OOUTpatients The UK'S LGBTlQ+ Cancer Charity Annual Report 2023-2024 Objectives and Activities Objects To relieve the needs of LGBTlQ+ people affected by cancer through.. la) Providing support services for those affected.. Ib) Advancing educalion and raising equality and diversity within healthcare, existing can￿r services, other third sector organisations and the public. Summary of Main Activities OUTpatients carries out its charitable objects through three main pathways to progress.. Palients Providing peer support for any LGBTlQ+ person over the age of 18 who has been affected by cancer. Professionals Educating clinicians and care providers on equitable treatment of LGBTlQ+ patients to improve the patient experience and the care received. Connecting examples of best practice across the country lo foster an active ne￿Ork of improvement. Production Creating resources and awareness campaigns that improve community knowledge about cancer and representation for LGBTIQ+ people affected by cancer Trustees are aware of the Charity Commission's guidance on public benefit. Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Structure, Governance and Management Reglstered Name OUTpatients Other names In use None Reglstered Address 18Ashwin St, London, E8 3DL Reglstratlon Number 1190756 Charlty Structure Charitable Interest Organisation (Foundation Model) Governlng Document Constitution Truslees Name Dates acting 6 Aug 2020 - Present 6 Aug 2020 - Present 6 Aug 2020 - Presenl 23 May 2022- Present 23 May 2022- Present 18 July 2023 - Present Name of person body entitled to a oint Trus Charity at registration Charity at registration Charily at registration Chair of the board Chair of the board Chair of the board Alison Berner Kamilla Kamaruddin Jacob Bayliss Andrew Berrie (Chair) Cleo Pascal Jennie Gillions Trustee selection method Trustee-led interview, selection, and appointment by Chair of the Board. Charity management Day to day management by the founding CEO, Stewart O'callaghan. Decisions regarding the legal structure, any new directions or charity operations, or decisions regarding subslantial financial investment are always taken to the Board. Governance issues for period None Wider networks OUTpalienls is a registered member of various consortia including LGBT Consortium, Cancer 52, National Voices, and One Cancer Voice. None of these bodies has any direct impact on the operations of OUTpalients. Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority CEO statement OUTpatients has enjoyed another successful year of improving the lives of LGBTlQ+ people affected by cancer. We are pleased to see that our services are well received and their demand conlinues lo grow. This development is even more important given the rise of anti- LGB TlQ+ sentiments in portions of the UK media narrative, exemplifying the value of trusted, expert, lived-experience voices on issues relaled to LGBTlQ+ health. The recent increase in attention in bolh medical and sociopolitical discussions has undoubtedly led lo an increased scrutiny on our community. Provided the narrative remains in good faith and is not diverted by dissenting voices to inclusion, my hope is that this focus can have the potential lo move the conversations of equitable care foward in the best interest of our community. However, this path is not an easy one. A growing air of distrust appears to be the norm across the LGBTlQ+ community, bul most notably in the transgender communities, as we weather political discourse regarding our rights in health. It is my view Ihat the current 'debate' around our community has the potential to exacerbate pre-existing issues regarding medical mistrust which we know negatively affect attendance to routine medical appointments including cancer screening. When I reflect on the Core20PLUS5 goal's inclusion of those under the Equality Act in pursuit of earlier detection and diagnosis of cancer, l am cognisant that this goal cannot be met if we leave the LGBTlQ+ community behind. That is why OUTpatients continues to champion our inclusive cancer screening campaigns with NHS cancer alliances and works with industry partners lo close the gap between LGB TlQ+ patient experiences and thal of their peers. In these pressing times, charities must work together to weather the challenging landscape. We are graleful to our consortia of which OUTpalients are vocal members for the ability to connect and also platform our concerns in a turbulent lime where minority communities can feel unseen and unheard. To challenge the current climate and deliver for our beneficiaries. we are looking lo the insights from our surveys, interviews, and peer support to develop new ways to reach and support them so that they are less likely to feel isolated. Similarly in our education for professionals, we are working hard lo provide neutral. accessible, and evidence based opinions on the healthcare experiences of our community to combat media narratives that