMtlon 'Iii cliariiy is ¢xempÉ from Dn ils charilllbl¢ a¢iivili¢s. bulld rteeounting Unrc51rictLd funds caft b¢ us¢d in a¢¢ordoncc wilh thc chirilllbl¢ obj¢¢iiv¢s ol the discrction of th¢ Iruslcc5. ReslrSct¢d fuiid8 c&1) only bc used loi. pttrticular rcslriLILd piirpoqes iviiliin Il)c obj¢c15 ofili¢ ¢l)o1'iiy. Rc%lriciion5 ari8¢ ivli¢n spectfied by Ilie donor or whcn funds rais¢d lor pai'iiculw. rcstrictcd purpos¢s. rurth¢r explonotlot) of llio iiaiuir and purposc of¢ll¢li fui)d is ijicludcd in Ilik nol¢S 10 (h¥ fiiioncio5 slalcrnenls. O'I'IILII TRIDING ACI'IVITIF.S 202] 2022 rundraisiii8 ¢vi1113 23,804 140,000 INVkSI'MFNT INCOME 2023 2022 DEP05iI a¢Louiil Inl¢resi 574 TRUS'fLFS' RLMUNERATION AND DI:N￿.1￿1,1, T11¢re were t)0 tru$Lce%' remuncrlltion or otlier b¢ii¢li15 for thc ycaT cnd¢d 3181 .luly 2023 nor for Ilic y¢or endcd 3 1st July 2022. Tru5t¢o$' ¢xptnsQS 'licre ivcrc no iiustcc%' cxpcnsc¥ paid for Ili¢ y¢ar ended 3151 July 2023 nor for Ihc yellr endcd 3151 Jiily 2022. Pag¢ 6 conlinucd... 31stJul 2023 COMPARATIVWS FOR TIIK SI-A1.￿ MLN'I. OTr li INANCIAL AcfiviTIF.S unr￿¥1￿¢1£d lund INCOMTr. AND r.NDOWMbNT4 IIllOM Donaliun5 Icgucic5 33,197 Oihcr trading aciivilicj TnvoslmLnl incomc 140.000 173,208 XPF.NDITURE ON Roi.8iiig lunds 31,849 Chnritnble ictlvltl¢s ACE SMA 3,970 Totol 35.819 IYFT IP4COMF, 137,389 RECONCILIATION OF FVNDS l-othl fuiid.q bi'oiiulil lorwurd I'OTAL FUNDS CARRIED VORWARD DLH'I'OIIS: AMOUNTS Tr"ALI.INC DUB WITIIIN Olyb YEAR 2023 2Q22 VAT 3.999 CRTr l)i'foRS.. AMOUNTS FAI,I.ING DUI,: WII'IIIN ONE YKAK 2023 2022 Otlior creditors 480 6.518 LOANS ATh an81ysis DfihL rnuluriiy ofioans is giv¢ii b..loiv'. 2023 2022 Anwunl% follli)8 duc ivitliin ojic ycar on dcJnand.. Other lottns 6.060 Pagc 7 ¢onlinu¢d... ACES ot¢5 to ¢h for th 2023 MOVEMLNT IN bUNDS Nci rnov¢ineiii Al I,8,22 31.7.23 Unrestrl¢ted fuNd$ Ociicral fund 148,516 26.667 175,183 TO'fAL ￿ UNDS 148,516 26.667 175,183 NCL ii1r*vement in fund4 includcd in ihc abov¢ ar¢ lls follows.. Incol￿1n8 Rc¥our¢e8 ¢xpcndcd Movemeni u￿r¢s(rItt￿￿ fulld$ fjenerul fund 29.355 12,688) 2(),667 TOTAL FUND5 29,355 12.6881 26,667 CDmpfir#tlvo5 for movoment In funds Ncl rnov¢m¢iii At 31.7.22 Ai 1,8.21 Unrostrlctod funds Gcn¢rtil fiind 137.589 I'OTAL FUNDS 137,389 148.516 Comporative ncl InovLni¢nt In lunds. ii)¢lud¢d in tliE aliovc arc follows.. InLoming rcsourccs RLwurccs cxp¢ndcd Mov¢in¢iii In fund8 Unrestrleted funds Gciicral fund 173,208 135,819) 137,389 TOTAI, TrUIYDS 173,208 137,389 A ¢urr¢ts¢ y¢ar 12 inotttlis wid prior ycar 12 moiilhb ¢oinbiii¢d p081tloii is a5 follow5.. N¢1 n)ov¢ireni in I'unds At 31.7.23 Ai 1.8.21 Unr¢Jtrict¢d fund5 164.056 TOTAL FUNDS 164.056 175,183 l>ogc 8 onlinii¢d... tes to tlie I,'IllAn¢inl Stalcmcnt5- Collt. MOVb.MTr"NT IN bUNDS- continued A currcnt ycar 12 months and pi'lor ycor 12 monilis combincd ncl niovcrnenl in funds, inLlud¢d in tlie llbovE as follows.. Rt5011rc¢s c.¥pcndcd Movemertt r¢sr>urces Unrestrlcted fundj Gcneral fund 202.563 {38,5071 164,056 TOTAL ￿uND.% 202,563 {38,5071 164,056 10. RFI,ATKD PARI'Y DISCI,OSURES As at J l%t July 2U23. Iwo ol'ilic LrustCL5. Mr & Mrs 14owcs, arc ow¢d IhL bum of£iiil12022- £6,Q601 by wlly ora lolln. Thi5 ¥uin i¥ inieresl fr¢e and rL'p4Jinble on demand. Pa8¢ 9 ACF..SMA ot 'lod S temcnt Dr FinAn¢' the Ytnr bjndtd Jlst Jul 2023 2022 INCOME AND ICNDOWMEINTS Don4tlon3 And legncie5 Donlliion5 4.977 33.197 OthL'r tradlng ictlvitles Fundr&isiiig evenis 23.804 140,000 Invc$tm¢nt incDrn¢ Deposit aceouoi Iiit¢r¢$i 574 'I'otal incoming resourc 29,355 173.208 .XPLfNI)I'I'URLr Llluncli Lvenl Losls Au¢iion loi casl8 31,1149 275 275 31.849 ChArltible actlvilles Ii)surJncc Posl&i¥¥ ind s14111011¢fy 281 274 166 122 144 216 Websiie co%ls GivinB,Goix fLe Givergy 342 2,lOa 763 3.582 Support ¢o$ts 'inaMce Bank rhar8¥5 28 Gov¢rrtinee tost% Accoiinlwicy fcc¥ L¢glll fc¢s 480 360 1,638 360 Toiol I'esr)urces expendcd 2.688 35,819 Net 26.667 137.389 Tlii5 pogc doo% noi fomi part ofihe 51tilUtoiy fliiaiicial slalcmcAIS Pagc 10