# ACE SMA

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1191179
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 7, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1191179


## Contact

- **Address:** GLEBE COTTAGE, SUTTON MANDEVILLE, SALISBURY
- **Postcode:** SP3 5NA
- **Phone:** 07947 368790
- **Email:** Mike@hp1t.com



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(A) THE RELIEF AND TREATMENT OF PEOPLE WITH SPINAL MUSCULAR ATROPHY;(B) THE PROMOTION AND SUPPORT OF RESEARCH INTO THE CAUSE, TREATMENT AND POSSIBLE PREVENTION OF SPINAL MUSCULAR ATROPHY AND THE PUBLICATION AND DISSEMINATION OF THAT RESEARCH FOR THE PUBLIC BENEFIT; AND(C) THE ADVANCEMENT OF THE EDUCATION OF THE GENERAL PUBLIC IN SPINAL MUSCULAR ATROPHY.

**Activities:** Making grants to fund research for the improvement to the lives of children living with Spinal Muscular Atrophy.




## Classification

- **How:** Makes Grants To Organisations, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Michael Alexander Howes** | Chair | Sept. 7, 2020 |
| Anne-Marie Helen Wheatley-Hubbard M.A. |  | Sept. 7, 2020 |
| Charlotte Alexandra Elizabeth O&#x27;Hora Banks |  | Sept. 7, 2020 |
| Oliver Charles Llewelyn Williams |  | Sept. 7, 2020 |
| Rosemary Rachel Guest |  | Sept. 7, 2020 |
| Sophie Christine Caroline Romjke Howes |  | Sept. 7, 2020 |