can negatively affect people's attitudes. As our charity and impacl continues to grow, l am minded that we be led by those who need us most. Through collaborative strategising, we can continue to deliver the best outputs for our seNice users and continue to make sure that not LGBTlQ+ person affected by cancer feels undervalued or overlooked during their care. Stewart O'callaghan Founder & CEO Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Our name change As our charity has grown, we have been able lo reach more people all along the cancer pathway, including those who are receiving palliative and end of life care. To reflect this growth and respect for all of our service users, we chose to update our brand identity to be more inclusive lo their needs. By working with a brand strategist who themselves is queer and has experienced breast cancer. we conducted research with our current users, potential users. and professional stakeholders to hear what they wanted from our identity. Through an ileralive process, we came lo 'OUTpalienls', a community that works to amplify LGB TlQ+ voices in cancer care. LGBTlQ+ charities have a long history of incorporating the word 'oul' inlo their identity. and aligning with this tradition helps lo bring a queer humour inlo our identity to belter reflect our positive-minded approach. People tell us they love our new name and that it helps them to feel closer to our mission.. "Oh I love it. In fact I feel really moved. I'm choked up. That's much more who l am." "That makes my heart sing. And I really love, the kind of, the collective mission statement. Yeah, that's really beautiful. "I would march behind that banner and I probably want to hold it and organise people to do it." Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Charitable activities Campaigns In April, we launched Remove The Doubl, an LGBTlQ+ cervical screening campaign with the West Yorkshire and Harrogate Cancer Alliance. The campaign was developed with the local LGBTlQ+ community in Yorkshire. focussing on Leeds and Hebden Bridge. People enjoyed our co-creation workshops so much that some ofthe attendees became the face of the Gampaign. In a mix of SLJccessful online promotion1145k+ impressions}, out of home placements in local and major rail slalions, and an in- erson attendance al Ha Valle Pride we were able to reach and inform large numbers of people across the region. Our content with Irans models was the most sUc￿$SfUl, particularly on social media, where we saw a click-through-rate (CTRI lo the main campaign page be as high as 11.6 /.11.36°/. being the sector norm). In June, we partnered with Jo's Trust to uplift a trans person to tell their ex erience of cervical screenin in their own words. This post was successful on socials and on our individual websites and demonstrates the importance of collaborative messaging between key cancer charities. In August, continued our Besl for M Chest campaign with a booth al UK Black Pride, hosting Black Women Rising to join us at the event. The campaign reaclivation included out of home placements on the Transport for London network timed with London Pride, and in October, we delivered a new video timed with Breast Cancer Awareness Month and Black Histo Month. The video was highly successful with the teaser alone reaching 14.8k impressions through organic promotion. Also in October, we partnered with Orchid Cancer lo deliver the Irans-focused mini-campaign No IFS or BUTS, developing upon the insights gathered from a co-creation session with trans women in Newcastle about the need to raise awareness of prostate health in this group. Events In July, we held our LGBTlQ+ Cancer Conference at the Royal Society of Medicine. The event welcomed 98 attendees both in person and online who rated the event 4.815 for ils speakers, topics, and facilities. Supported by NHS England and Macmillan. both sponsors were impressed and expressed their intention to support the evenl again next year. Throughout the year we have attended mulli le conferences that are local, national, and international to improve awareness of our work and rally support for the LGB TlQ+ community in heallh. These have included.. Prostate Cancer UK Professional's Event,. RM Partners Cancer Nurse and Allied Health Professional Conference; HSJ Cancer Forum- and the NHS England LGBT Health Conferen￿. Patient information and support We continue lo elevate Ihe voices of our service users by giving them a plafform in our own conference to tell their story, and through other events e.g. taking a peer support user to the Macmillan EDI conference lo join a patient panel. One patient said she found the experience Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority powerful and helped her step back into public speaking after cancer. We have also connected patients with international outlets like PinkNews to share their slo We have worked with Macmillan to create sical booklets, an audiobook. additional lan es, and an Eas Read version of our LGB TlQ+ Cancer Information that is co- branded and stocked nationally in Macmillan cancer centres, libraries, and other community venues. This work helps to improve our community s visibility in cancer spaces and helps more patients get the information and support that they need when they need it. In February, OUTpatienls launched our Sex and Cancer Info Hub supported with input from six LGBTlQ+ cancer patients and six healthcare professionals IHCPS) in cancer. The resource has been widely celebrated by both cancer staff and patients alike. To support the new resource, we worked with Youn Lives Vs Cancer, a cancer specialist nurse, and a qualified sexual educator to develop and deliver an online session in psychosexual concerns young adults with cancer. The session was rated highly by its attendees, wilh one sharing their appreciation for the breadth of topics covered. I dony think anyone during my treatment ever falked about differenl types of sex like anal it was just assumed the one kind." In October. we published a new information page for people who are intersex. We worked with a lived-experience expert of intersex people's lives and heallhcare experiences to creale the new web Also in October, we were pleased to welcome our new Peer Services Lead to the organisalion, supported by Macmillan Cancer Support. Our peer support service conlinues to grow with over 220+ people on its register. One attendee recently shared. OUTpatienls saved me. I don't know how I could have coped without it." Our next step is to work with our new Lead role lo co-creale new support or connection options in addition to our core services, led by the insights of the people on our peer support register. Education Our educational webinars and conference sessions have reached over 2000 people working in heallhcare in the past financial year (Apr-marl. Sessions con51Stently rank highly with current data reading at 4.815 for speaker, slides, and session. The vast majority1980/ol of people would recommend the session and 99.10 would apply something they have learnt. Pre- and posl-session ratings all show an increase due lo the session in awareness (22 % +}, knowledge1260/.+l, and confidence (240/.+}. These sessions are integral lo the improvement of LGBTlQ+ cancer patient experience across the NHS and we continue lo expand our reach through posilive word-of-moulh recommendations. We are also actively exploring new ways to make the content more systemically available in NHS or clinical training. Strategy & Policy We have co-authored an EDI white paper on a European project that advocates for child. adolescent, and young adult survivors ICAYAS) of cancer with Youth Cancer Europe, funded by the European Commission. Similarly, we have contributed to an inequalities roundtable with Breast Cancer Now that informed a consensus statement from the sector and we have presented lo the All Party Padiamentary Group on Cancer IAPPGCI about inclusivity in cancer care. We worked with Macmillan to scope LGBTlQ+ people's eXperIen￿S of cancer and its treatments across the UK for an internal strategic report. We were able to report on 15 Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority diverse voices Ihrough in-depth inteNiews about their experiences. Common themes included diminishing oneself, feeling overlooked, not being supported in psychosexual concerns, concerns about confidentiality, receiving poorer care, and the lack of support available. Our report has helped to refresh both OUTpatients and Macmillan's strategies for LGB TlQ+ inclusion in cancer services and has set Ihe scene for even closer collaboration between the two organisations in the future. We have been working with pharmaceutical partners to consult on and facilitate co- production with our community lo discuss improved inclusion in medical Irials and cancer sector innovations. Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Financial Review Reserves £18,000 ReseNes are held in line with the Charity's Reserves Policy to cover core activity delivery lor a limited period and cover any costs associated with closure ol the organisation. Any addilional unrestricted funds are allocated to projects delivering on the organisation's objects by the Trustees and executive board. Risk Register Risks facing the Charity are held in our Risk Register, categorised inlo the lollowing sections.. Governance. External, Regulatory & Compliance, Financial. and Operational. This document is reviewed annually by Trustees, or al any point whereby a new risk is identified or previous risk modified. There are no current risks in the register that pose serious concern to the organisalion. Financial controls The charity operates with Trustee approval required for any purchase over £1000. Insurance OUTpalients is prolectéd by bother Public and Employer's Liability Insurance, secured via Scrutton Bland, insurance specialists for the Third Sector. Volunteer Contribution Volunteer peer support facilitation from Irained professionals. Delails of fund materially in deficit There is no deficil and the organisalion does noi plan lo operale with a deficil. Trustee expenses They have been no Trustee expenses or reimbursemenl in the reporting period. Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Statement of Financial Activities Unrestricted Rtistride Total 2022-2023 Income and endowmgnts from Donations and18g8￿88 Charitable actiwlies 11,819 £ 50,702 £ 11,819 £ 144,525 £ 2,353 182,504 93.823 £ Other tradlng aclvrties Invesb7)ents other 1.188 63.709 £ 1.188 157.533 £ Totsl 93.823 £ 184.851 Expèndlturè on Charitable acliwties 8,502 £ 356 £ 16,703 £ 25,205 £ 356 £ 27,988 Raising funds Oth8r direct o)8ts 3,534 £ 14,596 £ 26,988 £ 5,286 £ 73,051 £ 95,040 £ 8,820 87,647 £ 122.028 £ Supportcosts Totsl 88,971 116,959 Net gainslllossesl on investments Net In¢omell¢xpendllur•l Transf•r bth¥eèn fund$ 36,721 £ 11,2171 £ 35,505 £ 67,898 Other rgcognlsgd galnsl(103$9s1 Gainsllloss8sl on revaluation of fM8d assets Actuanal gainsllbssesl on d&fined benefit pension sch8rn85 Other gainslllossesl Not movemont In funds Reconcllllatlon of funds Total funds br(xJght for¥vard120231 Totsl funds carrtèd fopward 98,500 £ 135.221 £ 13.175 £ 11.958 £ 111,675 £ 147.180 £ 43.776 111.875 Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Balance Sheet Y•ar and 2024 Year 6nd 2023 Current assets Cash al bank and in hand 134,009 £ 7,655 £ 861 £ 93,541 17,530 Accounts re￿1vable Prepayments Creditors {falling due within one yearl Net current assets (liabilities) Total assets less current li8bililies 351 £ 8,673 102.397 104,254 104.254 142.174 £ 147.178 £ 147.178 £ Total net assets Funds of the Charty Endowment funds Restricted funds 11,957 135.221 Unrestricted funds Fair value reserve Total funds 147.178 Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Notes Accounting policies Basis of preparation The Charity is a public benefit entity and therefore has prepared the financial slalemenls in accordance with the Statement of Recommended Practice for charities registered in England and Wales. Going concern There are no malerial uncertainties related lo events or conditions that casl significant doubt on the charity's ability lo continue as a going concern. Functional currency The functional currency is presented as pound sterling as this is the currency of the UK economic climate in which we operate. The financial statements are presented in pound sterling, rounded to the nearest £1. Taxation The Charity has suffered no tax charge as it is not subject to UK Corporation lax on its charitable activities. All of the Charity s income in this period is charitable and is applied for charitable purposes. The charity is exempt from VAT on providing education under SCHEDULE 9.. Exemptions, Part I, Index lo exempt supplies of goods and services under Group 6 in the Value Added Tax Act 1994,. and Paragraph 4.4 of the UK Govemment Guidance= 'Education and vocational Iraining (VAT Nolice 7011301,. Depreciation Depreciation is provided to write off the cost of each asset over its useful life. Funds accounting General funds are unrestricted fijnds available for use at the discretion of the Trustees in furtherance of the general aclivities of the Charily and which have not been designated for other PLJrposes. Designated funds comprise funds which have been set aside at Ihe discretion of the Trustees for specific purposes. Restricted funds are funds SLJbject to specific restrictions imposed by donors or by the nalure of the appeal. Income Income becoming available to the Charity is recognised when there is entitlement to the income, probability of receipt, and amounts can be measured reliably as per FRS 102 SORP. Expenditure Cost of raising funds includes costs associated with the fund-raising events in furtherance of the Charity's objects. Charitable expenditure includes costs associated with particular aclivities in furtherance of the Charity s objects. Governance costs are those incurred in connection with the management of the Charity's assets, organisational administration, and compliance with constitutional and statutory requirements. Debtors and Creditors Short term debtors and creditors are measured at transaction price, less any impairment. Penslon scheme The Charity operates a defined contribution pension scheme. The amount listed in the financial notes is the Charity's contributions payable in the year. The assets of the scheme are held separately to the Charity. Critical accounting estimates and areas of judgement In the view of the Trustees in applying the accounting policies adopted. no judgements were required that have significant effect on the amounts recognised in the financial statements nor do any estimates or assumptions carry a significant risk of material adjustment in the next financial year. Rtrgisttrrtrd Charity 1190756 OOUTpatients Th• UK'S LGBTlQ+ Con¢•r Chority Income T